engaging patients and their families in practice change and

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Professor Tanya McCance & Ms Rosie Kelly

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Page 1: Engaging patients and their families in Practice Change and

Professor Tanya McCance & Ms Rosie Kelly

Page 2: Engaging patients and their families in Practice Change and

Background Information The project is a collaboration

between UTS (lead researcher Professor Val Wilson co-joint appointment with Sydney Children’s Hospitals Network) & University of Ulster (lead researcher Professor Tanya McCance)

This study is being conducted in collaboration with children’s hospitals and children’s units in general hospitals across a number of countries in Europe and Australia with 12 organisations involved (across 20 wards/units)

A core set of 8 KPIs have been developed from primary research undertaken by Tanya McCance at the University of Ulster

Participants from the

Australian sites

Workshop 29/30th Jan

2013

Page 3: Engaging patients and their families in Practice Change and

KPIs for Nursing and Midwifery KPI 1: Consistent delivery of nursing/midwifery care against identified need

KPI 2: Patient’s confidence in the knowledge and skills of the nurse/midwife

KPI 3: Patient’s sense of safety whilst under the care of the nurse/midwife

KPI 4: Patient involvement in decisions made about their nursing/midwifery care

KPI 5: Time spent by nurses/midwives with the patient

KPI 6: Respect from the nurse/midwife for patient’s preference and choice

KPI 7: Nurse’s/midwife’s support for patients to care for themselves where appropriate

KPI 8: Nurse’s/midwife’s understanding of what is important to the patient

(McCance et al 2012)

Page 4: Engaging patients and their families in Practice Change and

Person-centred Nursing Framework

(McCormack & McCance 2010)

PERSON-CENTRED PROCESSESConsistent delivery of nursing/midwifery care against identified needTime spent by nurses/midwives with the patient

Working with patient’s beliefs and valuesKnowing what is important to the patientRespect for patient’s preference and choice

Sharing decision makingPatient involvement in decisions made about his/her care

Providing holistic careSupport of patients to care for themselves, where appropriatePatient’s sense of safety whilst under the care of the nurse/midwife

ATTRIBUTES OF THE NURSEProfessionally competentPatient’s confidence in the knowledge and skills of the nurse/midwife

Page 5: Engaging patients and their families in Practice Change and

Measurement Framework

The framework for measurement utilises a range of data collection methods

The measurement framework comprises three key data sources

i. obtaining user feedback (patient survey & patient/family stories)

ii. observations of practiceiii. reviewing the patient records against

identified goalsiv. Speaking with staff

Page 6: Engaging patients and their families in Practice Change and

Project Aim

To explore the utility of these KPIs and related measurement framework in

supporting the development of person-centred practice across a range of services

provided to sick children.

Page 7: Engaging patients and their families in Practice Change and

European Sites

Hans Christian Andersen Children's Hospital, Odense, Denmark

Temple Street Children's University Hospital, Dublin, Ireland

Great Ormond Street Hospital, London, England, UK

East Kent, England, UKRoyal Belfast Hospital for Sick Children, Belfast,

Northern Ireland UKSouth Eastern Trust, Northern Ireland UK

Page 8: Engaging patients and their families in Practice Change and

Australian Sites

Princess Margaret Hospital for Children, Perth

Northern Sydney Local Health District Nepean Blue Mountains Local Health

District The Women's and Children's Hospital,

Adelaide The Sydney Children’s Hospital’s Network

Page 9: Engaging patients and their families in Practice Change and

Project Plan

Page 10: Engaging patients and their families in Practice Change and

Stage 2: Implementation of the KPIs and measurement framework

1 2 3 4 5 6 7 8 9 10

Survey Survey Survey Survey Survey Survey

Survey Observation

Analysis

Feedback

        Stories

Stories

Transcribe

Analysis    

            Document      

• Survey: distributed to all patients on discharge (over 7 weeks)

• Stories: 3 family stories over 1 week and 3 patient stories over 1 week

• Documentation: review patient record in conjunction with asking staff about patient goals (10 reviews over 1 week)

• Observation: monitoring nursing presence in a specified bay over a 30 minute time period (3 over 1 week)

Page 11: Engaging patients and their families in Practice Change and

Outcomes for SE Trust (1)

KPI 8: Did you feel the nurses understood the things that were important to your child during their time in hospital?

Parent’s comment:

Maybe they could have told the parents a wee bit more about the arrangements for staying overnight. Because you’re sitting there you don’t really know whether to get into your jammies or not or is there a bathroom for the mummies that we can use. Nobody really said anything to us so we weren’t sure, so maybe that was the only thing .

Page 12: Engaging patients and their families in Practice Change and

Outcomes for SE Trust (2)

KPI 5: Did you feel that the nurses had enough time to give the care which your child needed?

Patient Satisfaction survey

Parent’s comments:They had time for them, you know, they spent time with them and got them whatever they needed. And if the buzzer went they were there.

Page 13: Engaging patients and their families in Practice Change and

Outcomes for SE Trust (3)

KPI 4 : Did you feel the nurses involved you in the decisions made about your/your child’s care?

Child’s comments:I felt really included in every decision that there was to make, because they made me fell like I was the adolescent and they treated me like I was the person going through, like I was able to make the decisions and it gives you a sense of independence and I really like that.

Page 14: Engaging patients and their families in Practice Change and

Action Plan 

Issue Relationship to KPI

 

Action Required 

 

Person Responsible & Date for Completion

 

Current documentation does not:1.Facilitate easy identification of parent daily priorities of care to their hopes/wishes. 2.Clearly identify area for nurses to record daily patient priorities  

KPI 4 patient’s involvement in decision makingKPI 8 understanding of what is important to the patient 

Review of current nursing documentation is already underway

Rosie Kelly and pediatric ward sisters/deputy sisters   

There is no agreed standard written information leaflet/ welcome to booklet for the children’s unit.

KPI 6 Respect for patient preference and choice KPI 8 understanding of what is important to the patient 

The development of ‘Welcome to the children and young person’s unit at the Ulster Hospital’ booklet

Craig Ward staff  

Page 15: Engaging patients and their families in Practice Change and

Our experience

Staff engagement through regular feedback is keyTime consuming to embed in practiceLearning new skills around data collection and analysis

made us a bit anxious to start withAction planning is a bonus because it gave us focusPublicising our results for parents and kids to see is

important

Page 16: Engaging patients and their families in Practice Change and

OutcomesExample 2: Comparison of six wards in one organisation

KPI 1: Consistent delivery of nursing care against identified need Patient Satisfaction Survey“Did you feel that the care your child needed was delivered each day regardless of which nurses were on duty?”

KPI 5: Time spent by nurses with the patient

Observations of Practice: Based on observations carried out at differing times of the day

Page 17: Engaging patients and their families in Practice Change and

Outcomes

Example 4: Benchmarking across all participating sites

KPI 1: Consistent delivery of nursing care against identified need

 Chart Review

Page 18: Engaging patients and their families in Practice Change and

Novelty of the projectMeasuring the impact of nursing on the experience of

patients and their familiesInvolving nurses in evaluating and making changes to

their own practice as a result of engaging with the research process

Implementing processes that support the use of evidence to inform practice and knowledge translation in action

Developing capacity in research through engagement of local facilitators

Creating active research collaborations that can influence the local, national and international healthcare agenda.

Page 19: Engaging patients and their families in Practice Change and

Further Information

Professor Tanya McCanceInstitute of Nursing and Health ResearchUniversity of UlsterE: [email protected]

Ms Rosie KellyPaediatric Unit South Eastern Trust E: [email protected]

Patricia Coulter BHSCT E: [email protected]