december 2016 newsletter -...
TRANSCRIPT
DECEMBER 2016! NEWSLETTER!
MissDeborahEastwoodHonorarySecretaryofBOA
HighlightsthisMonth
• 59casesthismonth(386total)• 8monthstogo….• Sendusyourx-rays
MonthlyCaseConfirma;onWeaskeverysitetoclickalinkeachmonthtoconfirmcaseuploads–thisistoconfirmpeoplearelookingforcases(toconfirmatrueincidence).
124sitesconfirmeduploadswerecompletethismonth–thankyou.(upfrom115lastmonth)
AiredaleAneurinBevanBarnsleyHospitalBarkingBartsBasildonBasingstokeBedfordBirminghamBlackpoolBoltonBordersGeneralBrightonBristolBuckinghamshireCardiffChelseaChesterChesterfieldColchesterCoventryCrosshouseCwmTafDerbyDudleyDoncasterDorsetCountyDumfriesDurhamEast&NorthHertsEastKentEastLancashireEdinburghEpsomForthValleyFrimleyGlasgowGloucester
Click e-mail link now to confirm uploads for this month
GreatOrmondStreetGreatWesternGuysHairmyresHarrogateHeartOfEnglandHillingdonHomertonHullImperialInverclydeIpswichJamesPagetKeYeringKingsCollegeLancashireLeicesterLincolnshireLiverpoolLeedsLewishamLutonMaidstoneManchesterMedwayMidCheshireMidYorkshireMiltonKeynesMorecambeBayNewcastleNorfolkandNorwichNorthumbriaNorthCumbriaNorthMidlandsNorthMiddlesexNorthamptonNorthernDevonNo[ngham
OxfordPennine(NthManc)Pennine(Oldham)PeterboroughPlymouthPoolePortsmouthRobertJonesRoyalAlexandriaRoyalBerkshireRoyalCornwallRoyalDevonRoyalFreeRoyalNa]onalOrthoRoyalSurreyRoyalUnitedBathSalisburySandwellSheffieldShrewsburySouthDevonSouthManchesterSouthamptonSouthportStockportStGeorgesStHelensSunderlandSwanseaTamesideThePrincessTauntonUCLWarringtonWestHertsWestMiddlesexWestHertsWexhamPark
NEVERCONFIRMEDMonklands&Wishaw(butbeingaddressed)NthLincolnshire&GooleQEHospital,Woolwich
WhippsCrossWhi[ngtonWinchesterWirralWorthingWrigh]ngtonYorkWesternIslesWyeValley
MISSEDLASTMONTHBarnetandChaseCalderdaleEastSussexHinchingbrookeMidEssexNorthWestLondonRoyalAberdeenRotherham
MISSED2MONTHSRaigmoreScarboroughTaysideWolverhamptonWorcestershire
MISSED3MONTHSSouthTeesWestSuffolk
Whohasrecruitedsofar?6sitesrecruitedforthefirst]methismonth25othersitesrecruitedthismonth• Airedale• Barking• Barnsley• Barts• Bath• Basildon• Bedford• Birmingham• Bradford• Brighton• Bristol• Buckinghamshire• Cambridge• Cardiff• Chelsea• Chester• Colchester• Coventry• Crosshouse• CwmTaf• Derby• Doncaster• Dudley• Durham• East&NthHerts
“A National Study that 96 sites have recruited for – WOW!”
LastMonth’sTop5
BarkingCambridgeLeicester
ManchesterRNOH
• EastKent• EastSussex• EastLancs• Edinburgh• Epsom• Frimely• ForthValley• Glasgow• Gloucester• GreatWestern• GreatOrmondSt• Guys• Hull• Imperial• Ipswich• Kings• Lancashire• Leicester• Lewisham• Leeds• Liverpool• No[ngham• Manchester• Maidstone• Medway
• MiltonKeynes• MidYorks• MorecambeBay• Newcastle• NorthMidlands• Northampton• NorthDevon• Norwich• No[ngham• Oxford• Pennine(Oldham)• Peterborough• Plymouth• Portsmouth• RobertJones• Rotheram• RoyalAberdeen• RoyalAlexandria• RoyalBerks• RoyalCornwall• RoyalDevon&Exeter• RoyalFree• RoyalNa]onalOrth• RoyalBerks• RoyalSurrey
• Sandwell• Sheffield• Southport• Stoke• Stockport• StGeorges• SouthTees• Southampton• Swansea• Tameside• Taunton• Tayside• UnitedLincoln• Warrington• WestHerts• WestMiddlesex• WexhamPark• Whi[ngton• Worcester• Worthing• Wrigh]ngton
8monthstogo?BOSSisafinitestudy–todeterminethefeasibilityfortrials,ortobethedefini]vecohort(iftrialsnotpossible).Wearenowrecrui]ngsteadilyatEVERYhospital.Wewillstopcaseiden]fica]ononthecurrentcohortin8months.Currentlyplanningnextsteps.
