ms connection - february issue 2009

Winter 2009

CollaborationIt’s How We Move WisconsinToward a World Free of MS

Knudsons Work Together to Tackle Challenge Walk MS

“Join the Movement & Move Others.” That was the theme of the Society’s annual conference held November 5 to 7 in Chicago. And I’m pleased to report that many of you are doing just that. Alyson Zierdt, our newly-elected Board of Trustees Chair, was among a group of highly-charged Wisconsin Chapter volunteers and staff who attended the conference. Keynote speaker Malcolm Gladwell set the tone for the gathering when he offered a preview of his newest #1 best-seller, “Outliers: The Story of Success.” He shared the importance of being bold, imaginative and collaborative in achieving success. Dr. Stephen Hauser of the University of California at San Francisco credited collaboration for the groundbreaking work being done on the genetics of MS. “Can we make MS a simpler problem?” he asked conference attendees. Dr. Hauser believes we can. “We are within a year of getting to the next group of gene variants and learning how they work,” Dr. Hauser said. Dr. Harold Pollack of the University of Chicago and Society advocate Shawn O’Neal led packed workshops discussing how our bold Health Care Reform Principles have already made an impact on the inner Obama circle.

Bringing it Home to the Badger State There’s no question that in these challenging times we will need to be bold, imaginative and collaborative to achieve our goals. In this issue of MS Connection, we’re putting the spotlight on collaboration. From the inspirational story about the Knudsons – a husband-and-wife team who successfully tackled the Challenge Walk; to our suggestions for “moving it” in March during MS Awareness Week; we think you’ll see the power of collaboration. And we hope you’ll be inspired to move others.

Together we can do what we cannot do alone: We can create a world free of MS.

Warm regards,

Colleen G. KaltPresident & CEO

If you or someone you know has MS: Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society at nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure. The National MS Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National MS Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National MS Society recommends that all questions and information be discussed with a personal physician. The National MS Society is committed to seeing a world free of MS.

©2009 National Multiple Sclerosis Society - Wisconsin Chapter

2 JOIN THE MOVEMENT: wisMS.org MS CONNECTION: Winter 2009

Alyson Zierdt, ChairCommunity Advocate Martin McLaughlin, Past ChairReinhart Boerner Van Deuren, S.C.

Michael Lutze, Vice ChairErnst & Young Kenneth Minor, Vice ChairSonic Foundry, Inc.

Patricia Ackerman, TreasurerA.O. Smith Corporation

Robert Sowinski, SecretaryDiversified Insurance Services, Inc.

Colleen Kalt, President & CEONational MS Society - Wisconsin Chapter Carrie Raymond BedoreCarrie Raymond Bedore, LLC

Robert Buhler Open Pantry Albert Elser IICommunity Advocate Robert EngelM&I Bank

Jess LevinBank of Elmwood Karen MinorCommunity Advocate Bruce OlsonThe Marcus Corporation Shelley Peterman SchwarzMeeting Life’s Challenges

David RaysichPlunkett Raysich Architects

Patricia RaysichCommunity Advocate

Dave RodgersBriggs & Stratton Corporation

James RoseVirchow, Krause and Company LLP

John SteinhafelSteinhafels Furniture

Maureen SteinhafelCommunity Advocate

Jeffrey SterenSteren Management/McDonald’s

Robyn TurtenwaldCommunity Advocate

Wisconsin Board of Trustees Let’s Collaborate

Debbie and Bob Knudson had just finished the 2008 Walk MS event in their hometown of Racine when they learned about the new Challenge Walk MS. The promotional flier from the National Multiple Sclerosis Society (NMSS) - Wisconsin Chapter read:

Challenge Walk MS.3 days, 50 miles.

The event will challenge you. The experience will change you.

Debbie, who has lived with multiple sclerosis (MS) for more than 20 years, thought this would be a great opportunity to follow in her daughter’s fundraising footsteps, as well as provide a personal physical challenge. Debbie said, “I will never let MS stop me from anything, and I really wanted to raise money to help in the fight against MS.” Debbie decided to sign up for Challenge Walk MS, even though at the time she was recovering from a recent fall. In fact, she had broken bones in both feet, and because of other unrelated injuries, was temporarily using a wheelchair. Of course that meant the only way Debbie could complete the 50-mile Challenge Walk MS was to have someone push her. And that someone was her husband of 32 years, Bob.

The 2008 Challenge Walk MS – held October 17, 18 and 19 in Door County – did indeed turn out to be an amazing and inspirational opportunity for the individuals who participated. And while the breathtaking Door County setting contributed to the overall experience, many walkers said their inspiration came from observing the Knudsons complete the 50-mile route with Bob pushing Debbie in her wheelchair.

One Challenge walker commented, “When I mentioned to Bob and Debbie that they had a lot of guts, Bob told me, ‘We’re no different than anyone else here. We’re not special. We are just one of you,’ and that really touched me.” The first day the group completed 20 miles before retiring to the host hotel to enjoy a traditional Door County fish boil dinner. On Saturday night – after completing another 20 miles – everyone gathered at the host hotel for dinner and a poignant candlelight ceremony to recognize loved ones who have multiple sclerosis.

Something else rather remarkable happened on that second day. “Bob is my backbone, I couldn’t do it without him,” explained Debbie. And while Bob pushed Debbie in her

wheelchair through most of the walk, on the second day they changed positions – and for a short stretch, Debbie actually pushed Bob along part of the route. “She wanted to reverse the roles, and I found this experience very humbling,” said Bob. After lunch on the third and final day, the entire group of 84 walkers conquered the last half mile together, making their way down a hill to E. Murphy Park Pier, providing a stunning view of Lake Michigan

Walking One Mile at a TimeKnudsons Take Bold Approach to a Challenging EventBy Meghan Schnabl

3TOLL FREE NUMBER 1 800 242 3358

In 2008 Debbie and Bob Knudson completed the Challenge Walk MS and the Racine Walk MS

I will never let MS stop me from anything, and I really wanted to raise money to help in the fight against MS. – Debbie Knudson, 2008 Challenge Walk MS participant

4 JOIN THE MOVEMENT: wisMS.org

and the important 50-mile finish line sign. “We just took it mile by mile,” explained Bob. That doesn’t mean there weren’t rough spots. The Knudsons both acknowledged that there were a couple times they doubted whether they would make it to the finish line. But once again, Debbie was not going to let MS hold her back. “Our commitment of 32 years of marriage, our faith and dedication to fight multiple sclerosis got us through,” said Debbie. Bob added, “I thank God daily for my wife’s ability to walk beside me.” By all accounts, the 2008 inaugural Wisconsin Chapter Challenge Walk MS was a huge success. The participants have so far raised more than $225,000 – beating the revenue goal set for the event. These contributions will help fund MS research and provide programs for clients and families affected by multiple sclerosis. Bob and Debbie remain determined to fight MS. Their advice to others who have the disease: Don’t quit. “You have to keep driving for what you want no matter how hard the challenge,” said Debbie. The Knudsons strongly encourage others to participate in the Challenge Walk MS. Both Debbie and Bob said, “We didn’t go into this event expecting what we got out of it. The staff, volunteers and participants were so encouraging and supportive. The event was very inspiring.” Debbie reached her personal goal of completing the 50-mile Challenge Walk MS with her husband Bob, and raised money for MS research and programs. But little did she know that she and her husband would touch so many lives. Debbie and Bob hope others will participate in the event to raise awareness of multiple sclerosis and join the MS Movement. And yes, the Knudsons do plan to walk in the 2009 Challenge Walk MS.

Meghan Schnabl has worked for the Wisconsin Chapter for one year and is the Development Relations Manager. She completed the 2008 Challenge Walk MS.

