Francesca Tamarozzi1 5, Patrizia Rossi2, Fabio Galati3, Mara Mariconti 1 5, Jacopo Nicoletti 1 5 Francesca Rinaldi 1 5 , Adriano
Casulli 2, Edoardo Pozio2, Enrico Brunetti 1 4 5
1Department of Clinical, Surgical, Diagnostic and Paediatric Sciences, University of Pavia, Italy; 2 Department of Infectious, Parasitic and Immunomediated Diseases, Istituto Superiore di Sanita’, Rome, Italy; 3 SIDBAE, Information
Technology, Istituto Superiore di Sanita’, Rome, Italy; 4 Division of Infectious and Tropical Diseases, San Matteo Hospital Foundation, Pavia, Italy; 4 WHO Collaborating Centre on Clinical Management of Cystic Echinococcosis
Innovation for the Management of Echinococcosis Besançon 27-29 March 2014
The Italian Registry Of Cystic Echinococcosis:
Preliminary results
NEW CE CASES PER YEAR
Data from Dr F. Cattaneo, MD thesis, 2013
Total CE
Foreigners
Eastern Europe Africa Western Europe South America Asia
2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 Total
Italy 2400 2100 1993 1987 1865 1714 1554 1499 1338 1136 963 18445
Italians (%) 91.8 91.5 89.7 88.3 83.4 85.1 80.7 78.6 82.3 78.7 74.2 85.8
* Italian region with highest prevalence of human cases according to HDR
• Chronic
• Complex
• Neglected
Enrolled PatientsN
um
ber
of
pat
ien
ts
Total
Pavia
Paler
mo
Reggio
Em
ilia
Sassa
ri
Spalla
nzani
Pisa
Torino
S Andre
a Rom
a
Verona
Arezz
o
Vicen
za
Other
Cen
tres
0
100
200
300
400346
212
4419 3 1 1 9
443 5 5 0
Jan 2012-Feb 2014
Geographical origin of patients
Nu
mb
er
of
pati
en
ts
0
50
100
150 131 Italians (61.8%) 81 Foreigners (38.2%)
Nu
mb
er o
f p
atie
nts
2012 20130
20
40
60
80
100 94
14
78
21
Follow-up
Newdiagnosis
Visit type (Mean 1.46 visits/patient - range 1-4)
Critical issues
• Voluntary adhesion of health care centres
• Time required to fill/update the records
• Patient’s recall and previous records
• May be useful an automatic patient recall to minimize loss to follow-up?
• Regular monitoring and evaluation of the registry itself
European Registry of Cystic Echinococcosis
Acknowledgements
• Dr Giovanna Masala IZS Sardegna, Sassari, Italy
Funding : Progetto di Ricerca Corrente IZS SA 07/10 RC
• Dr Adriano Casulli ISS, Rome, Italy Funding European Union Seventh Framework Programme (FP7/2007-2013) project HERACLES, grant agreement n°[602051]
And Thank you!