Download - Connected health no movie
![Page 1: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/1.jpg)
Listening in the Moment: Project HealthDesign
Opens the Window on the Every-day Lives of Patients
Patricia Flatley Brennan, RN, PhDUniversity of Wisconsin-Madison
Madison, WI USASupport provided by UW Madison, RWJF
![Page 2: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/2.jpg)
Exploring the practical implications of
observations of daily living
![Page 3: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/3.jpg)
The CARE between the CARE –listening to the every-day experience of people
January June December
![Page 4: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/4.jpg)
Professionals are experts in
clinical care
People are experts in every-day living
![Page 5: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/5.jpg)
Observation of Daily LivingODLs
• Thoughts, feelings, behaviors & actions, and exposures
• Cues towards action rather than indicators of pathology
• Idiosyncratic, personally meaningful
![Page 6: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/6.jpg)
Project HealthDesign
Reaching people in
every day life
![Page 7: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/7.jpg)
![Page 8: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/8.jpg)
People LIVE everyday, not just at the hospital or clinic
• http://www.projecthealthdesign.org/projects/round-1-projects/personal-health-application-for-diabetes-self-management
![Page 9: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/9.jpg)
What’s important to Jim
1. Negotiating a loan2. Opening his own shop3. Stress4. Exercise5. Medication6. Hypoglycemia
Which of these DOESN’T have a SNOMED code?
![Page 10: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/10.jpg)
The Language of Health in every-day
running
decide
medicationKeep in track
Play Basketball
Stress
See how I am doing
exercise
How to eatBlood
Sugar
Stay on top
Plan
Feedback
advice
Glucose
H1c
![Page 11: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/11.jpg)
The Language of Health in every-day
running
decide
medicationKeep in track
Play Basketball
Stress
See how I am doing
exercise
How to eatBlood
Sugar
Stay on top
Plan
Feedback
advice
Glucose
H1c
![Page 12: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/12.jpg)
The Language of Health in every-day
Patient Focused Patient Defined
running
decide
medicationKeep in track
Play Basketball
Stress
See how I am doing
exercise
How to eatBlood
Sugar
Stay on top
Plan
Feedback
advice
Glucose
H1c
![Page 13: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/13.jpg)
The Language of Health in every-day
Patient Focused Patient Defined
Clinical Terms Observation ofDaily Living
running
decide
medicationKeep in track
Play Basketball
Stress
See how I am doing
exercise
How to eatBlood
Sugar
Stay on top
Plan
Feedback
advice
Glucose
H1c
![Page 14: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/14.jpg)
The Language of Health in every-day
Patient Focused Patient Defined
Clinical Terms Observation ofDaily Living
runningdecide
medication
Keep in track
Play Basketball
Stress
See how I am doing
exercise
Eat right
Blood Sugar
Stay on top
Plan
Feedback
adviceBlood Glucose
H1c
![Page 15: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/15.jpg)
HIT can bring the language of every day health into clinical care!
• Professional terms: Blood glucose, activity tolerance
• Personal terms: open my own shop, go for a run
![Page 16: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/16.jpg)
Project HealthDesign Round 2
• Engaged five teams to demonstrate a new vision for improved patient care through integration of patient-generated health data into every day lives and clinical practice
• Explored the technical, legal and policy implications of incorporating patient generated data in health care
![Page 17: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/17.jpg)
• dwellSenseElders at risk of cognitive decline
• EstrellitaHigh risk infants and their caregivers
• Chronology.MDYoung adults with Crohn’s Disease
• BreatheEasyAdults with Asthma
• iN TouchLow-income teens and young adults
managing obesity
![Page 18: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/18.jpg)
Observations of Daily Living
![Page 19: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/19.jpg)
BreathEasy: An application for adults with asthma & depression or
anxiety
“What we're developing will
enable patients and clinicians to
communicate more quickly and
easily . . .”
![Page 20: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/20.jpg)
![Page 21: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/21.jpg)
Example 1: Significant improvement after a controller medication was started without an office visit
(early 30’s, smoker, no other significant health issues)
![Page 22: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/22.jpg)
Example 2: Different diagnosis suspected, escalated to specialist care, immunotherapy planned
(early 50’s with comorbid hypertension, depression, chronic pain, and lupus erythematous)
![Page 23: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/23.jpg)
Challenges: Workflow Integration
![Page 24: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/24.jpg)
Home
Patient ODLs:• Peak flow rate• Controller Med. Adherence• Rescue Med. Usage• Asthma Triggers• Asthma Symptoms• Activity Level/Types• Depression Level• Anxiety Level• Sleep Patterns• Smoking Habits
BreathEasy Mobile App
BreathEasy ArchitectureRTI
Messaging Server
Clinic
BreathEasy Dashboard
Nurses/Physicians
Web/App Server
PatientPatient
Challenges: Data Integration•Third party storage
•Integration with EHR
![Page 25: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/25.jpg)
What did people do with ODLs?
• Recognize when symptoms became problematic
• Recognize effects of new medications on symptoms
• Increase awareness of triggers
• Reminders for daily tasks performance and monitoring
• Adhere to doctors’ instructions since s/he “would know”
• Know when medication refills were due
• Report about health during doctors’ appointments
• Gain insights to health behaviors, set goals, and improve health choices
![Page 26: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/26.jpg)
The Patient Experience• ‘I don’t feel so alone’ (patient w/ Crohn’s)
• ‘My quality of life has gone way up’. . . ‘my weight is up’ . . . ‘I’m not vomiting every day’
• ‘It’s easier to summarize and share between-visit health events and health status’
• ‘good intentions to use the app, but not enough energy at the end of the day’ (parents of twin at-risk infants and two pre- school
kids)
• ‘I charge the study phone before my personal cell’
• ‘missed more medication doses than I expected’ (elder at risk)
![Page 27: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/27.jpg)
What did clinicians do with ODLs?
• Change a target peak flow rates
• Make a new or correct an existing diagnosis
• Monitor psychological issues
• Understand of the impact of sleep and/or exercise on pain
• Track patient weight
• Make informed referrals based on increased knowledge of patients' symptoms
• Better understand patient health status at home
• Adjust medication regime
![Page 28: Connected health no movie](https://reader033.vdocument.in/reader033/viewer/2022052623/559c13d71a28aba7098b4621/html5/thumbnails/28.jpg)
discovery.wisc.edu/lelhealthsystems.engr.wisc.edu
www.projecthealthdesign.org