Specialised ECVET Training of Caregivers for

People with Cerebral Palsy

CP-CARE - 2016-1-TR01-KA202-035094 (01.12.2016 – 30.11.2019)

Project details

Programme: Erasmus+

Key Action: Cooperation for innovation and the exchange of good practices

Action: Strategic Partnerships for vocational education and training, Development of Innovation

Budget: € 298.653,00

Duration: 3 years

Cerebral Palsy

Cerebral Palsy (CP) is the term for a range of movement difficulties, which are caused when parts of the brain, which control such movements, do not work properly.

◦ Commonest cause of significant physical impairment in children.

◦ CP occurs in between 2 and 3 per 1000 live births. This rate increases to 40 –100 per 1000 live births among babies born very early or with very low birth weight.

◦ Worldwide:

17 million people with cerebral palsy.

350 million people are closely connected to a child or adult with CP.

◦ Children with CP require many aspects of care, including, but not limited to:

those relating to spasticity management

Therapies

Modalities

Bracing

Sialorrhea

insomnia

◦ Care and rehabilitation of the children with CP should be structured as early as possible.

◦ Close attendance and active participation of the personal care givers in all phases of the intervention is a vital part of the overall management of CP.

Cerebral Palsy rehabilitation - Limitations

The current approach has its limitations: ◦ Problem 1: While physiotherapy should be an ongoing and continuous

process, due to limited social security resources as well as limited financial resources by affected families, physiotherapy does not occur in an ongoing continuous manner. This is valid for every EU country + Turkey.

◦ Problem 2: Current carers are not trained to address the ongoing

care and physiotherapy needs for CP affected children. ◦ Problem 3: There is no VET training available to ensure carers

become competent in caring for CP affected children and undertake part of the physiotherapy.

Cerebral Palsy rehabilitation – CP-Care

The aim of the CP-Care project is ◦ to establish a common and standardized curriculum and/or training program for personal care givers in the care and rehabilitation of CP affected children.

◦ to structure the care and rehabilitation according to the needs and the type of every single child with cerebral palsy.

Target groups / Beneficiaries / Stakeholders

Target group ◦ Caregiver/Physiotherapists - they will directly exploit the

project outcomes into their daily practices (free of charge).

Beneficiaries ◦ People with CP - they are our primary beneficiary group of the

project.

Stakeholders ◦ Associations / organisations offering physiotherapy and

personal care-giving.

◦ VET centres offering trainings in the field of Home and Health care.

◦ Non-profit establishments working with people with disabilities.

◦ Governmental bodies - institutions responsible for changes into the social policy.

Cerebral Palsy rehabilitation – Outcomes

CP-CARE will generate: ◦ a dedicated curriculum and relevant training material for the personal care givers based on ECVET learning outcomes approach

◦ an innovative mobile training platform, that will allow for an interactive learning experience anytime anywhere

◦ a multilingual CP-Care portal that will bring together relevant information and services (peer-learning platform between caregivers)

◦ Piloting in Turkey, Belgium, Spain and Bulgaria.

Intellectual Outputs

IO1: CP-CARE Scoping didactic framework ◦ The scoping didactic framework document will be concluded

based on predefined quantitative and qualitative analysis of the national findings related to physiotherapy provision at home by caregivers, physiotherapists and supportive organisations.

◦ The framework will consist of needed skills and competences, blended learning methodology description and pedagogical approaches for the delivery of the course.

◦ Activities A1 Defining the scope of the didactic framework - lead by P7 A2 Thorough review of the existing state of the art with regards

to home-based physiotherapy support - lead by P2 A3 Finalisation and presentation for approval by the National

Advisory Board members

Intellectual Outputs

IO2: CP-Care curriculum, training course and assessment mechanism (ECVET based) ◦ This output will outline the content for the mobile and online learning

platform in terms of exercises, supporting material (audio, video, text, images).

◦ Activities

A1 Determination of the key components in the development of the curriculum using didactic framework in O1 - lead by P7

A2 Design of the curriculum and ECVET learning outcomes (general, transversal and specific) - lead by P1, P3 & P7.

A3 Design of the training courses - lead by P2

A4 Development pre and post assessment mechanism - lead by P7

A5 Production of training material that embraces a variety of ICT based media. - lead by P1

A6 Production of training material online (online learning platform) in SCORM compliant formats for easy transferability across different learning platforms - lead by P3

A7 Governmental policy inclusion - lead by P4

Intellectual Outputs

IO3: CP-Care mobile application for Android tab ◦ An Android based mobile application will allow for mobile

training, whereby caregivers/physiotherapists will be able to contribute themselves to the game, upload pictures, video and audio, and use it as training material, as well as share it with other participants on the online platform.

◦ Activities

A1 Design and specification of the mobile app.

A2 Integration with mobile platform

A3 Deployment of the mobile platform.

A4 Iterative testing

A5 Maintenance and accessibility.

Intellectual Outputs

IO4: Usability and exploitation report ◦ The report will outline the approach that will be applied to

organise the pilots in Turkey, Bulgaria, Belgium and Spain. This will contain among others: clear descriptions of each pilot, what groups of end-users will be involved and how, how many and the actual time plan for the piloting. This report will also provide the evaluation tools to assess (qualitatively and quantitatively) the outcomes of the piloting.

◦ Activities

A1 Usability report development

A2 Identification and recruitment of piloters

A3 Piloting & testing

A4 Evaluation of piloting outcomes

A5 Collecting feedback, & subsequently revise & finalise the training materials and the mobile platform

Multiplier events

Final National Conference, Turkey, October 2019

Final European Conference, Belgium, October 2019

Project meetings + Blended mobility of VET learners (5 days)

M1: Kick-off meeting in Ankara, Turkey; M7: Second TSN meeting in Madrid, Spain; M12: Third TSN meeting in Istanbul, Turkey; M18: Fourth TSN meeting in Plovdiv,

Bulgaria, with blended mobility (10); M23: Fifth TSN meeting in Madrid, Spain,

with blended mobility (10); M28: Sixth TSN meeting and multiplier

event (105) in Ankara, Turkey; M34: Final TSN meeting, blended mobility

(12) and multiplier event (90) in Brussels, Belgium

The CP-Care partnership

P1: Gazi Universitesi – TR - COORDINATOR

P2: Asociacion Espanola De Fisioterapeutas – ES

P3: PhoenixKM BVBA – BE

P4: Bilge Ozel Egitim – TR

P5: Spastic Childrens Foundation Of Turkey Turkiye Spastik Cocuklar Vakfi – TR

P6: Sercev Serebral Palsili Cocuklar Dernegi – TR

P7: National Association Of Professionals Working With People With Disabilities – BG