guam early hearing detection and intervention...2018/01/11 · cdc –guam ehdi site visitguam...
TRANSCRIPT
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Guam Early Hearing Detection and Intervention
Project Fitme & Guam ChildLink
Quarterly Meeting, September 11, 2017
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Welcome and
Thank You for Coming!
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Agenda
• Sign In & Welcoming• Call Meeting to Order• Introduction of Members• Approval of Minutes• Review of Bylaws• Election of Chair and Vice-Chair• Project Updates
• CDC• HRSA – FITME & NCE
• Open Discussion• Announcements and Next Meeting
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Outcomes
Advisory members will provide input and recommendations on the following:
• Progress updates to the Aims and Sub-Aims;
• Provide feedback and recommendations
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New Grant - Fitme
Overall Program Goal:
To support the development of a statewide program and system of care that ensures that deaf or hard of hearing children are identified through newborn and infant hearing screening and receive evaluation, diagnosis, and appropriate intervention that optimize their language, literacy, and social-emotional development.
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Year 1 Activities
Aim 1: By March 31, 2020, increase health professionals’ engagement within and knowledge of the EHDI system.
Aim 2: By March 31, 2020, improve access to early intervention services and language acquisition.
Aim 3: By March 31, 2020, improve family engagement, partnership, and leadership within the EHDI programs and systems.
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NCE – Aim 1
By March 31, 2018, Project Rikohi with participating birth site screeners will utilize specifically targeted and measureable interventions that are culturally and linguistically competent such as quality improvement methodologies in reducing the number of infants LTF/D who have not passed a newborn hearing screening examination prior to discharge from a birthing site to 1% or less.
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Aim 3
By March 31, 2018, Project Rikohi with early intervention staff will continue to utilize
specifically targeted and measurable interventions that are culturally and
linguistically competent such as quality improvement methodologies in reducing the
number of infants LTF/D for diagnostic audiological evaluation by 3 months of age
from the aggregate 16% from 2011 to 2014 to 8% or less
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GMHA Initial Screening Results
April May June
Total Births 150 137 140
Total Screened 150 139 140
Total FIS 17 3 4
0
20
40
60
80
100
120
140
160
100% 100%
3%
101%
11%2%
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GRMC Initial Screening Results
April May June
Total Births 59 68 71
Total Screened 59 66 69
Total FIS 5 2 3
0
10
20
30
40
50
60
70
80
97% 97%100%
8%3% 4%
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SMBC Initial Screening Results
April May June
Total Births 31 26 17
Total Screened 28 22 13
Total FIS 2 6 5
0
5
10
15
20
25
30
35
7%
90%
27% 38%
85%76%
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Initial Screening Totals
April May June
Total Births 240 231 228
Total Screened 237 227 222
Total FIS 24 11 12
0
50
100
150
200
250
300
99%
10%
98%
5%
97%
5%
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Outpatient Rescreen Totals (Infants referred from GMHA and GRMC and screened by GEIS)
April May June
Total Needing Rescreen 22 5 7
Total Rescreened 19 1 5
Total Pending 1 2 2
Total Relocating 0 0 0
Total Refuse Services 0 1 0
Total Pending 0 0 0
Total Lost to Follow Up 2 1 0
0
5
10
15
20
25
9%
0%20%
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Outpatient Rescreen Totals (SMBC)
April May June
Total Needing Rescreen 2 6 5
Total Rescreened 2 6 4
Total Pending 0 0 1
Total Relocating 0 0 0
Total Refuse Services 0 0 0
Total Lost to Follow Up 0 0 0
0
1
2
3
4
5
6
7
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Total Infants Referred for DAE (January – June 2017)
TotalInfants
Referredfor DAE
TotalInfants
ReceivingDAE
TotalInfants
ReceivingDAE by 3months
Total withHearing
Loss
TotalRelocating
TotalRefusingServices
TotalPending
DAETotal LFU
Series1 8 3 2 2 0 0 5 0
0
1
2
3
4
5
6
7
8
9
63%
0%
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Percent of Infants with HL receiving IFSP prior to 6 Months of Age
Total with Hearing Loss Total with IFSP Total with IFSP prior to 6 months
Series1 2 0 0
0
0.5
1
1.5
2
2.5
Percent of Infants with HL receiving IFSP prior to 6 Months of Age
0% 0%
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High Risk Rescreen
April May June
Total Needing Rescreen 9 14 13
Total Rescreened 5 7 6
Total Relocating 0 0
Total Refuse Services 0 1 2
Total Pending 2 3 4
Total Lost to Follow Up 2 3 1
0
2
4
6
8
10
12
14
16
22% 8%
21%
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Update on High Risk LTFU QI effort
Total Infants listedas LTFU
Total Contactedand Rescreened
Refused Services UnresponsiveUnable to locate or
contact
17 7 1 3 6
0
2
4
6
8
10
12
14
16
18
35%41%
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System Sustainability
Current overall status
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Training and Activities
EVENT (March 2017 – September 2017)
RESULTS
Outreach Activities 3/4: GSAT Fair; 3/10: GSAT Conference; 04/08: 10th Annual Autism Awareness Fair; 04/29: PEP Island Wide Conference on Disabilities; 05/13: Better Speech and Hearing Month Outreach; 06/25: 7th Annual Healthy Hearts, Healthy Living Health Fair; 07/29: Child Immunization Outreach; 08/26: 4th
Annual Breastfeeding Awareness Health Fair.
