july edge talk - the maker movement - a model for healthcare transformation? dr joyce lee
TRANSCRIPT
![Page 1: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/1.jpg)
@theEdgeNHS | #EdgeTalks
THE MAKER MOVEMENT: A MODEL FOR HEALTHCARE
TRANSFORMATION?
Joyce Lee
Friday 1st July 2016 at 9.30am BST
![Page 2: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/2.jpg)
Joining in today and beyond• Please use the chat box to contribute
continuously during the web seminar
• Please tweet using hashtag #EdgeTalks and the handle @School4Radicals @theEdgeNHS
• Send a request to join our Facebook group School for Health and Care Radicals and The Edge NHS
![Page 3: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/3.jpg)
The team today
Chat room monitorCarol Read @CarolLRead
Twitter monitor Olly Benson@ollybenson
Session chairDom Cushnan@DomCushnan
![Page 4: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/4.jpg)
Our presenters
Joyce Lee @Joyclee
![Page 5: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/5.jpg)
Our Next Edge Talks
August 5th Sue Haines Talent management
September 2nd Maxine Craig Culture and Change
![Page 6: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/6.jpg)
The Maker Movement: A Model for Healthcare
Transformation?
Joyce Lee, MD, MPHhttp://www.doctorasdesigner.com/Twitter:
@joyclee
![Page 7: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/7.jpg)
Agenda
The Maker Movement and Participatory Design
The Nightscout ProjectResearch (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
![Page 8: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/8.jpg)
Agenda
The Maker Movement and Participatory Design
The Nightscout ProjectResearch (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
![Page 9: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/9.jpg)
JAMA PediatricsVerily Samuelson Associates Unitio
Disclosures
![Page 10: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/10.jpg)
Associate Professor, Pediatric Endocrinologist
Health Outcomes/Clinical Researcher Learning Health SystemsMobile Technology/Data VisualizationParticipatory Design/Social Media
Quality Improvement Director for Pediatric Diabetes
Background
![Page 11: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/11.jpg)
“Folk in black turtlenecks and designer glasses working on small things like the Apple
Watch”
-Tim Brown
No Formal Training in Design
![Page 12: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/12.jpg)
A PersonalDesign Experiment
![Page 13: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/13.jpg)
“B”
![Page 14: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/14.jpg)
#design #fail
![Page 15: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/15.jpg)
![Page 16: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/16.jpg)
#lazytigermother
![Page 17: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/17.jpg)
http://ihavefoodallergies.tumblr.com
![Page 18: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/18.jpg)
![Page 19: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/19.jpg)
![Page 20: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/20.jpg)
![Page 21: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/21.jpg)
700+ students & 40 teachers
![Page 22: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/22.jpg)
![Page 23: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/23.jpg)
“Two videos recently impressed me with their use of illustration and narration to educate an audience about health…What interests me is how approachable and informative they are, regardless of the production value.”
-Susannah Fox
![Page 24: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/24.jpg)
B’s Trilogy Part 2:Ingredients and Food Handling
![Page 25: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/25.jpg)
B’s Trilogy Part 3: Asthma
![Page 26: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/26.jpg)
![Page 27: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/27.jpg)
![Page 28: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/28.jpg)
Patient as
expertmaker
collaborator
#futureofhealthcare
![Page 29: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/29.jpg)
Healthdesignby.us
![Page 30: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/30.jpg)
To integrate design thinking into the medical enterprise and to promote the participation of makers in the healthcare landscape
To partner with patients and caregivers to create opportunities for participatory design, citizen science, and open science research
To provide tools and technology-based systems for transforming the patient experience
Education
Research
Clinical
![Page 31: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/31.jpg)
Empathy PrototypeDefine Ideate Test
Human-Centered Design”An approach that puts human needs, capabilities, and behavior first, then designs to accommodate those needs, capabilities, and ways of behaving”
![Page 32: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/32.jpg)
Participatory Design”an approach to design attempting to actively involve all stakeholders
in the design process to help ensure the result meets their
needs and is usable”
![Page 33: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/33.jpg)
Who’s the real expert?
