OPADD NIAGARA Beginnings Creation of Niagara Region OPADD 7 Representatives from Developmental 6 Representatives from Seniors Sector
Committee Representation
CCAC CL Associations Alzheimer's Seniors Community Services Access Centers Networks of Specialized Care Long Term Care Psycho-geriatric Resources MCSS Program Supervisor Specialized Clinical Services
Beyond Committee Formation Getting the word out about OPADD
Provincial & Niagara Network Initiative March 2007 joint sector workshop hosted
Purposeful Planning-Just the Basics Seniors Sector-
*Developmental Disability 101
Start at the very
beginning
Purposeful Planning-Our Ultimate Vision
Bring them all together towards Building Effective Partnerships
Why?
So that every older adult with a developmental disability would have the same rights to supports and services as all older Ontarians.
Each sector would become dedicated to ensuring quality of life for older adults with developmental disabilities through transition planning that includes equal access to seniors' community and residential programs.
The Impact of Dementia on Canadian Society NOW: 500,00 Canadians
- 1 in 11 persons over 65 have Dementia- 72% are women- Not all are old - 71,000 < 65 (14%)
- 50,000 < 60 (10%)- Brain changes of AD (plaques and tangles)
are found in 100% of adults with Down Syndrome over age 30
Some Other Interesting Statistics… A new case every 7 seconds (world) A new case every 4 minutes (Canada) 3rd most expensive disease in Canadian
Healthcare (causes > 70% Nursing Home admissions)
1 in 4 Canadians have a family member 1 in 2 Canadians knows someone with dementia The prevalence of dementia in Canada will
increase in the next twenty years from the current 450,000 to approximately 750,000
First Link®: Purpose
An active referral program to help support persons with dementia and their families throughout the course of the disease.
First Link®: Why was it started? To link newly diagnosed individuals and
families to learning, support, services To maintain linkages and provide support
throughout the continuum of the disease To increase effective utilization of community
resources To reduce incidence and intensity of
caregiver stress To raise community awareness about ADRD
Key Elements of First Link®
Direct referrals Early intervention and on-going support Community collaboration Learning opportunities All services are FREE
Community Collaboration
Community partnerships are essential to the success of dementia services and supports
Increased communication through initial referral process and referral follow up
Reduced duplication of services Access to the right provider at the right time Families appreciate and benefit from learning
from different health care professionals
Dementia Education Series’
First Steps – (PWD and care partner) First Steps for Family and Friends (early
stage information) Care Essentials (day-to-day challenges - mid
stages) Options for Care (mid to late stage) Care in the Later Stages (end-stage)
Currently…
A referral to First Link® is considered best practice in the provision of dementia care
26 Alzheimer Society Chapters are offering the First Link® program in Ontario: the Alzheimer Society of Saskatchewan and of British Columbia are also offering First Link®
Anywhere in Canada, the Alzheimer Society should be the health care providers first contact after diagnosis
OPADD Hamilton
Hosted a regional forum 2004 Sponsorship from OPADD Local communities identified local priorities Developed a project workplan Developed Hamilton Steering Committee
MCSS Innovation Fund
Short term fiscal funding 2006 1 of 4 keystones: Aging & Developmental
Disabilities Key Activities: a) build on previous work from
community forum
b) assessing needs – use of service provider surveys
c) literature review
Definition
Adults with a developmental disability who are experiencing the losses/impacts typically associated with the aging process
Survey Findings
Numbers of people with a developmental disability in LTC
Numbers of people with a developmental disability over age of 65 in DS agencies
Needs of target population
Major Themes
Continuum of care and support options
Building capacity through training and working collaboratively across two sectors
Supporting the family and individual through change
Approach
Collaborative regional committee with representation from both sectors
Promote and sponsor local and regional training
Strengthen cross-sector involvement Share knowledge, experience, resources Identify key issues
Transition System Issues
Role of each partner Policies and procedures of each sector Employee issues Training Reporting, accountability Integration