rainbows autumn/winter newsletter 2012

• Meet the Staff

• Our Royal Visit

• Chloe’s Story

Autumn/Winter 2012

Our new Charity Shops are opening.Have a look, they look fab.

See back page for details

Also in this issue:

Keep an

eye on our

‘top tips’

for easy ways

to fundraise

02

Contents:

03 Ourroyalvisit

04 HydrotherapyatRainbows

05 Thepatronsoffersupport

11 Meetsomeoftheteam

13 OurChelseagarden

14 BusinessClubupdate

John and Naomi’s daughter, Chloe, had complex needs which required round-the-clock care. Sadly, she passed away at Rainbows after battling many conditions including an acute neurological disorder, cerebral palsy and underlying heart conditions.

MumNaomi,said:“Chloewasafighterandshewentonherownterms.Shehadmadeuphermindthatshe’dhadenough.

“Thefamilyisjustsothankfulthatshewasn’tinpain,thatshewassurroundedbycarerswhoknewherwellandthatIgottobebyhersidewhenthemomentcame.”

Chloe,whohadbeencomingtoRainbowssinceJuly2010,waswell-knownforherirresistiblesmileandwickedsenseofhumour.

DadJohnsaid:“Shemadeeverybodysmile.Everyoneshemetshetouchedinsomeway,shapeorform.”

OverthepasttwoyearsRainbowsactedasalifelinetotheSpencersandasaresultNaomiandJohndescribethestaffasanextendedfamily.

Naomisaid:“WewerereferredtoRainbowsfollowingaparticularlydifficulttimewhenChloebecameincrediblyunwellandspentsixmonthsinintensivecareatLeicesterRoyalInfirmary.

“Theirsupportmeantsomuchtous,itprovidedmyselfandJohnwithsomerespite,andgaveChloethechancetoenjoynewexperiencesandgainindependence,whilealsoallowingouryoungerdaughter,Hannah,(6)tospendtimewithotherchildrenwhohadsimilarfamilybackgrounds.”

Chloe’sgrandparents,JillandGeraldSpencer,said:“WewouldliketothankeveryonewhohasplayedtheirpartinlookingafterChloeandthefamily.

“Withoutthatsupportwewouldnothavebeenabletoenjoyallthegoodtimessowethankyouallfromthebottomofourhearts.”

A wonderful year for royalty and sport.Thisyearhasbeenayearof

celebrationwitheventsincludingtheQueen’sDiamondJubileeand

theOlympics.Ithasbeenwonderfultoseepeoplejoiningtogethertocelebrateandenjoytheseoccasions.

ThatiswhatwedoatRainbows–weenjoyeachdayasapreciousgiftandwecelebrateeachachievement.

Wehavehadawonderfulyear–wehadaRoyalvisitfromPrincessAlexandrawhonotonlyvisited,butalsotookthetimetospeaktochildren,youngpeopleandfamiliesaswellasstaffmembers,andshemadeeachonefeelspecial.

TheChelseaFlowerShow,forthefirsttime,hadabeautifulRainbowsGardenwhichhasnowcometothehospiceandweareveryproudtoannouncethatitwonaSilverMedal.

Inthisissueyouwillmeetsomeofthepeoplewhoworkhere,andlearnmoreaboutwhatgoesonatthehospice,theoutstandingcare,thelovelyfacilitiesandourfantasticchildrenandyoungpeople.

Ihopethatyouareenjoyingcelebrating2012.Abigthankyouforreadingournewsletter,noneofthisispossiblewithoutyoursupport.

DanaSimonsEditor01509638028dana.simons@rainbows.co.uk

Your Support Means so Much

The Spencer Family Tell us Why

Rainbowsnews03

HerRoyalHighnessPrincessAlexandrawatchedthechildrenandyoungpeopleatRainbowsgettingcraftyforChildren’sHospiceWeekwhenshevisitedinMay.ThePrincessjoinedthechildrenandyoungpeopleastheyfinishedtheirpreparationsforthecharity’sSuperheroFridayandannualWalkofLife,partofthenationalChildren’sHospiceWeekactivity.Thechildrenweremakingsuperheromaskstobeusedonthedaysoffunandfundraising.

ThePrincesswasgivenaguidedtourbyourChiefExecutiveGeoffEllis.HerRoyalHighnessheardfromstaffabouttheprofessionalcareandsawthewonderfultherapyfacilities.

AttheendofhervisitPrincessAlexandrawaspresentedwithaposyofflowersbyEllieNemeth,agedsix,whoissisterofThomaswhoattendsRainbows.

WeweredelightedtowelcomeHRHPrincessAlexandratoRainbowsandtohavetheopportunitytoshowherthefacilities.ShewasabsolutelywonderfulandtookgreatcaretoensureshewaspersonallyintroducedtoeveryoneatRainbowsduringhertour.WehopehervisitwillinspirepeopletosupportRainbows.

Assheleft,PrincessAlexandraremarkedonhowmarvellousthefacilitiesatRainbowswereandwhatawonderfulatmospheretherewasatthehospice.

BeaTreasureandDonateYourUnwantedJewelleryIfyouhaveanyunwantedjewelleryyoucanturnitintorichesforRainbows.SimplysendittousatLarkRise,Loughborough,LE112HSordropitintooneofourshops.Thankyou.

