national society ohio buckeye chapter make every connection … · 2019. 1. 8. · the new ohio...

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NationalMultiple SclerosisSocietyOhio BuckeyeChapter

makeeveryconnectioncount

AnnuAl RepoRt 2013

Free oF MSCreate a World Free oF MS

2 ohio BuCkeye Chapter | NatioNal Multiple SCleroSiS SoCiety

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional and contact the National MS Society’s Ohio Buckeye Chapter at MSohiobuckeye.org or 1-800-344-4867 to learn about ways to help manage MS and about current research that may one day reveal a cure.

About the NAtioNAl Multiple ScleroSiS Society

MS stops people from moving. The National MS Society exists to make sure it doesn’t. We address the challenges of each person affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, collaborating with MS organizations around the world, and providing programs and services designed to help people with MS and their families move their lives forward. We are people who want to do something about MS now.

About Multiple ScleroSiS

Multiple sclerosis, an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain, and between the brain and the body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted but advances in research and treatment are moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with two to three more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

mission statementWe mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

expandexpaNd the iMpaCt oF the MS MoveMeNt

Dear Friends and Supporters,

During 2013 we stayed true to our mission to mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by multiple sclerosis. We provided care and support to more than 11,100 people living with MS through a variety of programs and services that promoted health, knowledge and independence.We were able to enhance our connections and communications

with those who want to create a world free of MS. With the help of our donors, fundraisers, sponsors and volunteers, we were able to host Walk MS at 12 sites and to host two Bike MS events, including the inaugural Bike MS Central Ohio Challenge. Those efforts helped to support the investment of $6.3 million for 17 local research projects.We move into 2014 with great anticipation. The Northwestern Ohio and Ohio Buckeye Chapters

of the National MS Society joined together in October 2013. The new Ohio Buckeye Chapter will now serve more than 14,000 individuals with MS and their families living in 64 Ohio counties. By consolidating the administrative functions and combining the talents of board members, staff

and volunteers, we will streamline operations and increase fundraising effectiveness while expanding programs, services and advocacy for those affected by MS. We will have offices in three locations across Ohio: Cleveland, Columbus and Toledo. We look forward to working together to network and reenergize ourselves as we try to increase

our individual and collective impact on MS. The changes are bound to bring new possibilities and opportunities for growth. Our goal is to connect people and resources to raise awareness about MS and to raise funds to help

find the cause and a cure for the disease. Help us make every connection count in 2014 by becoming a donor, event participant, sponsor or volunteer. We value your contribution and support.

Sincerely,

Janet L. Kramer Chapter President

aNNual report 2013 3

Roy SmootChair, Board of Trustees

resultsacHieve breakTHrougH reSulTS

research highlights• $250 million goal through the NOW: MS

Research Revolution campaign• $48 million spent to support international MS

research efforts • $6.3 million in the Ohio Buckeye Chapter for

17 research projects• 380 new research projects supported• 129 clinical trials conducted around the world

Fundraising highlights • $1.6 million from Bike MS • $1 million from Walk MS • $302,500 from Dinner of Champions • $190,500 in grant funding• $150,500 through bequests and

legacies• $69,300 from Do it Yourself events • $44,800 through the MS Walleye Fishing Tournament

presented by Shamrock companies, inc.• $38,800 in tribute and memorial gifts• $23,700 from Locavore • $21,700 from Run MS

Program highlights• 2,790 information and referral

services• 685 self-help group attendees• 611 personal care/chore services• 514 financial assistance recipients • 502 holiday bag deliveries• 379 equipment loans and medical

supplies• 269 transportation services• 206 wellness participants

More than 115 riders participated in the inaugural Bike MS Central Ohio Challenge including the Cyclotrons, the top fundraising team from Cardinal Health.


Brian Malion’s bathroom was renovated to make it accessible through the What a Difference a Day Makes Program and service of the Greater Cleveland Chapter of the National Association of the Remodeling Industry.

Dr. Matthew Plow from Case Western Reserve University was awarded $589,585 to study the effects of physical activity and fatigue management in order to improve the daily lives of MS patients.

