Insights into the e-Patient: An Analysis of the Inspire Annual Survey

iPharma May 15, 2015

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2014 Inspire Annual Patient and Caregiver Survey Background

Survey Insights

The Role of Patients (and other Stakeholders)

Current Gaps between Patients and the Industry

Possible New Marketing Channels for Increased Patient Engagement

Q & A

Agenda

5 minutes

25 minutes

10 minutes

2014 Inspire Annual Patient and Caregiver Survey Background

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Purpose: To bring the perspectives of e-patients to life on a large scale

Launch: After several months of planning and design, Inspire began sending survey invitation emails to its members on December 11, 2014.

Fielding: In order to reach the ~490,000

members who have opted to receive such communications, invitations had to be sent evenly through December 23rd.

Closing: The survey was officially closed

on January 8, 2015. Impact: During the month in which the

survey was available, 13,633 Inspire members completed the assessment.

Annual Survey Background

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Inspire members (and survey respondents) are primarily patients and caregivers with the inclusion of some health advocates

Respondents are primarily from the U.S. but do represent 100 countries and 6 continents

Average age of survey respondents was 53.6

Gender split was largely (~75%) female and only ~25% male Using ICD-9/10 codes as a guide for categorization, the top-5 most

common health areas represented by survey respondents were: Oncology (5,557 respondents) Autoimmune (3,793 respondents) Metabolic (2,881 respondents) Neurological (2,625 respondents) Respiratory (2,214 respondents)

Annual Survey Respondent Overview

Survey Insights: The Role of Patients (and other Stakeholders)

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Those with more serious health conditions (Oncology, Neurological, Respiratory) attend doctors visits with someone else more frequently than those with chronic health issues such as Autoimmune or Metabolic-related disorders

Doctor Visit Dynamics

30% ALWAYS go to doctors appointments with someone else

25% FREQUENTLY go to doctors appointments with someone else

31% SOMETIMES go to doctors appointments with someone else

14% NEVER go to doctors appointments with someone else

When going to see their doctor, these patients regularly attend their appointments with someone else

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These patients/caregivers are largely responsible for initiating new treatment discussions, and

Ask your doctor about

52%

35%

5%

8%

You A doctor Other No new Tx discussions

29%

16% 31%

13%

11%

At every visit Every other visit

A couple Ames a year Once a year

Never

will ask about new treatments and fairly frequently

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The e-patient plays a large role in making treatment decisions, regardless of the health condition(s) which affect them

Making Treatment Decisions

In collabora*on: 69%

Pa*ent-driven: 20%

MD-driven: 11%

Survey Insights: Current Gaps between e-Patients and the Industry

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Despite the regular usage of their various medications, the majority of respondents had limited, if any, knowledge of the pharmaceutical company behind the production of their treatment

Brand Awareness in Pharma

35% didn't know any of the pharma

companies that make the products

they use

37% knew some of the companies

that make the products they

use

Only 10% knew all of the pharma

companies that make the products

they use

17% knew most of the

companies that make the

products they use

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Although a patient-centric model is where healthcare in the U.S. is going, there are serious inroads that must be made to strengthen the relationship between patients and the industry

Relationship with Pharma

12% of respondents felt like they indeed had a relaAonship with the companies that made their medicaAons; at best, it is said to be a limited connecAon

In contrast, 41% of respondents indicated they have a relaAonship with their pharmacist; in these cases, the connecAon was considered to be good

Survey Insights: Possible New Marketing Channels for Increased

Patient Engagement

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e-Patients turn to a number of online sources to obtain information about their health conditions

Seeking Medical Information

1% 3%

11% 12%

22% 24% 27% 31%

38% 42%

49% 51%

76% 78%

0% 20% 40% 60% 80% 100%

None Other Videos

In-person paAent support groups Support and advocacy groups

Nurses Other paAents

Friends and family Materials provided by the doctors office

Books or magazines Online support communiAes

Medical/scienAfic arAcles Online search engines (e.g., Google, Bing)

CondiAon-specific websites or blogs

Sources of informa*on used for health condi*ons

% of Responses

CondiAon-specific websites or blogs was also reported to be the most helpful source of

informaAon used to be`er understand paAents health

condiAons

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While these patients use a variety of social media outlets personally, they typically do not turn to these same sources for their health conditions

Social Media Usage

23%

65%

25%

11% 19%

0

25% 14%

40%

4% 13%

21% 25% 18%

1% 2%

28%

4% 2% 14%

4%

33%

0%

20%

40%

60%

80%

100% Personal Use Medical Use

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Although e-patients widely use online tools to help them better manage their health conditions, mobile apps are not as strongly sought after solutions

Mobile App Usage

9%

8%

12%

72%

Frequency of mobile app usage for healthcare

Always Frequently SomeAmes Never

PaAents who use smartphone apps to manage their condiAons do so to:

- Help prepare for doctors visits - Search for informaAon online - Set up dosing reminders

Among those who do not use smartphone apps, only 43% felt that, in theory, this type of tool would be helpful in managing their health condiAons

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While they are open to a variety of tools/materials to use with their physicians, e-patients most widely preferred what they are most comfortable with: electronic/online materials

Suggested Tools for Improved Healthcare

59% 57% 47% 42% 40%

0%

20%

40%

60%

80%

100%

Electronic, Detailed Symptom Tracker

Access to online webinars or in-person conferences/speaker sessions to learn more about your

condiAon

Support materials for friends/family

members detailing your condiAon and its

symptoms

Printed, Detailed Symptom Tracker

Tips/tacAcs around be`er ways to

communicate with your physician(s)

Recommended tools to help pa*ents during doctors visits

% Responses

Q & A