Challenge Walk MS is a three-day, 50-mile experience that tests your strength and your spirit, and makes an extraordinary difference in the lives of the 400,000 people throughout the U.S. living with multiple sclerosis. The 2009 event will once again be held in breathtaking Door County September 18-20. • A minimum fundraising goal of $1,500 is required. • Begin your journey by starting a team. Any group of four or more people can form a team, and there are plenty of places to find members – friends, family, your company or your community. • Remember: Challenge Walk MS is a fully supported event. That means while you train and fundraise, the Wisconsin Chapter handles everything else and will take care of you (your lodging, meals, etc.) throughout the event. To learn more about the Challenge Walk MS contact the Wisconsin Chapter at [email protected], call 800-242-3358 or visit our website wisMS.org.

2009 Challenge Walk MS Returning to Door County

Day Two of the 2008 Challenge Walk MS in Door County started at Cave Point County Park , overlooking Lake Michigan.


Top Fundraisers Congratulations to the following Challenge Walk MS participants for their outstanding fundraising accomplishments. Together this group raised $40,272 – representing 18 percent of the more than $225,000 generated by the event. Your incredible efforts are changing lives throughout Wisconsin.

Jeane Kropp, Madison $10,395 Jennifer Egan, Port Washington $ 6,920Laura Hermanns, Racine $ 6,618Stacey VanRens, Elm Grove $ 5,742Cindy Zydzik, Milwaukee $ 5,537Donna Mayer, Sheboygan $ 5,060

Sponsors Congratulations are also in order as we salute our 2008 Challenge Walk MS sponsors. Without your support we could not have launched such a successful event. You have the heartfelt thanks of the entire Wisconsin MS Movement.

Volunteers Volunteers – you were the engine that powered this program over three days and 50 miles. Please accept our deep and sincere gratitude for every contribution of time and talent. You made the inaugural 2008 Challenge Walk MS a great success.

More Than $225,000 Raised in 2008First Challenge Walk MS Exceeds Fundraising Goal

The setting was beautiful, the volunteers unfailingly cheerful and encouraging, and the other walkers so very inspirational.

2008 Challenge Walk MS participant

Congratulatory cheers greeted 2008 Challenge Walk MS participants as they made their way to E. Murphy Park Pier and the finish line.


Check the box. That’s all it takes to make a difference in the life of a Wisconsin resident living with multiple sclerosis and requiring financial assistance. Specifically, when completing your 2008 Wisconsin Income Tax return, go to “donations” and check “multiple sclerosis.” You can donate whether or not you are receiving a tax refund. And even though filing taxes isn’t on anyone’s Top Ten list of ways to have fun, you will feel good knowing that 100 percent of your donation goes directly to aid Wisconsin residents with MS. Wisconsin Makes a Mark for MS, was signed into law in December 2005. The first year the donation option was available, more than 7,000 Wisconsin taxpayers checked the donation box and generated $84,955. The next year the program raised $88,611 – a four percent increase. This year the Wisconsin Chapter hopes to set a third-straight record for donations. Jeremy Otte, programs and services manager for the Wisconsin Chapter and staff liaison for the organization’s Wisconsin Makes a Mark for MS Committee, said the impact of the initiative has been tremendous. “We’ve been able to help twice as many clients in a single year,” said Otte. Through December 31, 2008, financial gifts totaling nearly $110,000

were awarded to more than 100 clients. Those gifts are especially important because research shows the financial impact for each family living with MS is an average of $57,000 per year. MS tax check-off financial gifts have supported a wide range of requests – from paying for cooling vests or room air conditioners to providing home accessibility modifications or purchasing medical equipment. “The program is designed to support MS-related needs and help our clients improve or maintain their independence,” said Otte. He added, however,

that the Wisconsin Chapter cannot support purchases of products or services that already have alternative sources of funding. For example: Because pharmaceutical companies have financial assistance programs to help pay

for medications, tax donations are not available for this purpose. But make no mistake – your donation at tax time does make a difference in the lives of Wisconsin residents living with MS. And that’s why you should make tax time your time to make a mark for MS.

Tax Preparation Tips for People with MS Visit wisMS.org and click on Winter Supplement to find a variety of helpful suggestions for completing your tax returns.

Wisconsin Makes a Mark for MSProgram Provides Critical Financial Assistance

Even if you are not receiving a refund, you can still make a donation. Remember, 100 percent of your contribution goes to aid Wisconsin residents with MS.

We’ve been able to help twice as many clients in a single year. - Jeremy Otte, Wisconsin Chapter Programs and Services Manager


More Than 100 Have Received Support

Your Income Tax Donation Makes a DifferenceBy Jeremy Otte

Imagine being diagnosed with multiple sclerosis.Imagine not being able to afford health care or living expenses.

Imagine having to pay an average of $57,000 a year just to live with the disease.

Now, imagine a way to help the more than 10,000 people in Wisconsin with MS.It’s easy. See the “Donations” section on your Wisconsin Income Tax form,

then donate funding to “multiple sclerosis”.All donations go directly to aid people with MS.

On Your Tax Return...Make a Mark for MS.

New Ramp Brings Independence The Wisconsin Chapter helped “Vikki” fund a ramp for her home. As her MS had progressed, it was more and more difficult for Vikki to get in-and-out of her home. In fact, her three-year-old son had to help carry groceries up the steps and into their house. The new ramp made it possible for Vikki to use her walker or wheelchair and enjoy enhanced independence. She stated recently, “You have improved the quality of my life, and given me freedom!”

Power Wheelchair Makes a Difference “Jeff’s” MS had been progressing, and he asked the Wisconsin Chapter to assist him with the purchase of a power wheelchair. The Wisconsin Makes a Mark

for MS committee approved Jeff’s request, and the Chapter was able to pay the portion of the wheelchair cost not covered by his insurance. Jeff said, “Before the wheelchair, I was unable to attend a number of family functions. That’s changed. I attended my grandmother’s birthday, a family reunion and even the local fair where I got to sit with my eight-month-old grandson and observe his first parade.”

Application Process If you would like to apply for funding, simply call

the Chapter at 1-800-242-3358 or email [email protected] with “Make a Mark for MS” in the subject line. A formal application will be mailed to you and the committee, which meets monthly, will review your request. All applications are presented anonymously to respect the confidentiality of each individual.

I just wanted to let you know that I got door handles

installed in my home today, and I’m like a kid with a new toy! With the new handles I can actually open

and close my doors myself. Thank you. - Financial assistance recipient

Your income tax contributions go even further because the Chapter secures preferential pricing for projects such as this ramp.

Programs and Services Manager Jeremy Otte has worked at the Wisconsin Chapter for three years.


The theme for the National Multiple Sclerosis Society’s MS Awareness Week 2009 (March 2-8) is “Move it.” The Wisconsin Chapter will mark the occasion with a variety of exciting activities. But the critical question is: What’s on your calendar? Each and every passionate person who desires to see a world free of MS is invited to “Move it” in March. In other words: Take time to do something to show your commitment to a cure. That can be as simple as wearing your MS pin or bracelet or T-shirt. You can form a bike, walk or challenge team. You can email or write or visit your local legislator. You can also talk to friends or co-workers or potential donors about MS. It all adds up to create one big MS buzz that’s impossible to ignore. How do you get started? It’s easy. Visit the Wisconsin Chapter web site at wisMS.org to review the MS Awareness Week toolkit. You’ll find fun and easy-to-implement ideas. There’s even a special section devoted to school activities. From there, make plans to participate or support these key MS Awareness Week events:

• PainttheBradleyCenterorange. Everyone is invited to kick-off MS Awareness Week by attending the Milwaukee Bucks basketball game versus the Washington Wizards at 7:30 p.m. on Saturday, February 28. Tickets are $25 each, with $5 going to the Wisconsin Chapter. Be sure to wear your MS orange while you cheer the home team. Call Tom Demeter of the Bucks at 414-227-0584 or email [email protected] to purchase tickets. • Stopmovingforoneminuteandshow your support for people with MS. Join with people throughout the state and stop moving for one minute on Tuesday, March 3 at 10 a.m. to acknowledge the more than 10,000 people who live with MS in Wisconsin.• PutanorangeMSspotlightontheState Capital. Wisconsin Governor Jim Doyle

has proclaimed March 2-8, 2009 “MS Awareness Week.” Legislative Affairs Day takes place Thursday, March 5. This is your opportunity to visit local legislators and inform them about the needs of Wisconsin residents living with MS. Complimentary bus transportation to Madison will be provided from key locations throughout the state, and the program runs from 10 a.m. to 3:30 p.m. For more information or to sign up for the day’s activities, call 800.242.3358 or email [email protected].