STop DiSeaSe progreSSion, reSTore FuncTion anD enD MS Forever

research cycleStaff Neurologist Robert Fox, MD, from the

Mellen Center at the Cleveland Clinic, was chosen in 2013 to lead an $11.3 million study funded by the national institutes of Health to conduct a clinical trial of the oral drug ibudilast for progressive MS. The National MS Society granted an additional $592,150 to test whether

ibudilast can protect the nervous system and slow or stop progressive MS.During the course of a previous study, Dr. Fox met

Teresa Smith who was diagnosed with MS in 1999. Their connection became stronger after Teresa decided to ride in the Bike MS Pedal to the Point Ride. She joined Dr. Fox, captain of the Team Mellen Bike MS team, and other riders in the two-day fundraising event.Dr. Fox has been a Bike MS participant for 14 years and

Teresa has been riding with Team Mellen for seven years. Together, they are part of one of the largest teams for the number of riders and the amount of funds raised to support programs, services and MS research.

Stop ReStoRe end


“I CONNECT with MS patients and I’ve come to appreciate the need for therapies to treat progressive MS. My goal is not only to help test treatments for progressive MS, but also to develop the tools to make the testing process more effective and efficient.”

~ Robert Fox, MD

research hall oF FameNational MS Society president and Ceo Cyndi

Zagieboylo presented Cleveland Clinic’s Bruce

trapp, phd, with the volunteer hall of Fame

award for his research work to understand brain

tissue destruction and myelin repair.

SupportselF-helP grouP Two Women Form One Special BondPam Bennett decided to start facilitating a self-help

group after she was diagnosed with MS in 1980. She leads the Parma Posse of Possibilities group that meets monthly at the ridgewood YMca.During 2013, grace lovano attended a meeting

for the first time. grace had struggled with her MS diagnosis for several years but overcame her fears after she stepped through the meeting room door.grace was inspired by everyone she met. She made

a special connection with Pam who helped her learn to live life to the fullest despite the daily struggles of living with MS. as a result, grace went with pam to a long-term care

facility to deliver holiday bags and to visit people with MS. She also joined pam as an office volunteer. grace has continued to attend the group meetings

since it has made such a difference in her life. She is thankful for Pam’s guidance and for helping her with her MS journey.

thirty-eight children, in grades

2-9 who had an MS diagnosis or

a parent living with MS, were able

to enjoy a variety of activities at the

second annual Camp Connect.

“I CONNECT because I want to help others living with MS to live life to the fullest.”

~ Pam Bennett


Provide SuPPort through ProgramS and ServiceS

camP connectThirty-Eight Children Experience Camp

Bike ms Pedal to the Point Twenty-Nine Bike Rides and CountingWhat started out with one Bike MS ride in Alaska turned into

an obsession for Koreen Burrow and David Fox. The couple rode in the bike MS pedal to the point ride for the first time and they finished 12 bike MS events in 2013. They have completed a total of 29 Bike MS rides since they set a personal goal of riding in Bike MS in every state.Koreen was diagnosed with MS in 1991 and their cycling

adventure began in 2007 after she felt a need to connect to other people living with MS. Koreen wanted to challenge herself while raising awareness about MS and raising funds for MS research. riding as a team, David & koreen bike the uS 4 MS, they

have raised more than $120,000 for the National MS Society. David has also made his commitment permanent by getting a tattoo for every ride. He put the bike MS logo on his calf and after every event, he adds a small tattoo representative of each state where they ride. David planned to add brutus from The ohio State university to commemorate the Pedal to the Point Ride.


“I CONNECT with others through Bike MS because together we ride strong toward a cure.” ~ Koreen Burrow

Nolan yoder has participated in the annual Walk MS

event for 24 years. he walks in memory of his wife and

oldest daughter who died from complications

of MS.

walk msTwenty-Four Year Walk Commitment

ResouRcesdeliver reSourceS to enhance care for PeoPle with mS

financial positionNational Multiple Sclerosis Society - Ohio Buckeye ChapterStatement of financial PoSition

as of September 30, 2013 and 2012

2013 2012ASSETSCurrent Assets: Cash and cash equivalents $1,268,215 $1,140,533 investments - at market plus accrued interest 664,311 706,286 Contributions receivable 131,478 185,995 Contributions receivable from National 958 - Receivables from other chapters 14,624 12,200 Prepaid expenses and other assets 71,224 53,178 Total Current Assets 2,150,810 2,098,192

Noncurrent Assets: Restricted investments 105,000 105,000 Rent and equipment security deposits 2,266 2,266 Furniture and equipment at cost, net of accumulated depreciation $115,234 (2013) and $105,245 (2012) 33,449 41,718 Total Noncurrent Assets 140,715 148,984

