getting connected in the hd community in minnesota
TRANSCRIPT
Getting Connected in the HD
Community in Minnesota
The Minnesota Chapter
• Who we are? • Where? • What?
How to get connected?
• Website– www.Hdsa.org – http://www.hdsa.org/mn
• Facebook – https://www.facebook.com/pages/HDSA-Minnesota-Chap
ter/104535865109
• Chapter Social Worker – Jessica Marsolek
phone: 612.371.0904email: [email protected]
• Chapter Board – President: David Stage– PO Box 19021
Minneapolis, MN 55419– Tel: 612-232-5238
Get Supported- Chapter Support Groups
• Richfield (Meets: 3rd Saturday of every month) When: 10:30AM-12:00 PM Oak Grove Lutheran Church 7045 Lyndale Ave. S Richfield, MN
• Rochester (Meets: 3rd Saturday of every month) When: 3:00PM-4:30PM Bethany United Methodist Church 1835 19th Avenue NW Rochester, MN
Get Involved- Advocacy, Awareness and Fundraising• Advocacy
– speaking up politically, educating, and raising awareness
– engaging others affected by HD, building a nationwide movement and getting results
– (Advocacy Session 2:10pm- Harriet)
• Awareness– May is HD Awareness Month – Attending Events – Getting new volunteers involved – Speaking engagements
• Rotary Clubs, Kiwanis, Jaycees, NHS, Greek Organizations, Church Groups
Fundraising
• Not all about the money – Invitations – Graphics – Soliciting Donations – PR – Logistics- working with vendors – Coordinating Volunteers
Events in 2014
• Team Hope Walk – Minneapolis – Duluth
• HD Social • ADE Dinner• ICE HD • BLAST • Bowlathon • Hits for Huntington’s
Other Event Ideas
• Hoopathon • Purse Party• Holiday Soiree • Tractor Racing • Paintball • Dog Show • Re-Prom
Chapter Board Opportunities
• Meet every other month. – Next meeting 11/18/14 – American Academy of Neurology - Minneapolis
• Oversight and new initiatives• Communication
– National Information – Newsletter– Facebook
• Treasurer, Secretary, Standing Members• Website Maintenance
Volunteer Opportunity: Family Services Committee• To provide oversight and guidance for the family and
support services provided by the Chapter within the state of Minnesota.
• The Family Services Committee is to meet a minimum of 1 time per quarter. Alternating months that the Chapter Board meets so the committee can report progress and updates to the board.
• At the beginning of the year, the committee should set goals for services provided and/or events/initiatives aimed towards building awareness or providing optimal community support throughout the year.