innovation for the management of echinococcosis besançon 27-29 march 2014
DESCRIPTION
The Italian Registry Of Cystic Echinococcosis : Preliminary results. Francesca Tamarozzi 1 5 , Patrizia Rossi 2 , Fabio Galati 3 , Mara Mariconti 1 5 , Jacopo Nicoletti 1 5 Francesca Rinaldi 1 5 , Adriano Casulli 2 , Edoardo Pozio 2 , Enrico Brunetti 1 4 5 - PowerPoint PPT PresentationTRANSCRIPT
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Francesca Tamarozzi1 5, Patrizia Rossi2, Fabio Galati3, Mara Mariconti 1 5, Jacopo Nicoletti 1 5 Francesca Rinaldi 1 5 , Adriano
Casulli 2, Edoardo Pozio2, Enrico Brunetti 1 4 5
1Department of Clinical, Surgical, Diagnostic and Paediatric Sciences, University of Pavia, Italy; 2 Department of Infectious, Parasitic and Immunomediated Diseases, Istituto Superiore di Sanita’, Rome, Italy; 3 SIDBAE, Information
Technology, Istituto Superiore di Sanita’, Rome, Italy; 4 Division of Infectious and Tropical Diseases, San Matteo Hospital Foundation, Pavia, Italy; 4 WHO Collaborating Centre on Clinical Management of Cystic Echinococcosis
Innovation for the Management of Echinococcosis Besançon 27-29 March 2014
The Italian Registry Of Cystic Echinococcosis:
Preliminary results
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NEW CE CASES PER YEAR
Data from Dr F. Cattaneo, MD thesis, 2013
Total CE
Foreigners
Eastern Europe Africa Western Europe South America Asia
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2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 Total
Italy 2400 2100 1993 1987 1865 1714 1554 1499 1338 1136 963 18445
Italians (%) 91.8 91.5 89.7 88.3 83.4 85.1 80.7 78.6 82.3 78.7 74.2 85.8
* Italian region with highest prevalence of human cases according to HDR
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• Chronic
• Complex
• Neglected
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Enrolled PatientsN
um
ber
of
pat
ien
ts
Total
Pavia
Paler
mo
Reggio
Em
ilia
Sassa
ri
Spalla
nzani
Pisa
Torino
S Andre
a Rom
a
Verona
Arezz
o
Vicen
za
Other
Cen
tres
0
100
200
300
400346
212
4419 3 1 1 9
443 5 5 0
Jan 2012-Feb 2014
Geographical origin of patients
Nu
mb
er
of
pati
en
ts
0
50
100
150 131 Italians (61.8%) 81 Foreigners (38.2%)
Nu
mb
er o
f p
atie
nts
2012 20130
20
40
60
80
100 94
14
78
21
Follow-up
Newdiagnosis
Visit type (Mean 1.46 visits/patient - range 1-4)
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Critical issues
• Voluntary adhesion of health care centres
• Time required to fill/update the records
• Patient’s recall and previous records
• May be useful an automatic patient recall to minimize loss to follow-up?
• Regular monitoring and evaluation of the registry itself
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European Registry of Cystic Echinococcosis
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Acknowledgements
• Dr Giovanna Masala IZS Sardegna, Sassari, Italy
Funding : Progetto di Ricerca Corrente IZS SA 07/10 RC
• Dr Adriano Casulli ISS, Rome, Italy Funding European Union Seventh Framework Programme (FP7/2007-2013) project HERACLES, grant agreement n°[602051]
And Thank you!