Total Assets $2,291,525 $2,247,176

LIABILITIES AND NET ASSETSCurrent Liabilities: Due to National Multiple Sclerosis Society: Remittance due to National $ – $ – Other payables to National 44,462 36,169 Accounts payable and accrued expenses 208,613 233,859 Deferred income 53,810 21,615 Total Liabilities 306,885 291,643

NET ASSETS: unrestricted 1,442,403 1,399,494 Temporarily restricted 437,237 451,039 Permanently restricted 105,000 105,000 Total net assets 1,984,640 1,955,533 Total Liabilities and Net Assets $2,291,525 $2,247,176


activitiesNational Multiple Sclerosis Society - Ohio Buckeye Chapter

Statement of activitieSFor the Year ended September 30, 2013

2013 Temporarily Permanently 2012 Unrestricted Restricted Restricted Total TotalSUPPORT AND REVENUE:Received Directly: Special events - includes in-kind donations of $80,674 (2013) and $36,610 (2012) $3,157,318 $3,157,318 $3,323,486 less benefit to donor costs (377,408) (377,408) (397,198) 2,779,910 2,779,910 2,926,288 Contributions - includes in-kind donations of $11,448 (2013) and $40,225 (2012) 503,120 18,097 521,217 689,239 Legacies 150,514 150,514 461,444 Received at National (other than legacies) 72,198 Total Received Directly 3,433,544 18,097 3,451,641 4,149,169

received indirectly: Federated Fundraising Organizations 93,342 16,568 109,910 144,708 Total received indirectly 93,342 16,568 109,910 144,708 Total Public Support 3,526,886 34,665 3,561,551 4,293,877

Other Revenue: investment income 61,918 1,207 63,125 73,196 Service program fees 3,745 3,745 3,585 Miscellaneous income 10,614 10,614 5,061 Total Other Revenue 76,277 1,207 77,484 81,842

Net Assets Released from Restrictions 49,674 (49,674) Total Support and Revenue 3,652,837 (13,802) 3,639,035 4,375,719

EXPENSES: Program services: Research 704,282 704,282 737,815 Public Support to Society Activities 553,365 553,365 501,141 Client programs 956,265 956,265 1,158,899 Community programs 119,344 119,344 126,124 Professional education and training 13,265 13,265 13,847 Public education 605,746 605,746 649,188 Total Program Services 2,952,267 2,952,267 3,187,014

Supporting Services: Fundraising 545,611 545,611 527,571 Management and general 112,050 112,050 153,694 Total Supporting Services: 657,661 657,661 681,265 Total expenses 3,609,928 3,609,928 3,868,279

Change in Net Assets 42,909 (13,802) 29,107 507,440

Net assets, beginning of year 1,399,494 451,039 105,000 1,955,533 1,448,093Net assets, end of the year $1,442,403 $ 437,237 $105,000 $1,984,640 $1,955,533



CORPORATIONS & FOUNDATIONS

ABB Foundationabbott laboratories employee giving campaignAbercrombie & Fitch Mgmt. Co.acorda Therapeutics, inc.Active Networkadvanced Health Media llcaetna, inc.The Ahuja Foundationairstream, inc.aleris international, inc.apple american group llcatlas butler Heating & coolingbakerHostetler biogen idecBloomberg L.P.calfee, Halter & griswoldcardinal Healthcase Western reserve universityCDWThe center for Health affairsCharlotte & Richard Witkind FundCleveland Browns Football Company LLCCleveland ClinicThe Cleveland Foundationclimaco, Wilcox, peca, Tarantino & garofoli llccommunity Health charities of ohioCounts Container Corp.Crane Fund for Widows & Childrencrossroads Hospice charitable FoundationDarice, inc.Davey Tree expert companyDDR Corp.Dewey’s PizzaDiamond Hill investments charitable FoundationDiebold FoundationDominion east ohioeaton charitable Fundeaton corporationeMD Serono, inc.emerson network powerenglefield oil companyernst & Young llpThe esther & Hyman rapport philanthropic TrustFairfield Medical centerFairmount MineralsThe Fedeli groupFidelity charitable gift FundFifth Third BankFireman’s Fund insurance co.FirstenergyForest city enterprisesFraternal order of eagles 321Freeman FoundationThe gar FoundationgbQ Holdings llcThe gail & John Simonetti charitable Fund

