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F O U N D E D I N A P R I L 1 9 9 3 EHF news 1 EHF News Newsletter of the European Headache Federation What’s on Calendar on forthcoming events on headache Page 4 E bulletin Number 71, May 2011 The Journal of Headache and Pain The official journal of the European Headache Federation Page 3 Ehf Memoirs Amarcord..... Page 3 European Headache Videoconference Course 2011 was held in Kiev, Ukraine Page 2 Lifting The Burden Web Site The Global Campaign against Headache ATLAS of Headache Disorders and Resources in the World 2011 Page 2 What is It? The Global Campaign against Headache is a worldwide partnership. First and foremost, it is a collaboration with the World Health Organization (WHO), with which Lifting The Burden is in Official Relations. Lifting The Burden believes that, through formal partnership with WHO, harnessing WHO's experience, know-how, contacts and resources, it can open doors, address problems and propose and test potential solutions in parts of the world that cannot otherwise be reached. The Global Campaign is also a partnership with international nongovernmental organizations, academic institutions and many willing individuals around the world. Through these many partnerships, the Global Campaign endeavours to find practical local solutions to a global public-health problem. Purpose The Global Campaign's essential purpose is to bring better health care to people with headache, thereby reducing the burden of headache worldwide. The Problem Summarized Headache disorders are real and often lifelong illnesses. They are very common, affecting men, women and children in every part of the world. What is more, they are disabling. In the World Health Report 2001 [reference 1], the World Health Organization ranked migraine among the top 20 causes in the world of years of healthy life lost to disability. Migraine is the cause of an estimated 400,000 lost days from work or school every year per million of the population in developed countries. Migraine harms family and social relationships and damages quality of life. Migraine, however, is only one of several headache disorders with public-health importance. The others include tension-type headache and a group of disorders, including medication-overuse headache, that are characterized by headache occurring on more days than not (sometimes without remission). Together, these are believed to be responsible for even more disability than migraine [ reference 2 ] . If this is so, headache disorders collectively are in the top ten causes of disability worldwide, and the top five in women. That is one side of the problem. A second is that, although good health care can greatly reduce this burden, it still persists everywhere. In some places it is not lessened at all. The principal reason is that health-care systems, which should provide this care, simply do not reach many who need it. This abject health-care failure has its roots in education failure at every level, and in the resulting and widespread lack of understanding.A third side of the problem is perspective. Research into disease mechanisms is unquestionably important if they are to be understood and new and more effective treatments made available. Yet we know that the discoveries of the last 15 years - so exciting in the developed world - do not touch a large majority of the world's headache-blighted lives. This is why headache matters as a public-health imperative. continue on page 3 www.l-t-b.org

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F O U N D E D I N A P R I L 1 9 9 3

EHF news 1

EHF NewsNewsletter of the European Headache Federation

What’s on Calendar on forthcoming events on headachePage 4

E bulletin Number 71, May 2011

The Journal of Headache and PainThe official journal of the European Headache Federation Page 3

Ehf Memoirs Amarcord.....Page 3

!European Headache Videoconference Course 2011 was held in Kiev, Ukraine Page 2

Lifting The Burden Web SiteThe Global Campaign against Headache

ATLAS of Headache Disorders and Resources in the World 2011Page 2

What is It?The Global Campaign against Headache is a worldwide partnership. First and foremost, it is a collaboration with the World Health Organization (WHO), with which Lifting The Burden is in Official Relations. Lifting The Burden believes that, through formal partnership with WHO, harnessing WHO's experience, know-how, contacts and resources, it can open doors, address problems and propose and test potential solutions in parts of the world that cannot otherwise be reached. The Global Campaign is also a partnership with international nongovernmental organizations, academic institutions and many willing individuals around the world. Through these many partnerships, the Global Campaign endeavours to find practical local solutions to a global public-health problem.PurposeThe Global Campaign's essential purpose is to bring better health care to people with headache, thereby reducing the burden of headache worldwide.

