exponential-big-data
TRANSCRIPT
The Internet of Human Beings Nov 9-12 , 2014 | California
Exponential Big Data =
Self Organizing Genomes With
Real Time Consent
Alice Rathjen © 2014 -
Gene Patents
De-Identified Data
Governments Jurisdiction – with some govts owning/selling their populations genomes
Self-Organizing Genomes with Real time Consent
1st Genome
Alice Rathjen © 2014
-
2nd Genome
3rd Genome
4th Genome
The Evolution of Our Digital Humanity Digital Citizenship & Human Autonomy
The Emergence of Digital Human Rights
The Current Web
The Future Web
Mobile Internet of
Things
Search
E Commerce
Social
Biological Network - Internet of
Human Beings
The Old Web
Health Care IT & the Future Web
Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -
What Happens Once Genetic Data
is Added to a Health Record?
Health Record
Genetic Dataset
“Sticky” Universal
Health Record
Alice Rathjen © 2013 -
Health Data Becomes Identifiable
Big Data = Big Liability
Health Record
Genetic Dataset
De-identified
Data
De-Identified
Data
Alice Rathjen © 2013 -
Solution : Health IT Network =
Biological Domain Registrar
Health Record
Genetic Dataset
Portable Patient Health
Record (patient picks
trusted registrar)
Alice Rathjen © 2013 -
Real Time Consent
Future Health Record
Human = Node On The Network
Biometric
Map of the Body
Map of Genome(s)
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2014 -
The Human Body & Genome In Time & Space
Alice Rathjen © 2014
-
Real Time Consent
Data Organized by Biometric,
with Location & Time
Patient Raw Data Stored
Separately
Dynamic Interpretation &
Reports
Needs to be able to Scale
Indefinitely
Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete (by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone
PG = Physician Guidance
R = Restricted
(Medical Ethics, Counselor)
Category Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -
User Accounts Biological Domains
Old Big Data vs. New Big Data
just data JUST DATA Alice Rathjen © 2013 -