let's talk research 2015 -diane roberts - interactive ways of bringing research to life

Let’s Talk Research!

Interactive Ways of Bringing Research to Life

Workshop presented by: Dr Diane Roberts (PhD), University of Manchester

What’s in the Workshop?

• Objective of today’s session

• Objective of original workshop

• Format of original workshop

• What we learned

• Why interactivity is important and valuable

What IS research dissemination?

• Why do we do it?

• How do we do it?

• Interactivity, Multi-disciplinarity, topic engagement

• Encouraging examination of individual practice

• ‘Take-home’ messages

The original workshop was to…

• Present study findings

• Compare perspectives of patients, carers and

practitioners

• Consider impact of findings on practice

• Highlight follow-on questions

Psychological Wellbeing in Advanced Cancer

What can we learn from Patients and Carers?

Dr Catherine Walshe (PhD) and Dr Diane Roberts (PhD)

Presented May 2014 by:

Study Design:

• Interviews

• Focus Groups

• Strong PPI

• Practitioner engagement

What did the session look like?• Half day: Lunch + 3 linked but stand-alone sessions

• Presentation of study design and findings

• Interactive– Electronic voting - 13 topics identified by study focus groups

– Small group breakouts and lunch

• Plenary– Graphical comparison of patient, carer and professional priorities

– Open discussion, audience questions

What coping strategies do

they use?

How do patients with advanced cancer and their carers maintain or develop psychological wellbeing?

How can we support coping

strategies?

Study Summary

Findings indicate Coping Strategies:

• Often exist at the point of diagnosis

• Are learned from previous experience of stressful situations,

• Develop specifically in response to the everyday impact of cancer

• Evolve over time

• May be used differently by patients and carers

And that:

• Effectiveness may fluctuate,

• Strategies evolve or are supplemented by specific learning

• Informal sharing of experience with peers is valuable

• Peer information is often a pragmatic, non-clinical, non-medical ‘work around’ and emerges from lived experience.

Final Phase

• Identify coding subset of major themes with potential for intervention development

• Use subset as stimulus material for Focus Groups to consider patients’ and carers’ priorities.

I’ve always wanted to be….

1. A trapeze artist2. A lion tamer3. A clown

1. 2. 3.

0% 0%0%

I’ve always wanted to be….

1. A trapeze artist2. A lion tamer3. A clown4. A ringmaster

1. 2. 3. 4.

0% 0%0%0%

ProfessionalsBeing confident in, comfortable with and trusting of health professionals

1. High priority2. Important but

not essential3. Nice to have

1. 2. 3.

0% 0%0%

Pleasing yourselfPutting pleasure above duty



1. 2. 3.

0% 0%0%

Switching OffFinding ways to 'switch off' thinking about illness, impact, prognosis



1. 2. 3.

0% 0%0%

InformationGetting information in enough detail at the ‘right’ time

1. High priority2. Important but not

essential3. Nice to have

1. 2. 3.

0% 0%0%

SocialisingFeeling able to socialise with existing friends/family or to meet new people



1. 2. 3.

0% 0%0%

Responding to othersBeing able to see other people’s behaviour as supportive (even where this may previously have been unwelcome).



1. 2. 3.

0% 0%0%

Having people to turn toBeing able to confide, offload, share time without a focus on illness, rely on help when needed



1. 2. 3.

0% 0%0%

Being self awareThinking about own strengths or weaknesses, especially where these help in coping - with or without help from others



1. 2. 3.

0% 0%0%

Being realisticAccepting need for change, being ‘sensible’, balancing what gets done against available energy



1. 2. 3.

0% 0%0%

A Good DayReflecting on what makes a day feel like a ‘good day’.



1. 2. 3.

0% 0%0%

Everyday thingsManaging the things that make up ‘normality’ and everyday tasks/activities



1. 2. 3.

0% 0%0%

Communicating differentlyBeing able to talk or act differently to allow feelings/needs to be shared



1. 2. 3.

0% 0%0%

Changing PrioritiesRevaluing priorities within new limits created by illness



1. 2. 3.

0% 0%0%

Comparing viewpoints

• Patients

• Carers

• Health Professionals – Clatterbridge Session

• Health Professionals – The Christie Session• Today’s audience! What do YOU think?

0102030405060708090

100

High Priority Important Nice to Have

Patient

Carer

CCC

Christie

Bolton

ProfessionalsBeing confident in, comfortable with and trusting of health professionals

Pleasing yourselfPutting pleasure above duty

0102030405060708090


Patient

Carer

CCC

Christie

Bolton

Switching OffFinding ways to 'switch off' thinking about illness, impact, prognosis

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

InformationGetting information in enough detail at the ‘right’ time

0

10

20

30

40

50

60

70

80


Patient

Carer

CCC

Christie

Bolton

SocialisingFeeling able to socialise with existing friends/family or to meet new people

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

Responding to othersBeing able to see others’ behaviour as supportive (even where this may previously have been unwelcome).

0102030405060708090


Patient

Carer

CCC

Christie

Bolton

Having people to turn toBeing able to confide, offload, share time without a focus on illness, rely on help when needed.

0

10

20

30

40

50

60

70

80


Patient

Carer

CCC

Christie

Bolton

Being self awareThinking about own strengths or weaknesses, especially where these help in coping with or without help from others

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

Being realisticAccepting need for change, being ‘sensible’, balancing what gets done against available energy

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

A Good DayReflecting on the what makes a day feel like a ‘good day’

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

Everyday thingsManaging the things that make up ‘normality’ and everyday tasks/activities

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

Communicating differentlyBeing able to talk or act differently to allow feelings/needs to be shared.

0

10

20

30

40

50

60


Patient

Carer

CCC

Christie

Bolton

Changing PrioritiesRevaluing priorities within new limits created by illness

0

10

20

30

40

50

60

70


Patient

Carer

CCC

Christie

Bolton

Key comments re study:

• Positive framing of coping (v negative psychological considerations)

• Understanding coping strategies• Understanding that patient/carer/HP perspectives

differ and may surprise HPs• Thematic presentation informative• Confirmation of HP experiential knowledge• Topic often forgotten in focus on physical wellbeing

Observations on CPD relevance

• Useful to practice• Networking• Bringing research findings ‘alive’• Awareness of cues from patients• Self-examination re negative impacts• Accessible research and ‘real’ researchers

Format

• Interactive technology• Good pace but not pressurised• Opportunity to network/interact with people in a

variety of roles• Audience mix of patients, carers and

professionals• Engaged audience

What we learned…Presenting research

≠to simple knowledge giving

• One audience – multiple perspectives• We can learn from patients and carers• Visualising difference is effective• Time to reflect, discuss and reflect is key

Going forward…

• Why IS interactivity important and valuable?• Research and Practice• Research Implementation

let's talk research 2015 -diane roberts - interactive ways of bringing research to life

Health & Medicine