yakeen
Post on 20-Jan-2015
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By,
SIMSREE (Abhijeet, Ashwaghosh, Harshit, Princely and Siddhesh)
Yakeen - A Thought to Uproot Thalassemia's root cause
INTRODUCTION
Thalassemia is not a Disease but a Genetic Disorder
There are approximately 60-80 million people in the world detected as beta thalassemia major
4%(approx.) of Indians carry the Beta Thalassemia trait (minor)
There are 1,20,000 known Indians diagnosed with Beta Thalassemia major, projected increase in Beta Thalassemia major in the next 5 years is 84,500
Alpha, Beta, Deltabeta, Gammadeltabeta and Hereditary persistence of fetal hemoglobin (HPFH) are the types of Thalassemia
(Source: www.thalassemicsindia.org)
THE PROBABILITY OF A THALASSEMIA MAJOR KID
25%
Are you ready to take this 25% chance which has your child’s future at stake???
THALASSEMIA MAJOR PROBABILITY IN A GROUP EXAMPLE
Considering a Batch of 2500 People at random
4% of 2500 = 100 Thalassemia Minors
100 spouses of these 100 Minors
4% of 100 = 4 spouses4 Thalassemia Minor Couples having 2 kids
each
25% probability in 8 kids to be a Thalassemia
major= 2 kids
Probability= (2/(2500+100+8))*100 0.076%
(Source: www.thalassemicsindia.org)
TYPES OF THALASSEMIC PATIENTS
MINOR
• These are carriers of Thalassemia• They don’t show any symptoms• At times show mild anemia
INTERMEDIATE
• Some HB chains are not formed• They may not require transfusion• They may suffer from moderate anemia
TYPES OF THALASSEMIC PATIENTS
MAJOR
• No HB chains are formed
• Since 2 years show symptoms of severe anemia
• Require regular blood transfusion
TARGETED AUDIENCE FOR AWARENESS
College students in Graduation or Post Graduation Courses
Corporate Professionals
Couples getting engaged or are in talks of getting married
Couples planning an offspring and are unaware about themselves being thalassemia carrier
The rural and underdeveloped parts of India
CURE FOR THALASSEMIA MAJOR
Periphery Blood Stem Cell transplant
It’s very difficult to find someone who has a similar genetic structure as yours
Even after finding the matching person, people at times refuse to come ahead and donate out of fear which is because of lack of awareness
This is also a cure for Leukemia patient which is their last resort
The rising trend amongst India’s population and especially the youngsters is the use of Facebook and Whatsapp (approx. 62 Million users of Facebook in India)
Facebook can help in creating wide spread awareness, create chain networks and find new members to help our the cause
An examples of such an initiative is - Our own Facebook page - ‘Yakeen - A Thought to Uproot Thalassemia's root cause’
SPREADING AWARENESS – SOCIAL MEDIA
In India print media has farthest reach. We can use newspapers, magazines, pamphlets to make people aware about it
In India 69 million urban and 79 million rural households owns television, televion ads can be used to create awareness asibout this disorder
Radio and Films can also be used to spread the message across the nation
SPREADING AWARENESS – MASS MEDIA
Organizing free seminars in colleges, corporatesand social gathering
Organizing large scale blood donation camps and clubbing the Thalassemia test with it
Flash mobs and Street plays at railway stations
Tying a black knot and observing a day of tribute to the Thalassemia patients
SPREADING AWARENESS – GENERAL
WHEN WILL THIS PICTURE DISAPPEAR?
THANK YOU !!!
We have a thought and to make it a success –”WE NEED YOU WITH US”
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