One final reminder: As you put together plans to “Move it” in March, be sure to share your ideas and photographs with the Wisconsin Chapter. Email [email protected] and put “MS Awareness Week” in the subject line.

Milwaukee Bucks Fundraiser Kicks Off CelebrationGet Ready To ‘Move it’ in March for MS Awareness Week

Follow the calendar below or visit wisMS.org to find a variety of creative ways and tools to help you “Move it” during MS Awareness Week 2009.

MS Awareness Week March 2-8Seven Days of MS Action

Help your local grade school, middle school or high school organize activities to recognize MS Awareness Week. Visit wisMS.org for fun school activity suggestions.

MONDAY, March 2

Stop moving for one minute at 10 a.m. and show your support for people with MS.

TUESDAY, March 3

WEDNESDAY, March 4Be visible. Wear your MS hat, T-shirt or jewelry to show you are a proud member of the MS Movement. If you don’t have MS wearables, put on something orange.


Participate in Legislative Affairs Day. Or if you can’t attend the activities in Madison, remember to send an email, make a telephone call or write a letter to boldly ask public officials for support.

THURSDAY, March 5

Find opportunities to volunteer. The Wisconsin Chapter makes it easy to get involved.

FRIDAY, March 6

Sign up for Walk MS, Bike MS or Challenge Walk MS. Already signed up? Ask two friends to join you. Remember: 71 percent of the funds raised through Wisconsin Chapter special events are generated by teams.

SATURDAY, March 7

Support the Society with a financial contribution. Every donation moves us closer to a world free of MS.

SUNDAY, March 8


As Milwaukee Journal Sentinel reporter Tom Held noted in a blog at the newspaper’s Internet site: This year’s 2009 American Birkebeiner cross country skiing event “will present an opportunity akin to a swimmer taking a lane next to Michael Phelps.”

That opportunity? No less than the chance to cross country ski with perhaps the greatest Nordic skier of all time: Bjorn Daehlie. Indeed, the Norwegian skiing legend has 12 Olympic medals – eight gold and four silver. He is the most successful Winter Olympic athlete in history. Daehlie’s appearance at the Birkebeiner is even more exciting because he’s participating to raise funds for multiple

sclerosis research – and you can, too. Daehlie’s mother has multiple sclerosis, and that – along with a shared passion for cross country skiing – led him to Wisconsin’s Dr. Ian Duncan and the Birkebeiner. Dr. Duncan is a neuroscientist at the University of Wisconsin-Madison. He is leading one of four international dream teams identified by the National Multiple Sclerosis Society (NMSS) to focus on Nervous System Repair and Protection. In addition to UW-Madison, the other locations involved in the study are Johns Hopkins, Cambridge and University College London. The Nervous System Repair and Protection study is part of Promise: 2010, an initiative created by the NMSS to raise $35 million to find and fund

the best and most promising MS research in the world. In addition to Nervous System Repair and Protection, the other Promise: 2010 studies receiving funding are: The MS Lesion Project, the Initiative on Pediatric Treatment Centers and the Sonya Slifka Longitudinal Study. “Although current medical treatments help some MS patients, they do not repair the damage that occurs in the brain and spinal cord,” said Dr. Duncan. “We are trying to devise strategies that will result in repair of areas of chronic demyelination.” Ned Zuelsdorff, executive director of the American Birkebeiner Ski Foundation, commented, “After Ian approached us, we felt the MS Society was a perfect match for our Birkebeiner fundraising campaign, called Birkie Skiers for Cures. This year, all funds raised through this program will support Promise: 2010.” The Birkebeiner is the largest Nordic ski event in North America. More than 9,000 skiers are expected to register for the 36th annual event and the other shorter races held during the weekend. Birkebeiner activities take place February 19-21 in Cable, Wisconsin. Zuelsdorff continued, “We hope Bjorn’s support and participation will allow us to exceed our past fundraising efforts.” In the last three years, Zuelsdorff noted, Birkie skiers have raised more than $84,000 for designated nonprofit beneficiaries. “We’re thrilled at the opportunity to partner with

the Birkebeiner,” said Colleen Kalt, president and CEO of NMSS – Wisconsin Chapter. “In Wisconsin and Minnesota alone, more than 20,000 families are affected by multiple sclerosis. Those who participate in the Birkebeiner are helping enrich lives and foster independence.”

Daehlie Participating in American BirkebeinerOlympic Ski Legend to Help Raise Funds for Promise: 2010

Norwegian skiing legend Bjorn Daehlie has 12 Olympic medals

We’re thrilled at the opportunity to partner with the Birkebeiner. - Colleen Kalt, President and CEO, Wisconsin Chapter


It’s easy for Birkebeiner skiers, families, fans and friends to raise funds for Promise: 2010 – and qualify for the opportunity to ski with Olympian Bjorn Daehlie.

Team Bjorn The Top 25 skiers who raise

$2,500 or more and are registered by February 15 automatically become part of Team Bjorn and receive: • Meet-and-greetopportunitywithBjornDaehlie • SpecialskisessionwithBjornDaehlieon Thursday, February 19 • LunchwithBjornDaehlieonThursday, February 19

Top Fundraiser In addition to being named a member of Team Bjorn, the participant raising the most money will also receive a free entry into the 2010 American Birkebeiner race of their choice, as well as a free get-away weekend at Lakewoods Resort near Cable, Wisconsin.

Prize Drawings Other individuals raising a minimum of $250 will be entered into a drawing for the chance to join Team Bjorn and ski with the Olympic champion. For every $250 raised, a ticket will be entered into the drawing (e.g. raise $750, receive three tickets in the Team Bjorn drawing).

All skiers raising pledges of $250 or more will also be entered into a drawing to receive one of three prizes: • Get-awayatTagalongGolfandResort, Birchwood, Wisconsin • Get-awayatSpiderLakeLodgeinHayward, Wisconsin • KayakfromWinonaCanoe

Online Donations You don’t have to ski to help. Visit wisMS.org and select “Donate to a Birkebeiner Skier.” The prompts will allow you to contribute to a specific participant or to the National MS Society.

You don’t have to ski to helpAll Ski for the Cure Contributions Support Critical MS Research

More Information For more information including fundraising deadlines, please visit wisMS.org or www.birkie.com and select Birkie Skiers for Cures. Or call 1-800-242-3358 or email [email protected].

About The Birkie Celebrating its 36th year, the American Birkebeiner (1-800-USA-BRKE; www.birkie.com), February 19-21, 2009, is the largest and most prestigious cross country ski marathon in North America. Spanning more than 50 kilometers from Cable to Hayward, the Birkie is part of the Worldloppet series of 15 international races. Find out more by emailing [email protected].

While supplies last, pick up your Ski for the Cure button when you make a donation at the National MS Society expo booth at the Birkie on Thursday and Friday, February 19 and 20.

Katie, diagnosed with MS in 2008, will be participating in her third American Birkebeiner.


It takes the collaboration of many, many individuals to move our mission forward. But as the 2008 Year in Review demonstrates, Wisconsin rocks when it comes to finding exciting ways to fundraise. Indeed, in the fiscal year ending September 31, 2008, the Wisconsin Chapter generated just under $5 million. What will 2009 hold? More fun, more friends and more funds to move the MS mission forward.