Hearing Screening GEIS Hearing Screening Clinics3/28, 4/12, 05/17, 06/21, 07/26, 08/23, 09/21 pending
Guam EHDI Hearing Screening Clinics3/24, 4/28, 07/03
DPHSS High Risk Hearing Rescreen Clinics08/18, 09/01, 10/20 pending
Other Activities May to June 2017: EHDI Evaluation Work Group08/24: CDC – Guam EHDI Site Visit
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Outreach Activities
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DPHSS Hearing Rescreen Clinic
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EHDI Evaluation Work Group
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CDC – Guam EHDI Site Visit
Guam CEDDERS’ JJ Mendiola (center), Guam Early Hearing Detection & Intervention (EHDI) Quality Improvement and Evaluation Coordinator, met with Marcus Gaffney, Health Scientist and Center for Disease Control & Prevention (CDC) EHDI Team Leader (left) and Eric Cahill (right), CDC Health Scientist and EHDI Technical Assistance Provider, in the Guam ChildLink data server room during the CDC – Guam EHDI Site Visit held on August 24.
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CDC – Guam EHDI Site Visit
Dr. Heidi San Nicolas (back to camera, right), Guam CEDDERS Director, opens up the meeting with the visiting CDC representatives by providing a background summary of how Guam EHDI project came to be.
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CDC – Guam EHDI Site Visit
Guam EHDI and Department of Public Health and Social Services (DPHSS) staff met with CDC Personnel to discuss progress towards interoperability and sustainability of Guam EHDI – ChildLink, and the status of electronic birth certificates on Guam during the CDC – Guam EHDI Site Visit. (Pictured from L-R): Terrie Fejarang, Guam CEDDERS Associate Director; Marcus Gaffney, CDC Personnel; Eric Cahill, CDC Personnel; Cid Mostales, DPHSS Information Technology Specialist; Margarita Gay, DPHSS Maternal Child Health Program Administrator; Dr. Suzanne Kaneshiro, DPHSS Chief Public Health Officer; JJ Mendiola, Guam EHDI Quality Improvement and Evaluation Coordinator; and Christina Jung, Guam CEDDERS Research Associate. (Not pictured: Marie Wusstig, Guam EHDI Project Coordinator).
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CDC – Guam EHDI Site Visit
(Front Row L-R): Terrie Fejarang, Guam CEDDERS Associate Director; Christina Jung, Guam CEDDERS Research Associate; Marie Wusstig, Guam EHDI Project Coordinator; Margarita Gay, DPHSS; Suzanne Kaneshiro, DDS, DPHSS Public Health Chief Officer. (Back Row L-R): Eric Cahill, CDC; Marcus Gaffney; Cid Mostales, DPHSS IT; and JJ Mendiola; Guam EHDI Quality Improvement and Evaluation Coordinator.
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CDC – Guam EHDI Site Visit
Staff from Guam EHDI and Guam Memorial Hospital Authority (GMHA), Guam EHDI Audiolog y Consultant, and Guam Early Intervention System (GEIS), met with CDC representatives to discuss data collection, input, sharing, sustainability, and Diagnostic Audiological Evaluations (DAE) and Early Intervention (EI) documentation during the CDC- Guam EHDI Site Visit. (Pictured front to back row): Maria Victoria Guiao, GMHA OB Ward Nurse Supervisor; Renee Koffend, AuD., Audiologist Consultant; Avelina Opeña , GMHA NICU Nurse Supervisor; Sera Rios, GMHA Medical Records Assistant Administrator; Terrie Fejarang, Guam CEDDERS Associate Director; Eric Cahill, CDC Personnel; Marcus Gaffney, CDC; JJ Mendiola; Guam EHDI Quality Improvement and Evaluation Coordinator. (Not pictured: Marie Wusstig, Guam EHDI Project Coordinator; and Pat Matanona, GEIS Program Coordinator).
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Closing Activities
Open Discussion
Announcements:
Next Meeting: March ___, 2018