![Page 34: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/34.jpg)
Interdisciplinary Design Workshops“Committee Work”
![Page 35: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/35.jpg)
Curricular Collaborations:Swift iOS programming
Digital Game Design
![Page 36: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/36.jpg)
EmpathyUnderstand a problem
before solving it
![Page 37: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/37.jpg)
DefinePatient-defined problem
![Page 38: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/38.jpg)
IdeateCollaborative, creative
brainstorming
![Page 39: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/39.jpg)
PrototypeSketch, draw, glue, code
![Page 40: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/40.jpg)
TestIterative Feedback from User
![Page 41: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/41.jpg)
www.diabetesemoticons.com
![Page 42: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/42.jpg)
![Page 43: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/43.jpg)
http://umsickapp.info/
http://bit.ly/umpump
![Page 44: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/44.jpg)
Design=Distraction from Health
A critical tool for the creation of health
![Page 45: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/45.jpg)
![Page 46: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/46.jpg)
Maker Movement
Do It Yourself (DIY)
Learning by Doing
Peer-to-Peer
![Page 47: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/47.jpg)
![Page 48: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/48.jpg)
![Page 49: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/49.jpg)
![Page 50: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/50.jpg)
![Page 51: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/51.jpg)
![Page 52: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/52.jpg)
![Page 53: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/53.jpg)
“Being a maker is not taking the world as it is”
-Dale Dougherty
“The essential democratization of the technology has happened; once you
put the tools in the hands of everybody, it liberates the ideas and
creativity of so many people” -Chris Anderson
![Page 54: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/54.jpg)
Maker Movement
ParticipatoryDesign=
![Page 55: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/55.jpg)
DIY = Expert
Learning by doing = Maker
Peer-to-Peer = Collaborator
![Page 56: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/56.jpg)
![Page 57: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/57.jpg)
@SusannahFox @jfgm @annakyoung
![Page 58: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/58.jpg)
Design/Maker WorkshopsDiabetes Education
Design/Maker WorkshopsApps Design by Teens
Participatory Game Designin Diabetes Clinic
![Page 59: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/59.jpg)
Design Insights
We are all designers (patients/caregivers/HCPs)
Design WITH and not FOR patients/caregivers by inviting them to the table
Make design a part of the workflow
Design with members of a different tribe
Embrace the maker movement
![Page 60: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/60.jpg)
Agenda
The Maker Movement and Participatory Design
The Nightscout ProjectResearch (Ethnography, Survey, Secondary
analysis of Social Media - University of Michigan IRB)
Design and Making as a Healthcare Platform
![Page 61: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/61.jpg)
![Page 62: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/62.jpg)
![Page 63: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/63.jpg)
![Page 64: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/64.jpg)
![Page 65: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/65.jpg)
Wrote Original code for CGM
![Page 66: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/66.jpg)
Wrote Original code for CGM
BlogTwitter
![Page 67: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/67.jpg)
Wrote Original code for CGM
Blog
ContractorIn India
Elance.comTwitter
![Page 68: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/68.jpg)
Wrote Original code for CGM
Blog
ContractorIn India
Elance.com
"Hi the job was too simple I have already deployed it for you. You can pay whatever little amount that you may like to play. Elance is not allowing to bid less than $20"
![Page 69: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/69.jpg)
Blog
Wrote Original code for CGM
ContractorIn India
Elance.com
Facebook post
“So, I saw her, she saw too right what this could do to change her life…so I actually went home that night and messaged xxx and said, can we set up another one”
![Page 70: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/70.jpg)
Blog
Wrote Original code for CGM
Started CGM in the
Cloud FB Group
ContractorIn India
Elance.com
Facebook post
![Page 71: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/71.jpg)
![Page 72: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/72.jpg)
![Page 73: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/73.jpg)
![Page 74: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/74.jpg)
![Page 75: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/75.jpg)
#WeAreNotWaiting…
…while our endocrinologist tries to assemble the disjointed pieces of the data puzzle…for regulators to regulate…for device manufacturers to innovate…for peace of mind that our children with type 1 diabetes are safe
![Page 76: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/76.jpg)
“…organically a support group came out of the community [and] was basically working 24/7…Somebody would always be monitoring the Facebook page…”
Technical Troubleshooting for Nightscout General Diabetes TechnologySkin RashesBlood Sugar Patterns and ManagementIssues with the
School NurseEndocrinologistInsurance
![Page 77: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/77.jpg)
![Page 78: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/78.jpg)
![Page 79: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/79.jpg)
![Page 80: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/80.jpg)
ItalyUK SwedenBulgariaSpainCanadaAustraliaFinlandCzech+Slovakia
New ZealandCroatiaIsraelSouth AfricaHungaryFranceSwitzerlandBelarusJapanKorea
18,000 + 7,710 = 25,710 US Int’l
Poland
RomaniaDenmarkPortugalTurkeyRussiaNorwayBrasilGermany
![Page 81: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/81.jpg)
![Page 82: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/82.jpg)
Open Source Code“What one person knows, everybody knows…So it’s travelling at the speed of light.”
