from personal experience to scientific research: my life pursuing mental health and illness issues...

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From Personal From Personal Experience to Experience to Scientific Research: Scientific Research: My Life Pursuing Mental My Life Pursuing Mental Health and Illness Issues Health and Illness Issues Jeff Kelland BA, MSc November 28, 2012

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From Personal From Personal Experience to Scientific Experience to Scientific

Research:Research:

My Life Pursuing Mental My Life Pursuing Mental Health and Illness IssuesHealth and Illness Issues

Jeff KellandBA, MSc

November 28, 2012

““...and onwards in my ...and onwards in my journey, I’ve come to journey, I’ve come to understand...”understand...”

Bob DylanBob DylanEvery Grain of SandEvery Grain of Sand

““Like Cain, I now Like Cain, I now behold this chain of behold this chain of events that I must events that I must break.”break.”

Bob DylanBob DylanEvery Grain of SandEvery Grain of Sand

Speaking up....Speaking up....

...and giving back....and giving back.

Birth of a Thesis...Birth of a Thesis...

The Research The Research Question:Question: 1) What proportion of research funded by 1) What proportion of research funded by

CIHR, from its first year in 1999 to 2009, CIHR, from its first year in 1999 to 2009, went to mental health and illness went to mental health and illness research (MHIR);research (MHIR);

2)How much of this subset (MHIR) can be 2)How much of this subset (MHIR) can be considered mental health vs. mental considered mental health vs. mental illness research; and illness research; and

3) How much of this subset (MHIR) is 3) How much of this subset (MHIR) is neuroscientific vs. non-neuroscientific neuroscientific vs. non-neuroscientific research?research?

CIHR’s Total Budget vs. MHIR CIHR’s Total Budget vs. MHIR Total Budget with Proportional Total Budget with Proportional

Percentages (1999-2009)Percentages (1999-2009)

Funding Year

CIHR Total

Budget

MHIR Total

Budget

MHIR: % of CIHR Total

Budget 1999-00 $296,051,529 $17,390,350 5.00% 2000-01 $368,716,716 $22,287,066 6.00% 2001-02 $492,324,742 $45,560,390 9.00% 2002-03 $584,645,241 $87,581,198 14.00% 2003-04 $644,095,532 $121,717,132 18.00% 2004-05 $700,337,606 $158,949,182 22.00% 2005-06 $753,721,039 $142,962,870 18.00% 2006-07 $794,506,084 $155,408,494 19.00% 2007-08 $921,135,199 $171,806,194 18.00% 2008-09 $926,081,078 $190,527,576 20.00% Totals $6,481,614,766 $1,114,190,452 17.00% (average)

Graphic of CIHR’s Total Budget Graphic of CIHR’s Total Budget vs. MHIR Total Budget (1999-vs. MHIR Total Budget (1999-

2009)2009)

$0

$100,000,000

$200,000,000

$300,000,000

$400,000,000

$500,000,000

$600,000,000

$700,000,000

$800,000,000

$900,000,000

$1,000,000,000

1999

-00

2000

-01

2001

-02

2002

-03

2003

-04

2004

-05

2005

-06

2006

-07

2007

-08

2008

-09

CIHR Total Budget

MHIR Total Budget

Number of Studies Funded per Number of Studies Funded per Research Objective at CIHR Research Objective at CIHR

(1999 – 2009)(1999 – 2009) Brain, Spinal Cord and/or CNSystem................2895Brain, Spinal Cord and/or CNSystem................2895 Brain Bio/Chem/Pharm...................................2312Brain Bio/Chem/Pharm...................................2312 Sight/Hearing/Speech......................................454Sight/Hearing/Speech......................................454 Psychiatric Genetics.........................................293Psychiatric Genetics.........................................293 Pain Management............................................256Pain Management............................................256 Depression......................................................219Depression......................................................219 Alzheimer’s.....................................................140Alzheimer’s.....................................................140 Anxiety...........................................................105Anxiety...........................................................105 Autism.............................................................76Autism.............................................................76 Suicide.............................................................62Suicide.............................................................62

Number of Studies Funded per Number of Studies Funded per Research Objective at CIHR Research Objective at CIHR

(cont.)(cont.)(1999 – 2009)(1999 – 2009)

Diabetes.........................................................45Diabetes.........................................................45 ALS................................................................45ALS................................................................45 Bipolar Disorder..............................................43Bipolar Disorder..............................................43 Post-Traumatic Stress.....................................30Post-Traumatic Stress.....................................30 Fetal Alcohol Syndrome...................................20Fetal Alcohol Syndrome...................................20 Mood Disorders (as a Mood Disorders (as a

group)............................16group)............................16 Tourette’s Syndrome.........................................7Tourette’s Syndrome.........................................7 Pedophilia.........................................................4Pedophilia.........................................................4 Down Syndrome................................................2Down Syndrome................................................2

Mental Health Research vs. Mental Mental Health Research vs. Mental Illness Research: Funding Dollars Illness Research: Funding Dollars with Proportional Percentage of with Proportional Percentage of

Total MHIR (1999-2009)Total MHIR (1999-2009)