The Problem SummarizedHeadache disorders are real and often lifelong illnesses. They are very common, affecting men, women and children in every part of the world. What is more, they are disabling. In the World Health Report 2001 [reference 1], the World Health Organization ranked migraine among the top 20 causes in the world of years of healthy life lost to disability. Migraine is the cause of an estimated 400,000 lost days from work or school every year per million of the population in developed countries. Migraine harms family and social relationships and damages quality of life. Migraine, however, is only one of several headache disorders with public-health importance. The others include tension-type headache and a group of disorders, including medication-overuse headache, that are characterized by headache occurring on more days than not (sometimes without remission). Together, these are believed to be responsible for even more disability than migraine [reference 2]. If this is so, headache disorders collectively are in the top ten causes

of disability worldwide, and the top five in women. That is one side of the problem. A second is that, although good health care can greatly reduce this burden, it still persists everywhere. In some places it is not lessened at all. The principal reason is that health-care systems, which should provide this care, simply do not reach many who need it. This abject health-care failure has its roots in education failure at every level, and in the resulting and widespread lack of understanding.A third side of the problem is perspective. Research into disease mechanisms is unquestionably important if they are to be understood and new and more effective treatments made available. Yet we know that the discoveries of the last 15 years - so exciting in the developed world - do not touch a large majority of the world's headache-blighted lives. This is why headache matters as a public-health imperative.

continue on page 3

www.l-t-b.org

EHF News: e-bulletin of the European Headache Federation

page 2

EHF Video Schoolin Kiev

European Headache School took place in Kiev on the 7th of May 2011, for the first time in Ukraine. One day video course was held for 40 doctors of different specialties neurologists, general physicians, neurosurgeons, clinical pharmacologists and health professionals. The conference was opened with welcome notes of Professor Fabio Antonaci (University Consortium for Adaptive Disorders and Headache (UCADH), Headache Medicine Centre (Pavia, Monza, Italy) , who was the initiator of holding the video course, together with Dr. Tatiana Maykova (Headache Center Kiev, Dnepropetrovsk, Ukraine). Fabio Antonaci leaded the work of the conference. Conference program was intensive 18 video lectures concerned key issues in classification, diagnostics, clinical aspects and treatment of headache. During several discussion sessions Professor Antonaci answered numerous key questions.The conference took place with the help of Renata Branderova. Financially the video course was supported by Almirall.Organizers from Ukrainian side were Tatiana Maykova (Headache Center Kiev, Dnepropetrovsk, Ukraine), Ukrainian producer PharmaStart Company, Ukrainian offices of Novartis, Actavis and Berlin-Chemie.European Headache School appeared to be a great event for Ukraine. Ukrainian doctors hope for continuing of this educational program.

Tatiana Maykova, (Kiev)

ATLAS OF HEADACHE DISORDERS AND

RESOURCES IN THE WORLD 2011

A collaborative project of World Health Organization and

Lifting The Burden

Headache disorders are among the most common disorders of the nervous system, causing substantial ill-health and disability in populations throughout the world. despite this, they are underestimated in scope and scale, and there is little recognition of their public-health impact. it is not known how, or how effectively, health-care and other resources are utilized to mitigate their effects. Who has a number of important initiatives in the field of clinical neuroscience designed to promote international collaboration, enhance research capacity and, above all, develop programmes to benefit communities worldwide affected by neurological disorders. among them is Project Atlas, a series of publications now including the Atlas of Headache Disorders, the result of a collaborative study by who and the nongovernmental organization, Lifting The Burden: the Global campaign against headache. the Global campaign involves multiple nongovernmental organizations, academic institutions and individuals worldwide, with objectives not only of better professional, public and political awareness of the global burden of headache but also of solutions to it. It might appear that production of an atlas would be difficult in relation to headache disorders, but this publication, carefully and expertly designed and covering, as it does, very important causes of population ill-health and disability, is highly appropriate and timely. its introduction provides a clear description of its purpose, definitions and descriptions of the principal headache disorders and an account of barriers to care that must be overcome if these are to be managed effectively. the results, gathered from respondents from more than half the world’s countries, are set out in themes: epidemiology, the impact of headache disorders on society, health-care utilization, diagnosis, assessment and treatment, professional training and the importance of national professional organizations are all given full consideration. The key messages derived from this project can be expected to have major influence upon the recognition and management of headache disorders across the world. this publication is likely to be widely read; it is an important resource for doctors and others interested in headache disorders or concerned with their management, especially policy-makers.

