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Establishing trust and user acceptance Dr Michael Wilks Immediate Past - President, CPME Chairman, E-Health users’ stakeholder group

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How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation. Wilks M. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)

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Page 1: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

Establishing trust and user acceptance

Dr Michael Wilks

Immediate Past - President, CPMEChairman, E-Health users’ stakeholder group

Page 2: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

Is there a lack of trust?

• Trust in professionals

• variety of HCPs

• task shifting/ skill mixing

• professional attitudes

• Trust in systems

• data protection

• use of data beyond healthcare

• confidentiality

Page 3: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• “joined-up” implementation

Page 4: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• “joined-up” implementation

Page 5: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

Data Protection or Consent?

Data Protection

• Contract between HCP and law….

• …after the event

• Based on penalties

• Discourages working together

Consent

• “Contract” between

HCP and patient

• Precedes the event

• Based on trust

• Encourages working

together

Page 6: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

IMMEDIATEHEALTHCARE

IMPLIEDCONSENT

EXTENDEDHEALTHCARE

SPECIFICCONSENT

FINANCIALAUDIT

RESEARCH

INFORMEDCONSENT

ANONYMISEDRECORD

LEVEL OF CONSENT

DISTANCE FROM IMMEDIATE HEALTHCARE

FULLYINFORMEDCONSENT

?

Consent

Page 7: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams – the team

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• “joined-up” implementation

Page 8: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

PATIENTDOCTOR

Manual recordMemoryFamiliarityContinuity

Page 9: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

PATIENT

DOCTOR

DOCTOR

NURSE

Page 10: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

PATIENTDOCTOR

NURSE

DENTIST

PHARMACISTCOMMUNITY

NURSEPHYSIO-

THERAPIST

THERAPISTCHIROPODYCOMP. MED.

TRAINEE

Page 11: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

ELECTRONICPATIENTRECORD

DOCTOR

NURSE

DENTIST

PHARMACISTCOMMUNITY

NURSEPHYSIO-

THERAPIST

THERAPIST NURSE

Page 12: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

SUMMARYRECORDDOCTOR

NURSE

DENTIST

PHARMACISTCOMMUNITY

NURSEPHYSIO-

THERAPIST

THERAPIST NURSE

Page 13: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams – skill mixing

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• joined-up” implementation

Page 14: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

NURSE DOCTORTRIAGE

NURSE DOCTOR

ACUTE CARE

LONG-TERM CARE

NURSE DOCTOR

LONG-TERM MONITORING

Page 15: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams – skill mixing

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• joined-up” implementation

Page 16: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

DOCTOR PATIENT

(WEB-BASED?) RECORD

E-MAILREMOTE MONITORINGTELEMEDICINE

INFORMATION:• Patient groups• Web• Media• Clinicians• HCPs• Others

INTERPRETATION

Page 17: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

How to improve trust?

• Trust in professionals

• professional regulation

• sharing care openly within teams – skill mixing

• sharing care with patients

• Trust in systems

• access to records

• data protection

• ethical aspects – consent

• joined-up” implementation

Page 18: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

Implementation

• Interoperability

• CALLIOPE

• epSOS

• eHealth Governance

• Joined-up DGs

• Stakeholder involvement

Page 19: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

PATIENT

COUNTRY A COUNTRY B

HCP “A” HCP “B”

• INTEROPERABILITY• INFORMATION QUALITY• STANDARDISATION• SEMANTICS

PATIENT SAFETY

Cross-border care

Page 20: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

SUMMARY

PRESCRIPTION

COUNTRY A COUNTRY B

HCPs:

- doctors

- pharmacists

Managers

Patients:

- information

- consent

HCPs:

- doctors

- pharmacists

Managers

Patients:

- information

- consent

JOINT ACTION

THEMATIC

NETWORK

Cross-border care

Page 21: How to move Forward the Implementation of the EU Interoperability Recommendation to Establish Trust and user Acceptance. Part 2: Perspective of a Professional Users Organisation

Thank you


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