New England Regional 2015

National Respite21 April 2015

Agenda

1. Welcome/Update on Previous Actions 1:302. Respite Policy Update 1:453. NDIS Issues 2:004. CHSP and PWD 2:305. Carer Support 2:456. Close 3:00

1.1 National respite

Communities of strong relationships that support the lives people choose

Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and

informal supports

Last Meeting Actions1. National Respite: Transitioning Respite Project

update2. Providing a flexible respite service under NDIS as

disconnect: – ADHCs flexible respite packages growth– NDIS ‘reasonable and necessary’ support

3. Funding volunteer and other flexible family supports under NDIS

4. Emergency co-ordination and support under NDIS5. Trial Site Updates - Transport

CarerCare recipient

Resp

ite

Care

Ca

rer s

uppo

rt

?

3 7

NDISCHSP

Integrated Carer Support Programme (DSS)

3.1 Respite and carer support in 3 systems

Mental Health

Policy Landscape Update – RespiteDisability (NDIS)

Significant changes for carers and respite services:

1. NDIA 5 strategic outcomes for carers and families:Families/carers:1. have the support they need to care 2. know their rights and advocate effectively for the person they are caring for 3. are able to gain access to desired services, programs and activities in their communities 4. have succession plans 5. enjoy health and well-being

2. Respite language to be restored:– currently not listed but respite outcomes are – Recognise ‘the service type that cannot be named.’

3. Flexible bundling of supports?

• Further consultation this year on respite in NDIS

Policy Landscape Update – Tier 2

NDIA paper – five streams1. Information, linkages and referrals2. Capacity building for mainstream services3. Community awareness and capacity building4. Individual capacity building5. Local area co-ordination• Available to all people with disability, including those also receiving

Tier 3• HOWEVER:“a significant proportion is likely to receive most, if not all, the supports they need through mainstream systems”

Our ILC Submission1. Outcomes for people with disability and carers to measure success of streams

2. Outcomes guide purchase and contestability

3. Three ILC streams:

1. Information, linkages and referral – for everyone in the community

2. Community Awareness and Capacity Building - for mainstream services and community

3. Individual Capacity Building - for people with disability and carers

4. ILC target sub populations including carers, linked to clear ILC outcomes

5. Map current service system of Tier 2

6. Preventative disability specific supports in Individual Capacity Building stream

7. Flexible blended formal, informal and volunteer support is named explicitly in Individual Capacity Building stream

8. Advance purchase for volunteer program coordination, training and support

9. Parallel track to carer support through ILC and Integrated Carer Support

NDIS Update – Emergency Co-ordination and Support

Emergency Respite NDIA submission:– Clarifying role of Agency in Co-ordinating Emergency Support– Clarifying NDIS process – Data collection

We propose:– Transition plan for emergency co-ordination given Integrated Carer Support Programme

is not on the same schedule as NDIS and CHSP– NDIA to advance purchase emergency co-ordination and support through established

providers for participants– Factsheets and websites updated to communicate NDIA emergency process – Sustainability of participant relationships measured

NDIS – Quality and Safeguarding• NDIA paper proposes three domains:

1. Developmental:– Advocacy– building natural safeguards– consumer led initiatives, including through social media

2. Preventative: – Formal individual safeguards eg risk assessments in plan– service level safeguards eg policy and procedures, feedback mechanisms– system level quality measures eg registering with NDIA

3. Corrective: – Universal measures eg ombudsman– Complaints handling– Serious incident reporting

• BUT Limited discussion of self management and micro businesses

NDIS – Quality and Safeguarding• NDS paper proposes: co-regulatory model comprised of an industry regulator and an independent

consumer complaints body

• We propose a framework that:

1. Acknowledges that people with disability can be supported in strong relationships and meaningful community involvement through:

- a quality and safeguarding framework that measures success of supports through met outcomes that have been set and assessed by the individual

- supporting natural safeguards such as family and friends

2. Empowers people with disabilities through a regulatory and legal quality and safeguarding system that meaningfully puts people first.

3. Caters to a changing disability supports market with attention to the unique needs of those self managing employment of staff and funds and micro businesses

• Feedback to DSS until 30 April 2015

NDIS: Preparing Families for a Plan

Three resources:1. National Respite project ‘Services Preparing

Families’2. Parallel Carers NSW project: resources to

prepare carers3. Carers Australia/Mental Health Australia

Capacity Building Project

CHSP Respite

1. Future of NRCP funded clients under 65 2. Future of disability specific providers with

majority NRCP funding3. People who both identify as having a

disability and are frail from age4. Non- respite carer support taken out of CHSP5. Flexible Respite for People with Dementia

Project

CHSP Funding Landscape

CHSP contracts1. Small extension to 31 October, then new contract Nov 2015 –

Jun 20172. NRCP incorporated, & <65 grandfatheredSector Support & Dev3. Non-output services 1Q16 extension4. Review of CSIA and non-output services5. Competitive tender

Carer SupportRecently… CRCC contracts will be extended to 2017 Government developing integrated carer support model Co-design with carers and service providers Minister Fifield – carer supports outside NDIS & single carer assessment Minister Morrison – importance of carers But issue of different state funding ‘base level of community support’

Concerns particular client groups – young carers, rural & remote, CALD, Indigenous loss of expertise, referral pathways

National Respite action

• Organisation future • Priorities:– Transition readiness– Service innovation– Carer support and CRCCs

IDF Small & Micros in the bush

CHSP - Flexible Respite

NDIS – choice and innovation

CRCCs – Integrated Carer support

Transitioning Respite