be the match

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National Marrow Donor Program The cure for blood cancer is in the hands of ordinary people.d

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Page 1: Be The Match

National Marrow Donor Program

The cure for blood cancer is in the hands of ordinary people.℠d

Page 2: Be The Match

• Donor registration process

• Who is Be The Match®?• Need for marrow donors

Learning Objectives

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

• Donation process• How can I help?• How we help patients

Page 3: Be The Match

Who Is Be The Match®?

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 4: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Who Is Be The Match?

Page 5: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Be The Match® manages the largest and most diverse marrow registry in the world, saving lives through transplant every day.

The National Registry

Page 6: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Robert Graves, DVM, was inspired by his daughter’s leukemia to

create a national registry of voluntary marrow donors.

Our Story

Page 7: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

To facilitate marrow transplants from volunteer donors as life-saving therapy for patients of all racial and socioeconomic backgrounds.

Our Mission

Page 8: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Every 4 minutes, one person is diagnosed with a blood cancer.

Every 10 minutes, someone dies from a blood cancer. That’s more than six people each hour, or

148 people each day. Patients are searching for a cure. It could be YOU.

Page 9: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Transplant Centers Donor

Centers

Apheresis Centers

Recruitment Centers

Cooperative Registries

Collection Centers

Testing Labs

Cord Blood Banks

Our Global Network Of Care

49

20

92

40

174

26

100 44

Page 10: Be The Match

How We Help Patients

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 11: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

70% of patients have no match in their family

Page 12: Be The Match

One Patient At A Time

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

• Grow the registry • Connect patients to

donors • Patients, caregivers,

families • Clinical education • Research • Fundraising

Page 13: Be The Match

The Need For Marrow Donors

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 14: Be The Match

How rare is my match?

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

African American

Hispanic & Latino

Asian & Pacific Islander

Native American

Caucasian & European

25% 50% 75% 100%

66%

72%

73%

82%

93%

Page 15: Be The Match

Diversity is Crucial!

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

• Minority donors currently represent only 28% of the Be The Match Registry.

• Because tissue types are inherited, patients are more likely to match someone who shares their racial or ethnic heritage.

Page 16: Be The Match

The Donor Registration Process

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 17: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Step 1: Registry Guidelines

•Are you between 18-44 years of age?

•Do you meet the health guidelines?

•Are you committed to donating to any patient in need?

Step 2: Consent Form

Step 3: Buccal Swab

Page 18: Be The Match

Steps To Donate

• Answer the call as a possible match • Give another swab or blood sample • Attend an info session • Donate cells or marrow • Receive follow-up

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 19: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 20: Be The Match

The Donation Process

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 21: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

• Outpatient procedure with anesthesia

• Marrow collected using needles, syringes

• Collected from back of the pelvic bone

• Donor receives Filgrastim injections for 5 days

• Stem cells collected through 2-arm apheresis

Two Ways To Donate

PBSCMarrow

Page 22: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Two Ways To Donate

PBSCMarrow

80%

20%

Page 23: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

PBSCMarrow

Marrow or PBSC?

Donors give the source best for the patient.

Marrow tends to be best for child

patients

PBSC is preferred for patients over

50 years

Page 24: Be The Match

Do I Get To Meet My Recipient?

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

• Donors & patients may correspond anonymously for the first year

• After first year, both may consent to meet

• International patients may regulate contact differently

Page 25: Be The Match

What Do I Do Next?

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

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Page 26: Be The Match

Call to Action

• Join Be The Match today • Become an advocate • Keep your contact info current

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

Join • Give • Volunteer

Page 27: Be The Match

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

QUESTIONS?

Page 28: Be The Match

Contact Us!

The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.

www.BeTheMatch.comWEBSITE

[email protected]

PHONE(979) 691-3261