patient support groups a practical guide mo peskett peter gibb and all of you
TRANSCRIPT
Patient Support groupsPatient Support groupsA practical guideA practical guide
Mo PeskettMo PeskettPeter GibbPeter Gibb
and All of youand All of you
WHAT WEWHAT WE’’LL COVERLL COVER
• IntroIntro
• The five stepsThe five steps
• Dealing with tricky questionsDealing with tricky questions
• Anything else?Anything else?
The five step planThe five step plan
• Establish a core groupEstablish a core group
• Define a group structureDefine a group structure
• Agree a support methodAgree a support method
• Drop in practicalitiesDrop in practicalities
• Funding needs Funding needs
Establish a core groupEstablish a core group
• Patients and relatives out of ICU for 6-18 Patients and relatives out of ICU for 6-18 monthsmonths
• Agree your objectivesAgree your objectives
• Meet at least 3 - 4 times to establish group Meet at least 3 - 4 times to establish group bondsbonds
Define a group structureDefine a group structure
• Partnership between patients and health Partnership between patients and health professionalsprofessionals
• Agree individual responsibilitiesAgree individual responsibilities
• Should be independent from the hospitalShould be independent from the hospital
• CVO support and advice CVO support and advice
• Organisation structureOrganisation structure
Agree a support methodAgree a support method
• Drop inDrop in
• Alternative optionsAlternative options
• Professional supportProfessional support
Drop-in practicalitiesDrop-in practicalities
• VenueVenue
• FrequencyFrequency
• DurationDuration
• TimingTiming
• PublicityPublicity
• LayoutLayout
• SuppliesSupplies
• RolesRoles
• InsuranceInsurance
Funding needsFunding needs
• Minimal funding requirementsMinimal funding requirements
• Consider sponsored eventsConsider sponsored events
• Contact local CVO for advice and grant Contact local CVO for advice and grant informationinformation
Frequently asked questionsFrequently asked questions
• BereavementBereavement
• ConfidentialityConfidentiality
• Münchausen syndromeMünchausen syndrome
• Disruptive participantsDisruptive participants
• Medical adviceMedical advice
Being an ICUsteps groupBeing an ICUsteps group
• Member of ICUstepsMember of ICUsteps
• IndependentIndependent
• Startup grantsStartup grants
• Support networkSupport network
• Contributing to the larger pictureContributing to the larger picture
• What do YOU want from membership?What do YOU want from membership?