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NOTICE/AGENDA

THE PUBLIC MAY LISTEN IN BY CALLINGi: 1-800-839-9416 PARTICIPANT CODE: 298-2825

COUNCIL MEETING NOTICE/AGENDA

POSTED AT: www.scdd.ca.gov

DATE: January 15, 2019

TIME: 10:00 AM – 4:00 PM

MEETING LOCATION: Hilton – Sacramento Arden West 2200 Harvard Street Sacramento, CA 95815

COUNCIL CHAIR: Sandra Smith

Item 1. CALL TO ORDER

Item 2. ESTABLISH QUORUM

Item 3. SWEARING IN NEW COUNCILMEMBERS

Item 4. WELCOME AND INTRODUCTIONS

Item 5. PUBLIC COMMENTS

This item is for members of the public only to provide

comments and/or present information to the Council on

matters not on the agenda. Each person will be afforded

up to three minutes to speak. Written requests if any, will

be read aloud

http://www.scdd.ca.gov/

Item 6. APPROVAL OF NOVEMBER 2018 MINUTES Page 5

Item 7. CHAIR REPORT Page 19

Item 8. EXECUTIVE DIRECTOR REPORT

STAFF REPORTS

A. Deputy Director of Administration Report B. Deputy Director of Policy Report C. Deputy Director Regional Office Operations Report D. CRA/VAS Update Report E. Developmental Center Closure Update F. QA Project Update Report

1

Item 9. COI WAIVER REQUESTS A. Golden Gate Regional Center

1. Board Member David De Lira

Page 33

Item 10. 2018 PROGRAM PERFORMANCE REPORT Page 47

Item 11. 2019 – 2020 GOVERNOR’S PROPOSED BUDGET Page 71

Item 12 MEMBER SPOTLIGHT – JEANA ERIKSEN Page 73

Item 13. PROJECT OF EXCELLENCE

A. San Diego Regional Office – MaryEllen Stives

B. North Coast Regional Office – Sheli Wright

Page 75

Item 14. STATEWIDE SELF-ADVOCACY NETWORK Page 87

Item 15. COMMITTEE REPORTS

A. Membership Committee B. State Plan Committee C. Self-Advocates Advisory Committee

Page 93

Item 16. FILM SCREENING: “EXTRAORDINARY PEOPLE” Page 95

Item 17. NEXT MEETING DATE & ADJOURNMENT

Accessibility:

Pursuant to Government Code Sections 11123.1 and 11125(f), individuals with disabilities who require accessible alternative formats of the agenda and related meeting materials and/or auxiliary aids/services to participate in this meeting should contact (916) 263-7919. Requests must be received by 5 business days prior to the meeting.

Materials: Meeting documents and presentations for an agenda item must be submitted to SCDD no later than 2 business days prior to the meeting.

i A call-in phone line will be available so that members of the public can call in and listen to this meeting, provided there are no unforeseen technical difficulties or other limitations. The meeting will not be cancelled if the call-in phone line is not available. If you wish to participate or to have a guaranteed opportunity to observe and participate, please plan to attend at a physical location

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JANUARY 15, 2019

AGENDA ITEM 6ACTION ITEM

STATE COUNCIL ON DEVELOPMENTAL DISABILITIES

Approval of November 2018 Minutes

Action RecommendedApprove the November 2018 Minutes.

.KtlFO 8 NIA

DRAFT

Council Meeting MinutesNovember 29, 2018

Members PresentAndrea Vergne (FA)Barbara BoydCatherine BlakemoreCharles Nutt (SA)David Pegos (FA)Diane Ambrose (FA)Eric Gelber

Evelyn SchaefferFrancis Lau (FA)Jacqueline Nguyen (FA)Janelle Lewis (FA)Jeana Eriksen (SA)Julie Austin (FA)Kilolo Brodie (FA)Kimberly Risser (SA)Kris Kent