A Royal Visitor Joins In Our Hospice Week Fun

Top Tip:

Ifyouknowany

celebrities,askthem

tovisitthechildrenat

Rainbows.

A Big Jubilee Garden PartyLeicesterbasedmarketingagency,Big,celebratedtheQueen’sDiamondJubileewithagardenpartyforRainbows.

ThescenewassetforthepartywithbrassbandmusicandUnionJackbuntinggalore.Therewerevariousgamesthroughouttheafternoonincluding“PinthecrownontheQueen”.Therewasalsoa“BakeacakefitforaQueen”competition,andallofthehomemadecakesweresoldtoraisemoremoney.

MikePhillipson,ManagingDirectoratBigcommented:“BighasbeensupportingRainbowsforoverthreeyearsnow,raisingmoneyfromeventssuchassponsoredruns,dragonboatracing,quizzes,auctionsandbingo.It’saveryworthycauseandthepartyhashelpedtoraisemore,muchneededmoneyforRainbows.”

04

OurHydrotherapyPoolopenedattheendof2010andit’snowoneofthefavouritetherapyareasatRainbows.

Thechildrenaregettingalotofenjoymentfrombeinginthewaterandtheyreallybenefitfromtheirsessions–thepooltherapyhelpstoeasestiffjoints,relieveachesandpainsandincreasemobility–allveryimportantforyoungpeoplewhouseawheelchair.

Evenchildrenwhowouldnotnormallybeabletogointoapoolhaveenjoyedaswim,thankstoourspecialiststaffandequipment.Childrenwithtracheotomies

andthosewhoarefullyventilated(usingaventilatorallthetimetobreathe)are,probablyforthefirsttimeintheirlives,usingapoolandlovingit!

Rainbowshasalsowelcomedphysiotherapiststothehospicetoworkinthehydrotherapypoolwithchildrentheyarecurrentlytreating.

Outsidegroupsincludingtwobabyswimgroupsandspecialschoolsalsocomealong.Wecanonlyrunthepoolwiththefundraisingsupportofpeoplelikeourreaders–thankyou!

TheBrearley’sFamilyWalkOnthelastdayofthefootballseasonDad,Lee,withhistwochildren,ConnorandCharlotte,walked15milesfromtheirhometoNottsCountyfootballgroundandraisedover£1,800.

ZipWireThisyearsawthefirsteverZipWireeventacrossPrideParkStadiuminDerbywhere80peopletookupthechallenge.Evenoneofourfamiliestookpart–thankstoeveryone,especiallytheFurlongs.

OurHydrotherapyPoolisLovedbyAll

David Nieper Ltd Match FundsSupervisorSueCookeandMDChristopherNieperarepicturedhandingovertheproceedsofaseriesoffundraisingeventsallofwhichwerekindlymatchedbythecompany.Theyhaveraised£2,300todateandcontinuetofundraise!

RainbowsCircleofFriends“IhavebeenasupporterofRainbowssincetheverybeginningandhelped,whenable,toraisefundsinmanydifferentwaysbutRainbowshasneverhadaguaranteedincome.”

DavidFrench,amemberoftheCircleofFriendssays:“TheCircleofFriendswillhelpbyallowingthefinanceteamtobudgetinamorepredictablewayfortheeverydayneedsofthehospice.”

“Idohopeyouwilljoinmebybecomingamember..”

OurCircleofFriendsisaschemewhereyougiveasmall,monthlydonationtoRainbows.Tofindoutmorevisitwww.rainbows.co.uk/circleorcallDanaSimonson01509638028.

Ourpatrons05

OurPatronsTurnOutForWilliamRoache’sGolfDayInspiteofthetorrentialrain,CoronationStreetstarandRainbows’Patron,WilliamRoacheMBE,wasjoinedbymanyofhiscelebrityfriendsforawonderfuldayofentertainment.

Organisedbyoneofourbiggestsupporters,Champions(UK)Plc,guestsweretreatedtoawonderfuldaywithcelebritiesandentertainment.WiththecoursefloodedintheheavyrainthathitLeicestershire,theentertainmentmovedindoors,wheresnookerlegendandRainbowsPatronWillieThornehostedafascinatingQandAsessionwithsomeoftheimpressivelistofcelebritieswhoturnedoutfortheevent.OtherPatrons,includingEngland’smostcappedfootballereverPeterShiltonOBEandMatthewHoggardMBEjoinedsomeofthecelebritieswhosharedstoriesfromtheirexperiencesattheverytopoftheirsports.

Street partyResidentsofWesternParkRoadinLeicestercouldn’twaitfortheirDiamondJubileestreetparty,soheldtheircelebrationsaweekearly.Nearly100peoplesatdowntolunchinthestreet,whichwasclosedofftotrafficfrommiddayto4pm.

AlexisHutson,oneoftheorganisers,said:“Itwasbrilliant.Wehadthebestweather.Wehadthekidsrunningupanddownthestreetplayingbecausetherewerenocars.Itwasjusthowwehopeditwouldbe.Wedecidedtogoaweekearlysowecouldsaywewerethefirstandbecausethiswaswhenwewouldgetthemostpeople”.

Therewasaraffle,football,cricketandabouncycastle.About£300wasraisedforLOROSandRainbowshospices.