genzyme corporatongeorge J. igel & co., inc.gilenya Traveling Tourglobal impactgrainger Matching charitable gifts programgrange insuranceHarry c. Moores FoundationHarry k. Fox & emma r. Fox Charitable FoundationHattie & robert lazarus FundH. b. chemical corp.The Howard atwood Family Fund of akron Community FoundationHyland Software, inc.ice Miller llpThe illuminating company - a Firstenergy Companyinsight bankinternational assoc. of Machinists and Aerospace WorkersinvacareJewish Federation of ClevelandJohn Palmer’s BistroJPMorgan Chase FoundationThe Kate Obstgarten Private FoundationThe Karen Foundation for MSkbiKertesz Family FoundationKeyBank FoundationKeyBank National AssociationKey Foundationkey Foundation Matching gift companyThe king groupkings gym, inc.Kovatch Castingskv’s krew, inc.laborers’ international union of n.a.The Lerner Foundationlincoln electriclittler Mendelson Foundation, inc.Majestic Steel uSaMaltz Family FoundationThe Mary S. & David C. Corbin FoundationMcDonald Hopkins llcMedical Mutual Mercer County FoundationMicrosoft Matching gifts programMills James, inc.Milton & Tamar Maltz Family FoundationMiriam & Stanley Schwartz Jr. Philanthropic FoundationMorgan StanleyMS golf outingThe Murphy Family FoundationNationwide nationwide united Way campaign

Nordson CorporationNordson Corporation Foundationnortheast ohio Medical universityNovartis Pharmaceuticals Corp.Oak Clinic for MSohioHealthohioHealth parentThe ohio State universityThe ohio State university Wexner Medical CenterOswald Companiespacific bells, inc. parker Hannifin corporationPark National Bankpfizer Foundation Matching gifts programThe Plain Dealerpnc Financial Services grouppraxair Foundation, inc.progressive insurance FoundationQuestcor pharmaceuticals, inc.The R.C. & Katharine Musson Charitable Foundationraleigh america, inc.Roetzel & AndressrpM international, inc.Rubin Obstgarten Family FoundationSafelite glass corp.The Sam J. Frankino FoundationThe Shamrock companies, inc.The Sherwin-Williams CompanyThe Sisler McFawn FoundationStainless WorksSunnyside automotive groupSusan & John Turben FoundationThe Swagelok FoundationTalmage Family FoundationTeva pharmaceuticals uSa (copaxone)Thomas r. isroff Memorial FundTrinity HealthTruistTucker ellis llpulmer & berne llpunited Healthcare Services, inc.united Way of central ohiounited Way of greater cleveland

mobilizeThe National MS Society’s Ohio Buckeye Chapter salutes the following individuals, corporations, foundations and organizations for their generous support of local programs and vital MS research during fiscal year 2013. each made at least a $2,500 donation to the chapter through the many different avenues of giving that are available to donors. Please remember that while we strive for accuracy with our donor information, we do apologize for any omissions or errors.

MoBiliZe MillioNS oF people to do SoMethiNg aBout MS NoW

expertise2014 Board oF trusteesNational MS Society, Ohio Buckeye Chapter

uTilize THe energY anD experTiSe oF TalenTeD inDiviDualSRichard Rideout . . . . . . . . . new York lifeCarol Savage . . . . . . . . . . . . Signature Bank, N.A.Scott Schroeder . . . . . . . . . eaton corporationgloria Sheline . . . . . . . . . . . next Financial groupPaula Silverman, MD. . . . . university Hospitals case Medical centerJohn Simonetti . . . . . . . . . . National MS Society Board of DirectorsJohn Skeldon . . . . . . . . . . . . Cooperative Business Services LLCRoy Smoot . . . . . . . . . . . . . . PNC BankCatherine A. Suever . . . . . . parker Hannifin corporationAaron Swiggum . . . . . . . . . William vaughan companyLamont Thurston . . . . . . . . brooks insurance Jeff Travis . . . . . . . . . . . . . . Winslow asset Management, inc. John Wells . . . . . . . . . . . . . . aba insurance ServicesJeff Westfall . . . . . . . . . . . . . Fox ToledoMark Wuertz . . . . . . . . . . . bennett enterprises llcalan M. zang . . . . . . . . . . . uS bank


united Way of greater lorain countyunited Way of new York cityunited Way of Summit countyuniversity Hospitals Health SystemThe university of akronu.S. banku.S. bank national associationWalmartWalmart FoundationWillis of OhioW.W. Williams Company Fundzin Technologies

