Information sharing

Jean RobinsonNottingham HIS

Information sharing

Partnership working Jupiter / NOMAD SureStart LEA Long term Conditions (UHE)

Sources of advice Data Protection Act

Section on statistical data National Statistics Code of Practice

Has anyone read it? Is the NHS bound by it?

ONS policy on protecting confidentiality within births and deaths statistics PHMF and PHBF must not be shared with LA’s Not even with disclosure control? But Data Protection Act applies only to living

persons?

Sources of advice Patient Information advisory Group

(PIAG) Use of Patient data in Long term

conditions Use of nhs number

Public Sector Data Sharing: Guidance on the law

ONS consultation: Review of the Dissemination of Health Statistics

Nottingham Approach

• Pragmatic• Probably not legal…1. Identify what to share2. Identify level of detail required3. Identify technical issues4. Identify legal issues concerns5. Go ahead from PEC6. Develop working protocol7. Develop formal protocol to fit

Have I broken the code of conduct?

BirthYear County Postcode_1spaceLA LBW2002 0 NG8 6GU FY nbw2002 0 NG6 0QG FY nbw2002 0 NG7 1SL FY excluded2002 0 NG3 3DU FY nbw2002 37 NG3 6AN UE nbw2002 37 NG9 1JA UD lbw2002 37 NG9 1JA UD lbw2002 37 NG14 6DX UE lbw

Example – what I send to UHE

PCT 5FC spec 300

PatientID 107826 PrimaryDiagnosis R103

actmnth 200205 SubsequentDiagnosis

epnum 1 SecondaryDiagnosis1 F111

TrustCode RFK SecondaryDiagnosis2

SiteCode RFKRA ProcedureCode1

SpellNumber AU 301386864 ProcedureCode2

AdministrativeCategory 01 ProcedureCode3

PatientClassification 1 ProcedureCode4

AdmissionMethod 21 GPPracticeCode C84086

DateOfService 08-May-02 GPCode G9801224

DischargeDate 10-May-02 EpisodeDuration 0

EpisodeStartDate 08-May-02 LengthOfSpell 2

EpisodeEndDate 08-May-02 AdmissionSourceCode 19

acpperiods 0 DischargeDestinationCode 19

ACP1StartDate HRGCodeProvider F47

ACP1EndDate GenderCode 2

ReferringCode AgeCode 17

ConsultantCode C1743089 OutPutAreaCode

NeonatalCareLevel

Help Anyone written a data sharing

protocol? Anyone written a honorary

contract (for a data processor)