JANUARY The 25th Annual MS Snowmobile Tour kicked off the year’s major fundraising activities. Held January 31 to February 3, the event attracted 171 riders and generated more than $300,000 for MS research, client services and advocacy. Rick Romenesko was the event’s top fundraiser. During its 25-year history, the MS Snowmobile Tour has generated a remarkable $5.4 million to support the MS Movement.

FEBRUARY The Bell family hosted the 6th Annual Rabbit Hunt on February 2 in Saukville. This unique and popular fundraising program generated $22,621. The Bell family – Don, Eileen, Greg and Deanna – was presented with a Mission Driver Award at the 2008 Annual Meeting. Team Fond du Lac Cyclery held Saturday Spin for MS at the Forest Mall on February 16. The event generated $2,161.

The MarianCollegeMultipleSclerosisBenefit was held February 29. The event included a silent auction, door prizes, food and three live bands.

MARCH KappaBetaGamma’s6thAnnualMSBenefitatSt. Norbert College was held March 1. In addition to a silent auction and raffle, the event also featured a dinner and special guest speakers. The BlarneyBash was held March 15 at American Serb Hall. The event included beer tasting, raffles, a silent auction and karaoke. Event organizers Wendy and Tony Machi plus Pat and Mary Topp received a Mission Driver Award at the 2008 Annual Meeting. Also on March 15 a Wine Tasting event was held at Tripoli Country Club. It included a silent auction to raise funds for MS. On March 27 the 5thAnnualDessertBakeOffforMS was held at the Riverside Ballroom in Green Bay. Area chefs and high schools competed for a variety of awards – while attendees enjoyed sampling desserts.

APRIL Buehler’sBluegrass“Boozefest”forMS was held April 5 at Danny Haskell’s in Muskego. The festivities included live music. Also on April 5, the N.E.W.Beerfest was held at the Wave Bar & Ballroom in Grand Chute. The beer and wine-tasting event attracted more than 1,000. FamilyFunDaytoBenefitMS was held April 6

in Wind Lake. The community event featured such classic games as Red Light/Green Light, Musical Chairs and a Hula Hoop Contest. The Dance for MS was held April 11 in Ixonia. Polkas, country and classic rock were thrown into the mix along with a raffle, silent auction, door prizes and food. On April 12 the MSBenefitSkeetShoot was held at the Sauk Prairie Trap & Skeet Club. The one-day clay target competition featured a charity shoot-off. Healthworks in Pewaukee held an

Open House on April 18 to benefit the MS

Fundraisers Fuel the Mission in 2008Community Events Show the Power of Collaboration

Spin for MS took center stage in Februray at the Forest Mall in Fond du Lac.


Society. Activities included free chair massages, raffles, free muscle tension scans and games for kids. The BreakMSPoolTournamentwas held at the Retreat Bar & Grill in Presque Isle on April 19. The fundraiser also included a raffle and generated $4,495. A community fundraiser titled Put the Screws 2 MS was held in Kenosha on April 20. This annual event was held at Coin’s Sports Bar and included raffles, door prizes, live music and food. The first Walk MS of 2008 was held April 20 in Brown County. More than 1,300 individuals registered and raised just over $145,000. The following weekend, April 27, Walk MS events were held in Cedarburg, Chippewa Valley, Fond du Lac, Sheboygan, Waukesha and Wausau. Together these Walks attracted more than 2,800 individuals who raised more than $380,000 to support people with MS.

MAY Throughout the month of May, Farnsworth Middle School in Sheboygan conducted a Penny War. By the end of May the students had generated $506. Balistreri & Associates Physical Therapy in Kenosha held the 17th Anniversary Swim-a-Thon and Cook-Out on May 1 and raised $2,727. Grillin’ for a Cure was organized by Team Kim and also held on May 1. It took place at BD’s Mongolian Grill in Bayshore Mall in Milwaukee. Guest grillers from Brew City Wrestling participated in the event. On May 3 the KnutzKrewBowlingTournament was held at Lakeview Lanes in Pewaukee. The event also included a silent auction, raffle prizes, cash prizes, food and music. Organizers Ron and Toni Knutson plus Dan and Pam Patterson were presented with a Mission Driver Award at the 2008 Annual Meeting. The Fox Cities, La Crosse, Madison, Milwaukee, Oconomowoc and Racine/Kenosha locations held their Walk MS events on May 4. There were more than 6,200 participants raising more than $960,000. Together the “lucky 13” 2008 Walk

MS events generated nearly $1.6 million. Devlynn Ihlenfeld was the overall top Walk MS fundraiser. 2008 also marked the 20th Anniversary of Walk MS in Wisconsin, with a total of $18 million raised for the Movement. BartenderforCharity was held May 7 at Captain Mike’s in Kenosha, where guest bartenders helped raise funds.

On May 9 a Rummage Sale was held by Marilyn’s Walkers Team to benefit MS. The event took place in Slinger. On May 10 the annual Hopp Dakota MS Triathlon featuring golf, horseshoes and darts was held in River Falls. The event also included food and raffles and raised $21,183. Event organizers Brian and Mary Hopp received a Mission Driver Award at the 2008 Annual Meeting. Cynthia’s Run 4 MS was held May 15 and 16. The course followed the Badger State Trail for 40 miles between Madison and the Illinois state line. Event organizer Cynthia Gray received a Mission Driver Award at the 2008 Annual Meeting. On May 18, Milwaukee-based performers Alissa and Molly Rhode – along with honorary sister Rhonda Rae Busch – presented Adventures of the Rhode Sisters – A Folk Cabaret at the Wales-Genesee Lions Club. The event raised $7,201.

Cynthia Gray, left, and her friend, Ann Davies cross the finish line of Cynthia’s Run 4 MS in May.


The Fox Valley Road & Track Classic VIII was held May 18 in Neenah. The race-filled fundraiser also included breakfast and track time at Road America.

JUNE On June 7 a Massage-a-Thon was held at the Relaxation Station Rejuvenation Center in Edgerton. Massages were provided around-the-clock for this fundraiser. The SecondAnnualBowlingandRaffleFundraiser was held June 14 in Verona. Located at Wildcat Lanes, the tournament also included raffles, food and music. Patsy’s Second Annual Par-Tee Open was held June 14 at Apostle Island Golf Course in Bayfield. The event raised $1,250 and also included a dinner. On June 20 Cindy Zydzik’s MS Rummage Sale was held in Bay View to support her fundraising efforts for the new Challenge Walk MS. The 8th Annual Poker Run and Cruisin’ for a Cure 4 MS was held June 20 and 21. The event took place at the Green Bay Yacht Club and raised $700. On June 28 the 3rd Annual Damn Yankees WateringHoleMSBenefitandDuckRaces was held in Hortonville. The fun-filled day included a silent auction, raffles, food and the popular duck races. The Help Fight Multiple Sclerosis Fundraiser was held June 29 in Port Washington. A variety of vendors provided prizes. JULY On July 11 the popular BirdysScrambleforaCure was held at the Reid Municipal Golf Course in Appleton. The event raised $32,300 for MS. Event organizers Pat and Lisa Haak received a Mission Driver Award at the 2008 Annual Meeting. FightingRamsBratFryandRaffle was held July 12 in Watertown. Greater Milwaukee Open tickets were sold by the Wisconsin Chapter and raised $1,320 for MS. The U.S. Bank Championship was held July 16-20 in Brown Deer. The 19th Annual Croal Open for Multiple Sclerosis was held July 18 at Ironwood Golf Course in Sussex.