Strictly Champions with Anton and Erin

Champions(UK)Plccontinuedtheirsupportfor

RainbowswithafabulouseveningfeaturingStrictly

ComeDancing’sAntonandErin.Guestswere

treatedtoaneveningofsophisticatedentertainment

whichincludedabrilliantdancedisplaywhichhad

theaudienceontheirfeet.Championscontinueto

befantasticsupportersraisingover£150,000for

Rainbowslastyearandtheyarealreadyontheirway

tomatchingthatamazingtotalthisyear.Thankyouso

muchtoJohnHayesandalltheteamatChampions.

MatthewHoggardisaRainbowsSuperheroMatthew Hoggard MBE is already a cricketing hero and now he has become a hero for Rainbows Hospice too.

AswellasofficiallystartingtheannualRainbowsWalkofLife‘SuperheroSunday’,theLeicestershireCountyCricketClubcaptainisalsobecomingaPatronofthecharity.

OnavisittothehospiceMatthewsaid:“MymanagementteamatChampionsdoesalotofworkwithRainbowsandtheytoldmeaboutthehospice.MywifeandIareluckythatoursonishealthy,butsomeparentssadlyhavetofacethefactthattheirchildwon’tlivethefulllifethey’dhopedforthem.Rainbowsisthereforthosechildren,theirparents,siblingsandotherfamilymembers.

“Anythinganyofuscandotohelpthisincrediblecauseisworthwhile.”

100YearsofFashion1900-1999RainbowssupportersAnnieTaylorandFelicityAustinorganisedahistoricfashionshow.Itfeaturedoutfitsfrom1900to1999,togetherwithnews,musicandsongsfromeachdecade,plusafewiconicdancesandsurpriseitems!Itwasafantasticnightandthevenuewasabsolutelypacked.Anamazing£2,000wasraisedforRainbowsandLymphomaResearch.

06 CelebrityLuncheon

AngelahasbeenafamiliarfaceandvoiceinBritishbroadcastingfor45years.Shetalkedabouthercareer,whichhasembracedanimpressivevarietyofprogrammesonbothradioandtelevisionforbothcommercialandBBCstationsinBritain,andformajornetworksinAmericaandAustralia.Inthe2004Queen’sBirthdayHonoursshewasawardedanOBE.

ShecurrentlypresentsandappearsonCashintheAttic,RipOffBritainandTheOneShow.

Over300ofoursupporterslistenedtoAngleaspeak.Angelawassomoved

hearingaboutRainbowsthatsheagreedtobecomeapatronshortlyaftertheluncheon.

RainbowswasdelightedwhenpopularTVpersonality,AngelaRippon,OBE,agreedtobetheguestspeakerattheannualcelebrityluncheon.WewereevenmorethrilledwhensheagreedtobecomeaPatronofthehospice.

Top Tip: Keepaneyeoutforourlatesteventsat

www.rainbows.co.uk/events

was a huge success

Angela Rippon’s Celebrity Luncheon

SallyisTopDog

RainbowsAmbassadorsSueandPatJones,wentalongtotheCompanionDogShowheldinEyresMonsell,byJanetHiggins.Theydecidedtotakealongtheirrescuedog,Sally....whothenproceededtowin1stprizeinRescueDog,3rdinSportingDogandwasoverallBestinShow.Notbadforalastminuteentrant.WelldoneSally!

A Summer Serenade‘SingingintheRain’wasnotthecasefortheSummerSerenadeheldinthebeautifulgroundsofSpencerHouseinNuthall.NoelandMegJervisinvitedover250peopletogatherforaneveningofoperaandmusicaltheatre.Afantastic£7,000wasraisedforRainbowsandagreattimewashadbyall.

AtRainbowswearealwaysveryhumbledbyhowpeoplechallengethemselvestosupportusbyholdingtheirownfundraisingevents.Forsomeitcouldbeasponsoredsilence,Knitathonororganisingacoffeemorning.ForothersitcouldbeanythingfromclimbingKilimanjaro,skydivingortakingpartinoneofoursponsoredwalks.TherearemanyamazingpeoplewhosupportRainbows.JustoneofthemisNicholeDryburghwhohaslinkswiththehospiceasherDadwasavolunteerhereformanyyears.Sadly,theyhavehadtodealwithalotoffamilyillnessandNicolawantedtoorganiseaneventtoraisefundswhilstalsounitingfamilyandfriends.ShearrangedaCharnwoodWalkforLifewhichstartedinQuornandtravelled15kmtoOldJohninBradgatePark.Shemanagedtoget50walkerstotakepartandraisedanimpressive£2,277.

Therearealsoawiderangeofdifferenteventsandchallengestotakepartinlistedonthewebsitefromluncheonsandshowstoextremeandadrenalinewww.rainbows.co.uk/events.

Events News

Eventsspecialpull-out

Steve’s Amazing Golf ChallengeRainbowsAmbassadorandCharnwoodForestGolfCaptain,SteveAckling,recreatedachallengefirstundertakenbyHarryFlude,amemberatCFGCgolfclub,in1913.Hehadtocomplete150holesinunder14hours!Steveteedoffat5amaimingtoplayoveeightroundsofgolfinanaveragetimeofjustover90minutesper18-holeround.Hisfamilyandfriendsagreedtohelpbycaddyingandball-spotting.Wearedelightedtoannouncethathecompletedthe150thholeafter13hours50minutes,therebycompletingthechallengewithtenminutestospare.Heraisedanamazing£1,954.

