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Educa&on & Advocacy Track: Parents and Naloxone Joanne Peterson, Founder and Execu2ve Director, Learn to Cope Karen H. Perry, CoFounder and Execu2ve Director, NOPE Task Force Moderator: Jackie L. Steele Jr., JD, Commonwealth of Kentucky AKorney, 27th Judicial Circuit

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Education & Advocacy: Parents and Naloxone - Joanne Peterson and Karen Perry

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Educa&on  &  Advocacy  Track:  Parents  and  Naloxone    

Joanne  Peterson,  Founder  and  Execu2ve  Director,  

Learn  to  Cope  

Karen  H.  Perry,  Co-­‐Founder  and  Execu2ve  Director,  

NOPE  Task  Force  

Moderator:  Jackie  L.  Steele  Jr.,  JD,  

Commonwealth  of  Kentucky  AKorney,  27th  Judicial  Circuit    

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Disclosures  

  Joanne  Peterson  has  no  financial  relationships  with  proprietary  entities  that  produce  health  care  goods  and  services.  

 Karen  H.  Perry  has  no  financial  relationships  with  proprietary  entities  that  produce  health  care  goods  and  services.  

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Learning  Objec2ves  1.  Describe  the  current  misperceptions  of  prescription  

drug  abuse  among  parents  and  teenagers.  2.  Outline  strategies  for  educating  the  community  

about  the  dangers,  and  solutions.  3.  Analyze  the  efficacy  and  best  practices  for  

distributing  nasal  naloxone  in  an  effort  to  reduce  overdose  deaths  from  prescription  drug  abuse.  

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Joanne  Peterson,  Founder  and  Executive  Director  

“Never  doubt  that  a  small  group  of  thoughtful,  committed,  citizens  can  change  the  world.  Indeed,  it  is  the  only  thing  that  ever  has.”  

Margaret  Mead  

Parents  and  Naloxone  

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What  is  Learn  to  Cope?   Peer-­‐led  solutions  based  network  for  families  dealing  with  addiction;  mainly  those  affected  by  the  opioid  prescription  and  heroin  epidemic.  

 Offers  support,  education,  resources  and  HOPE.   Pilot  site  for  MA  DPH  Nasal  Naloxone  (Narcan)  training  and  distribution  program    First  parent  network  in  the  country  to  have  trained  and  certified  parents  distributing  nasal  naloxone  to  peers.  

 Education  to  staff,  families  and  overall  communities  to  recognize  signs,  symptoms,  and  risk  factors  of  drug  use  

 Advocacy  

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Overview    Support  network  for  parents  and  other  family  members  whose  loved  ones  are  using  drugs.  

  Founded  in  2004    “TEN  YEARS  AND  STILL  GOING  STRONG”  

 Expanded  to  12  weekly  meetings  in  communities  across  Massachusetts    

 Over  5,100  online  registered  members  locally  and  nationally    

 Overdose  education  and  naloxone  kits  provided  at  every  meeting  in  Massachusetts    

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Mission  of  Learn  to  Cope  Support,  Educa&on,  Resources,  Hope  

 Provide  a  safe  space  for  families  to  share  their  experiences  and  receive  support.  

 Provide  education  for  families  about  addiction  with  kindness,  compassion  and  care.  

 Provide  hope  and  resources  for  families.    

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Totals  in  the  Life  of  the  Private  Family  Discussion  Forum  Since  November  of  2008,  the  private  family  discussion  board  has  had…..  

 5,124  members  register   10,764  topics  created   87,796  posts  made   1,835,123  views    *Prior  to  November  2008  statistics  from  former  website  were  not  taken.  

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New  Registra&ons  March  2013  to  March  2014  

 **Stats  based  on  info  up  to  March  22,  2014  

Avg.  of  4-­‐5  registrations  per  day**  

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New  Topics    March  2013  to  March  2014  

**Stats  based  on  info  up  to  March  22,  2014  

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Number  of  Posts  March  2013  to  March  2014  

*  **Stats  based  on  info  up  to  March  22,  2014  

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Views  to  Topics  Created  March  2013-­‐March  2014  

**Stats  based  on  info  up  to  March  22,  2014  

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MA  Opioid  Overdose  Preven2on  Pilot    2007:  MDPH  starts  an  Opioid  Overdose  Prevention  Pilot  via  standing  order  

  2009:  Expansion  to  more  community  based  organizations  and  outreach    

  2010:  First  responders  –  police  and  fire    2011:  Learn  to  Cope  

  2012:  Legislature  passed  Good  Samaritan  911  and  limited  liability  protection  

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Enrollments  and  Rescues:    2006-­‐2013(first  half)  

