Enterprise Data warehouse service and architecture modelsIDTF Working Group web conference

February 12, 2019

Institute for Clinical and Translational Science

Agenda

• Chair introductions and WG goals• Proposed deliverables

• Thoughts on scope

• Review of pre-work (see below) – what’s important to the group?

• Data collection – focus groups and interviews• Next steps and plan for f2f

Institute for Clinical and Translational Science

WG leadershipCo-Chairs

Thomas R. Campion, Jr., Ph.D.Weill Cornell MedicineBoyd Knosp, MSUniversity of Iowa Carver College of Medicine

CD2H LiasonDavid Dorr MD, MS, FACMIOregon Health Science University

Institute for Clinical and Translational Science

Working group goals

• Document current practices and structures for providing researchers access to clinical data for use in research with a focus on enterprise data warehouses (EDW)

• Assess institution’s offerings vs. the rest of the consortium

• Areas where best practices are yet to be determined?

• Align with CD2H, Sustainability WG, related work

4

Agenda

• Chair introductions and WG goals• Proposed deliverables

• Thoughts on scope

• Review of pre-work (see below) – what’s important to the group?

• Data collection – focus groups and interviews• Next steps and plan for f2f

Institute for Clinical and Translational Science

Proposed deliverables• Resource list (publications/projects…) for understanding

EDWs• Paper proposing best practices in EDW service

management• Paper outlining EDW architecture considerations• Maturity model for EDW services (and paper describing

maybe applying)• Index on organizational fertility for EDW• Index providing maturity levels for deploying EDW

6

What’s in Scope (proposed)

• Processes• Service management• Self Service Tools• Architecture

Institute for Clinical and Translational Science

In Scope - Processes

• Data access control – who determines and how managed

• Researcher engagement and training• Governance• Fee for service models

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In Scope - Service Management

• What service management methods are used• ITIL adoption –

• Service catalog, request management, service management, change management, Metrics and CQI….

• Integration with enterprise services or separate• Service ontologies

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In Scope - Self service tools

• Deidentified data browsers (how many and which ones)• IRB-enforced data access?• Tools/service models for data scientists?

• (Pyramid of skills/access)

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In Scope - Architecture – high level

• Research specific dw .vs. integrated clinical/research• Single health system .vs. multiple health systems• Data harmonization – how many networks/CDMs (and

which ones)

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Not in scope

• Uncertain scope (could add these..):• Staffing/workforce to support• Organization – part of clinical IT or separate?

• Out of scope:• Data types• Data sources beyond EHR

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Discussion - What’s in Scope

• Processes• Service management• Self Service Tools• Architecture• ? WG members - Agree with these• ?

Institute for Clinical and Translational Science

Agenda

• Chair introductions and WG goals• Proposed deliverables

• Thoughts on scope

• Review of pre-work (see below) – what’s important to the group?

• Data collection – focus groups and interviews• Next steps and plan for f2f

Institute for Clinical and Translational Science

Prework

• Request was short notice…• If you haven’t sent your 3 questions, please do so

• Report on questions sent so far….

Institute for Clinical and Translational Science

Agenda

• Chair introductions and WG goals• Proposed deliverables

• Thoughts on scope

• Review of pre-work (see below) – what’s important to the group?

• Data collection – focus groups and interviews• Next steps and plan for f2f

Institute for Clinical and Translational Science

Data collection

• Resources – index of existing information on EDW service management and architecture

• Interviews – 30-60 minute discussions on EDW service management and architecture – mostly in San Francisco at AMIA and IDTF F2F meeting

• Using themes from interviews – short topic specific surveys

Institute for Clinical and Translational Science

Agenda

• Chair introductions and WG goals• Proposed deliverables

• Thoughts on scope

• Review of pre-work (see below) – what’s important to the group?

• Data collection – focus groups and interviews• Next steps and plan for f2f

Institute for Clinical and Translational Science

Draft timeline• Feb-March – define scope, design data collection, draft

maturity model• March at AMIA and F2F – interviews/focus groups• April – review qualitative input and identify themes*• May-September

• Sub teams deeper dive into 4 areas**• Maturity model pilot

• October – December – document and present deliverables***

Institute for Clinical and Translational Science

WG help needed

• Feb-March –• send 3 questions• Feedback on scope• Need volunteers to review interview questions• Review background materials

• AMIA and F2F • Participate in interviews/focus groups

• April and beyond – participate in topic subteams

Institute for Clinical and Translational Science

Next call – March 12

• Finalize scope • Review data collection plan• Plan for F2F• …

Institute for Clinical and Translational Science