A Splash at the Rotary SwimarathonThisyear’sGranthamRotarySwimarathonattracted1,400swimmerswhoraisedanamazing£37,187for50localcharitiesincludingRainbowswhoreceived£500.

Top Tip: Whateveryoureventidea,Rainbowshasateam

ofpeoplewhocansupportyou.Getintouchon08009521133or

fundraising@rainbows.co.uk

Events special pull-out

Join in the Handbag AmnestyDoyoulovehandbags?Well,joininourHandbagAmnesty.Thisisagreatopportunitytodonateabag,buyabagororganiseyourownHandbagAmnestyevent.

Bringoutthoseneglectedtreasuresanddonateyourpre-lovedhandbagstoRainbows.ThencomealongtooneofourHandbagAmnestyeventsandtreatyourselftosomereplacementbags!It’sagreatwaytoraisemoneyforRainbowsandtreatyourselfintheprocess!

TofindoutaboutournexteventorforsomeideasonholdingyourownAmnesty,contactYvonneon01530224579oremailyvonne@caleys.org.

Rainbows Open Day At Rainbows Saturday15thSeptemberbetween10.30amand3.00pm

Comeandseehowyourkinddonationshelp.Sitintheaward-winningChelseaGarden,tourthehospice,meetourstaffandenjoyourrefreshmentsandstalls.It’sfreeandeveryoneiswelcome.

Derby Concert Band DerbyCathedralSaturday15thSeptemberat7.30pm

It’saveryBritishcelebration–aneveningofgreatmusicfromtheimpressiveDerbyConcertBand.Tickets£10(under16sfree).

Spring into Style Fashion Show PrestwoldHall,LoughboroughThursday18thOctober2012at6.00pm

Whenthenightsaredrawingin,whatbetterwaytocheeryourselfupthanwithsomeretailtherapy?ComeandseethelatesttrendsforSpringandhaveaniceglassofbubbly.AllourguestsgetafreegoodybagandcanapéscourtesyofoursponsorsModelzed.Tickets£20perperson.

Festival of Fireworks LeicesterRacecourseSaturday3rdNovember2012from5.30pm

Thisisoneofourmostpopularevents,sobookearly.Thisyearwe’llbecelebratingthe10thyearofourFestivalofFireworks,socomealongandbethrilled.There’sahugebonfire,funfair,entertainments,stalls

andofcoursefireworks!Advancetickets£5.00(under5sfree).

Fright NightSwadlincoteChurchFriday9thNovember2012between8.00pmand4.00am

Beoneofthefirstpeopleevertospendanactionpackednightina100yearoldspiritualistchurchwherelotsofparanormalactivityhasalreadybeenrecorded.LedbyoneoftheUK’sbestparanormalinvestigators.Youreveningincludes:aghostwalk,workingwiththeparanormalteamandmediums,participatinginworkshopsusingdowsingrods,tabletipping,infraredandnightvisioncamerasandghosthunting,carryingoutvigilsandséancesinthemostactiveareasoftheChurch.Tickets£45.00perperson.

Autumn events

Carol concerts

All tickets cost £5.00 and are available online at www.rainbows.co.uk/events

The Loughborough Carol Concert EmmanuelChurchWednesday5thDecemberat7.30pm

Joinusforafestivesingalongwithlocalschools,guestsoloistsandtheRainbowsChoir.

Grantham Carol Concert StWulfram’sChurch,GranthamThursday6thDecemberat7.30pm

AeveningwithawonderfulselectionoftraditionalandmodernChristmasmusicperformedbylocalschools.You’rewelcometosingalong!Allfollowedbydeliciousmincepiesandfruitpunch.

The Repton Christmas Concert ReptonChurchFriday7thDecemberat7.30pm

EnjoyaneveningofmusicfromchoirsincludingDerbyshireConstabularyMaleVoiceChoir,mulledwineandmincepies.

The Leicester Carol Concert StJamestheGreaterMonday10thDecemberat7.30pm

Joinusforafestivemedleyfromlocalschools,guestsoloistsandtheRainbowsChoir.HostedbyBBCRadioLeicester’sDaveAndrews.

The Derby Christmas Concert DerbyCathedralWednesday12thDecemberat7.30pm

Enjoyaneveningoffestivemusic,mulledwineandmincepies,includingperformancesfroma100voicechildren’schoirfromlocalprimaryschools.

The Nottingham Carol Concert WilliamBoothMemorialHallFriday21stDecemberat7.00pm

JointheNottinghamSalvationArmyforanightofcarolsandfestivemusic.

Santa runs

Christmas events

Christmas Fair

15th November, 9.30am - 4pm.

Holme Pierrepont Hall, Nottingham.

Browse 40 festive stalls offering a variety

of Christmas gifts and speciality foods.

Refreshments and lunch are available.

Top Tip: Tellusaboutanythingyou’redoingforRainbows,bigor

small.Wecanhelpyoualongtheway.

