NIHR Research Capacity in Dementia Care Pilot Programme (RCDCP)

Jason Corner

Norfolk and Suffolk

NHS Foundation Trust

1994 – HND leisure management

2003 – A semester of Sport Rehabilitation BSc

2007 – BSc Mental Health Nursing UEA

2011 – PGCert Leadership in Dementia UEA

2013 – MSc Clinical Research UEA (NIHR)

Financial

Family

Confidence

What I needed

Awareness

Geography

Support

NSFT

Me

CLARHC

UEA

NIHR funded MSc in Clinical Research

Does diagnostic counselling surrounding the time of a dementia diagnosis affect the quality of life of people with dementia and those who care for them? A systematic review and meta-analysis

No evidence of effectiveness for any pooled outcomes

Does a Personhood and Citizenship brief workshop, delivered to residential care home staff, affect the wellbeing of residents with dementia?

Does a Personhood and Citizenship brief workshop, delivered to residential care home staff, affect the wellbeing of residents with dementia? Intervention refinement and feasibility testing of a cluster randomised controlled trial

PERSON + ABLE = PERSONABLE

Exercise 1 Understanding the resident (Personhood)

Exercise 2 The able resident (Personhood and citizenship)

Exercise 3 Reflective case study

Exercise 4 The 30 day pledge

Intervention: The PERSONABLE brief dementia workshop for residential care staff

60

min

utes

Phase 1: Intervention refinement using focused discussion groups

Focus groups:

Residential care home staff (n=8)

Focus group two:

Family members and friends (n=8)

Intervention refinement

Phase 2:

Cluster RCT feasibility testing

Residential care home staff (n=24)

Residents

with dementia (n=36)

Residential

care homes (n=6)

Baseline measurements

Cluster randomization

Final outcomes: 6 weeks post intervention

Control group (n=3)

Intervention group (n=3)

Same as baseline

DCM™ wellbeing and ill-being score (WIB)

Participants

Personhood in

Dementia and Perceived competence questionnaires

Dementia Care

Mapping DCM™

Therapeutic Environment Screening Survey for Nursing Homes