congenital adrenal hyperplasia · gland acth adrenal glands _ angiotensin re nin aldosterone kidney...
TRANSCRIPT
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Congenital Adrenal Hyperplasia
A Parents’ Handbook
Dr Ellie Rice Carey Sentman Mandi Tembo
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WHY A PARENT’S HANDBOOK?
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WHAT IS CONGENITAL ADRENAL HYPERPLASIA (CAH)?
CONGENITAL – PRESENT AT BIRTH ADRENAL – INVOLVING THE ADRENAL GLANDS HYPERPLASIA – RESULTS IN OVERGROWN GLANDS
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SYMPTOMS OF CAH
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TREATMENT Treatment is based on the individual and the type of CAH they have. Treatment includes…
• Glucocorticoid Treatment
• Mineralocorticoid Treatment
• Stress Dosing
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THE BEGINNING…. • The Clinic for Special Children
• PBH course
• Family Day
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Table of Contents Foreword Chapter 1: Getting Started Chapter 2: What is Congenital Adrenal Hyperplasia? Chapter 3: How Did This Happen? Chapter 4: How Will I Recognize the Symptoms of the Condition? Chapter 5: The Importance and Challenge of Glucocorticoid Treatment Chapter 6: Water, Salts and Aldosterone Chapter 7: Stress Dosing and Adrenal Crisis Chapter 8: How Will CAH Affect My Child’s Pubertal Development? Chapter 9: Other Issues Appendix Glossary
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FOR THE SUMMER….
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• 6 very different drafts to edit
• Review
• Amish Home Visits
• Design Elements
• Medical Reviews
• Editorial Review
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THE END-PRODUCT?
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