Riverina Regional 2015

National Respite17April 2015

Agenda

1. Welcome/Update on Previous Actions 1:302. Respite Policy Update 1:453. NDIS 1:554. CHSP 2:255. Mental Health and Carer Support 2:406. National Respite action 3:007. Close 3:30

1.1 National respite

Communities of strong relationships that support the lives people choose

Support interconnected wellbeing between people with disability, frailty from age, mental illness and their chosen carers, families, and

informal supports

Last Meeting Actions1. Trial Site Update2. NDIS group and 1:1 community participation update3. National Respite Carer Support Advocacy4. National Respite CHSP Submissions5. SPRC Transitioning Respite Project

CarerCare recipient

Resp

ite

Care

Ca

rer s

uppo

rt

?

NDISCHSP – sub-program 2

Integrated Carer Support Programme (DSS)

2 Respite and carer support in 3 systems

Mental Health

3.Respite NDIS

Significant changes for carers and respite services:

1. NDIA 5 strategic outcomes for carers and families:Families/carers:1. have the support they need to care 2. know their rights and advocate effectively for the person they are caring for 3. are able to gain access to desired services, programs and activities in their communities 4. have succession plans 5. enjoy health and well-being

2. Respite language to be restored:– currently not listed but respite outcomes are – Recognise ‘the service type that cannot be named.’

3. Flexible bundling of supports?

• Further consultation this year on respite in NDIS

3.1 NDIS Tier 2

NDIA paper – five streams1. Information, linkages and referrals2. Capacity building for mainstream services3. Community awareness and capacity building4. Individual capacity building5. Local area co-ordination• Available to all people with disability, including those also receiving

Tier 3• HOWEVER:“a significant proportion is likely to receive most, if not all, the supports they need through mainstream systems”

3.2 Our ILC Submission1. Outcomes for people with disability and carers to measure success of streams

2. Outcomes guide purchase and contestability

3. Three ILC streams:

1. Information, linkages and referral – for everyone in the community

2. Community Awareness and Capacity Building - for mainstream services and community

3. Individual Capacity Building - for people with disability and carers

4. ILC target sub populations including carers, linked to clear ILC outcomes

5. Map current service system of Tier 2

6. Preventative disability specific supports in Individual Capacity Building stream

7. Flexible blended supports – formal, informal and volunteer – in Individual Capacity Building stream

8. Advance purchase for volunteer program coordination, training and support

9. Parallel track to carer support through ILC and Integrated Carer Support

3.3 Emergency Co-ordination

Emergency Respite NDIA submission: Clarifying role of Agency in Co-ordinating Emergency Support Clarifying NDIS process Data collection

We propose: NDIA to advance purchase emergency co-ordination and support through established

providers for participants Factsheets and websites updated to communicate NDIA emergency supports process Recommendations on respite adopted by the NDIA Sustainability of participant relationships measured

3.4 NDIS Transport Submission

• Transport a big issue for providers in trial sites• We recommend:

1. Consolidation of NDIA transport guidelines

2. Strengthening of transport guidelines to resolve tension between – funding reasonable and necessary transport support and – displacing natural supports or state supports.

3. Data collection to inform policy going into full roll-out

3.5 NDIS – Quality and Safeguarding

1. Developmental:– Advocacy

– building natural safeguards

– consumer led initiatives, including through social media

2. Preventative: – Formal individual safeguards eg risk assessments in plan

– service level safeguards eg policy and procedures, feedback mechanisms

– system level quality measures eg registering with NDIA

3. Corrective: – Universal measures eg ombudsman

– Complaints handling

– Serious incident reporting

BUT Limited discussion of self management and micro businesses

3.6 NDIS – Quality and Safeguarding• NDS paper proposes: co-regulatory model comprised of an industry regulator and an independent

consumer complaints body

• We propose a framework that:

1. Acknowledges that people with disability can be supported in strong relationships and meaningful community involvement through:

- a quality and safeguarding framework that measures success of supports through met outcomes that have been set and assessed by the individual

- supporting natural safeguards such as family and friends

2. Empowers people with disabilities through a regulatory and legal quality and safeguarding system that meaningfully puts people first.

3. Caters to a changing disability supports market with attention to the unique needs of those self managing employment of staff and funds and micro businesses

• Feedback to DSS until 30 April 2015

3.7 NDIS: Preparing Families for a Plan

Three resources:1. National Respite project ‘Services Preparing Families’2. Parallel Carers NSW project: resources to prepare carers3. Carers Australia/Mental Health Australia Capacity Building

Project

4.1 Key features

CHSP revised features Entry level – total services

below HCP-1 4 sub-programs including Care

Relationships National fees Wellness and reablement Grandfathering:

Under<65 Higher needs Carers of people <65

Vulnerable clients able to access linkage services

CHSP contracts1. Small extension to 31

October, then new contract Nov 2015 – Jun 2017

2. NRCP incorporated, & <65 grandfathered

Sector Support & Dev3. Non-output services 1Q16

extension4. Review of CSIA and non-

output services5. Competitive tender

4.2 CHSP

Meals & 0ther Food Services

Transport Domestic Assist Personal Care Home Mainten. Home Mods Social Support-

Individual Social Support-

Group Nursing Allied Health &

Therapy services Goods,

Equipment and Assistive Technology

Flexible Respite: In-home day In-home o/night Community

access – individual

Host family day Host family o/n Mobile Other plannedCentre-based respite: Centre based

day Residential day Comm access -

group Cottage respite

4.3 Issues

General issues1. Grandfathering arrangements

1. Future of NRCP funded clients <652. Future of disability specific

providers with majority NRCP funding

2. Organisation support to do additional co-ordination for grandfathered clients

3. Protection of special needs groups – access obligations

4. Dementia – enacting the obligation

5. Sector support needed – business skills

Respite & carer issues1. Eligibility of carers in CHSP

– inclusion in planning and assessment processes

2. Non- respite carer support taken out of CHSP

3. Twin-track of carer support4. How will/should wellness

& reablement apply to carers?

Carer SupportRecently… CRCC contracts will be extended to 2017 Government developing integrated carer support model

Beginning consultation on possible carer portal and contact centre But larger process for integrated carer support

Co-design with carers and service providers Minister Fifield – carer supports outside NDIS & single carer assessment Minister Morrison – importance of carers But issue of different state funding ‘base level of community support’

Concerns Twin pathway for carers particular client groups – young carers, rural & remote, CALD, Indigenous loss of expertise, referral pathways

Mental Health

Systemic issues Recovery vs. permanent disability Underfunding of respite Different emergency respite needs Importance of non-respite carer

support in supporting people with mental illness

Recent developments NHMC report with government MHR-CS – NDIS different agreements Minister Fifield announced 12 month

extension for: Commonwealth supported community

mental health orgs Personal Helpers and Mentors Program Mental Health Respite: Carer Support

Program Young Carers Respite and Information

Service (YCRISP)

NDIS funding Mental Health Australia to support capacity building for people with psychosocial disability and their carers

National Respite action

• Organisation future • Priorities:– Transition readiness– Service innovation– Carer support and CRCCs

IDF Small & Micros in the bush

CHSP - Flexible Respite

NDIS – choice and innovation

CRCCs – Integrated Carer support

Transitioning Respite