SantaFunRunsareagreatwaytokickoffChristmas.AllentrantsgetafreeSantasuitandeveryoneisguaranteedtohaveafabtime.Ifyoudon’tfancyrunning,justhaveanicewalkaroundoneoftheroutesinstead!

Registrationcosts£10peradultand£5perchildandincludesafreeSantasuit.Visitwww.rainbows.co.uk/events

7th Great Loughborough Santa Fun RunLoughboroughUniversity,Sunday9thDecemberat11.00am

Joinover1,000otherSantasandrun,jog,walkorstrolltheflat6kmroute.It’safun-filledeventwithplentyofentertainmenttokeepyougoing.Youmayalsoseesomefamousfacesamongstyou!BookyourplacebycallingRotarianDavidHollinson01162290495.

Elvaston Castle, Derby Sunday,9thDecemberat11.00am

JoinhundredsofSantasforDerbyshire’sSantasontheRunevent.PutonyourfreeSantasuitandrun,jogorwalkthe2.2milerouteandforthemoreseriousrunnerstherewillbea4.4milerouteasyouheadroundthecoursetwice!

Rushcliffe Country Park, Nottingham Sunday,16thDecemberat11.00am

Abeautifulrunaroundthepark.

Thisisafantastic,scenicroutearoundRushcliffePark.Theair’sclearandyou’llbeabletospotsomeinterestingwildlifealongtheway.

All Year Round – Home & Overseas ChallengesFromskydivingandwhitewaterraftingtoconqueringMountKilimanjaroordogsleddinginSweden,thereisachallengeofalifetimeforeveryonewhateveryourleveloffitnessortimecommitment.Visitourwebsiteorcontactustofindoutmore.

For details on any of our events please visit our website www.rainbows.co.uk/events or call the events hotline on 0800 952 1133.

New events are being added regularly!

Events special pull-out

DuringChildren’sHospiceWeekweaskedourbusinesssupporterstodustofftheirsuperherosuitanddosomethingheroiconSuperheroFriday.KateGolding,CorporateFundraiserforRainbows,said:“Thereweremanywaysbusinesseshelpedus;creativetypeslikeSytnerBMWstaffwenttoworkdressedassuperheroes.CarphoneWarehouse,M&S,ChucklebuttiesandIkanoheldheroiccakesalesandhadfunatwork.Thebrave,likeTGWandtrentbarton,dressedupandwentfundraisinginpublic!”

SteveGough,ManagingDirectoratSytners,said:“SuperheroFridaywasgreat.OurSytnerSuperheroconvoytravelledaroundourMidlands’dealershipsinthenewMINIRoadsterandtheMINICoupécollectingmoneyforRainbows.Wealsoheldinternalcakesalesforourstaffandcustomerstoindulgein.Ourfinalstopwasat Rainbows,wherewehandedoveragiantchequeforallmoneyraised.”

ThebraveAngelaHickinbottomfromTGWsaid:“WealwayshavealotoffundoingSuperheroFriday,itmakespeoplelaughwhentheyseeusbutitmeanswegettoraisemoneyforthecharity.I’msuretherewillbeaSuperheroFridaynextyearandIamsuretheladiesatTGWLtdwillbetakingpart–thedifficultpartisthinkingupnewcostumestowear.”

SuperheroFridayWasKapow!

Top Tip: Getinvolvedinnextyear’sChildren’sHospiceWeek,seewww.rainbows.co.uk/hospiceweek

Did it Again!

Our Super Walkers

The annual Rainbows Walk of Life was another fantastic event which took place as part of Children’s Hospice Week. Our 600 plus superheroes had a great walk.

ForafiveyearoldlittlegirlcalledOliviaFurlongandherfamily,theirchallengewastowalk5miles.Shesethersightsonclockingupanimpressive£50target,butdonationssprintedpastthe£600markinjustafewweeks.

Todateshehasraisedover£1,500andalsoraisedawarenessofwhyRainbowsissoimportant-somethingthefamilyknowfirsthand.Oliviaisaveryspecialgirlinmanyways.HerbrotherWilliamneedsalotofspecialistmedicalcareandspendstimeinhospital,butOlivianevercomplainsanddoesherbesttohelpoutwherepossible.

Sheistrulyacaringbigsisterwholovesherlittlebrotherverymuch.OliviahasstayedatRainbowswithherbrotherandtherestofthefamilyandknowswhatanamazingplaceitis.

MumAli,ofMickleover,said:“Itwasquiteabigthingforhertodobecausesheisstillonlylittleherself.ButshewasdeterminedshewantedtodosomethingtoraisemoneyforWilliamandhislittlefriendsatRainbows.Sheissuchanamazinglittlegirl.”

Oliviasaidshewasexcitedtobetakingpartinthewalkandthatshecouldn’twaitto“dressupasasuperhero”and“raisealotofmoneyforWilliamandhisfriends”.

OurChelseagarden11

Inthelastmonthsof2010,Harry’sconditiongotworse.Repeatedchestinfectionsandnumerousepilepticfitsmeanthewasinandoutofhospital.OnaSaturdaynightinearlyDecember,LucyandTimweresettlingdownforatakeawaymeal,“butHarrygotsobadsoquicklythatnight,thatweheadedstraightforRainbows.”

