happy bones - a bone health education resource for individuals with an intellectual disability
TRANSCRIPT
Promoting Bone Health in
People with an Intellectual
Disability
Lorraine Ledger, CNM3
St Michael’s House
Daragh Rodger, ANP,
St Mary’s Hospital, Phoenix Park
Background
• St Michaels House, Osteoporosis
Awareness Campaign 2011
• MDT input
• Doctor
• Nurse
• Physiotherapist
• Dietician
• Education sessions for all staff
• Leaflet and mail shot to families
• Generic referral letter for DXA Scan
Advancing Years Differing Challenges – Wave 2 IDS-TILDA
Prevalence of Osteoporosis
People with Intellectual disability General population
35% 28%
Age 50 - 64 36.8% 8%
Prevalence of Osteopenia
37% 14%
7 out of 10 people with an intellectual disability have either osteopenia
or osteoporosis
http://www.idstilda.tcd.ie/assets/pdf/Wave_2_Report_October_2014.pdf
DXA Results
70% demonstrate some degree of bone thinning
• Supplements and Treatments prescribed
• Dietary improvements
• Exercise programmes
• Carer’s are generally more bone health aware
• Follow up Dexa scans – this year
2015
Actions
Gap in Service Delivery
• Recognised need for education
for all regarding bone health and
falls prevention in those with an
intellectual disability – “Bone
Health is a lifelong process”
• Blinkered vision – some units in
St Michaels House
• Linked with ANP in St Mary’s
Healthy Ageing Clinic who had
developed bone health in the
park www.bonehealth.co
Bone Health in the Park
Audit of Healthy Ageing Clinic
Recognised need for
education on bone health
Engagement with Educational
Technologist – Anne Spencer
Phase 1 – Development of
Bone Health Education
Resource ‘I am not falling for
you!’
Phase 2 – Development of
Falls Prevention Programme
‘Forever Autumn’
All open access
Forever Autumn COP
Areas represented:
Acute
Community
Residential
Palliative Care
Intellectual Disability
Expressed interest from Intellectual
Disability sector
No education available nationally
PhD work by Sinead Foran (WIT) & Eilish
Bourke (TCD)
Facts from TILDA Report
Bone Health in Intellectual Disability
Commenced work with St Michaels House Aug 2014 to develop educational
resource on bone health for service users, carer’s, key workers and health
care professionals
Built on existing work
Collaborated with MDT in St Michael’s House with representation from
Nursing, Medicine, Dietetics and Physiotherapy
Name: Service user in Work Options came up with name
Development of an information booklet for carer’s and
health care professionals
Short film for service users
Flyer for service users
Website for all www.happybones.ie
Happy Bones
Falls
Prevention
Currently working with St
Josephs Centre for the
development of a falls
prevention programme in
persons with an
Intellectual Disability
Summer 2015 – In Development
Redesign and
Redevelopment of Bone
Health Education Resource.
To include………
Design & Development