lynda poole- regional development officer. members of the neurological alliance action for dystonia...

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Lynda Poole- Regional Development Officer

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Page 1: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association

Lynda Poole- Regional Development Officer

Page 2: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association

Members Of The Neurological Alliance

• Action for Dystonia• The Association of British Neurologists• Association of the British Pharmaceutical

Industry • Association for Spina Bifida & Hydrocephalus• Ataxia Telangiectasia Society• Ataxia UK• Brain Tumour UK• Brain and Spine Foundation• British Polio Fellowship• Different Strokes• Dystonia Society • Encephalitis Society• Epilepsy Action• Headway• Huntington's Disease Association• Joint Epilepsy Council• Lincolnshire Post Polio Network• Migraine Trust• Motor Neurone Disease Association• Multiple Sclerosis Society

•Muscular Dystrophy Campaign • Multiple Sclerosis Trust• National Centre for Young People with Epilepsy, • National ME Centre • National Society for Epilepsy• National Tremor Foundation • Neurosupport• Parkinson’s UK• Primary Care Neurology Society • Progressive Supranuclear Palsy • Association Rehab UK• Shane Project• Speakability• Stroke Association • Sue Ryder Care• Tourette Syndrome Association UK• Tranverse Myelitis Association• Trigeminal Neuralgia Association UK• Tuberous Sclerosis Association UK • Acquired Brain Injury Forum

Page 3: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association
Page 4: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association
Page 5: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association

Neurological disorders affect the brain,spinal cord,peripheral nerves

and muscles and include:

• Intermittent disorders such as epilepsy,migraine

• Progressive long-term conditions such as PD,MS and dementia.

• Life threatening acute conditions such as stroke and traumatic brain injury

Page 6: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association

Neurological conditions are common.

• Neurology symptoms account for 1in 10 GP appointments.

• 1 in 6 people has a neurological condition that makes a significant impact on their lives.

• 2% of population of the UK are disabled by a neurological condition

• Lifetime prevalence of MS is 2 per 1,000 of population and double that for epilepsy.

Page 7: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association

A Regional Neurological Alliance for Somerset?

Voice of people living with neurological conditions.

Page 8: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association
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Page 12: Lynda Poole- Regional Development Officer. Members Of The Neurological Alliance Action for Dystonia The Association of British Neurologists Association