Funding Year

Mental Health Research Dollars (% of total MHIR)

Mental Illness Research Dollars (% of total MHIR)

1999-00 $8,598,787 (49.0%) $8,791,563 (51.0%) 2000-01 $12,369,478 (55.0%) $9,917,588 (45.0%) 2001-02 $26,312,393 (57.0%) $19,247,997 (43.0%) 2002-03 $50,344,432 (57.0%) $37,236,766 (43.0%) 2003-04 $68,262,065 (56.0% $53,455,067 (44.0%) 2004-05 $84,007,073 (52.0%) $74,942,109 (48.0%) 2005-06 $73,898,105 (51.0%) $69,064,765 (49.0%) 2006-07 $74,623,069 (48.0%) $80,785,425 (52.0%) 2007-08 $78,551,255 (45.0%) $93,254,939 (55.0%) 2008-09 $83,457,866 (43.0%) $107,069,710 (57.0%) Totals

(Averages) $560,424,523

(51.3%) $553,765,929

(48.7%)

Graphic of Mental Health Research Graphic of Mental Health Research vs. Mental Illness Research: vs. Mental Illness Research: Funding Dollars (1999-2009)Funding Dollars (1999-2009)

$0

$20,000,000

$40,000,000

$60,000,000

$80,000,000

$100,000,000

$120,000,000

1999

-00

2000

-01

2001

-02

2002

-03

2003

-04

2004

-05

2005

-06

2006

-07

2007

-08

2008

-09

Mental Health Research Dollars

Mental Illness Research Dollars

Second Graphic of Mental Health Second Graphic of Mental Health Research vs. Mental Illness Research vs. Mental Illness

Research: Funding Dollars (1999-Research: Funding Dollars (1999-2009)2009)

0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Mental Health Research Dollars (% of total MHIR)

Mental Illness Research Dollars (% of total MHIR)

Neuroscientific vs. Non-Neuroscientific vs. Non-Neuroscientific MHIR: Funding Neuroscientific MHIR: Funding

Dollars with Proportional Dollars with Proportional Percentage of Total MHIR (1999-Percentage of Total MHIR (1999-

2009)2009)Funding Year

Neuroscientific Research Dollars (% of total MHIR)

Non-Neuroscientific Research Dollars (% of total MHIR)

1999-00 $3,393,675 (19.0%) $13,996,675 (81.0%) 2000-01 $13,138,479 (58.0%) $9,148,587 (42.0%) 2001-02 $29,401,003 (64.0%) $16,159,387 (36.0%) 2002-03 $52,631,740 (60.0%) $34,949,458 (40.0%) 2003-04 $73,136,467 (60.0%) $48,580,665 (40.0%) 2004-05 $93,048,462 (58.0%) $65,900,720 (42.0%) 2005-06 $86,633,468 (60.0%) $56,329,402 (40.0%) 2006-07 $91,077,850 (58.0%) $64,330,644 (42.0%) 2007-08 $97,494,585 (56.0%) $74,311,609 (44.0%) 2008-09 $117,368,388 (61.0%) $73,159,188 (39.0%) Totals $657,324,117 (58.0%) $456,866,335 (42.0%)

Graphic of Neuroscientific Graphic of Neuroscientific vs. Non-Neuroscientific MHIR: vs. Non-Neuroscientific MHIR: Funding Dollars (1999-2009)Funding Dollars (1999-2009)

$0

$20,000,000

$40,000,000

$60,000,000

$80,000,000

$100,000,000

$120,000,000

$140,000,000

1999

-00

2000

-01

2001

-02

2002

-03

2003

-04

2004

-05

2005

-06

2006

-07

2007

-08

2008

-09

Neuroscientific Research Dollars

Non-Neuroscientific Research Dollars

Number of Studies Funded per Number of Studies Funded per Research Objective at CIHR Research Objective at CIHR

(1999 – 2009)(1999 – 2009) Brain, Spinal Cord and/or CNSystem................2895Brain, Spinal Cord and/or CNSystem................2895 Brain Bio/Chem/Pharm...................................2312Brain Bio/Chem/Pharm...................................2312 Sight/Hearing/Speech......................................454Sight/Hearing/Speech......................................454 Psychiatric Genetics.........................................293Psychiatric Genetics.........................................293 Pain Management............................................256Pain Management............................................256 Depression......................................................219Depression......................................................219 Alzheimer’s.....................................................140Alzheimer’s.....................................................140 Anxiety...........................................................105Anxiety...........................................................105 Autism.............................................................76Autism.............................................................76 Suicide.............................................................62Suicide.............................................................62

Challenges…Challenges…

Raw Data SetsRaw Data SetsAppendix D

Original Data Sets from CIHR (in three portions)

Working Copy of Data Working Copy of Data SetsSets Appendix E

Working Copy of the Data Sets from CIHR (in two portions)

From Personal From Personal Experience to Scientific Experience to Scientific

Research:Research:

My Life Pursuing Mental My Life Pursuing Mental Health and Illness IssuesHealth and Illness Issues

Jeff KellandBA, MSc

November 28, 2012

[email protected]