It’sadreadfultime,preparingtosaygoodbyetoyourdyingson,butthosefinaldaysatRainbowswereeverythingLucyandTimhadhoped.HarrydiedonFriday17thDecember2010.“Itwasso

sad,andyetupliftinganddecentatthesametime”,saysLucy.

Lucysaid:“EveryoneatRainbowswasfantasticduringHarry’slastdaysandwhileTimandIwereabletogetoutsideoccasionallyforsomefreshair,therewasnowherespecificallyforustogotobealonewithourthoughts.ThereisabeautifulgardenofremembranceatRainbows,butthatwasn’tsomewherewecouldfacespendingtime.Atranquilgarden,liketheoneatChelsea,wouldhavebeenperfectforuswhenHarrywasdying.”

Come to Our Open Day and See the Award-winning Chelsea GardenOurPresident,TheDuchessofRutlandtogetherwithparent,LucySmithandnewPatron,TVcelebrityAngelaRippon,openedacontemplationgardenduringChildren’sHospiceWeekattheworldfamousChelseaFlowerShow.WeweredelightedwhenitwasawardedasilvermedalandevenmorepleasedwhenBluePeterdecidedtocometoRainbowstofilmit.

TheGardenisaplaceofrelaxationandreflection.Itprovidesatranquilplacetohelpparentsandstaffdealwiththeextremelyemotionalday-to-daychallengesofworkingandlivingwithlife-limitedchildren.

FreemasonsfromLeicestershireandRutlandalongwiththeGrandCharitymadehugelygenerouscontributionstoensurethatthegardenwasfullyfundedtoberecreatedwithinthehospiceandwillbeofficiallyopeningitduringouropendayonthe15thSeptember.

WithadditionalsponsorshipfromArchCommunicationandplantinghelpgivenbyBBCRadioLeicester’sgardeningexpertandHonoraryAmbassador,AdyDayman,thegardenhasbeencreatedbydesigner,ChrisGutteridgewithaninteractiveelementprovidedbyDeMontfortUniversity’sRetailLab.

Our Parent and Carer Group is a Place for SharingThewordsofonemothersumitup:“It’ssomewheretoshareourstories;happyandsad,ourconcernsandourtriumphs,withpeoplewhodonotjudgeandknowhowwe’refeeling.Aplacetogettheinformationyouwishedtheprofessionalswouldtellyou.”

Thegroupgivesparentsandcarerstheopportunitytobewithotherswhosharetheirexperiences.It’syoursupportthathelpsusrungroupslikethis.

New garden will provide valuable

space for families to reflect

LucySmith’sson,Harrywasbornwithadebilitatingandlife-limitingdegenerativecondition,whichwassorareitstillhasnoname.Hisolderbrother,Thomas,hadthesamecondition.Thomasdiedattheageof10in2004,butheneverwenttoRainbows.

The Chairman Pulls Out The StopsCouncillorBrianWrightandhiswifeSuespentayearorganisingaseriesoffundraisersduringBrian’syearasChairmanofNorthEastDerbyshireDistrictCouncil.Theyraisedover£10,000–AMAZING.

12

OurDiversityForumarrangedaJubileecelebrationthatrecognisedthegreatdiversityoftheCommonwealth.EveryonedressedupeitherwithaCommonwealththeme,intheirbestgardenpartyoutfitorinred,whiteandblue.Weevendecoratedthehospice,sothatonthedayitwasfitforaQueen.

ThecelebrationstartedwiththewonderfulsteelbandfromStAndrew`sSchool,and includedcreamteaonthelawn,amusicgameandfashionparade.

MakeaWillMonth

AHUGEthankyoutoeveryonewhotookpartinRainbowsMakeAWillMonthinMay.

Onesupportersaid:“Ithinkit’sanexcellentideaaswe’renotfinanciallyabletodonateverymuchatthemoment,butfeelveryhappythatwe’vehadtheopportunitytoarrangeawillandleaveadonationintheprocesswhichIprobablywouldneverhavethoughtofotherwise.”

ThroughoutthemontheighteenlocalsolicitorsofferedtheirWill-writingservicesatareducedrate. SomesupportershavemadeadonationandothershavepledgedtoleavesomethingtoRainbowsintheirWill. 

LegacygivingisanimportantpartoftheCharity’sannualincomeandgiftsgreatandsmallmakearealdifference.

ManypeoplehavelovedoneswhomtheywishtoconsiderwhentheywriteaWillbut,afterrememberingthosespecialtoyou,pleasespareathoughtforRainbowsandhelptosecureourfutureforyearstocome.

IfyouwouldliketospeaktosomeoneatRainbowsaboutlegacies,pleasecallHelenon01509638027.

An Amazing Result from Rebecca’s SchoolStudentsfromYear6attheCarltonleWillowsAcademyinNottinghamraisedastaggering£10,000duringtheirannual‘EffortsWeek’.ThemoneyraisedwassplitbetweenfiveverydeservingCharitiesandRainbowshadbeenchosenforaveryspecialreason.RebeccaVanWyk,ateacherattheschool,usesRainbowswithherdaughter,Maralise.ShefindsthecareandsupportshereceivesattheHospicealifelinetohelpherdealwithherdaughter’sverycomplexneeds.RebeccawasverytouchedthatthestudentshadchosentosupportRainbowsandwasabletobothattendandspeakatthechequepresentation.

