the aacvpr pulmonary and cardiac rehabilitation registries presenter name here

The AACVPR Pulmonary and Cardiac Rehabilitation Registries

Presenter Name Here

Disclosures

Add disclosures if needed or “None”

Objectives

Benefits of registry participation Current status Data elements, interface and reporting

features How to subscribe and FAQs

AACVPR Registry CommitteeChris Garvey, Bonnie Sanderson, Chairs

Todd Brown, MD, Director

Bonnie AndersonGerene Bauldoff

Pat BarnesEileen Collins

DorAnne DoneskyJoan Dugan

Kent EichenauerAnne Gavic

Steve Lichtman

Mike McNamaraKeri Ohren

Connie PaladenechDiana Rohloff

Charlotte TenebackRandy ThomasMark Vitcenda

Stacy Wolf

AACVPR Registry Sponsors

Registry Developer

Research tells us what we can do.

Guidelines tell us what we should do.

Registries tell us what we’re actually doing.

What is a “registry”? “Naturalistic” collection of data Designed to fulfill a specific purpose Data derived from patient’s clinical status or

processes of care patient undergoes Specific and consistent data definitions Uniform collection of data from patient to patient

Provide evidence to patients, physicians, administrators, healthcare payers, and regulators that cardiac and pulmonary

rehabilitation produce improvements in patients’ health outcomes beyond what can

be expected or achieved through “usual care”.

Mission

Why should we participate?

Participation Benefits

Strengthen the understanding and awareness of the impact of CR and PR

Supports AACVPR recommendations of outcome tracking and quality improvement

Linking registry data with Program Certification requirements (2014)

Participation Benefits

Easy and convenient way of organizing outcomes and utilization data

Immediate feedback regarding performance Demonstrates your commitment to

improving patient care Raises status of your services in healthcare

system

75yrs

COPD

1650 ft

83.4 kg females

Current Status: PR Registry

June, 2013 launch 142 programs actively participating Over

5,000 patient records entered to date

PR Registry Data Elements Demographics Admitting diagnoses and comorbidities Anthropometric values, smoking status Pulmonary function values Functional capacity (6MWD) Dyspnea/Psychosocial/HRQoL assessments O2 use, prescription, system type Healthcare utilization/events/mortality Programmatic outcomes

Supported Assessment Tools Modified MRC UCSD SOBQ CES-D PHQ-9 PSRF Survey HADS GDS 15 and 30

CRQ St. George Respiratory

Questionnaire SF-36 Ferrans & Powers QLI Dartmouth COOP COPD Assessment Test

See the “Data Elements ” document on the Registry web site for more

information about registry variables

Coming Early 2015…

Get ready for a new and improved AACVPR Pulmonary Rehabilitation Registry experience. Enhancements are coming for the AACVPR Pulmonary Rehabilitation Registry:– New Performance Report displaying your program’s patient outcomes

in a number of key areas compared to state and national benchmarks– Updates to data sets in the following areas: pulmonary function,

dyspnea, psychosocial outcomes, hospitalization and physical activity– Improved user interface to provide helpful field tips and definitions– Addition of more choices to several fields for more precise data entry

2.0

75yrs

414.01

1650 ft

83.4 kg females

CR Registry Data Elements

Demographics Admitting diagnoses and comorbidities Anthropometric, lipid, glucose values Functional capacity (6MWD, peak METs, ETT METs) Psychosocial/HRQoL assessments Healthcare utilization/events Programmatic outcomes

Supported Assessment Tools

CES-D PHQ-9 PSRF Survey MacNew BDI-2

Duke Activity Status Index SF-36/SF-12 Ferrans & Powers QLI Dartmouth COOP

Supported Dietary Assessment Tools

Diet Habit Survey Rate Your Plate-Heart MEDFICTS (from ATP-3) Block Dietary Fat Screener Resources for all tools available on

AACVPR Registry Resources site

Current Status: CR Registry

419 active programs 67,000+ patient records entered

Program Demographics

30% Small (< 100 pts/yr) 38% Medium (100-199 pts/yr) 33% Large (200+ pts/yr) 93% hospital-based

Real Value

Getting Started

!www.aacvpr.org/Resources/OutpatientDataRegistries

www.aacvpr.org/PRRegistry

www.aacvpr.org/CRRegistry

Application Steps

Designate Principal User through Application form (follow directions on registry page)

Log in and go to “My Programs” Principal User updates program information

(used for both Registry and Certification apps) Principal User designates secondary users Check subscription process on Process

dashboard

Test Pulmonary Program

Review Facility and Program information for accuracy

Update information as necessary

Complete program roster

Add “secondary” users (required)

Subscription Steps

Read, sign and return Participation Agreement

Pay subscription fees View training webcast Complete data entry test

Important Documents Frequently Asked Questions (FAQs)

– Everything about everything Data Elements list

– List of all fields in Registry Definitions and Comments

– Description of selected elements and definitions Registry User Guide

– How to get around the Registry interface Data sheets

– Tool for capturing outcomes data

?registry@aacvpr.org

Registry Tour

Reporting features

Individual Patient Outcomes summary Program Outcomes Summary Report Program Comparison Report (like-size,

state, national benchmarks) Performance Report (CR only) Data Extraction utilities

Frequently Asked Questions(or Answers to FAQs)

Participation Agreement and Legal

IRB not required per HIPAA regulations; however, local institution may require review

Patient consent not required AACVPR Participation Agreement document

required as basis for agreement; some language can be modified/added if needed

Program does NOT need to be AACVPR-certified in order to participate

Training

Principal User responsible for seeing that secondary users trained and following protocols

ALL users must view Registry webcast and enter test data before being given access rights

Review documents, review documents, review documents

Data entry

Enter as much data as needed to track patient health and outcomes

Very few required data points, and a handful of “highly recommended” ones

Registry Patient Assessment Tools

No “required” tools Mix of free tools and tools requiring a license Supported tools not provided—programs must

secure required licenses and scoring algorithms.

Telemetry/Registry solutions

Working with partners on methods for uploads

Vendors will be contacting customers with information

registry@aacvpr.org or

312.321.5146

Questions? Subscription Legal Technical Clinical

!www.aacvpr.org/PRegistrywww.aacvpr.org/CRegistry

?registry@aacvpr.org

312.321.5146

Thank You!