improving access to palliative care services for minority ethnic communities
TRANSCRIPT
Marie Curie Hospice, Cardiff and the Vale
Improving access to palliative care services for Minority Ethnic communities
Shameem Nawaz – Project Manager
Quotes from BAME patient’s family members
The care he [my father] received - I can’t put it into words – it was amazing care and nothing was too much trouble. I suppose it’s the little things that make a huge difference. The difference it made to him… he smiled. He was always smiling, even right at the end. That’s the key thing for us, he died peacefully.(family member of a patient) She was meeting with other people…. emotional support… she would come back positive (family member of a patient)
Key objectives
Increase the numbers of Minority Ethnic people supported by the hospice.
112% increase (162 people) from BAME communities using Marie Curie’s community and in-patient services. (September 2012 – December 2015)
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Key objectives
• Increased links and improved relationships with local BAME communities, community organisations and stakeholder groups
• Understand barriers - barriers report post consultation with 130+ people
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What would help to reduce barriers?
What would help to reduce barriers?
Building awareness of services GPs
Specific needs
Attitudes
Gender specific services
Promoting services within Minority Ethnic communitiesLanguage
Positive hospice
environment
Volunteering and
Fundraising
Carers
Staff diversity
Trust
Main outcomes and legacy
112% Increase
162 people from BAME communities using Marie Curie’s community and in-patient services
(September 2012 – Dec 2015)
• DVD
• Information in community languages
• Volunteers community champions
Improved information for the community and awareness of services
Main outcomes and legacy
Improved environment
• Reduce isolations
• Ipads• CD players• CD’s
• Improved quiet room, religious items, washing facilities and internal signage
Main outcomes and legacy
Policies and processes i.e. large number of visitors, diet and religion, cultural calendar, defining common words in bedside information
Improved staff training and awareness
Resource Pack for staff
Case scenarios for learning
Main outcomes and legacy
• Sharing positive stories of care received• Press, TV &
Radio • Blogs
BAME care needs on key stakeholders’ agendas (i.e. C&V UHB Local end of life delivery plan 2013-2016)
• Dissemination of lessons leant and sharing good practice
• Partnership working
What next?
‘Improving access to palliative care services for diverse communities of Cardiff and the Vale’• People with a religious and no religious belief• People with dementia and their families• People with learning disabilities and their
families
Aims
• To develop links with organisations to understand the end of life care needs and the gaps in service provision.
• To identify specific barriers to service awareness and access
• To advise Marie Curie on learning. • To work directly with people to provide
support and advice on services.
Contacts:Shameem NawazProject Manager, Improving access to palliative for diverse communities of Cardiff and the ValeTel: 029 20 426025Email: [email protected] Twitter: @ShameemNawaz