Larry YinMaria Marquez (SA)Matthew Lagrand (SA)Peter Harsch

Robert Taylor (SA)Robin HansenRon KaiserSandra Aldana (SA)Sandra Smith (FA)Stephen Bell (FA)Wesley Witherspoon (SA)

Members AbsentAlfredo Rubalcava (FA)Charles Nutt (SA)Olivia RaynorPete Sanchez (FA)

Others AttendinAaron CarruthersAdam LewisAlicia ChristensenBeth HumCelia Salcido

Chris ArroyoChris SnyderCindy SmithDavid GradyDena HernandezDoug SaleHolly BinsJana Chapman-PlonKaren MulvanyKarie WilliamsKathy BrianKelly WeberLeah HollisLisa HooksMary Ellen StivesMichael McNultyNicole Patterson (DDS)Ravita DeviRiana HardinRihana AhmadRobin MaitinoSarah MaySarah WasiakScarlett VonThenenSheli WrightSheraden NicholauTamica Foots-RachalVicki Smith

Legend:SA = Self-AdvocateFA = Family Advocate

Page 1 of 13

1. CALL TO ORDERCouncil Chair Sandra Smith (FA) called the meeting to order at 10:21 AM.

2. ESTABLISH QUORUMA quorum was established.

3. WELCOME AND INTRODUCTIONSCouncilmembers and others in attendance introduced themselves.

4. PUBLIC COMMENTIt was announced that Disability Rights of California (DRC) is celebratingtheir 40th Anniversary.

A moment of silence was given for those affected by the fires.

Kerry Williams and Kelly Weber from Creating Behavioral and EducationalMomentum (CBEM) shared details of the work CBEM has done providingmobile crisis services at some of regional centers. CBEM has a hotline tosupport the mobile crisis services, and works with individuals and familiesto develop a stabilization plan.

5. APPROVAL OF SEPTEMBER 2018 MINUTES

Action 1It was moved/seconded Risser SA /La rand SA and carried to a rove

the Se tember 18 2018 minutes. (See page 10 for the voting record ofmembers present.)

6. CHAIR REPORTCouncil Chair Sandra Smith (FA) reported her activities since theSeptember Council meeting. The report included details of her work withthe Executive Committee finalizing the Executive Director evaluation, andChair Smith updated Councilmembers on meetings she has had with otherorganizations. Chair Smith also spoke of those affected by the fires.

7. EXECUTIVE DIRECTOR AND STAFF REPORTSExecutive Director Aaron Carruthers provided a written report to membersthat provided an overview on several activities that have taken place sincethe September Council meeting. His report included the number of people


Page-2 of 13

served in August, September, and October; recent policy work; detailsabout California hosting the Executive Director Leadership Summit;Self-Determination updates; administrative announcements; collaborationsand more.

Staff reports were made available in the packet.

8. CHAIR AND VICE CHAIR ELECTIONSW&l Code Section 4535(b) requires the Council to elect its Chairpersonand Vice Chairperson by a majority vote. The terms are for January 2019 -December 2020. Nominations were made by both the NominatingCommittee and by nominations from the floor. Candidates were consideredas follows (in alphabetical order):

ChairJeana Eriksen

Matthew LagrandSandra Smith

Vice ChairStephen BellJeana EriksenCharles NuttKirn Risser

An election was held separately for each office. The election for Chair washeld first. Following member statements by the candidates for Chair, apublic vote was taken. Chair Sandra Smith won the majority vote forChairperson with twenty-one (21) votes, Councilmember Matthew Lagrandfollowed with three (3) votes, followed by Councilmember Jeana Eriksenwith zero (0) votes. (See page 13 for the voting record of members present)

Following member statements by the candidates for Vice Chair, a publicvote was taken. In the initial election Vice Chair Charles Nutt received

thirteen (13) votes, Councilmember Stephen Bell followed with seven (7)votes, followed by Councilmember Kim Risser with three (3) votes, andCouncilmember Jeana Eriksen with one (1) vote. A second election washeld as a runoff between the two candidates with the highest votes. In thefinal election, Vice Chair Charles Nutt won the majority vote for Vice


