panel: cue in partnership- lisa simpson
TRANSCRIPT
Partnerships: What is Needed; What is possible
Dr. Lisa SimpsonPresident and CEO July 26, 2013
Lisa Simpson I have documented that I have no relevant financial relationships with any commercial interests to disclose or Conflicts of Interest (COIs) to resolve.
Outline
Setting the context What is needed? What is possible?
AcademyHealth: Improving Health & Health Care
AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work.
Together with our members, we offer programs and services that support the development and use of rigorous, relevant and timely evidence to:
1. Increase the quality, accessibility and value of health care,
2. Reduce disparities, and3. Improve health.
A trusted broker of information, AcademyHealth brings stakeholders together to address the current and future needs of an evolving health system, inform health policy, and translate evidence into action.
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Leveraging >5,200 Diverse, Expert Members & Organizations
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17 AcademyHealth Interest Groups
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Trends & Demands Fiscal environment
– Health care: need for value
– Research: sequester! Demand for more timely, relevant research while
maximizing rigor Expanding volume and variety of electronic data
(e.g. from EHRs) Demand for consumer, patient, and other
stakeholder involvement in all phases
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HSR 1.0
Health services research is the multidisciplinary field of scientific investigation that studies how social factors, financing systems, organizational structures and processes, health technologies, and personal behaviors affect access to health care, the quality and cost of health care, and ultimately our health and well-being.
Its research domains are individuals, families, organizations, institutions, communities, and populations."
HSR 2.0
What works? For whom? Under what circumstances? At what cost? And once we know what works, How do we implement it?
Outline
Setting the context Opportunities for consumer and patient
engagement
Patient/Consumer Engagement
In care In transformation
– At the practice level– At the system level
In research In research enterprise
Patient/Consumer Engagement
Patient centered outcomes research Community based participatory research Policy driven/relevant research Systems driven/relevant research
A Framework
for Consumer and Patient
Engagement
Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.
A Framework for Consumer and Patient Engagement (cont)
Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.
What is Possible?
Partner with AcademyHealth– Leadership Roles
– Funding Opportunities
– Meetings
– Fellowships/Scholarships
– Advocacy
What is Possible?
Partner with AcademyHealth– Leadership Roles
• Advisory Boards & Committees
• Program Committees
• Consumer-Patient-Research Roundtable
What is Possible? Partner with AcademyHealth
– Leadership roles
– Funding Opportunities• AcademyHealth/CUE Joint PCORI Submission:
Patient Consumer Research Academy (PCRA) submission
What is Possible? Partner with AcademyHealth
– Leadership Roles
– Funding Opportunities
– Meetings• National Health Policy Conference• Annual Research Meeting• Annual Delivery System Meeting• Annual EDM Forum Stakeholder Symposium
Conferences Health Policy Orientation
– October in Washington, DC– Limited to 50 participants
National Health Policy Conference (NHPC)– February 3-4, 2014 in Washington, DC– Nearly 700 attendees
Annual Research Meeting (ARM)– June 8-10, San Diego, CA– 2,400+ attendees anticipated
What is Possible?
Partner with AcademyHealth– Leadership Roles
– Funding Opportunities
– Meetings
– Fellowships/Scholarships• Innovators in Residence
What is Possible?
Partner with AcademyHealth– Leadership Roles
– Funding Opportunities
– Meetings
– Fellowships/Scholarships
– Advocacy
AcademyHealth Advocacy Interest Group
Facilitate interaction of individuals around specific topics around shared interests
Cultivate “grassroots” community:• Planning and facilitating annual “advocacy institute” at
ARM• Hosting 1-2 advocacy webinars per day• Participating in annual “Hill Day
Steering Committee meeting in December To join IG:
– Go to your my.academyhealth.org page, click “Join/Edit Interest Group Membership”
What is Possible?
Connect &/ partner with AcademyHealth
Connect &/ partner with AcademyHealth Members
What is Possible?
Partner with AcademyHealth Members– Become an AcademyHealth member
organization (affiliate) • Contact [email protected] or
call 202-292-6754
Research Partnership http://my.academyhealth.org/Home/
– Connect with over 5000 researchers about areas of interest and research opportunities
– Promote your skills, network – Search for funding opportunities
EDM Forum
Electronic Data Methods (EDM) Forum Goals– Work with the community to
identify cross-cutting• Challenges• Opportunities• Research priorities
– Provide opportunities for collaborative learning
– Ensure widespread promotion of tools, techniques, and findings
Join the DiscussionSign up at [email protected]
In a Dynamic, Learning System; Dissemination Must Address the Journey,
Not Just the Destination HSR and medical journals
focus on research results.
Not ideally designed for:– Process– Engaging non-research
audiences– Discussion– Quick turnaround
Stakeholders increasingly perceive a need to rapidly disseminate “street knowledge”
eGEMS– “Electronic publications
Generating Evidence and Methods to improve patient outcomes”
– Papers, visualizations, and other media (audio/video) that provide guidance on the conduct of research and QI are invited
– Submissions evaluated on usefulness; credibility; novelty
– Facilitates discussion and collaboration
What is Possible?
Connect &/ partner with AcademyHealth
Connect &/ partner with AcademyHealth Members
Questions?Lisa Simpson, MB, BCh, MPH, FAAP
President and CEO