The golf outing included door prizes, raffles, dinner and music. Event organizers Dan, Mike and Tim Croal received a Mission Driver Award at the 2008 Annual Meeting. Also on July 19, participants were invited to Keep Up with Curtis at the stationary bike ride held at Curly’s Waterfront in Pewaukee. The Kohler International Challenge fundraiser was also held on July 19 in Elkhart Lake. The first of three Faces of MS Luncheons was held July 22 in Green Bay at the Legends Club Room at Lambeau Field. The event featured speaker Sara White, widow of NFL Hall of Fame defensive lineman Reggie White. Sara was diagnosed with MS in March of 2003. Pedal’rs Inn in Wales hosted its 4th Annual Lawn ConcerttoBenefitMS on July 22. The second Faces of MS Luncheon was held July 23 in at the Midwest Airlines Center in Milwaukee. This was the 8th Annual MS Milwaukee luncheon and featured guest speaker Rain Pryor, daughter of the late comedic icon Richard Pryor. A Texas Hold’em Showdown was held July 24 at Electronic Theatre Controls in Middleton. The final Faces of MS Luncheon was held July 25 at Monona Terrace in Madison and featured guest speaker Rain Pryor. Together the three MS luncheons generated just under $200,000 to support the Promise: 2010 research campaign.

Engage your family, friends, classmates and co-workers to create a 2009 fundraising Community Event. Contact Wisconsin Chapter coordinator Jenny Bremberger at 262-369-4435 or [email protected] to get started. She’ll provide a helpful “how-to” booklet including a copy of the new MS Community Event logo.

It’s Time for You to Join the MovementCreate a 2009 Community Event

On July 26 the Antique&ClassicBoatShow was held in Minocqua to benefit MS. The event raised $6,897. The 2nd Annual Rock for the Ride fundraiser was held July 26 at Liquor Sweets in Milwaukee. The event

included a silent auction and live music from area bands. On July 28 the Rock River Hills Golf Club in Horicon hosted the 2nd Annual Heller & Pagel Families Fighting MS Golf Scramble. The event generated $4,521 and also included a silent auction, raffle baskets and a 50/50 cash raffle.

AUGUST Kicking off August’s fundraising activities, Team Remission from Germantown hosted a BratFry on August 1. Also on August 1, the Road America fundraiser was held at the race track in Elkhart Lake. The 6thAnnualBogeyBearGolfOuting was held August 2 at the Alpine Valley Golf Resort in East Troy. The event raised $8,131 and included a banquet and door prizes.

The 25th Annual Best Dam Bike Ride was held August 2-3. Just over 1,600 cyclists came together to ride from Milwaukee to Madison and together raised more than $1.6 million. During the 25-year history of the event, more than $17 million has been raised to support the MS Movement. The Patty Moehn and Friends Cookbook was published on August 8 and generated $1,255 in sales for MS. On August 9 the “JMO” Jim and Mickey Open: A Drive for MS golf outing was held at the Rivermoor Country Club in Waterford. The event generated $4,812. The RebekahLodge#14WalktoBenefitMSwas held August 12 in Janesville and raised $540. Broadlands Golf Course in North Prairie was the site of the 8th Annual Pat’s Par-Tee featuring the Annual Ladies Scramble. The event was held August 13 and raised $2,121 for MS. The Bar of Green Bay held a Dunk Tank fundraiser for MS on August 15. The event generated $1,066. The Apple Holler MS Orchard Walk on August 23 provided an opportunity to put some BITE into the FIGHT against MS. The event was held at the Apple Holler in Sturtevant and featured a pancake breakfast and sales of the AppleBites MS Recipe Book On August 24 the Auto Paint & Supply Car Show for MS was held at Finn’s Bar & Grill in Wales. In addition to classic cars, the fundraiser featured food, beverages, games, raffles and a DJ.

SEPTEMBER The Team McCormack BratFry was held September 5 at Piggly Wiggly in Hartland. Knutz Krew organized a Golf Outing at Lake Beulah Country Club in Mukwonago. Held September 6, the event included prizes and raffles. The Golf MS Invitational was held September 8. On September 12 the Jack Murphy Memorial Golf Outing raised $1,232. The Delafield Brewhaus was the site of an Oktoberfest fundraiser held September 13.

Engage your family, friends, classmates and co-workers to create a 2009 fundraising Community Event. Contact Wisconsin Chapter coordinator Jenny Bremberger at 262-369-4435 or [email protected] to get started. She’ll provide a helpful “how-to” booklet including a copy of the new MS Community Event logo.

It’s Time for You to Join the MovementCreate a 2009 Community Event


Also on September 13, the Shifting Gears on MS Team held a BowlingTournament at Old Settlers Bowling Center in Union Grove. The 3rd Annual Ken Fest was held September 14 at Tomken’s Bar & Grill in Milwaukee and raised $2,645. A MaryKayBack-to-SchoolSaleforMS was held September 15. Also on September 15 an EBayOnlineAuction was held to benefit MS.

OCTOBER A Tupperware Party was held October 6 in Janesville to benefit the MS Society. Uncork the Cure was held October 10 at the Westmoor Country Club in Brookfield. The event generated $20,661 and included wine tasting plus live- and silent auctions. On October 25 the YNOT II in Milwaukee hosted a community fundraiser to benefit MS. The event featured live music, give-away items and a bartender auction. Wisconsin’s first Challenge Walk MS was held October 17, 18 and 19 in beautiful Door County. The event attracted 84 walkers and six “super crew” and raised more than $225,000 – beating the goal set for the inaugural event. The walkers covered 50 miles in three days. The top fundraiser was Jeane Kropp.

On October 31 and November 1 an outdoor Haunted House fundraiser for MS was held at Lynn Ann’s Campground in Germain.

NOVEMBER A Kid’sBowl-a-ThonforMSResearch was held November 1 at Prairie Lanes in Markesan. The event included dinner and a silent auction. Also on November 1 a HalloweenPartytoBenefitthe Fight Against MS was held in Deerbrook at Quinn’s Bar & Hall. The Halloween costume party also featured raffles, food and music. BattlefortheCharitiesatClovisGrovePark in Menasha was held November 8. The flag football competition included employees and customers of WOW Logistics.

DECEMBER Throughout December Scan Interiors in Brookfield ran an in-store promotion to generate donations for the Wisconsin Chapter. Shoppers who purchased a recliner received $200 off their purchase when they made a $50 donation to the Wisconsin Chapter. The MS Christmas House at Pedal’rs Inn Bed & Breakfast opened in Wales on December 13. The event featured a visit and pictures with Santa, cookie decorating and a holiday jazz performance by the Kettle Moraine Lasers Jazz Ensemble.

On December 16 a White Elephant Auction was held at Kelly’s Bar in Randolph. The fundraiser was organized by the Columbus/Fall River Sno-Blazers Team.

*The Community Events included on this list represent those held in 2008 and registered with the Wisconsin Chapter. If you currently host a fundraiser that is not included on this list – or if you plan to produce an event in 2009 to benefit the Wisconsin Chapter – please contact Jennifer Bremberger at 262-369-4435 or 800-242-3358 or email [email protected].


Walkers, family and friends celebrate the completion of the 50-mile Challenge Walk MS.


Great Strides Moved MS Research Forward During 2008

The National Multiple Sclerosis Society (NMSS) invested nearly $50 million in 2008 to support more than 440 new and ongoing multiple sclerosis research projects as part of its international effort to prevent, treat and cure MS. In addition, more than 130 clinical trials are underway around the world – with more than 12 final-phase trials of new therapies including some taken by mouth. Additional 2008 research highlights include:

• TheSociety’sPromise: 2010 research teams focusing on Nervous System Repair and Protection – including the University of Wisconsin-Madison team lead by Dr. Ian Duncan – published or presented more than 60 reports in 2008. The teams convened in January 2009 to further collaborations toward the goal of testing repair and protection in MS.

