Energizing and Engaging a Energizing and Engaging a Work Force for Family-Work Force for Family-Centered Care Through Centered Care Through
Annual “Families As Annual “Families As Partners” ConferencesPartners” Conferences
Presented byPresented byKaren M. Crow, MSEd.Karen M. Crow, MSEd.
Coordinator of Family-Centered CareCoordinator of Family-Centered CareSt. Louis Children’s HospitalSt. Louis Children’s Hospital
At theAt the33rdrd International Institute for Family-Centered Care International Institute for Family-Centered Care
ConferenceConferenceSeattle, WashingtonSeattle, Washington
August 1, 2007August 1, 2007
History of the FAP History of the FAP ConferencesConferences April, 2002-April, 2002--5 SLCH NICU reps. attended -5 SLCH NICU reps. attended
national IFCC conference and wanted to national IFCC conference and wanted to replicate sharing FCC to our hospitalreplicate sharing FCC to our hospital
Families wanted FCC expanded from the NICU Families wanted FCC expanded from the NICU to all units/services hospital-wideto all units/services hospital-wide
November, 2002November, 2002—1—1stst Annual “Families As Annual “Families As Partners” Conference put on by NICU staff and Partners” Conference put on by NICU staff and familiesfamilies
2002--12002--1stst Annual FAP Annual FAP ConferenceConferenceFamily-Centered Care 101Family-Centered Care 101
National speaker shared national perspective National speaker shared national perspective on FCC and her hospital’s journey of on FCC and her hospital’s journey of implementing FCCimplementing FCC
NICU Division Chief shared his perspectivesNICU Division Chief shared his perspectives
Family panel shared their stories and what Family panel shared their stories and what FCC meant to their experiencesFCC meant to their experiences
Results of 1Results of 1stst ConferenceConference Hospital president impressed by family panel Hospital president impressed by family panel
and “grassroots” nature of movementand “grassroots” nature of movement
Assembled a group to determine how to Assembled a group to determine how to move FCC to all unitsmove FCC to all units
Recommendation: Hire a coordinatorRecommendation: Hire a coordinator
May 2003—Coordinator of Family-Centered May 2003—Coordinator of Family-Centered Care hiredCare hired
2003--2nd Annual FAP 2003--2nd Annual FAP ConferenceConferenceInvolving Families: Families As Involving Families: Families As EducatorsEducators National speaker shared national FCC National speaker shared national FCC
perspective and importance of family perspective and importance of family involvement in medical education at many involvement in medical education at many levelslevels
NICU APN shared personal FCC story and her NICU APN shared personal FCC story and her “conversion” to FCC practice“conversion” to FCC practice
FCC champion physician panel shared benefits FCC champion physician panel shared benefits of family as educators in medical educationof family as educators in medical education
Family panel shared their experiences and Family panel shared their experiences and “messages” about FCC to staff and physicians“messages” about FCC to staff and physicians
Results of 2Results of 2ndnd ConferenceConference Family-Centered Care Initiatives committee Family-Centered Care Initiatives committee
was formed to support staff in furthering was formed to support staff in furthering their FCC effortstheir FCC efforts
Sibling Help Force formed to address how to Sibling Help Force formed to address how to better support patients’ siblingsbetter support patients’ siblings
Added members to FACAdded members to FAC
More departments seeking FCC helpMore departments seeking FCC help
2004--32004--3rdrd Annual FAP Annual FAP ConferenceConferenceHaving Those “Difficult Having Those “Difficult Conversations”Conversations” National speaker shared national perspective and National speaker shared national perspective and
her work with FCC and multicultural issues related her work with FCC and multicultural issues related to such conversationsto such conversations
Involving families in discussionsInvolving families in discussions
Families with language issues and cultural Families with language issues and cultural differencesdifferences
Talking to families about bad outcomes/deathTalking to families about bad outcomes/death
Family panel included families with language Family panel included families with language barriers and families that had “difficult” outcomesbarriers and families that had “difficult” outcomes
Results of 3Results of 3rdrd ConferenceConference Inspired departments to ask for help with Inspired departments to ask for help with
FCC initiativesFCC initiatives
Added FAC membersAdded FAC members
Greater variety of departments attendedGreater variety of departments attended
Added members to FCCIAdded members to FCCI
2005--42005--4thth Annual FAP Annual FAP ConferenceConference“Oh, The Places You’ll Go…”“Oh, The Places You’ll Go…” National speakers shared national National speakers shared national
perspective and journey of integrating perspective and journey of integrating families throughout their hospitalfamilies throughout their hospital
Staff panel shared “how to do” FCCStaff panel shared “how to do” FCC
5 SLCH departments were invited to present 5 SLCH departments were invited to present (some w/parents) their FCC initiatives(some w/parents) their FCC initiatives
6 poster presentations from other 6 poster presentations from other departments’ FCC initiativesdepartments’ FCC initiatives
Results of 4Results of 4thth ConferenceConference Presenters were models for other areas to Presenters were models for other areas to
inquire and learn “how to do” FCCinquire and learn “how to do” FCC
Greater sense of “we can do this” in Greater sense of “we can do this” in individual areas and practicesindividual areas and practices
Added members to FCCIAdded members to FCCI
Keynote speakers took conference idea back Keynote speakers took conference idea back to replicate at their hospitalto replicate at their hospital