![Page 83: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/83.jpg)
Collaborative Innovation Network A cyberteam of self-motivated people with a
collective vision, enabled by the Web to collaborate in achieving a common goal by sharing
ideas, information, and work
![Page 84: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/84.jpg)
Leadership Team
![Page 85: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/85.jpg)
Features: 10 Apple Pie ->
152 Funnel Cake
Amy Cowen
Nightscout Product Roadmap
Core Development Team
![Page 86: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/86.jpg)
Support Team
![Page 87: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/87.jpg)
Apr-14
May-14
Jun-14
Jul-1
4
Aug-14
Sep-14
Oct-14
Nov-14
Dec-14
Jan-15
Feb-15
Mar-15
Apr-15
May-15
Jun-15
Jul-1
5
Aug-15
Sep-15
Oct-15
Nov-15
Dec-15
Jan-16
Feb-16
Mar-16
Apr-16
0
100
200
300
400
500
600
Month-Year of first post
New
Use
rs b
y Po
st
New The End of Nightscout?
New Members to FB group via 1st Post
![Page 88: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/88.jpg)
![Page 89: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/89.jpg)
![Page 90: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/90.jpg)
![Page 91: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/91.jpg)
![Page 92: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/92.jpg)
![Page 93: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/93.jpg)
![Page 94: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/94.jpg)
Xdrip
![Page 95: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/95.jpg)
![Page 96: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/96.jpg)
![Page 97: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/97.jpg)
![Page 98: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/98.jpg)
0-5 y 6-12 y 13-17 y
≥ 18 y0.0
2.0
4.0
6.0
8.0
10.0
12.010.1
8.88.1 7.6
8.97.8
7.1 6.8
Before NSAfter NS
Self-reported HbA1c average Self-reported HbA1c average
Excludes CGM users <6 months
![Page 99: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/99.jpg)
A Maker Movement for Diabetes
Patients/caregivers as lead innovators
A Model for Personalized Medicine (Devices, wearables, mobile apps)
Sharing of open source code through Github and sharing of knowledge through social media
How do we translate this knowledge to research and care delivery?
![Page 100: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/100.jpg)
Agenda
The Maker Movement and Participatory Design
The Nightscout ProjectResearch (Ethnography, Survey, Secondary
analysis of Social Media)
Design and Making as a Healthcare Platform
![Page 101: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/101.jpg)
ProfessionalDesign
ParticipatoryDesign
Human-Centered
Design
MakerMovement
(Meta-Design)
Healthcare Delivery & Biomedical Research
![Page 102: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/102.jpg)
Meta-design (Gerhard Fischer)
“Design for designers”
Users become co-designers and co-developers
The meta-designers design systems explicitly for evolution
http://l3d.cs.colorado.edu/~gerhard/papers/2013/EUD.pdf
![Page 103: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/103.jpg)
![Page 104: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/104.jpg)
Meta-design Objectives
Changes must seem possible
Changes must be technically feasible (open systems)
Benefits must be perceived
Environments must support people’s actual tasks
Barriers to sharing changes must be low
![Page 105: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/105.jpg)
MD to PatientPassiveSolitary
Patient to PatientActive
Collaborative
Health
![Page 106: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/106.jpg)
Valerie Castle, Ram Menon, Nancy Benovich Gilby, Emily Hirschfeld, Ashley Garrity, Matt Kenyon, Preciosa Choi, Sarah Clark, Peter Honeyman, Liz Kaziunas, Ben West, Dana Lewis, John Costik, James Wedding, Weston Nordgren, Ken Stack, CGM in the Cloud Community
Twitter: @joycleehttp://www.doctorasdesigner.comhttp://www.healthdesignby.us/#makehealth
It Takes a Virtual Village
![Page 107: July Edge Talk - The Maker Movement - a model for healthcare transformation? Dr Joyce Lee](https://reader036.vdocument.in/reader036/viewer/2022070514/588126891a28ab00438b46ab/html5/thumbnails/107.jpg)
Our Next Edge Talks
August 5th Sue Haines Talent management
September 2nd Maxine Craig Culture and Change