mobile tools in disease surveillance in low income countries - astmh 2012 presentation

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© InSTEDD , CC BY-NC-SA “New tools in LDCs using IT” Mobile tools for disease surveillance in low income countries Ed Jezierski, ND* CTO, InSTEDD @edjez

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Data From the Field - ASTMH 2012 Presentation

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Page 1: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

“New tools in LDCs using IT”

Mobile tools for disease surveillance in low income countries Ed Jezierski, ND*

CTO, InSTEDD@edjez

Page 2: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Page 3: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Tradeoffs

Timely

Complete

High Quality

Page 4: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

You can’t have it all!

Timely

Complete

High Quality

?

Page 5: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Balanced portfolio

Timely

Complete

High Quality

Page 6: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Mobiles give unprecedented opportunity

Complete

Timely

High Quality

Page 7: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

But also new challenges

• Usability• “Reach vs. Rich” – Voice, SMS, smartphone, J2ME, USSD

• Bad designs• Training costs• Working with operators• Pilots, pilots everywhere! that can never scale• Community health worker (dis)incentives• …

Page 8: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Knowledge Action

Page 9: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Supporting group collaboration

Page 10: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

As Storm Ketsana struck Thailand, health workers using InSTEDD GeoChat alerted each other of floods, how to avoid injuries and rescuing villagers

Page 11: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Information technology doesn’t need to be digital – at InSTEDD we’ve had to work on tools that simplify data reporting and interpretation across the literacy gap

Page 12: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Machine to Machine communicatione.g. Cepheid GeneXpert

Cepheid GeneXpert

Usage and issue monitoringDisease trending for all testsAggregate data for reportsGranular data for analysis

No patient data uploaded

Page 13: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Population InteractionScreening and referral with PopCouncil BabyMonitor

Page 14: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

System … or archipelago?

The Other Ministry of Health App That Only Keeps Running Because WHO pays perdiems

for support

Some useful Ministry of Health SMS App

The SMS app used that has been piloted in ___

district ONLY over the last 3 years

The expensive SMS and IVR solution some vendor did but

no one can get to the data

Remember that summer when there

was this intern that was Mary’s nephew and he was kind of a geek and

he programmed a system and then he left but then a supervisor

blah blah blah

That data reporting app that was built by the university CS

intern; no one knows who uses it but they sure tweet about it!

Page 15: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Bringing it back together

Page 16: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Bringing it back together

Global

Household

Village

District

Province

National

Regional

Events Indicators

Outcomes?

Incentives?

Sharing Policy?

Data Quality?

Technology?

Challenges for Integration:

Page 17: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

International Data (MBDS Regional Network)Spatiotemporal visualizations and analysis

Page 18: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Tracking H1N1 in Real Time

Page 19: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Client Registry

Shared Health Record

Facility Registry

Provider Registry

Terminology Service

Health Process Integration

Medical Record Systems

Lab Mobile

Health Information Systemsas health surveillance enabler

Page 20: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

• Resource constrained environments can foster efficient, creative, leapfrog approaches

• Effective surveillance starts with clear goals

• Mobile tools are just one part of a portfolio

• Mobiles bring unprecedented opportunities for disease surveillance – if done well

Page 21: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Thank You!Ed Jezierski

CTO, InSTEDD@edjez

[email protected]

Page 22: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Cloud-based Aggregator

Sifting, cleanup and 1st phase of

analytics

WWW

ICD9

Prescriptions

Essence

2nd Phase Analytics

Early SensitizationContext

Prevalence UI &

DB

Page 23: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

Page 24: Mobile tools in Disease Surveillance in Low Income Countries - ASTMH 2012 Presentation

© InSTEDD , CC BY-NC-SA

will bring 365 opportunitiesOur field reports show 2013 to make the right choices