2006--52006--5thth Annual FAP Annual FAP ConferenceConferenceThe Past, Present, and Future The Past, Present, and Future of FCC at SLCHof FCC at SLCH
The 1The 1stst national speaker returned—spoke about national speaker returned—spoke about progress of FCC nationally and locally at SLCHprogress of FCC nationally and locally at SLCH
SLCH staff video clips tell of “what it was like” and SLCH staff video clips tell of “what it was like” and “what they wish for the future”—included hospital “what they wish for the future”—included hospital leadershipleadership
SLCH departments highlighted FCC initiatives in 5 SLCH departments highlighted FCC initiatives in 5 break out sessions and 9 poster break out sessions and 9 poster presentations/displayspresentations/displays
Audience participation of FCC concepts and Audience participation of FCC concepts and thoughtsthoughts
Results of 5Results of 5thth ConferenceConference Presenters had many communication doors Presenters had many communication doors
opened as a result—several shadowing opened as a result—several shadowing opportunities afterwardsopportunities afterwards
Heightened awareness of presented Heightened awareness of presented programs and inspiration for new initiatives programs and inspiration for new initiatives in new areasin new areas
2007—62007—6thth Annual FAP Annual FAP ConferenceConferenceNothing About ME, Without Nothing About ME, Without ME…ME… New CMO to give keynoteNew CMO to give keynote First Family Choice Award to be givenFirst Family Choice Award to be given Patient panel to discuss what it was like to be Patient panel to discuss what it was like to be
included or not included in their care process and included or not included in their care process and decisionsdecisions
Staff panel who have been involved with a Staff panel who have been involved with a medical event that has since changed the way medical event that has since changed the way they practicethey practice
9 departments break out session presentations9 departments break out session presentations 7 additional department poster presentations—7 additional department poster presentations—
including posters from 2 branch hospitalsincluding posters from 2 branch hospitals
Attributed OutcomesAttributed Outcomes(As perceived by staff)(As perceived by staff)
Conversations with and shadowing in departments Conversations with and shadowing in departments of presentations for further learningof presentations for further learning
““Public permission” to practice FCCPublic permission” to practice FCC Greater awareness of programs and initiativesGreater awareness of programs and initiatives Impetus for new programs that involve family input Impetus for new programs that involve family input
much earliermuch earlier in planning process in planning process Greater use of Family Advisory Council for “family Greater use of Family Advisory Council for “family
input”input” FCC has become a part of hospital’s 5 year FCC has become a part of hospital’s 5 year
strategic plan and annual and individual strategic plan and annual and individual department goalsdepartment goals
Attributed OutcomesAttributed Outcomes(As perceived by leadership)(As perceived by leadership)
A place to showcase excellence across the A place to showcase excellence across the organizationorganization
National speakers enabled us to hear “national National speakers enabled us to hear “national news” and spark our interest to continue to news” and spark our interest to continue to raise the barraise the bar
Many different people exposed to FCC conceptsMany different people exposed to FCC concepts
Demonstrated that SLCH had a high priority on Demonstrated that SLCH had a high priority on FCCFCC
Many departmental changes—EU, radiology, Many departmental changes—EU, radiology, PICU, SDS, therapy servicesPICU, SDS, therapy services
Added ProgramsAdded Programs
FAC’s Family Choice AwardFAC’s Family Choice Award
Concierge Guest Service—Pathfinders, Concierge Guest Service—Pathfinders, “Hospital and Neighborhood Services Guide”, “Hospital and Neighborhood Services Guide”, Information StationsInformation Stations
““Family-Centered Care Today” newsletterFamily-Centered Care Today” newsletter
New NICU additionNew NICU addition
Kid GuidesKid Guides
Added BenefitsAdded Benefits
Increase in choices for family participation in careIncrease in choices for family participation in care
Increase in family input being sought out for Increase in family input being sought out for committees and focus groups through out committees and focus groups through out hospitalhospital
More families are offering to “give back” through More families are offering to “give back” through sharing stories/experiences to “make it better for sharing stories/experiences to “make it better for the next family”the next family”
**Expectation of family presence throughout **Expectation of family presence throughout hospital**hospital**
Future EndeavorsFuture Endeavors
Parent Advisor Orientation/Training programParent Advisor Orientation/Training program
Hiring of “Lead Parents” to help with major Hiring of “Lead Parents” to help with major FCC program development and coordinationFCC program development and coordination
Families As Educators for residentsFamilies As Educators for residents
Family Mentoring ProgramFamily Mentoring Program
Unit-Based Joint Practice TeamsUnit-Based Joint Practice Teams
Lessons LearnedLessons Learned
Need to prepare family/staff panelistsNeed to prepare family/staff panelists
Variety of staff needed for planningVariety of staff needed for planning
““Competitiveness” can be beneficialCompetitiveness” can be beneficial
Great enthusiasm is generated!Great enthusiasm is generated!
QUESTIONS?QUESTIONS?
Please contact me for more information:Please contact me for more information:Karen CrowKaren CrowCoordinator of Family-Centered CareCoordinator of Family-Centered CareSt. Louis Children’s HospitalSt. Louis Children’s HospitalOne Children’s Place, Suite PL-25One Children’s Place, Suite PL-25St. Louis, Missouri 63110St. Louis, Missouri 63110
Phone: 314-454-2153Phone: 314-454-2153FAX: 314-454-4216FAX: 314-454-4216Email: Email: [email protected]@bjc.org