Our Diamond Jubliee Celebration

Our Learning Disabilities NurseMaggieSmalequalifiedasaLearningDisabilitiesNurseinPortsmouthin1982andthenworkedfortwelveyearswithchildrenwithlearningdisabilities.ShehasbeenatRainbowssince2010.

Maggiesays:“Iloveworkinghere–everydayisdifferent,bringingitsownchallenges.IusealltheskillsIhadbeforeandIhavelearntnewonestomeetthosechallenges.Thechildrenandfamiliesarefantastic–thereareverygood,happytimesandtheinevitablesadtimes.

ThebestkindofdayiswhenIhavebeenabletotakeachildwhohasspentalotoftimeinhospitalintothehydrotherapypooloroutonatrip.Maybetheycanhaveafirsttimeexperienceofthemulti-sensoryroom,justgenerallyenjoylife.

IamstillalwaysanursebutsomuchmoreatRainbows”.

Duringhertimehere,shehasworkedwithhundredsofchildren,youngpeopleandtheirfamilies.Becauseofherexperienceandfriendliness,threeyearsagoshewasappointedtoworkasourFamilyLiaisonWorker.HerjobistosupportthosefamiliesthatkindlychoosetohelpRainbowsfundraise.

Juliesays:“Ittakesalotofcourageforourparentstostandupataballorafundraisingeventtotelltheirstory.It’sanincrediblyemotionalexperienceforeveryonewhenamotheristalkingtoajournalistaboutthechildshelost.I’mthereforthemeverystepoftheway.

“Therearealsomanyexcitingtimesforallofus.Wehavebeentoballs,hadteaatNumber10,metOneDirectionandseenmanyotherfamouspeople.”

Rainbowsneedsthehelpoffamiliestohelpraiseessentialfundsandifwecanmakeitanenjoyableandmemorableexperienceforthemthenthatisevenbetter.Julie’ssupportisalwaysawelcomehelp.

MeetSomeFundraisersNeilSwiftisourFundraisingAssistant,whohelpsoutwithalltheeventsandsupportspeoplewhentheywanttofundraiseforus.He’sevendonesomefundraisingofhisown.Hesays:“Ienjoyeveryminuteastwodaysareneverthesame.FormeRainbowsisaspecialplacetowork,especiallyasI’llbeadadsoon.

IworkwithBeccy.IfyouhaveevertakenpartinachallengeforRainbowsorsetupanonlinegivingpagewehavebeentheoneswhosendtheemailsofencouragement,orwehavebeenontheendofthephonetogiveyouasmuchsupportaspossible.”

BeccyMay,picturedaboveleft,wasavolunteeratRainbowsforthreeyearsuntilshebecametheEventsAssistant.Shesays:“Mybiggestroleinvolvesco-ordinationandsupportformajorfundraisingevents.

Mylifeisalwaysonfullspeed.InmysparetimeIamanactivememberofLadies’Circle,aScoutLeaderandfortheremainderofmytimeIamrunraggedbymytwoadorablekiddywinkles!”

MeetOurFamilyLiaisonWorkerJulie Macauley, pictured on the left above, our Family Liaison Worker, came to Rainbows nine years ago to work as a member of the care team, so she’s a well-known face at the hospice.

Meetsomeoftheteam13

14

Loadsofcompanies,bigandsmall,arejoiningup.We’rehopingtohaveover100membersbythetimewewritethenextnewsletter!

Welcomeandthankyoutoournewestmembers.

Afulllistofourmemberscanbefoundatwww.rainbows.co.uk/businessclub

Membershavefoundournetworkingeventsbothbeneficialandenjoyable.Withkeyspeakersandchancestomingle,they’reprovingtobeahugesuccess.

YoutoocouldjoinourBusinessClub.Foraminimummonthlydonationofonly£30+vatyourcompanycanjoinandshowyourcommitmenttosupportingRainbows.

Pleasejointodayandhelpusmakeadifference!

Capital One Europe (Plc)

Cathy Bown Associates

Jo Kehoe Training Ltd

Funky Edit Wholesale Ltd

NSI Ltd

trent barton

Print Monkey

Arch Communications

Pochin

Mr Tax

Words & Graphics

Goold & Associates Ltd

MyOwnPhotos

Punch Communications

NewEnglish Design

Lighthouse (UK) Ltd

Executive Image (Leicester) Ltd

GEM 106

Independent Freight Solutions Ltd

bmibaby

Prima Solutions

Barton Petroleum Ltd

Hinckley & Rugby Building Society

The Carillon Court Shopping Centre

Aerosol Solutions Ltd

Blues Point Ltd

Morningside Pharmaceuticals

Advanced Learning Centre

Clear Financial

AMC Groundworks Ltd

SGP Ltd

OurBusinessClubWelcomesEvenMoreNewMembers

Abig‘thanks’toallofthemembersoftheRainbowsBusinessClubfortheirfantasticsupport.

Holding a Business Meeting Can Help RainbowsRainbowsnowhasafantasticconferencevenuethatbusinessescanuseandwewantallourcompanysupporterstoknowaboutit.