NiceCurves….
“HAPPY NEW YEAR – HAVE A BOSS 2017”
CaseDefini;on:SlippedEpiphysis-Allnewcasesofdiseaseaderfixa]on.
Perthes’Disease–Allnewcasespresen]ngtodefini]vecareclinician(i.e.maybediagnosed6monthsagobuttakensome]metobereferred).
FOLLOW-UPREMINDERS
Thee-mailnowpromptswhenfollow-upistobecompletedonyourcases.Follow-upisfromthecasenotes/x-raysat3-monthspostSCFE(i.e.fracture?Infec]on?etc).Noaddi;onalappointmentsarerequiredbeyond‘rou;necare’.Howtofollow-upcases-Themonthlye-mailwillremindyouaboutwhoisduefollow-up.Tofollow-upcases,pleasegointoRedCap(thelinkfromwww.BOSS.surgeryusingamobilephone/tabletcomputeriseasiest).Ratherthanclicking“addnewcase”,selectthepa]ent’snumber(i.e.12-1)andthen“3monthf/u”.
TheConsentedCohort39sitesarenowconsen]ngchildrentocollectPROMSandlong-termfollow-up-inaddi]ontoenrollingthenintheanonymisedna]onalsurveillancecohort.Weneedtofocusonenrollmenttothiscohort–asthiswillgiveimportantPROMSdata.
NIHR HTA discussing paeds ortho trials in Jan 17
ACCESSTOTHECONSENTEDCOHORT…
Ifyourcentreisnotopentorecruittotheconsentedcases,thenyoucanpointpa]entsinthedirec]ontheBOSSwebsite(www.BOSS.surgery).Pa]entscanregistertheirwillingnesstopar]cipateintheconsentedcohortthroughthewebsite,andwewillaskaresearchnursetocontactthemfromAlderHey.Everypa]entintheUKwillhavetheopportunitytopar]cipateinboththesurveillanceandconsentedcohort
Whocanbeenrolled...Allpa]entscanbeenrolledintotheconsentedcohort(eventhoseenrolledtothesurveillancecohortearlieroninthestudy).
SiteName NumberAlderHey 11Stoke 8Newcastle 5RNOH 5Norfolk 4Lancashire 3Plymouth 3Bedford 2RoyalBerkshire 2Swansea 2WestMiddlesex 2EastSussex 1GlasgowandClyde 1Maidstone 1MorecambeBay 1RobertJones 1
Barking,Barnsley,Barts,Basildon,Brighton,Bristol,Buckinghamshire,Cardiff,Colchester,Coventry,EastLancashire,GOS,HeartOfEngland,Keeering,Manchester,MidYorkshire,Northampton,Oxford,Peterborough,Sheffield,Shrewsbury,Wrigh;ngton.
OpenSites(soontoconsent...)
Requestsfromthetrialsteam….MonthlyEmail.Pleaseconfirmcaseuploadsbyclickingthelinkinthee-mail,ratherthane-mailingus–itisfarsimplertomanage(andtakesabout10secondstodo).ITQueries
Please put ‘BOSS’ in the subjectheading as this is automa]callydirectedtothecorrectperson.
DataQueriesSome ques]ons in RedCap haveoccasionally been missed. Paul(data manager) will highlight thequeries through RedCapwhichwillbeseen ifyou login to thedesktopsite(thisiseasyforResearchNursestoaddress).“NewRecords”Please could you be careful whensaying “create new record” in thedatabase – there are some falserecords been added. These arecrea]ng data queries, and willul]mately require these to beunpicked!
Any Data Queries Contact Paul – 0151-282-4725
SendingRadiographs.WewouldpreferradiographsviatheIEPlink(beYerimagequalityforstudies).IEPlinkisnowlive.Thesearetheinstruc;ons..PROCEDUREFORPACSTEAMS:q Iden]fythex-raystudytobetransferred.q Duplicatetheimagesandanonymisethe
pa]entdetailsasfollows:• ReplacetheName,NHSNumber,Hospital
numberandanyotherPIDwiththeBOSSStudynumber.
• Replacethedateofbirthwiththedate1stJanuary2001.
• Ensurethattherearenootheritemsofdataonthestudythatcouldiden;fythepa;ent.YourInforma]onGovernancePolicywillprovidefurtherdetails.
q LogintoIEP,createanewtransfer.q Enterthedes]na]onas“AlderHeyChildren’s
NHSFounda5onTrust”.q Enterthedemographicsforthepa]ent(BOSS
Studynumberassurname,forename,hospitalnumberandNHSnumber,andthedateofbirthas01/01/2001).
q SelectthestudyfromtheStudieslist.q SelecttheDes]na]onNode“RBS_Research”
andthePriority“OvernightDownload”.
SomefacesofBOSS…..thankyoueveryone.