• Forthefirsttime,$5 million has been awarded for MS research within the Congressionally Directed Medical Research Programs, thanks in large part to efforts by MS activists across the country. This line-item allocation for investigator-initiated research projects is funded through the Department of Defense. • ThenetworkofPediatric Centers of Excellence established by the NMSS identified a data coordinating center that will expedite efforts to

investigate MS in children. The data center establishes the infrastructure necessary for larger, more comprehensive studies.

• Morethan5,000clinicians,clinicalresearchers and basic scientists from around the world convened in Montreal, Quebec in September to share findings at the firstWorldCongresson Treatment and Research in Multiple Sclerosis. Research on nervous system repair, pediatric MS, new therapies and much more was reported in nearly 1,000 presentations.

• ThefirstNMSSTykeson Fellows Conference was held in November during the National Conference in Chicago to spur new ideas and collaborations among young scientists and physicians across North America. The conference offered insights into ways individuals can pursue successful careers as MS researchers.

• Fast Forward Announces $1 Million Agreement. Fast Forward’s first research award was announced in December. Apitope will receive $1 million to conduct a proof-of principle trial on a new treatment, ATX-MS-1467, intended to target and redirect immune response in MS. In January

Apitope announced that it entered into a licensing agreement with Merck Serono. The Apitope/Merck Serono partnership assures that funding will be in place to take ATX- MS-1467 to the next research phase if the trial yields positive results. Apitope will also be able to expand efforts to discover additional therapeutic peptides which could be used for people with MS.

The complete overview of 2008 research highlights is available at nationalmssociety.org, click on “Research.”


AuroraBaycare2845 Greenbrier RoadGreen Bay, Wisconsin 54311Phone: 877-BAYCAREWeb site: aurorabaycare.comStaff: Merle Teetzen, M.D.

MarshfieldClinicMSCenter1000 North Oak StreetMarshfield, Wisconsin 54449Phone: 715-387-5350Web site: marshfieldclinic.orgStaff: Loren Rolak, M.D.

Medical College of Wisconsin MS Clinic at Froedtert Memorial Lutheran Hospital9200 West Wisconsin AvenueMilwaukee, Wisconsin 53226Phone: 414-805-5203Web site: mcw.eduStaff: Douglas Woo, M.D.

St. Luke’s Medical CenterCenter for Neurological Disorders2801 West Kinickinnic River ParkwaySuite 630Milwaukee, Wisconsin 53215Phone: 414-385-1801Web site: aurorahealthcare.orgStaff: Bhupendra Khatri, M.D.

University of Wisconsin Hospital and Clinics Neurology/MSClinic2B/2425600 Highland AvenueMadison, Wisconsin 53792Phone: 608-262-0546Web site: uwhc.comStaff: John Fleming, M.D.

ProHealth Care Neuroscience CenterWaukesha Memorial Hospital725 American AvenueWaukesha, Wisconsin 53188Phone: 262-542-9503 Web site: waukeshamemorial.orgStaff: Stanya Smith, M.D.

The National Multiple Sclerosis Society - Wisconsin Chapter currently has six formal clinical affiliations. The affiliations represent a collaborative approach to improving the quality of health care available for people with MS. Importantly, clinical affiliations enhance the ability of the Chapter and the facility to provide more comprehensive services in the areas of education, treatments, clinical trials, healthcare and community resources.

Clinical Advisory Committee Meets in Hartland

Wisconsin Chapter Clinical Affiliations

The Chapter’s Clinical Advisory Committee (CAC) is composed of distinguished neurologists and medical professionals with an expertise in multiple sclerosis. The committee meets to discuss MS treatments, research and issues impacting client access and quality. CAC members also serve as keynote speakers at client programs and are liaisons to the medical community. Seated clockwise from left are: Stanya Smith, M.D., ProHealth Care Neuroscience Center at Waukesha Memorial Hospital ; Bhupendra Khatri, M.D., Center for Neurological Disorders at St. Luke’s Medical Center; John Fleming, M.D., University of Wisconsin Hospital and Clinics; Eric Maas, M.D., Advanced Healthcare; and Loran Rolak, M.D., Marshfield Clinic MS Center. Other CAC members are Merle Teetzen, M.D., Aurora Baycare Medical Center ; and Douglas Woo, M.D., Medical College of Wisconsin MS Clinic at Froedtert Memorial Lutheran Hospital.


At the December meeting of the Board of Trustees of the Wisconsin Chapter, former Vice Chair Alyson K. Zierdt officially began a three-year term as Chair of the Board of Trustees. She succeeds Martin McLaughlin, who was the Chair for three years. “I look forward to leading the Board and working with Chapter President Colleen Kalt as we do what it takes to keep advancing the mission of ending MS during these challenging economic conditions,” said Zierdt.

Zierdt, an attorney, is retired and “Of Counsel” to the firm of Davis & Kuelthau, where she practiced for the last 8 of her 27 year career in its Oshkosh office. She practiced in the areas of management-side public and

private sector employment law and employment/civil litigation. She is a native of Milwaukee and a graduate of UW-Milwaukee and Marquette University Law School. Zierdt’s husband, Bill, is also retired, honored as a Professor Emeritus by Marian

University. The couple resides in Fond du Lac. Zierdt was diagnosed with MS in April 2003. She joined the Wisconsin Chapter Board in 2005. In addition

to her duties as Chair of the Board of Trustees, Zierdt also chairs the Executive Committee and currently serves on the Governance and Government Relations Committees.

Alyson K. Zierdt Named Board of Trustees Chair

Alyson Zierdt joined the board in 2005

I look forward to leading the Board and working with Chapter President Colleen Kalt as we do what it takes to keep advancing the mission of ending MS during these challenging economic conditions. - Alyson K. Zierdt

Workplace giving programs provide an easy way to support the MS Movement. Simply sign up for your company’s workplace giving campaign and use an automatic payroll deduction to make regular gifts to the Wisconsin Chapter. All gifts made to the Wisconsin Chapter through workplace giving are tax deductible.

Community Health Charities Wisconsin The Wisconsin Chapter proudly partners with Community Health Charities Wisconsin, the largest

workplace giving program devoted solely to health issues.

Corporate Employee Gift Programs Your company may have its own Corporate Employee Gift Program. Ask today.

Matching Gifts Be sure to ask your employer if they have a matching gift fund and request that they match your gift to the Wisconsin Chapter.

Combined Federal Campaign of Greater WisconsinPublic sector and government employees can support the Wisconsin Chapter through the Combined Federal Campaign of Greater Wisconsin by selecting the designated code number: 36427. Be sure to look for the National Multiple Sclerosis Society-Wisconsin Chapter on the designation lists for your state, city, county or school employee giving campaigns.

Workplace Giving Tips and Reminders

MOVE OTHERS.Tell Your Story.


The Wisconsin Chapter extends its sincere gratitude to the following contributors for a total of $43,600 in foundation, corporation and program grants awarded October 1 through December 31, 2008.

• $20,000fromtheForest County Potawatomi Community Foundation for the MS Snowmobile Tour, Walk MS and MS Luncheon.

• $1,000fromBiogenIdec for “MS Doesn’t Mean Losing Your Mind” presentation in Wausau.

• $1,600fromtheDelafieldWal-Mart to support the Holiday Giving program.

• $10,000fromEMD-Serono, Inc. for support of Bike MS.

• $1,000fromtheOshkosh Wal-Mart to support the Holiday Giving program.

• $10,000fromEMD-Serono, Inc. for statewide support of Walk MS.

Grant Support Powers Programs, Events and More

Put your time, talent and passion to work for the Wisconsin Chapter. Volunteers are critical to the success of our special events, and they also play an important role in maintaining the efficiency of our administrative operations. Find out how you can make a volunteer connection. Simply contact Volunteer Coordinator Jenny Bremberger at 262-369-4435 or email [email protected].