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8

Chairperson with sixteen (16) votes, Councilmember Stephen Bell followedwith eight (8) votes.(See page 13 for the voting record of members present)

9. COI WAIVER REQUESTA. Central Valley Regional Center (CVRC)

1. Board Member Tracy BlairMs. Tracy Blair is a member of the Board of Directors of the CentralValley Regional Center (CVRC). Ms. Blair currently works for ValleyChildren's Hospital (VCH) where she serves as the ExecutiveDirector of Legal Services and Deputy General Counsel. VCH is avendor of CVRC but reportedly provides very limited services toCVRC requiring only minimal payments.

Action 2It was moved/seconded Withers oon SA /Eriksen SA and carried toa rove Ms. Blair's waiver re uest rovided she does not artici ate inan decision that im acts CCMRS since the ro osed lan otherwise

miti ates the o ortunit for a resultin conflict of interest. (See page 10for the voting record of members present.)

2. Board Member Jenifer FosterMs. Jenifer Foster is a current member of the Board of Directors ofthe Central Valley Regional Center (CVRC). Ms. Foster works forCentral California Mennonite Residential Services (CCMRS), which isa CVRC vendor that provides various services to CVRC consumers.Ms. Foster is presently the Executive Director of CCMRS.

Action 3It was moved/seconded Ver ne FA /Blakemore and carried to den

Ms. Foster's waiver re uest. (See page 10 for the voting record ofmembers present.)

3. Board Vice President Christine ScaresMs. Christine Scares was elected Vice President of the Board of

Directors of the Central Valley Regional Center (CVRC) on July 1,2018. Ms. Scares has a daughter who receives services from CVRCand is currently employed by United Cerebral Palsy Infant Program(UPC), a vendor of CVRC.


Page 4 of 13

Action 4It was moved/seconded Lewis FA /Withers oon SA and carried toa rove Ms. Scares' waiver re uest rovided she does not artici atein an decision that im acts CCMRS since the ro osed lan otherwise

miti ates the o ortunit for a resultin conflict of interest. (See page 10for the voting record of members present.)

B. Redwood Coast Regional Center (RCRC)1. Board Member Steven Perez

Mr. Steven Perez is a member of the RCRC Board; his spouseprovides child care services for their granddaughter who is a regionalcenter client. Mr. Perez's spouse is employed by CoastlineEnterprises, a RCRC vendor.

Action 5It was moved/seconded Ta lor SA /Lewis FA and carried to a roveMr. Perez's waiver re uest rovided he does not artici ate in andecision that im acts his s ouse's em lo er since the ro osed lanotherwise miti ates the o ortunit for a resultin conflict of interest.

(See page 10 for the voting record of members present.)

2. Board Member Cynthia SwimmDr. Cynthia Swimm is the current appointee of the Alliance ServiceProviders as the designated Vendor Advisory Committee member ofthe Redwood Coast Developmental Services Corporation (RCDSC),which is the governing body of the RCRC. Dr. Swimm is theDirector/Behaviorist for the Lake County Office of Association ofBehavior Consultants (ABC), which is a vendor of RCRC thatprovides direct services to RCRC clients.

Action 6It was moved Ta lor SA to a rove Ms. Swimm's waiver re uestrovided she does not artici ate in an decision that im acts his

s ouse'sem lo er since the ro osed lan otherwise miti atesthe

o ortunit for a resultin conflict of interest. MOTION FAILED (NoSecond) ^

Action 7It was moved/seconded Ver ne FA /Austinwaiver re uest. MOTION WITHDRAWN


FA to den Ms. Swimm's

Page 5 of 13

10

Action 8It was moved/seconded Smith FA /Eriksen SA and carried to tableMs. Swimm's waiver re uest until further information is rovided for

clarification. (See page 11 for the voting record of members present.)

10. SPONSORSHIP REQUESTThe Council reviewed and acted upon the following sponsorship requestafter considering staff and SAAC recommendations.