GeoffEllis,ourChiefExecutive,says:“Thesearedifficulttimesforeveryone,sobeingabletohireoutourfacilitiesgivesusanotherwaytoraisemoney.Alltheproceedsfromthehireoftheroomshelpustosupportlife-limitedchildrenandtheirfamiliestomakethemostoftheshorttimetheyhavetogether.”

Theconferencecentreoffersalargewellequippedroomthatcanseatupto80people,plusthreebreakoutroomsseatingupto25peopleeach.ThecentreissituatedatRainbowsandisonlyminutesfromjunction23oftheM1.

Forthoseinterestedinhiringouttherooms,pleasecontacttheConferenceCo-ordinatoron01509638011.

www.rainbows.co.uk/businessclub

Kate Golding on 01509 638008

kate.golding@rainbows.co.uk

How dressing down can pay off!

CharteredaccountancyfirmNewbyCastlemanhaveraised£1,000forRainbowsthroughmonthlydressdowndays.Partner,JohnGriffin,said“Amonthlydressdowndayisasimpleidea,butweknoweverypennyraisedwillbespentonhelpingtoimprovethequalityoflifeofthechildrenandyoungpeopleatthehospice.”

Top Tip: EncourageyourworkcolleaguestoholdmeetingsintheRainbowsconference

centre.BusinessClubmemberscanbookthefacilitiesat

adiscountedrate.

Beavolunteer15

BeaVolunteerOurvolunteersmeanalottoRainbows.Theydosomuchforusthroughoutthehospiceandinthecommunity.

Arthur,PatandValworkinthegarden.Theysay:“Beinginterestedinconservationandenvironmentalissues,wecouldn’twaittoparticipateinthecreationandmaintenanceoftheecogarden.Rainbowsmeanssuchalottousandwegetsomuchpleasure,notjustbyworkinginsuchaspecialandpeacefularea,butknowingthatthechildren,youngpeopleandtheirparentssharethistoo.”

Sarahasjuststartedworkinginthekitchen:“Mynewyear’sresolution

wasto‘getoutandmeetpeople’andIsettledonvolunteeringatRainbows.TheyhelpedmetodecidewhichareaIshouldjoinandIhelponceaweektotidyupaftertheeveningmeal.My‘properjob’canbehighpressured,soit’sarelieftoputmypinnyonandgetstuckin.It’sbeenagreatwaytomeetnewpeopleandtogivealittlebitback,wecanthoroughlyrecommendit.”

If you’re inspired and would like to volunteer, please contact Paul on 01509 638059 or paul.holden@rainbows.co.uk.

Eggstra Support From School AbigthankyouallthepupilsatSouthWithamPrimarySchoolforraisingafantastic£250attheirEasterFair. 

Rainbows Day at RawlinsRawlinsCommunityCollegeheldaspecialRainbowsDay.TheyboughtaRubyblockinourWallofCelebrationwiththemoneyraised.

Chucklebutties Have Lots of FunChucklebuttiesplaycentreinBelperareholdingeventsduringtheyearandarehopingtohavelotsoffunandraise£1,000forRainbows.

Haddocks Win The Pub Quiz On3July,IkanoFinancialServiceshelditsannualpubquiz.Afteraverycloselyfoughtbattle,RobinGriffithsandhisteam,theAD-hocHaddocks,tookthecovetedtrophyforthethirdyearrunning.Theamountraisedwas£1,054.

Lastyearweraisedawhopping£16,000withourcollectingtins.Wehaveplentymoreofthemthatwouldloveahome.

Ifthereareanyshops,businesses,pubsetc.whowouldliketohaveatinwewillbehappytosupplythemandemptythemregularly.GetintouchwithGrahamPrice,ourbrilliantcollectingtinvolunteer,ifyouhaveahomeforone.Call01509638043oremailgraham.price@rainbows.co.uk

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Will you win £1,000 this week?

Rainbowslauncheditsretailinitiativetothedelightofthelocalpublicaswellasstaff,volunteersandlocalfamilies,childrenandyoungpeoplewhousethehospice.21-year-oldJamesEverettwhocomesalongtoRainbows,wasthefirstthroughthedoorstodonatesome‘pre-loved’clothes.

TheMayorofMeltonMowbray,CllrJohnIllingworth,officiallyopenedtheshopjoiningexcitedshoppers,togetherwithRainbows’mascot‘BowBear’andstreetentertainers.

Thenewshopwillhelpuscontinueourworksupportinglife-limitedchildrenintheregionthroughthesaleofclothes,

books,children’stoys,CDs,DVDsandRainbows’ownmerchandise.

CherylHudson-theRainbowsshopmanager-said:

Rainbows’secondshopopensinBlabyduringAugust,followedbyathirdinMatlock,Derbyshire,inSeptember,withplanstorolloutmorestoresacrosstheEastMidlandsfrom2013.

Our First Shop is Open

On 17th July, Rainbows created a milestone by throwing open the doors of the very first charity shop in its new retail initiative. The Melton Mowbray shop is the first of three shops opening in 2012.

Top Tip: Haveaspringcleananddonateanyunwanted

itemstoRainbows.Dropthemoffatashop

oratthehospice.

"Withthesurgeinpopularityof

charityshopping,weweresolooking

forwardopeninginMeltonMowbray

andarethankfultoallthosethat

haveralliedroundanddonated

stocktotheshopsofar."