be the match
TRANSCRIPT
National Marrow Donor Program
The cure for blood cancer is in the hands of ordinary people.℠d
• Donor registration process
• Who is Be The Match®?• Need for marrow donors
Learning Objectives
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
• Donation process• How can I help?• How we help patients
Who Is Be The Match®?
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
Who Is Be The Match?
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Be The Match® manages the largest and most diverse marrow registry in the world, saving lives through transplant every day.
The National Registry
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Robert Graves, DVM, was inspired by his daughter’s leukemia to
create a national registry of voluntary marrow donors.
Our Story
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
To facilitate marrow transplants from volunteer donors as life-saving therapy for patients of all racial and socioeconomic backgrounds.
Our Mission
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Every 4 minutes, one person is diagnosed with a blood cancer.
Every 10 minutes, someone dies from a blood cancer. That’s more than six people each hour, or
148 people each day. Patients are searching for a cure. It could be YOU.
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Transplant Centers Donor
Centers
Apheresis Centers
Recruitment Centers
Cooperative Registries
Collection Centers
Testing Labs
Cord Blood Banks
Our Global Network Of Care
49
20
92
40
174
26
100 44
How We Help Patients
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
70% of patients have no match in their family
One Patient At A Time
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
• Grow the registry • Connect patients to
donors • Patients, caregivers,
families • Clinical education • Research • Fundraising
The Need For Marrow Donors
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
How rare is my match?
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
African American
Hispanic & Latino
Asian & Pacific Islander
Native American
Caucasian & European
25% 50% 75% 100%
66%
72%
73%
82%
93%
Diversity is Crucial!
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
• Minority donors currently represent only 28% of the Be The Match Registry.
• Because tissue types are inherited, patients are more likely to match someone who shares their racial or ethnic heritage.
The Donor Registration Process
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
Step 1: Registry Guidelines
•Are you between 18-44 years of age?
•Do you meet the health guidelines?
•Are you committed to donating to any patient in need?
Step 2: Consent Form
Step 3: Buccal Swab
Steps To Donate
• Answer the call as a possible match • Give another swab or blood sample • Attend an info session • Donate cells or marrow • Receive follow-up
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
1
2
3
4
5
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
dd
The Donation Process
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
• Outpatient procedure with anesthesia
• Marrow collected using needles, syringes
• Collected from back of the pelvic bone
• Donor receives Filgrastim injections for 5 days
• Stem cells collected through 2-arm apheresis
Two Ways To Donate
PBSCMarrow
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Two Ways To Donate
PBSCMarrow
80%
20%
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
PBSCMarrow
Marrow or PBSC?
Donors give the source best for the patient.
Marrow tends to be best for child
patients
PBSC is preferred for patients over
50 years
Do I Get To Meet My Recipient?
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
• Donors & patients may correspond anonymously for the first year
• After first year, both may consent to meet
• International patients may regulate contact differently
What Do I Do Next?
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
d
Call to Action
• Join Be The Match today • Become an advocate • Keep your contact info current
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
Join • Give • Volunteer
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
QUESTIONS?
Contact Us!
The NATIONAL MARROW DONOR PROGRAM® operates the Be The Match Registry®.
www.BeTheMatch.comWEBSITE
PHONE(979) 691-3261