Jennifer Maggiore NAPT Executive Director

NAPT Community ForumApril 17th, 2020

• Welcome and Overview - Jennifer Maggiore

• Legislative Update - Jason Caron, McDermott Will & Emery

• HHS Relief Payment Terms and Conditions

• Medicare Advance Payment Stakeholder letter to Congress

• Future of Reopening in Phases

• On site testing – Steve Holan, AVP Radiation Oncology, Miami Cancer Institute

• Beaumont Health antibody testing study - Craig Stevens, MD, Beaumont Health

• Update from Member Centers

• Employment Issues - Dustin Paschal, Legal & Legislative Director for Texas SHRM.

• Resources for Patients and Providers - Aicha Diallo, MPH, CHES Senior Director, Helpline at Cancer Support Community

• Discussion/ Questions

Recently Added Resources

• Proper Use of PPE

• The Use of cloth Face Coverings to Minimize the Spread of COVID-19

• Answering Question around COVID-19: The Chain of Transmission Model

• FDA Frequently Asked Questions Regarding Testing for Coronavirus

• CDC guidelines for Proper Use of PPE for Health Care Professionals

• National Coronavirus Response: A Roadmap to Reopening

Guidelines:Opening UpAmerica Again

Phase One

Phase Two

Phase Three

National Coronavirus Response: Road Map to ReopeningSteve Gottlieb, MD

A sustained reduction in cases

for at least 14 days;

Hospitals safely able to treat all

patients requiring hospitalization

without resorting to crisis standards

of care;

Statewide ability to test all people with

Covid-19 symptoms; and

Statewide ability to conduct active monitoring of

confirmed cases and their contacts.

Study at Beaumont Health SystemCraig Stevens, MD

How susceptible are health care workers to acquiring COVID-19?

What is the relationship between antibody levels to symptoms or the severity of disease?

Does are antibody response increase or decrease over time and how long will it last?

Will COVID-19 antibodies protect you from a new COVID-19 infections?

Seattle Cancer Care Alliance Proton Therapy team

Penn Medicine Health Care

Heros

Mevion donates masks to Ackerman Cancer Center

California Protons

Maryland Proton Center Wonderwoman and herteam

Employee Issues to consider during COVID 19 Crisis

• Dustin is a founding member of Simon | Paschal PLLC, a boutique employment law firm in Dallas, Texas where Dustin maintains a practice that includes advice and counsel in nearly all areas of employment law, as well as litigation if court action becomes necessary. Dustin is a former President of DallasHR, currently serving as the Board Chair on DallasHR’s overall governing body, and also serves as a Legal & Legislative Director for Texas SHRM.

Creating a Culture of Compassionate Leadership

1. Communicate early and consistently

2. Proactive not reactive

3. Reinforce your values

4. Be clear, reassuring, and calm

5. Establish a single source of truth

6. Assign authority

7. Allow opportunity for questions and feedback

8. Provide facts with sources

CSC Presentation for NAPT April 17th, 2020

Cancer Support Community

CSC Coronavirus Response• Cancer Support Helpline - Extended hours to provide assistance on the

weekends. Open from Monday-Friday 9a-9p ET and Saturday and Sunday 9a-5p ET.

• Education - Current resource page on CSC website related to the COVID-19 crisis - www.cancersupportcommunity.org/coronavirus. This page continues to be updated daily and includes blog posts and tips on how to cope with isolation, anxiety and uncertainty.

• Affiliate Network - Most affiliates around the country are currently providing services to patients and caregivers virtually via Zoom.

• MyLifeline - Promoted via social media and affiliate network. Discussion boards are currently being monitored and responses are quickly being provided to people who are in need of support.

• Policy and Advocacy – Currently reviewing Federal and state efforts and sharing updates with CSC constituents and CSC coronavirus website.

• Currently serving over 10,000 unique callers per year

• Average call volume (inbound, outbound, live chat):

2,600 events/month

• Most in-depth intervention and follow-up of any

cancer helpline

The Cancer Support Helpline®888-793-9355

• Licensed Mental Health Professionals

• Resource Specialists

• Helpline Navigator

• Subject Matter Experts: genetics/genomics, financial counseling, pediatric cancer, clinical trial navigation

• Telephone supervision/case consultation: (2x/month)

• Open M-F 9 am – 9 pm ET and Sat-Sun 9 am – 5 pm (until end of June)

• Live chat

• Bilingual (Spanish)

• Supportive counseling available in over 200 languages

Cancer Support Helpline Staff

Access to local, regional or national resources:• Financial assistance with treatment and/or living expenses• Home care, family support services• Lodging and transportation during cancer treatment• Locating local mental health services/qualified counselors

Understanding the diagnosis and treatment (self-advocacy):• Accessing and understanding credible educational information• Decision support counseling across the cancer continuum• Managing cancer: Problem-solving, skill building• How to communicate with the health care team and navigate the health

care system • How to find information about managing specific side effects or concerns

about careReducing emotional distress through supportive counseling

• Ongoing support as needed• Support for managing the emotional and social stressors of cancer

Cancer Support Helpline Focus

CSC/Airbnb Program

• CSC launched this program on April 7th

• This program offers financial assistance in the form of a $250 gift card for people with cancer who are in active treatment

• This assistance is provided for food, transportation, housing, utilities, childcare or other non-medical expenses

CSC Cancer Emergency Fund

CSC Cancer Emergency FundDedicated Phone Number(888) 409-4166

Eligibility Criteria• Must have cancer

• Must meet income guidelines

• Verification of treatment form must be filled out by a clinician

Cancer Support Helpline Partners

What People are Saying about the Cancer Support Helpline:

“Thank you so much. Talking to you was really helpful, one of the most clarifying conversations I've had about my situation since I first got the diagnosis so far. I think the job you are doing is very important, I will let everyone I know about your organization. Thanks also so much for the extra time you took to let me voice my concerns…”

“I wasn’t aware how much I needed to talk to someone. I was thinking about stopping treatment because I felt so alone and now I know there is someone I can talk to about how hard this is. I will try and work on the things you suggested. No one has helped me like you…”

“Not sure how we managed before we started actively referring callers to CSH. I realize now there were so many needs I was unable to help callers with and I am grateful that people find it to be so helpful. When I talk with people again they tell me how appreciative they are that I connected them. I feel like I have done such a better job.”

---Patient Assistance Program Nurse

Changing Lives

Questions?

Thank You!

National Proton Conference July 24th 2020