  Enrollments    >21,000  individuals      >12  per  day  

  Rescues    >2,500  reported      >1  per  day  

•  AIDS  Ac2on  CommiKee  •  AIDS  Project  Worcester    •  AIDS  Support  Group  of  Cape  Cod  •  Brockton  Area  Mul2-­‐Services  Inc.    (BAMSI)    

•  Bay  State  Community  Services  •  Boston  Public  Health  Commission  •  Greater  Lawrence  Family  Health  Center  •  Holyoke  Health  Center  •  Learn  to  Cope  •  Lowell  House/  Lowell  Community  Health  

Center  •  Manet  Community  Health  Center  •  Northeast  Behavioral  Health  •  Seven  Hills  Behavioral  Health  •  Tapestry  Health  •  SPHERE  

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Data from people with location reported: Users:11,654 Non-Users: 5,677

Program data

Enrollment  Loca&ons:  2008-­‐2013(first  half)  

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Mo2va2ons  for  Family  Members  to  Receive  Overdose  Educa2on  and  Naloxone  Rescue  Kits  

N  (%)  

Total   93  

Wanted  to  have  kit  in  house   67(72%)  

Encouraged  by  education  provided  at  Learn  to  Cope  

56  (60%)  

Heard  about  benefits  from  Learn  to  Cope  members  

53  (57%)  

Wanted  more  information  about  overdose  

24  (26%)  

Wanted  kit  for  someone  else   18  (19%)  

Previously  witnessed  overdose   17  (18%)  

Experienced  death  of  loved  one   1  (1%)  

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Benefits  of  Overdose  Educa2on  for  Family  Members    

N  (%)  

Total     92  

Greater  sense  of  security   68  (74%)  

Improved  confidence  to  manage  overdose  

57  (62%)  

Greater  understanding  of  overdose  education  than  they  have  already  had  

55  (60%)  

Able  to  education  others   30  (33%)  

Able  to  reverse  an  overdose   27  (29%)  

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Parents  and  Naloxone  Karen  H.  Perry  Co-­‐Founder    

Execu&ve  Director  NOPE  Task  Force  

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Karen  Perry  has  no  financial  rela2onships  with  proprietary  

en22es  that  produce  health  care  goods  and  services.  

Disclosure  Statement  

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Richard  Perry    Age  21  

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Orange  County  Fire  &  Rescue  

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Consent  to  Treatment  

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Release  Orders  

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Richard  Perry    Age  21  

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Extensive  Research  

NOPE  Task  Force  supports  and  promotes  the  use  of  Naloxone  by,  first  responders  being  trained  emergency  medical  technicians  and  Law  Enforcement  Officers.      

In  addi2on,  NOPE  is  cau2ous  in  the  promo2on  of  other  promising  Naloxone  distribu2on  models  un2l  Data  is  provided  that  third  party  distribu2on  would  not  have  uninten2onal  nega2ve  effects  on  communi2es  such  as  increase  the  number  of  first  2me  users  and/or  increase  current  use  and  decrease  the  number  of  people  who  seek  treatment.    

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Palm  Beach  County  Sheriff’s  Office  Quan&ta&ve  Research  

 Collec2ng  extensive  demographic  and  circumstan2al  data  from  each  overdose  death  inves2ga2on.  

 Designing  a  prac2cal  overdose  death  database.  

 Exposing  overdose  correla2ons  and  trends.    

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Case  Examina&ons  

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Consent  to  Treatment  

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Consent  to  Treatment  

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Percep&ons  of  Alcohol  Since 2003, perceived risk of binge drinking on has risen in all grades, at least through 2011. These changes are consistent with changes in actual binge drinking-trends of binge drinking have declined.

We believe, the public service advertising campaigns in the 1980s against drunk driving, as well as the urged use of designated drivers, contributed to the increase in perceived risk of binge drinking generally. Drunk driving by 12th graders declined during that period by an even larger proportion than binge drinking.

Also, we showed that increases in the minimum drinking age during the 1980s were followed by reductions in drinking and increases in perceived risk associated with drinking. Source: Monitoring the Future Survey 2013

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Alcohol  Use  &  Percep&on  of  Risk  

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Percep&ons  of  Marijuana  The proportion of students seeing great risk from using marijuana regularly fell during the rise in use in the 1990s, making perceived risk a leading indicator of change in use.

The decline in perceived risk halted in 1996 in 8th and 10th grades; the increases in use ended a year or two later, again making perceived risk a leading indicator of use.

Perceived risk did decline some in all grades in 2012 and again in 2013 as use rose in 8th and 10th grades.

