An iPad App for Children born unable to swallow Catrina Graffin

Tracheo Oesophageal Fistula and Oesophageal Atresia

My Son

Rare congenital conditions

Rare congenital conditions

Oesophagus food pipe Trachea airway

Rare congenital conditions

Oesophagus food pipe Trachea airway

Rare congenital conditions

Oesophagus food pipe Trachea airway

Common problems swallowing, digesting food, reflux, respiratory problems and additional surgery

Nothing available for children to view

Nothing available for children to view

Targeted for parents and medical professionals

Nothing available for children to view

Targeted for parents and medical professionals

Information textual

Nothing available for children to view

Targeted for parents and medical professionals

Information textual

Difficult to explain

6 year old son asking questions

Wants to know everything about his condition

Aware that he is different from his friends

80%

60%

80%

80%

93% Getting food stuck

Anxiety eating socially

Fearful hospital

Product for medicines

Information for carers

Parents response

100%

88% 100%

87% Access to internet

Own an iPad or tablet

Downloads apps for child

App younger child TOF/OA

Parents response

Design a product for children

Design a product for children

Simplify make it Visual Fun

iPad App

Eat

Play

Medicine

7 billion world population

1 in every 3500 births

150 UK each year

2 million children worldwide

Children Adults Parents Carers Others

Niche

Professor Mike Shields Paediatrics Childrens Hospital Royal Victoria Belfast

Doctor Tamara Mallett Paediatrics Childrens Hospital Royal Victoria Belfast

Doctor Caroline Love Skin Specialist Yorks Hospitals England

Tracheo Oesophageal Fistula Support TOFS Charity

French Charity AFAO (French Association Oesophageal Atresia)

Research on Oesophageal Atresia €15,000

20th May 2013

French Charity AFAO (French Association Oesophageal Atresia)

Research on Oesophageal Atresia €15,000

20th May 2013

Pharmaceutical companies Pfizer and Glaxo- Smith-Kline

French Charity AFAO (French Association Oesophageal Atresia)

Research on Oesophageal Atresia €15,000

20th May 2013

Pharmaceutical companies Pfizer and Glaxo- Smith-Kline

C-TRIC Clinical Translational Research and Innovation Centre

Dr Caroline Love pending discussions with other trustees from the TOFS Charity may help with applying for funding

COSTS 4000 to– 5000 euro Donegal Company Infinitetouch.ie app development 4 to– 6 weeks

STRENGTHS and WEAKNESSESS Personal , Niche market, Contacts, No money

PROMOTE and SELL Tracheo Oesophageal Fistula Support Charity via their own website

and Facebook members page

Infographic designed to be used in hospitals or schools

Prototype of the app in discussion

Dr. Kim Chilman Blair CEO and founder of Medikidz a kids comic

based on medical conditions has enquired about the condition with

Medikidz interested in designing and publishing a comic book

Chew could be launched during the awareness week 12th- 19th October 2013

TOFS family conference Coventry England

Guest speakers

Respiratory Consultant Professor Morice from Hull, Mr Shalinder Singh from QMC Nottingham

Mr Joe Curry from GOSH Geneticist Dr Charles Shaw-Smith from the Royal Devon and Exeter Hospital

Representatives from other European support groups attending

French support group for OA/TOF www.afao.asso.fr

US support group for OA/TOF www.eatef.org

US group for VACTERL www.tefvater.org

US group for VACTERL www.thevaterconnection.org

UK Tracheo Oesophageal Fistula Support www.tofs.org.uk

Australian support group foundation.rch.org.au/?page=Auxiliaries-OARA

German support group for OA/TOF www.keks.org

Dutch support group for OA/TOF www.voks.nl

Swedish support group for VACTERL www.vacterl.com

Oesophageal Atresia Association in Quebec www.aqao.org

Support Groups

Journals

Goyal, A., et al. (2006). "Oesophageal atresia and Tracheo-oesophageal fistula",

Archives of Disease in Childhood-Fetal and Neonatal, Edition.91.5, pp.381-384.

Love, Caroline, and Alyn H. Morice (2012). "After repair of Tracheo-oesophageal atresia."

BMJ: British Medical Journal 344.

Legrand, Céline, et al. (2012) "Long-term outcome of children with oesophageal atresia type III."

Archives of disease in childhood 97(9), 808-811.

Green, Michael J and Myers Kimberly R. (2010) "Graphic medicine: use of comics in medical

education and patient care" BMJ : British Medical Journal Vol 340

Williams Ian C M. (2012) "Graphic medicine: comics as medical narrative" BMJ : British Medical Journal

Books

The TOF Child book

Kelley T with Littman J, 2006, The Ten Faces of Innovation, London. Profile Books

Olles R.N., 2000, What Colour is Your Parachute? Umbrella Publications London

Ridderstrale J, Nordstorm K, 2002, Funky Business, Sweden, Bookhouse Publishing AB

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