Sponsoring Wisconsin Chapter events can positively impact your business. Consider this:

• 85percentofconsumerssaytheyhaveamore positive image of a product or company when it supports a cause they care about.

• 70percentarelikelyorverylikelytoswitch

from one brand to another if the second brand is associated with a good cause (that figure jumps to 88 percent for 18- to 24-year-olds). For information about event sponsorship, please contact Laurie Schill at 920-423-3403 or email [email protected].(Source: Cone Cause Evolution Study 2008)

Volunteer and Join the Wisconsin Movement

Bike, Walk, Challenge Walk and Luncheons Among OpportunitiesBuild Your Business with Event Sponsorship

The Bodeau family welcomed participants to the Chippewa Valley Walk MS on April 27. Clockwise from left are Bob, Kim, Don and Lois.

From left, Community Involvement Coordinator Victoria Doudna and Store Manager Joyce Greiber of the Delafield Wal-Mart present Jeremy Otte and Amy Reineke of the Wisconsin Chapter with a check for the Holiday Giving Program.


Thanks to donations provided by long-time supporter Diversified Insurance Services, Inc., new sponsor Wal-Mart and the staff of the Wisconsin Chapter; last year the Holiday Giving program raised $10,150. These dollars were utilized to present gift cards to 203 children of parents living with MS. The number of recipients was up nearly 19 percent compared to 2007. The Wisconsin Chapter’s Holiday Giving program offers support to MS families so that they may purchase gifts for their children; secure necessities such as blankets, coats and clothing; or buy food for a holiday meal. Indeed, while many families struggle to make ends meet during the holidays, the impact on those affected by MS is particularly severe. Studies show that for parents living with MS, the health-related costs average $57,000 per year. Diversified Insurance Services, Inc. provided a gift of $7,000, while Wal-Mart stores located in

Delafield and Oshkosh contributed a total of $2,600. Additionally, instead of exchanging workplace gifts, the staff of the Wisconsin Chapter elected to make contributions to the Holiday Giving program and generated $685.

Requests Increase 19 Percent in 2008 Holiday Giving Program Brings Cheer to More Than 200

December 2008

Dear Generous Holiday Giving Donors: As I was mindlessly going through the bills that arrived in today’s mail, I discovered an envelope from the Wisconsin Chapter of the National Ms Society. Imagine my shrieks and jumps for joy when I saw we were recipients of the Holiday Giving program!!! I was crying out so loudly that my husband and son came running into the room. My three-year-old son hugged me and said, “I’m so excited Mommy! I love the MS Society!” I do, too, son. I do, too! This gift gives us hope, excitement, cheer and a gift for Christmas for our son. Words simply cannot

possibly tell you how much we need this, appreciate this and thank you!!! Donors to the MS Society, activists, workers and founders of the MS Society have given our life new

meaning. We wish Happy Holidays to you and your

families. Please remember that your act of generosity and kindness has gone so far – farther than you can imagine. Thank you from the bottom of our hearts.

Sincerely,

A Wisconsin Family

Family Expresses Appreciation for Son’s Christmas Gift

I’m so excited Mommy! I love the MS Society! - Holiday Giving recipient


More than half of all hearings result in the claimant receiving benefits.

A hearing, which seldom takes more than an hour or so, is the crucial step of the Social Security disability/ SSI appeal process where a claimant who is denied initially has the best chance of winning. More than half of all hearings result in the claimant receiving benefits.

Who participates in the hearing? Are the proceedings private? Disability hearings are private. The only people present are the administrative law judge (ALJ), the ALJ’s assistant who operates recording equipment, the claimant, claimant’s representative, the claimant’s witnesses and often a vocational or medical expert called by the judge. Anyone else present in the hearing room must have the claimant’s permission to be there.

Is the hearing held in a courtroom? The hearing is held in a small conference room. Most hearing rooms have a smaller version of a courtroom bench (similar to those on TV) behind which the ALJ sits. The claimant, representative and witnesses sit at a conference table. Sometimes, if the claimant agrees, the hearing is held by video.

How formal are the proceedings? Some ALJs wear judicial robes. Others do not. There may be an American flag and a seal of the Social Security Administration on the wall but other courtroom trappings such as bailiffs, gavels and court reporters are usually absent. Testimony is taken under oath, but the hearing, which is designed to be non-threatening, is informal. Strict rules of evidence do not apply.

What kinds of questions should I anticipate? What types of evidence can I provide? Medical records are accepted as evidence. The judge or the claimant’s representative will ask the claimant about his or her education, training, work experience and the symptoms and limitations caused by the claimant’s impairments. The claimant may be

asked to describe daily activities. There may be a few questions about medical history, but ALJs generally rely on medical records for history. The claimant may present witnesses.

If the judge calls witnesses, what do they testify about? A medical expert may be called by the ALJ to testify about whether a claimant’s impairment meets or equals the medical disability requirements set forth in Social Security regulations. The medical expert may also give an opinion about the claimant’s limitations. A vocational expert may testify about the requirements of the claimant’s past jobs and, in answer to hypothetical questions, whether the claimant can still do a past job and whether other jobs within the claimant’s current capacity exist in significant numbers in the economy. The claimant’s representative (or the claimant, if unrepresented) has the right to cross-examine the experts.

Is there a closing argument? The representative may be allowed to make a closing argument explaining why the claimant is disabled under Social Security regulations.

Tom Bush is the preeminent expert on SSDI in Southeastern Wisconsin. A chapter volunteer for 19 years, Tom was inducted into the 2008 National MS Society’s Volunteer Hall of Fame.

Tips for the Social Security Disability or SSI HearingBy Attorney Thomas E. Bush


Sylvia Lawry founded the National Multiple Sclerosis Society in 1946, hoping to find a cure for her brother Bernard’s Multiple Sclerosis. While the cure eluded them, Sylvia Lawry’s legacy is a national movement that aggressively funds research, advocates for change and provides programs and services that help all Americans affected by MS move their lives forward. The Lawry Circle is comprised of people who know that the quest for a world free of MS must continue. It honors donors who have informed the Society of their intention to help create a better future for the MS community through their will, trust or estate plan. The Lawry Circle recognizes and honors people who have

demonstrated a deep commitment to improving the lives of those with MS by establishing a deferred gift for the National MS Society. Deferred gifts include: • bequestintentionsinawill • charitablegiftannuities • charitabletrusts • designatingtheSocietyasbeneficiaryofa retirement account • designatingtheSocietyasbeneficiaryofalife insurance policy, or the donation of a policy. If you name the National MS Society in your estate plan, please contact us so that we can recognize your dedication. Should you choose to remain anonymous, your gift will be kept completely confidential. For more information please contact Denise Jendusa, vice president of development and programs - Wisconsin Chapter at 262-369-7166, 800-242-3358 or email [email protected].

Join the Lawry CircleCreate a Better Future for the MS Community

Sylvia Lawry started the Society to find a cure for her brother Bernard’s MS.

Invite your family and friends to join us as we visit legislators at the Wisconsin State Capitol in Madison and advocate for a world free of MS. The program begins at 10 a.m. at the Madison Concourse Hotel. Complimentary motor coach transportation is available from Milwaukee, Brookfield, Plover, Oshkosh and Fond du Lac. Contact the chapter at 800.242.3358 regarding transportation from Northern Wisconsin.

Never doubt that a small group of thoughtful, concerned citizens can change the world. Indeed, it is the only thing that ever has. - Margaret Mead

LEGISLATIVE AFFAIRS DAYThursday, March 5, 2009

10 a.m. – 3:30 p.m.Madison

Call 800.242.3358 to registerRSVP deadline is February 16

The need that I felt to succeed was tremendous. - Sylvia Lawry, Society Founder


• KnittingGroupContributestoFriendlyVisitor Holiday Program. Over a dozen Wisconsin Chapter volunteers brought smiles to the faces of 80 clients residing in 27 long-term care facilities as part of our Friendly Visitor Holiday Program. Volunteers delivered holiday gift bags featuring a variety of goodies – some with handmade blankets from a Sussex knitting group.