Source: Monitoring the Future Survey 2013

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Marijuana  Use  &  Percep&on  of  Risk  

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Source: A Weekly FAX from the Center for Substance Abuse Research, January 14, 2013, Vol. 22, Issue 2

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Percep&ons  of  Synthe&c  Marijuana  

All three grades (8th, 10th, and 12th) were asked about whether they associate great risk with trying synthetic marijuana once or twice, and as can be seen on the facing page, there is a quite low level of perceived risk obtained (between 24% and 26%) for experimental use.

Likely the availability of these drugs over the counter has had the effect of communicating to teens that they must be safe, though they are

not. Source: Monitoring the Future Survey 2013

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  1 in 6 parents (16 percent) believes that using prescription drugs to get high is safer than using street drugs

  More than 1 in 4 teens (27 percent) shares the same belief.

  1/3 of teens (33 percent) say they believe “it’s okay to use prescription drugs that were not prescribed to them to deal with an injury, illness or physical pain.”

  1/4 of teens (25 percent) says there is little or no risk in using prescription pain relievers without a prescription, and more than 1 in 5 teens (22 percent) says the same for Ritalin or Adderall.

  Additionally, 1 in 5 teens (20 percent) says pain relievers are not addictive.

Percep&ons  on  Prescrip&on  Drugs  

Source: 2012 Partnership Attitude Tracking Study

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Source: 2012 Partnership Attitude Tracking Study

Percep&ons  on  Prescrip&on  Drugs  

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False  Sense  of  Security  

       Vic2ms  must  use  in  presence  of  Naloxone    administrator.    

       Vic2ms  may  suffer  a  subsequent  overdose  as  opiods    have  longer  life  span  in  body  than  Naloxone.  

       One  dose  may  not  be  sufficient  for  revival.  

       Naloxone  is  not  a  subs2tute  for  long  term  treatment    for  opiod  abuse.  

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Mixed  Messaging  

       Heroin  is  illegal.  

       Prescrip2on  drug  abuse  or  misuse  is                  illegal.    

       Asking  a  third  party  to  par2cipate  in  a  situa2on  that    is  illegal  –is  dangerous,  confusing  .  

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Responsibility  

       Taking  the  responsibility  of  ac2ons,  treatment  and    recovery  from  the  addict  and  placing  it  on  third    party  (parent  sibling  friend)  

       Enabling  may  interfere  with  successful  substance    abuse  treatment  plan  

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NOPE  Supports  The  White  House  Office  of  Na&onal  Drug  Control  Policy’s  Posi&on  on  Naloxone  Treatment  

The  Administra2on  con2nues  to  promote  the  use  of  Naloxone  among  those  likely  to  encounter  overdose  vic2ms,  including  first  responders.    As  highlighted  in  the  2013  Na#onal  Drug  Control  Strategy,  the  Police  Department  in  Quincy,  MassachuseKs,  has  partnered  with  that  State’s  health  department  to  train  and  equip  police  officers  to  resuscitate  overdose  vic2ms  using  Naloxone.  Since  October  2010,  officers  in  Quincy  have  administered  Naloxone  in  approximately  200  overdose  events,  almost  all  of  them  resul2ng  in  successful  overdose  reversals.  ONDCP  is  working  with  health  officials  and  law  enforcement  leaders  in  a  number  of  states  and  locali2es  to  encourage  implementa2on  of  similar  Naloxone  distribu2on  programs.    In  addi2on,  the  Administra2on  is  working  with  health  care  leaders  to  iden2fy  and  promote  other  promising  Naloxone  distribu2on  models.      

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Extensive  Research  

NOPE  Task  Force  supports  and  promotes  the  use  of  Naloxone  by,  first  responders  being  trained  emergency  medical  technicians  and  Law  Enforcement  Officers.      

In  addi2on,  NOPE  is  cau2ous  in  the  promo2on  of  other  promising  Naloxone  distribu2on  models  un2l  Data  is  provided  that  third  party  distribu2on  would  not  increase  the  number  of  first  2me  users  and/or  increase  current  use  and  that  the  program  would  not  decrease  the  number  of  people  who  seek  treatment.    

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Mandatory  Follow-­‐Up  Care  

It  is  impera2ve  to  compel  the  vic2m  into  to  detox  and  treatment.  upon  receiving  the  life  saving  drug  Naloxone.  

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Overdose  Preven&on  Act  

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Preven&on  and  Educa&on  

Presenta&ons  

     Middle  &  High  Schools  

     Universi2es       Parents  &  Communi2es  

     Treatment  Centers  

     Correc2onal  Ins2tu2ons       Health  Care  Professionals  

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Advocate  for  Legisla&on  

     Be  informed  of  local      issues  and  poten2al  bills    

     Create  tool  kit  for    community  partners  

     Inform  partners  of    upcoming  bills    

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NOPE  Task  Force,  Inc.  

866-­‐612-­‐NOPE  www.nopetaskforce.org  

Karen  Perry  [email protected]