Patient Support groupsPatient Support groupsA practical guideA practical guide
Mo PeskettMo PeskettPeter GibbPeter Gibb
and All of youand All of you
WHAT WEWHAT WE’’LL COVERLL COVER
• IntroIntro
• The five stepsThe five steps
• Dealing with tricky questionsDealing with tricky questions
• Anything else?Anything else?
The five step planThe five step plan
• Establish a core groupEstablish a core group
• Define a group structureDefine a group structure
• Agree a support methodAgree a support method
• Drop in practicalitiesDrop in practicalities
• Funding needs Funding needs
Establish a core groupEstablish a core group
• Patients and relatives out of ICU for 6-18 Patients and relatives out of ICU for 6-18 monthsmonths
• Agree your objectivesAgree your objectives
• Meet at least 3 - 4 times to establish group Meet at least 3 - 4 times to establish group bondsbonds
Define a group structureDefine a group structure
• Partnership between patients and health Partnership between patients and health professionalsprofessionals
• Agree individual responsibilitiesAgree individual responsibilities
• Should be independent from the hospitalShould be independent from the hospital
• CVO support and advice CVO support and advice
• Organisation structureOrganisation structure
Agree a support methodAgree a support method
• Drop inDrop in
• Alternative optionsAlternative options
• Professional supportProfessional support
Drop-in practicalitiesDrop-in practicalities
• VenueVenue
• FrequencyFrequency
• DurationDuration
• TimingTiming
• PublicityPublicity
• LayoutLayout
• SuppliesSupplies
• RolesRoles
• InsuranceInsurance
Funding needsFunding needs
• Minimal funding requirementsMinimal funding requirements
• Consider sponsored eventsConsider sponsored events
• Contact local CVO for advice and grant Contact local CVO for advice and grant informationinformation
Frequently asked questionsFrequently asked questions
• BereavementBereavement
• ConfidentialityConfidentiality
• Münchausen syndromeMünchausen syndrome
• Disruptive participantsDisruptive participants
• Medical adviceMedical advice
Being an ICUsteps groupBeing an ICUsteps group
• Member of ICUstepsMember of ICUsteps
• IndependentIndependent
• Startup grantsStartup grants
• Support networkSupport network
• Contributing to the larger pictureContributing to the larger picture
• What do YOU want from membership?What do YOU want from membership?