Adaptive Learning Center is requesting $999 in sponsorship funding for theEmployment IS an Option that will be held on Saturday, February 2, 2019in Antioch, CA. This event is to get young people and their families thinkingabout employment as a real option.

Council funds would be used to help defray the cost of filming and editingthe event so that it may be used as a resource for those unable to attend.

Action 9It was moved/seconded Lau FA /Withers oon SA and carried to ado tstaff's recommendation to award fundin in the amount of 999 to Ada tiveLearnin Center. (See page 1 1 for the voting record of member's present.)

11. CYCLE 40 GRANT OUTCOME: EASTER SEALS FIELD TESTINGDISCOVERYDebbie Ball, Vice President of Employment Services for Easter Seals,Southern California, shared some of the results from the Cycle 40 Grantproject on customized employment, implementation, and validation. Theprimary purpose of the grant was to help build capacity among ourcommunity, so more individuals can be supported through customizedemployment. It was also to field test the Discovery Fidelity Scale.

Ms. Ball also presented the lessons learned and the impact on Californiaand shared feedback that was provided from participants. Details areoutlined in the presentation posted on the SCDD website.

12. LEGISLATIVE PLATFORMCouncil member Janelle Lewis (FA) and Deputy Director of Policy CindySmith presented the 2019 Policy Platform and Legislative Priorities. TheLegislative and Public Policy Committee met October 22, 2018 and focusedon two major tasks: establishing recommendations for updating the Council


Page 6 of 13

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Policy Platform and establishing recommendations for council legislativepriorities for the upcoming 2019 legislative session.

Recommended changes for the 2019 platform were presented in ahandout, which is accessible on the SCDD website.

Action 10It was moved/seconded Risser SA /Pe os FA and carried for Council to

a rove the recommended chan es to the latform. (See page 11 for thevoting record of members present)

13. COMMENTS ON PUBLIC CHARGE RULEDeputy Director of Policy Cindy Smith, presented on the proposed publiccharge rule and its impact on immigrants with disabilities. Backgrounddetails were provided and a proposed comment letter from SCDD waspresented to the Council. Members were informed that even if SCDD takesan official position on the Public Charge Rule, Members can submitcomments and give testimony as individuals, just not on behalf of theCouncil,

Action 11It was moved/seconded Smith FA/Aldana SA and carried to a rovethe SCDD Comment Letter re ardin the Public Char e Rule and to have

it submitted on SCDD's behalf. (See page 12 for the voting record ofmembers present.)

14. COUNCIL POLICIESA. Sponsorship Policy

The Committee reviewed the proposed changes to the Sponsorship Policyon page 122 of the packet. Following discussion on the proposed changesas well as the funding threshold the Council took the following actions.

Self-Advocates Advisory Committee (SAAC) Chair Robert Taylor presentedthe SAAC recommendation to approve the proposed changes to theSponsorship Policy.

Action 12It was moved/seconded Lewis FA /Lau FA and carried to acce t the

ro osed chan es to the S onsorshi Polic . (See page 12 for the votingrecord of members present.)


Page 7 of 13

12

B. Service Rotation PolicyThe Council reviewed the detail sheet which outlined ways to addressformer Councilmembers that apply to serve on local Regional AdvisoryCommittee's immediately following their expiration in a Council seat. TheExecutive Committee acted to recommend option 1 which states thatformer Council members may be appointed to their local RAC/SDACimmediately after expiring off the Council provided that the member appliesand is appointed by the Membership Committee.

Self-Advocates Advisory Committee (SAAC) Chair Robert Taylor presentedthe SAAC recommendation to approve the Executive Committee'srecommendation.

Action 13It was moved/seconded Lewis FA A/er ne FA and carried to a rovethe Executive Committee's recommendation to allow former Councilmembers to be a ointed to their local RAC/SDAC immediatel afterex irin off the Council rovided that the member a lies and is a ointedb the Membershi Committee. (See page 12 for the voting record ofmembers present.)