Lord Walton of Detchant, Kt TD MA MD DSc FRCP FMedSci

Former President, World Federation of Neurology Crossbench Life Peer, UK House of Lords

Authors: WHO, Lifting the Burden

EHF News: e-bulletin of the European Headache Federation

page 3

The Journal of Headache and Pain

Vol. 12, n. 3 (2011)New Issue Alert

In the current issue:

•The Global Campaign, World health Organization and Lifting The Burden: collaboration in action by timothy J. steiner et al• Optimal balance of efficacy and tolerability of oral triptans and telcagepant: a review and clinical comment by Peer Tfelt-Hansen • Phantom headache: pain-memory-emotion hypothesis for chronic daily headache? by Sanjay Prakash & Purva Golwala• Migraine triggered seizures and epilepsy triggered headache and migraine attacks: a need for reassessment by Paul T. G. Davies & C. P. Panayiotopoulos• Migralepsy, hemicrania epileptica, post-ictal headache and “ictal epileptic headache”: a proposal for terminology and classification revision by Vincenzo Belcastro et al• Does visual cortex lactate increase following photic stimulation in migraine without aura patients? A functional 1H-MRS study by Harmen Reyngoudt et al• Basal cutaneous pain threshold in headache patients by Maurizio Zappaterra et al• Incidence and influence on referral of primary stabbing headache in an outpatient headache clinic by A. L. Guerrero et al

• A 4-year follow-up of patients with medicat ion-overuse headache previously included in a randomized multicentre study by Knut Hagen et al• Anxiety disorders in headache patients in a specialised clinic: prevalence and symptoms in comparison to patients in a general neurological clinic by D. Mehlsteibl et al• Primary headaches in patients with generalized anxiety disorder by Juliane P. P. Mercante et al

• Effectiveness of an educational and physycal program in reducing accompanying symptoms in subject with head and neck pain: a workplace controlled trial by Eugenia Rota et al• Association between blood pressure measures and recurrent headaches in adolescents: cross-sectional data from the HUNT-Youth study by Erling Tronvik et al• Solublo CD40 ligand and prolactin levels in migraine patients during interictal period by Sibel Guldiken et al • A double-blind, randomized, multicenter, Italian study of frovatriptan versus almotriptan for the acute treatment of migraine by    Marco  Bartolini  et  al• One case of sporadic hemiplegic migraine with multiple pulmonary arteriovenous malformation by Mianwang He et al•  transient stabbing headache from an acute thalamic hemorrhage by Matthew S. Robbins• Wallenberg’s syndrome and symptomatic trigeminal neuralgia by Carlos M. Ordas et al• Faccial pain and multiple cranial palsies in a patient with skin cancer by E. Janina Viken et al• Short-lasting unilateral neuralgiform headache attacks with cranial autonomic symptoms (SUNA) secondary to epidermoid cyst in the rught cerrebellopontine angle successfully treated with surgery by Pedro Enrique et al• PRES after spinal anesthesia by Satoru Takeuchi et al• Reply to Dr. Takeuchi: PRES after epidural anesthesia by Sivia Pugliese & Alessandro Bozzao• When to use frovatriptan in migraine? by Peer Carsten Tfelt-Hansen• When to use frovatriptan in migraine? A reply by Brigida Fierro et al

EHF MEMOIRS Amarcord....

Memories of the past to help build the action of present.

To update your data connect to: www.ehf-org.org

!

