d day presentation dsawm 10.19
TRANSCRIPT
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D-Day: Finding Your Footingand
Moving Forward after Diagnosis
Prepared for DSAWMGrand Rapids, MiOctober19, 2011
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Welcome to Holland?
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Going on a Journey
–Understand that you will be grieving and that is all right. – 5 stages of grief Denial Anger Bargaining Depression/Guilt Acceptance
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Vision is when you SEE ITand others don’t
Faith is when you DO ITand others won’t
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You have a Baby First• Many Children with Down Syndrome have medical
challenges but with the appropriate medical care they can lead healthy lives
• Facts to consider when building your team:- approximately 40% have congenital heart defects
- Higher incidence of infection, respiratory, vision and hearing problems as well as thyroid
- Most children with Down Syndrome have mild to moderate impairments but it is important to note that they are more like other children than they are different
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Who is on my Team?• Find a pediatrician who works with children
that have Down syndrome
• Find the right professionals
- follow your instinct
- Don’t be afraid to walk away
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Early Intervention is ParamountWhat is it?
IDEA- Individuals with Disabilities Education Act
When should it start? IDEA (Amendment 2004) – States have early
intervention programs from birth until school age
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What Interventions does my Child Need?
4 areas of development -gross and fine motor
-language skills
-social development
-self help skills
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What should you know?
• Physical Therapy
• Speech and Language Therapy
• Occupational Therapy
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How do I find the help? Down Syndrome Association of Western Michigan
-Medical Professionals
-Therapist
- Parent groups
- Educational Conferences
- Social groups
- Respite Care
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Finding the New Normal
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Resources• www.dsawm.org- Down Syndrome Association of Western Michigan
• www.ndss.org- National Down Syndrome Society
• www.nads.org- National Association for Down Syndrome
• www.ldonline.org- Learning Disabilities On Line
• www.downsed.org – Downs Syndrome Educational Web site
• www.ds-healthy.com- created by a specialist and parents with Down Syndrome
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THANK YOU
Suzanne Wilcox Hope Educational Consulting, LLC
PO Box 6541
Grand Rapids, Mi 49516
616.551.3798
www.hopeforlearning.com