11/7/2013
Care Notebook
Texas Parent to Parent
Jeanine Pinner 1
Jeanine Pinner
Training & Outreach CoordinatorTexas Parent to Parent
Care
Notebook
With special thanks to Joni Bruce and the Oklahoma Family Network Care Notebook
Task Force 1
How can a Care
Notebook support
better outcomes?
�organize your most important information in a
central place
�makes it easier for you to find and share key
information with your child’s team
2
Helpful Hints for Your Care
Notebook
�Store it where it is easy to find.
�Add new information as you/your child have a
new evaluation, ARD, surgery, medication
change, diagnosis, etc.
�Take it with you to appointments, hospital visits
and ARD meetings.
�CD forms are PDF – save & print info – need latest Adobe Reader program (free)
3
Setting up your Notebook
� Gather information you already have
� Look through the pages provided
� Decide which information is most important to include
� Put the notebook together
� Review and update it as needed
� Don’t forget to take it with you!
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Nuts and Bolts
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Care Notebook Tabs:
�My Story
�My Health Care
�My Contacts
�My Plan
�My Coverage
�My Resources
�My Transition
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Care Notebook
Texas Parent to Parent
Jeanine Pinner 2
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My Story
�My Page
�My Typical Status
�My Family Profile & Contact Info
�My Updates/Notes
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� My Emergency Information Form
� My Portable Medical Summary (#1)
� My Portable Medical Summary (#2)
� My Appointment Log
� My Blood Pressure/Sugar Log
� My Medication Log
� My Evaluations
� My Diet Tracking & Nutrition Information
� My Growth Tracking Form
� My Important Tests
� My Catheterization Information/Schedule
� My Hospitalizations/ Surgeries
� My Event Diary
� My Seizure/Behavior Log
� My Updates/Notes
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Coming soon
Diagnosis(es)
Immunizations & Allergy
Nebulizer & Vest Treatments
Respiratory
Dental
Medical Supplies
My Health Care
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My Contacts
�My Medical Contacts
�My School Contacts
�My Early Intervention Contacts
�My Contact/Discussion Record Form
Coming soon: Family Support Resources
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My Plan
�My Social Experiences
Coming soon: Activities of Daily LivingRecreationCommunicationCommunication InformationCoping/Stress/ToleranceMobilitySocial/PlayRest/Sleep
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My Coverage
�My Insurance Information
Coming soon: Medical Bill CommunicationTracking of Medical BillsMedical Travel Expense LogOut-of-Pocket Expense LogNotes
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Care Notebook
Texas Parent to Parent
Jeanine Pinner 3
My Resources
• Any information or organization that serves as a resource for your family!
�case manager contact information
�TxP2P web site
�TxP2P State & National Resource List
�Parent Training and Information center contact information
�child care provider, Catholic Charities, etc.
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My Transition
• Asset Development
• College Information
• Interviews
• Job Application & W-4
• References
• Resumes & Letters
• Health Care Transition
• Developmental Skills Checklists
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My Transition
• Asset Development
�Financial Goal Setting
�Intro Letter for Money Management
�Planning for the Future Career Tech Budget Info
Coming soon: Asset Assessment Tool
Monthly Budget Form
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My Transition
• College Information
�Scholarship Essays
Coming soon: Financial Aid/Scholarship Tracking
Form
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My Transition
• Interviews
�How to Answer Common Interview Questions
�How to Dress for an Interview - Men
�How to Dress for an Interview – Women
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My Transition
• Job Application & W-4
�Directions for Completing Form W-4
�Form W-4
�Subway Job Application Filled Out – Sample
�Subway Job Application – Blank
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Care Notebook
Texas Parent to Parent
Jeanine Pinner 4
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My Transition
• References
�References Blank Template #1 (Word)
�References Blank Template #2
�References Directions
�References Sample & Directions
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My Transition
• Resumes & Letters
�Resume Sample & Directions
�Sample Cover Letter & Directions
�Sample Letter of Resignation & Directions
�Resume Extracurricular Activities Examples
�Resume Extracurricular Activities Worksheet
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My Transition
• Health Care Transition
�Keeping Track of My Own Health Care
�Health Care Transition Checklist
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My Transition
• Developmental Skills Checklists
�Adolescent Autonomy Checklist
�Transition Developmental Checklist
Coming soon: My Transition Worksheet
Texas Parent to Parent
3710 Cedar Street, Box 12Austin, Texas 78705www.txp2p.org
toll-free 866-896-6001
local 512-458-8600
Fax 512-451-3110
Jeanine Pinner
[email protected] (cell)
THANK YOU!
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