Vision, Aims and MissionThe Global Campaign is a response to these global failures. Its vision is of a future world in which headache disorders are recognized everywhere as real, disabling and deserving of medical care. In this future world, all who need headache care have access to it, without artificial barriers. The first objective is to know the size and nature of the headache problem in all regions of the world ("knowledge for action"). This can be achieved in two major steps: by bringing together all of the published worldwide evidence of the burden attributable to headache, and by setting up new studies where the available evidence is lacking or of poor quality. It is perhaps extraordinary that, in 2004, very little was known of the prevalence or burden of any headache disorder for more than half the people of the world: those living in most of the Western Pacific including China, all of South East Asia including India, all of Eastern Europe including Russia, most of Eastern Mediterranean and most of Africa. The Campaign will use this knowledge, as it is gathered, to achieve its second objective. This is to persuade governments and other health-service policy-makers, health-care providers, people directly affected by headache and the general population that, on clear evidence, headache must have higher health-care priority ("awareness for action").Lifting The Burden believes that the basis of the health-care solution for headache in most parts of the world is education. The third objective, and the ultimate purpose of the Global Campaign, is to work with local policy-makers and principal stakeholders to plan and implement health-care services for headache, ensuring these are appropriate to local systems, resources and needs ("action for beneficial change"). Within these services, better diagnosis and better care will be fostered through education. Lifting The Burden also believes that most headache management belongs in primary care, where education must be supplemented by clinical management supports to promote expertise and optimize the quality of care. These include diagnostic aids; region-based management guidelines; information sheets for patients, to aid understanding and promote compliance with treatment; and measures of treatment outcome.Mission StatementThe mission of the Global Campaign is to reduce the burden of headache worldwide, achieving this by working with local policy-makers and principal stakeholders to plan and implement health-care services for headache, ensuring these are appropriate to local systems, resources and needs.

EHF News: e-bulletin of the European Headache Federation

page 6

What’s on..Panorama of national and International congresses and courses where Headache is an issue

European Headache FederationDominique Valade (France) — PresidentRigmor Jensen (Denmark)— 1st Vice PresidentDimos Mitsikostas (Greece)— 2nd Vice President Zaza Katsarava (Georgia) General SecretaryIvan Milanov (Bulgaria) — TreasurerFabio Antonaci (Italy) — Member at large Cristian Lamp — (Austria) Member at largeVera Osipova (Russia) — Member at largePaolo Martelletti (Italy) — Editor in Chief JHP

Fabio Antonaci (Italy) - Past President

European Headache Federation isincorporated in England and Walesas a company limited by guarantee;registered charity no. 1084181

Info EHF: www.ehf-org.org

EHF NewsEditor: F. Antonaci (Pavia, Monza)Co-editor: M Vikelis (Athens)Legal Director: R. Nappi (Pavia)Registration n° 464/1996Publisher: Tipografia Viscontea, Pavia, ItalyEHF Newsletter is published bimonthly by the European Headache Federation, whose business offices are located at the Department of Neurological Sciences “C. Mondino” Foundation, University of Pavia, Via Mondino 2, 27100, Pavia, Italy ([email protected])Purpose: EHF Newsletter, a European Headache Federation publication, is dedicated to increasing physicians’ awareness by educating and informing them as to what is going on in the field of headache in Europe.This newsletter seeks to provide timely and accurate information from the most knowledgeable sources. The newsletter is mailed to EHF members, national drug companies and medical journalists in line with information given by board members. The views expressed in the articles in EHF News are those of the authors and do not necessarily reflect those of the EHF and the Publisher.

Questo periodico eʼ associato alla

Unione Stampa Periodica Italiana

Master in Headache Medicine 2010-2011

28-31 May 2011 Lisbon, PortugalTwenty-first Meeting of the European Neurological Society (ENS)

23-26 June 2011Berlin, Germany15th Congress of the International Headache Society (IHS)

10-13 September 2011 Budapest, Hungary15th Congress of the European Federation of Neurological Societies (EFNS)