• In-KindContributionsWelcomed. Every budget-relieving contribution made to the Wisconsin Chapter provides increased opportunities to channel funds into MS research and client programming. Retail gift cards allow the greatest flexibility to purchase items that will have the most impact.

• TeamsRule. Of the total funds generated by Wisconsin Chapter special events (Bike MS, Walk MS and Challenge Walk MS), 71 percent is attributed to teams.

• WebSiteWillSportNewDesign.The Wisconsin Chapter’s web site is getting a make-over. The new design is expected to go live in the second quarter and is part of a national roll out.

• SignUpforthePick‘nSaveWeCareProgram. A percentage of your grocery purchases will be donated to the Wisconsin Chapter by Roundy’s

when you join the We Care program at any of the company’s participating Pick ‘n Save, Copps or Rainbow stores. The Wisconsin Chapter number is 532300.

• CheckOutthe Lending Library. The Wisconsin Chapter’s lending library features a variety of books, VHS and audio tapes. For more information please contact the Chapter at 1-800-242-3358 or email [email protected] for a list of available titles.

• AreYouaHiltonHonorsMember?If so, you can donate your points to the NMSS and do something about MS today. Points can be donated in increments of 10,000 (10,000 points equals a $25 donation). One hundred percent of your donation goes directly to the NMSS. To donate, please email [email protected]. Include the number of points you’d like to redeem; your name, address and Hilton Honors account number and Request Reward Code GBNMS.

• WellCityMilwaukeeWebSiteFeaturesMS Events. In an effort to bring the MS message to even more individuals, the Wisconsin Chapter is posting information about its events and programs on the Well City Milwaukee web site, wellcitymilwaukee.org. More than 80,000 Milwaukee-area employees are participating in the Well City Milwaukee initiative.

• MakeGoodSearchYourSearchEngine. Raising money to support the Wisconsin Chapter’s programs and services

Wisconsin Chapter News and NotesThis is How We Move It

The Patti’s Pedalers team contributed to the success of Bike MS. Teams generate 71 percent of all Wisconsin Chapter special event revenue.


is just a mouse click away. Use GoodSearch.com like any other search engine (they’ve partnered with Yahoo to ensure the best results). Each time you do, a contribution will be made to the Wisconsin Chapter. Get started today: Go to goodsearch.com and type NMSS – Wisconsin Chapter into the “I’m Supporting” box.

• Stock:ABeneficialWaytoGive.Gifts of stock, bonds or other securities can be beneficial to the Wisconsin Chapter’s mission and your pocketbook.

For instance, if you want to dispose of stock that has depreciated in value, making a gift to the Wisconsin Chapter is a wise choice. To do so, you sell the depreciated stock (held for at least one year), and donate the cash proceeds to the Chapter. By doing so, you may claim a capital loss on your tax return for the difference between what you paid for the stock and the selling price. You will also receive a charitable deduction for the full amount of your donation.

• LearnAboutMS Online with Webcasts and Podcasts. You can tap into a wealth of educational programs and resources at nationalmssociety.org.

To access webcasts and podcasts simply click Multimedia Library.

• CircleofHopeSelf-HelpGroups.Wisconsin has more than 50 self-help groups and new groups sprout up regularly. For a complete listing including meeting dates, please visit wisMS.org or call 1-800-242-3358. Also remember, the Information Resource Center is available 7 a.m. to 6:30 p.m. CST, Monday through Friday at 1-800-242-3358. Infoline 24-hour counseling can be reached by dialing 211.

• YouFirst. Here’s a fundraising fact to consider: Before you ask others to join the Movement, show you are serious by pledging your personal support with an individual donation. It is easier to ask someone to do something you have already done yourself, and your personal gift will show how passionate you are about moving together toward a world free of MS.

MS C

ircle of HOPE

Self Help Group

Families and friends flocked to the lakefront for the Milwaukee Walk MS on May 4.


2009 Calendar of Events

American Birkebeiner, Cable

February 19-21

Milwaukee 20s/30s Gathering, Club Paragon, Greenfield, 6 – 9:30 p.m.

February 22

MS Exercise Class, UW-Madison Sports Medicine Fitness Center, Madison

February 23, March 1, 8, 15, 22, 29

Moving Forward: Newly Diagnosed Series, UW Health West Clinic, Madison

March 16, 23, 30 & April 6

20s/30s Celebrate Life! Blissflow Yoga Studio, Madison

April 4

MS Awareness Week

March 2-8Legislative Affairs Day, Madison

March 5

April 19Walk MS: Brown County

April 26Walk MS: Chippewa ValleyWalk MS: Fond du Lac CountyWalk MS: Fox CitiesWalk MS: La Crosse – Seven RiversWalk MS: Racine/KenoshaWalk MS: Sheboygan CountyWalk MS: Waukesha County

May 3Walk MS: MadisonWalk MS: Summerfest GroundsWalk MS: North Central Wisconsin (Wausau)

April 19, 26 & May 3


MS Family Day at the Milwaukee County Zoo

August 29

Faces of MS Luncheon, Pfister Hotel, Milwaukee

Faces of MS Luncheon, Madison Marriott West, Middleton

June 17

June 18

Bike MS: Best Dam Bike RidePewaukee to Whitewater to Madison

August 1-2

Challenge Walk MS: Door County

September 18-20

2009 Wisconsin MS Summit, Kalahari Resort, Wisconsin Dells

May 29-31

Don’t miss Wisconsin ’s largest gathering of individuals who want to do something now about multiple sclerosis. The event combines educational sessions, keynote speakers and

networking opportunities in a family-friendly social setting.

Discounted room rates available through April 29Call 1-800-242-3358

$99 Friday, $129 Saturday

Standard four-person room includes four water park passes

wisMS.org • Toll Free 1 800 242 3358 • 262 369 4400

Non-Profit OrganizationU.S. Postage

Milwaukee, WI 53202Permit No. 2868

PAID1120 James Drive Suite A Hartland, WI 53029

Looking for a fun and easy way to generate revenue and awareness for the National Multiple Sclerosis Society (NMSS) or your Walk or Bike Team? The Wisconsin Chapter has the solution: Plan a Pin-Up Program.

Pin-Ups are the attention-getting displays you often see featured on the walls or windows of area retailers. They call attention to a particular cause – and often feature the name of the person who purchased the pin-up. They’re inexpensive – usually just a $1 donation or more – but can have

a big impact when hundreds are displayed in a single location. In fact, Pin-Up Programs have raised as much as $30,000 for the Wisconsin Chapter. What’s more, for companies executing these programs, Pin-Up Programs have been shown to help strengthen customer loyalty. “In the two years I’ve been with Open Pantry, I always look forward to MS Pin-Up season,” said Dawn Hrischuk, executive assistant. “All 26 stores participate.

It always gets employees motivated and customers like to donate to the cause.” In addition to fundraising for a specific MS event, Pin-Up Programs can also be customized for a company and executed at any time of the year. They’re perfect for MS Awareness Week March 2-8. Culver’s locations in Oshkosh, Fond du Lac and Sheboygan are conducting Pin-Up Programs in March, with a special focus on MS Awareness Week. You can start your Pin-Up Program by contacting Shannon at the Wisconsin Chapter: 262-369-4407 or [email protected]. In short order you’ll receive all the materials necessary to execute a successful Pin-Up Program fundraiser.

Looking for a Fun Way to Raise Funds for MS?It’s Time to Plan a Pin-Up Program

Culver’s locations in Oshkosh, Fond du Lac and Sheboygan are conducting Pin-Up Programs in March, with a special focus on MS Awareness Week.

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Bike MS Pin-Up

Walk MS Pin-Up

ms connection - february issue 2009

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