insights into the e-patient: an analysis of the inspire annual survey
TRANSCRIPT
Insights into the e-Patient: An Analysis of the Inspire Annual Survey
iPharmaMay 15, 2015
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► 2014 Inspire Annual Patient and Caregiver Survey Background
► Survey Insights
• The Role of Patients (and other Stakeholders)
• Current Gaps between Patients and the Industry
• Possible New Marketing Channels for Increased Patient Engagement
► Q & A
Agenda
5 minutes
25 minutes
10 minutes
2014 Inspire Annual Patient and Caregiver Survey Background
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Purpose: To bring the perspectives of e-patients to life on a large scale
Launch: After several months of planning and design, Inspire began sending survey invitation emails to its members on December 11, 2014.
Fielding: In order to reach the ~490,000 members who have opted to receive such communications, invitations had to be sent evenly through December 23rd.
Closing: The survey was officially closed on January 8, 2015.
Impact: During the month in which the survey was available, 13,633 Inspire members completed the assessment.
Annual Survey Background
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Inspire members (and survey respondents) are primarily patients and caregivers with the inclusion of some ‘health advocates’
Respondents are primarily from the U.S. but do represent 100 countries and 6 continents
Average age of survey respondents was 53.6
Gender split was largely (~75%) female and only ~25% male
Using ICD-9/10 codes as a guide for categorization, the top-5 most common health areas represented by survey respondents were:
Oncology (5,557 respondents) Autoimmune (3,793 respondents) Metabolic (2,881 respondents) Neurological (2,625 respondents) Respiratory (2,214 respondents)
Annual Survey Respondent Overview
Survey Insights: The Role of Patients (and other Stakeholders)
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Those with ‘more serious’ health conditions (Oncology, Neurological, Respiratory) attend doctor’s visits with someone else more frequently than those with chronic health issues such as Autoimmune or Metabolic-related disorders
Doctor Visit Dynamics
30% ALWAYS go to doctor’s appointments with someone else
25% FREQUENTLY go to doctor’s appointments with someone else
31% SOMETIMES go to doctor’s appointments with someone else
14% NEVER go to doctor’s appointments with someone else
When going to see their doctor, these patients regularly attend their appointments with someone else
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These patients/caregivers are largely responsible for initiating new treatment discussions, and…
Ask your doctor about…
52%
35%
5%
8%
You A doctorOther No new Tx discussions
29%
16%31%
13%
11%
At every visit Every other visit A couple times a year
Once a year Never
…will ask about new treatments and fairly frequently
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The e-patient plays a large role in making treatment decisions, regardless of the health condition(s) which affect them
Making Treatment Decisions
In collaboration: 69%
Patient-driven: 20%
MD-driven: 11%
Survey Insights: Current Gaps between e-Patients and the Industry
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Despite the regular usage of their various medications, the majority of respondents had limited, if any, knowledge of the pharmaceutical company behind the production of their treatment
‘Brand’ Awareness in Pharma
35% didn't know any of the pharma
companies that make the products
they use
37% knew some of the companies
that make the products they
use
Only 10% knew all of the pharma
companies that make the products
they use
17% knew most of the
companies that make the
products they use
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Although a patient-centric model is where healthcare in the U.S. is going, there are serious inroads that must be made to strengthen the relationship between patients and the industry
Relationship with Pharma
12% of respondents felt like they indeed had a relationship with the companies that made their medications; at best, it is said to be a ‘limited’ connection
In contrast, 41% of respondents indicated they have a relationship with their pharmacist; in these cases, the connection was considered to be ‘good’
Survey Insights: Possible New Marketing Channels for
Increased Patient Engagement
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e-Patients turn to a number of online sources to obtain information about their health conditions
Seeking Medical Information
NoneOther
VideosIn-person patient support groups
Support and advocacy groupsNurses
Other patientsFriends and family
Materials provided by the doctor’s officeBooks or magazines
Online support communitiesMedical/scientific articles
Online search engines (e.g., Google, Bing)Condition-specific websites or blogs
0% 10%20%30%40%50%60%70%80%90%
1%3%
11%12%
22%24%
27%31%
38%42%
49%51%
76%78%
Sources of information used for health conditions
% of Responses
Condition-specific websites or blogs was also reported
to be the most helpful source of
information used to better understand
patients’ health conditions
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While these patients use a variety of social media outlets personally, they typically do not turn to these same sources for their health conditions
Social Media Usage
Blogs
Google+
Other h
ealth-fo
cuse
d socia
l netw
orks
Pintere
st
YouTubeOth
er
None of the Above
0%
20%
40%
60%
80%
100%
23%
65%
25%
11%19%
0%
25%14%
40%
4%13%
21% 25%18%
1% 2%
28%
4% 2%
14%4%
33%
Personal Use Medical Use
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Although e-patients widely use online tools to help them better manage their health conditions, mobile apps are not as strongly sought after solutions
Mobile App Usage
9%
8%
12%
72%
Frequency of mobile app usage for healthcare
Always Frequently Sometimes Never
Patients who use smartphone apps to manage their conditions do so to:
- Help prepare for doctor’s visits- Search for information online- Set up dosing reminders
Among those who do not use smartphone apps, only 43% felt that, in theory, this type of tool would be helpful in managing their health conditions
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While they are open to a variety of tools/materials to use with their physicians, e-patients most widely preferred what they are most comfortable with: electronic/online materials
Suggested Tools for Improved Healthcare
0%
20%
40%
60%
80%
100%
59% 57%47% 42% 40%
Recommended tools to help patients during doctor’s visits
% Responses
Q & A