Establishing trust and user acceptance
Dr Michael Wilks
Immediate Past - President, CPMEChairman, E-Health users’ stakeholder group
Is there a lack of trust?
• Trust in professionals
• variety of HCPs
• task shifting/ skill mixing
• professional attitudes
• Trust in systems
• data protection
• use of data beyond healthcare
• confidentiality
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation
Data Protection or Consent?
Data Protection
• Contract between HCP and law….
• …after the event
• Based on penalties
• Discourages working together
Consent
• “Contract” between
HCP and patient
• Precedes the event
• Based on trust
• Encourages working
together
IMMEDIATEHEALTHCARE
IMPLIEDCONSENT
EXTENDEDHEALTHCARE
SPECIFICCONSENT
FINANCIALAUDIT
RESEARCH
INFORMEDCONSENT
ANONYMISEDRECORD
LEVEL OF CONSENT
DISTANCE FROM IMMEDIATE HEALTHCARE
FULLYINFORMEDCONSENT
?
Consent
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – the team
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• “joined-up” implementation
PATIENTDOCTOR
NURSE
DENTIST
PHARMACISTCOMMUNITY
NURSEPHYSIO-
THERAPIST
THERAPISTCHIROPODYCOMP. MED.
TRAINEE
ELECTRONICPATIENTRECORD
DOCTOR
NURSE
DENTIST
PHARMACISTCOMMUNITY
NURSEPHYSIO-
THERAPIST
THERAPIST NURSE
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation
DOCTOR PATIENT
(WEB-BASED?) RECORD
E-MAILREMOTE MONITORINGTELEMEDICINE
INFORMATION:• Patient groups• Web• Media• Clinicians• HCPs• Others
INTERPRETATION
How to improve trust?
• Trust in professionals
• professional regulation
• sharing care openly within teams – skill mixing
• sharing care with patients
• Trust in systems
• access to records
• data protection
• ethical aspects – consent
• joined-up” implementation
Implementation
• Interoperability
• CALLIOPE
• epSOS
• eHealth Governance
• Joined-up DGs
• Stakeholder involvement
PATIENT
COUNTRY A COUNTRY B
HCP “A” HCP “B”
• INTEROPERABILITY• INFORMATION QUALITY• STANDARDISATION• SEMANTICS
PATIENT SAFETY
Cross-border care
SUMMARY
PRESCRIPTION
COUNTRY A COUNTRY B
HCPs:
- doctors
- pharmacists
Managers
Patients:
- information
- consent
HCPs:
- doctors
- pharmacists
Managers
Patients:
- information
- consent
JOINT ACTION
THEMATIC
NETWORK
Cross-border care