INDIVIDUALS

Mrs. nancy H. bishopMs. Martha P. Burke

Mr. Michael J. CancelliereMr. Rick A. ChiricostaThe Davis FamilyMr. Carl S. DeForest Ms. Michele ellisMr. & Mrs. Thomas M. FeeneyMr. Jerome FehribachDr. & Mrs. Robert J. FoxMrs. Molly B. FratalonieMr. Dan gibbonsMr. & Mrs. robert l. gormanMr. & Mrs. Joseph a. igel, Jr.Mr. & Mrs. Arnold KingMr. Robert J. KlonkMs. Janet L. KramerMr. Dick Kulick

Mr. & Mrs. Carl LoeschMr. & Mrs. John M. LoeschMr. Dean MaireMr. & Mrs. a. M. Mixon, iiiMr. Patrick T. O’DonnellMs. Brenda O’ReillyMr. & Mrs. Paul OwenMr. Roger L. PattersonMr. Timothy K. PistellMr. & Mrs. Chester P. PorembskiThe Rudick FamilyMr. & Mrs. John RuizMs. Barbara D. SalsburyMr. & Mrs. lee g. SeidmanDr. Paula Silverman & Mr. Robert WolffMr. & Mrs. John A. Simonetti

Taylor Alvey . . . . . . . . . . . . DDR Corp.Patricia L. Blake . . . . . . . . . Oak Clinic for Multiple SclerosisSteven P. Bossart . . . . . . . . akron general FoundationChad Bolles . . . . . . . . . . . . . White Family Dealershipsellen l. cathey . . . . . . . . . . Nationwide FinancialBeverly J. Cohen . . . . . . . . . Nordson CorporationJeffrey A. Cohen, MD . . . . Cleveland Clinic FoundationJessica Davis . . . . . . . . . . . . Roetzel & Andressbrian k. elter . . . . . . . . . . . . united Healthcare national accountsnick ezzone . . . . . . . . . . . . Swagelok CompanyMichael Fruchtman . . . . . . Fruchtman MarketingDaniel D. golish . . . . . . . . . Skoda Minottarobert l. gorman . . . . . . . Morgan Stanley Smith Barneykaren Hill . . . . . . . . . . . . . . Abercrombie & FitchJoseph a. igel . . . . . . . . . . . RetiredMichelle Jaffe . . . . . . . . . . . Harold Jaffe JewelersAnn C. Kent . . . . . . . . . . . . . bvu: The center for nonprofit excellenceNewton S. Kimberly, Jr. . . Susan & John Turben FoundationRobert J. Klonk . . . . . . . . . . Oswald CompaniesBoyd Koffman . . . . . . . . . . university of Toledo Medical centerStephanie Kuhlman . . . . . . industrial Developers ltd.Dick Kulick . . . . . . . . . . . . . PROformaBrian Lehner . . . . . . . . . . . . cFp investment consultant groupDebra MaukPhilip Mazanec . . . . . . . . . . The center for Health affairsAlan J. Mihok . . . . . . . . . . . MJK ConsultingJanet Mohrmann . . . . . . . . RetiredDick Moore . . . . . . . . . . . . . Dowling Funeral HomeLawrence Muscarella . . . . MTD products, inc.Paula M. O’Reilly . . . . . . . . AccentureChester P. Porembski . . . . . ohioHealth corporationThomas Pounds . . . . . . . . . Toledo Free PressDouglas A. Price . . . . . . . . . Capital Advisors Ltd.Michael K. Racke, MD . . . The ohio State university george c. reider . . . . . . . . Majestic Steel uSa

Ms. Susan J. StanfieldMs. Catherine SueverMr. & Mrs. Mark Swepston Mr. Jason H. TaylorMr. Larry Teaberry, Jr.Dr. Jeffrey S. TharpMr. & Mrs. craig virnelsonMr. Dominic a. visconsi, Sr.Ms. Cheryl A. WilsonMr. & Mrs. John M. WurzburgerMr. Wallace c. Young, Jr.Mr. & Mrs. alan M. zang

leadershiP teamBOARD Roy Smoot, ChairDick kulick, vice chairMark Wuertz, vice chair

SOCIETYJanet L. Kramer, PresidentJennifer Hamilton, executive vice president Marketing & OutreachTony bernard, vice president Marketing & outreachJim Maxen, Director of Finance

ellen l. cathey, Secretaryalan M. zang, Treasurer

Ohio Buckeye Chapter 1-800-344-4867MSohiobuckeye.org

Cleveland Office6155 Rockside Rd., Suite 202independence, oH 44131

Columbus Office651g lakeview plaza blvd.Worthington, oH 43085

Toledo Office401 Tomahawk DriveMaumee, oH 43537

connections count

national society ohio buckeye chapter make every connection … · 2019. 1. 8. · the new ohio...

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