panel: cue in partnership- lisa simpson

Partnerships: What is Needed; What is possible

Dr. Lisa SimpsonPresident and CEO July 26, 2013

Lisa Simpson I have documented that I have no relevant financial relationships with any commercial interests to disclose or Conflicts of Interest (COIs) to resolve.

Outline

Setting the context What is needed? What is possible?

AcademyHealth: Improving Health & Health Care

AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work.

Together with our members, we offer programs and services that support the development and use of rigorous, relevant and timely evidence to:

1. Increase the quality, accessibility and value of health care,

2. Reduce disparities, and3. Improve health.

A trusted broker of information, AcademyHealth brings stakeholders together to address the current and future needs of an evolving health system, inform health policy, and translate evidence into action.

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Leveraging >5,200 Diverse, Expert Members & Organizations

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17 AcademyHealth Interest Groups

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Trends & Demands Fiscal environment

– Health care: need for value

– Research: sequester! Demand for more timely, relevant research while

maximizing rigor Expanding volume and variety of electronic data

(e.g. from EHRs) Demand for consumer, patient, and other

stakeholder involvement in all phases

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HSR 1.0

Health services research is the multidisciplinary field of scientific investigation that studies how social factors, financing systems, organizational structures and processes, health technologies, and personal behaviors affect access to health care, the quality and cost of health care, and ultimately our health and well-being.

Its research domains are individuals, families, organizations, institutions, communities, and populations."

HSR 2.0

What works? For whom? Under what circumstances? At what cost? And once we know what works, How do we implement it?

Outline

Setting the context Opportunities for consumer and patient

engagement

Patient/Consumer Engagement

In care In transformation

– At the practice level– At the system level

In research In research enterprise

Patient/Consumer Engagement

Patient centered outcomes research Community based participatory research Policy driven/relevant research Systems driven/relevant research

A Framework

for Consumer and Patient

Engagement

Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.

A Framework for Consumer and Patient Engagement (cont)

Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.

What is Possible?

Partner with AcademyHealth– Leadership Roles

– Funding Opportunities

– Meetings

– Fellowships/Scholarships

– Advocacy

What is Possible?

Partner with AcademyHealth– Leadership Roles

• Advisory Boards & Committees

• Program Committees

• Consumer-Patient-Research Roundtable

What is Possible? Partner with AcademyHealth

– Leadership roles

– Funding Opportunities• AcademyHealth/CUE Joint PCORI Submission:

Patient Consumer Research Academy (PCRA) submission

What is Possible? Partner with AcademyHealth

– Leadership Roles

– Funding Opportunities

– Meetings• National Health Policy Conference• Annual Research Meeting• Annual Delivery System Meeting• Annual EDM Forum Stakeholder Symposium

Conferences Health Policy Orientation

– October in Washington, DC– Limited to 50 participants

National Health Policy Conference (NHPC)– February 3-4, 2014 in Washington, DC– Nearly 700 attendees

Annual Research Meeting (ARM)– June 8-10, San Diego, CA– 2,400+ attendees anticipated

What is Possible?

Partner with AcademyHealth– Leadership Roles

– Funding Opportunities

– Meetings

– Fellowships/Scholarships• Innovators in Residence

What is Possible?

Partner with AcademyHealth– Leadership Roles

– Funding Opportunities

– Meetings

– Fellowships/Scholarships

– Advocacy

AcademyHealth Advocacy Interest Group

Facilitate interaction of individuals around specific topics around shared interests

Cultivate “grassroots” community:• Planning and facilitating annual “advocacy institute” at

ARM• Hosting 1-2 advocacy webinars per day• Participating in annual “Hill Day

Steering Committee meeting in December To join IG:

– Go to your my.academyhealth.org page, click “Join/Edit Interest Group Membership”

What is Possible?

Connect &/ partner with AcademyHealth

Connect &/ partner with AcademyHealth Members

What is Possible?

Partner with AcademyHealth Members– Become an AcademyHealth member

organization (affiliate) • Contact jane.brookstein@academyhealth.org or

call 202-292-6754

Research Partnership http://my.academyhealth.org/Home/

– Connect with over 5000 researchers about areas of interest and research opportunities

– Promote your skills, network – Search for funding opportunities

EDM Forum

Electronic Data Methods (EDM) Forum Goals– Work with the community to

identify cross-cutting• Challenges• Opportunities• Research priorities

– Provide opportunities for collaborative learning

– Ensure widespread promotion of tools, techniques, and findings

Join the DiscussionSign up at edmforum@academyhealth.org

In a Dynamic, Learning System; Dissemination Must Address the Journey,

Not Just the Destination HSR and medical journals

focus on research results.

Not ideally designed for:– Process– Engaging non-research

audiences– Discussion– Quick turnaround

Stakeholders increasingly perceive a need to rapidly disseminate “street knowledge”

eGEMS– “Electronic publications

Generating Evidence and Methods to improve patient outcomes”

– Papers, visualizations, and other media (audio/video) that provide guidance on the conduct of research and QI are invited

– Submissions evaluated on usefulness; credibility; novelty

– Facilitates discussion and collaboration

What is Possible?

Connect &/ partner with AcademyHealth

Connect &/ partner with AcademyHealth Members

Questions?Lisa Simpson, MB, BCh, MPH, FAAP

President and CEO