C. Councilmember Administrative PoliciesCouncilmembers were provided with a policy booklet as a handout. ChairSandra Smith recommended that the Council delegate authority to theExecutive Committee to review and approve the final version of theCouncilmember Administrative Policies manual once Councilmemberfeedback is received. Counciimembers were given until December 14,2018 to provide feedback to Chair Sandra Smith and/or Executive DirectorAaron Carruthers.

Self-Advocates Advisory Committee (SAAC) Chair Robert Taylor presentedthe SAAC recommendation to delegate authority to the ExecutiveCommittee for final approval.

Action 14It was moved/seconded Risser FA /Withers oon FA and carried todele ate authorit to the Executive Committee to review and a rove thefinal version of the Councilmember Administrative Policies manual once

Councilmember feedback is received. (See page 12 for the voting record ofmembers present.)


Page 8 of 13

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D. CALFRESH BENEFITS EXPANSIONBrian Kaiser and Jessica Cooper from CalFresh presented on the benefitsexpansion. June 1, 2019 is the expected start date. It will allow seniors andpeople with disabilities receiving SSI to apply for CalFresh food assistancefor the first time since the 1970s. The two programs that will be launchingare the Supplemental Nutrition Benefit and the Transitional NutritionBenefit.The CalFresh team is planning four strategies for implementation:

* Engage and Empower ClientsTargeted Outreach for Awareness and Assistance

» Streamline Customer Experience at Initial Application and Beyond« Develop Policy, Automation and Training Foundation

A timeline was also presented; the presentation materials can be found onthe SCDD website.

E. STATEWIDE SELF-ADVOCACY NETWORK (SSAN)SSAN Chair Wesley Witherspoon provided a report about the upcomingSSAN meeting.

F. COMMITTEE REPORTSCouncilmembers were directed to review Committee meeting minuteslocated in either the Council packet or provided as handouts for thefollowing committees:A. Executive CommitteeB. Administrative Committee

C. Legislative & Public Policy CommitteeD. Employment First CommitteeE. Statewide Self-Determination Advisory CommitteeF. Nominating CommitteeG. Self-Advocates Advisory Committee

SSDAC Chair Maria Marquez gave a quick update on Self-Determination.

G. ADJOURNMENTThe next meeting is on January 15, 2019 at the Hilton in Sacramento. Themeeting was adjourned at 4:11PM.


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NameAction Action Action Action Action

Aldana, Sandra

Ambrose, Diane

Austin, Julie

Bell, Stephen

Blakemore, Catherine

Boyd, Barbara

Brodie, Kilolo

Eriksen, Jeana

Gelber, Eric

hlansen, Robin

Harsch, Peter

Kaiser, Ron

Kent, Kris

Lagrand, Matthew

Lau, Francis

Lewis, Janelle

Marquez, Maria

Nguyen, Jacqueline

Pegos, David

Risser, Kimberly

Schaeffer, Evelyn

Smith, Sandra

Taylor, Robert

Vergne, Andrea

Witherspoon, Wesley

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DNP = Did Not Participate / Not Present


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Page 10 of 13

NameAction Action Action Action Action

Aldana, Sandra

Ambrose, Diane

Austin, Julie

Bell, Stephen


Boyd, Barbara

Brodie, Kilolo

Eriksen, Jeana

Gelber, Eric

Hansen, Robin

Harsch, Peter

Kaiser, Ron

Kent, Kris

Lagrand, Matthew

Lau, Francis

Lewis, Janelle

Marquez, Maria

Nguyen, Jacqueline

Pegos, David

Risser, Kimberly

Schaeffer, Evelyn

Smith, Sandra

Taylor, Robert

Vergne, Andrea

Witherspoon, Wesley

Yin, Larry

No Vote

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Page 11 of 13

NameAction Action Action Action

Aldana, Sandra

Ambrose, Diane

Austin, Julie

Bell, Stephen


Boyd, Barbara

Brodie, Kilolo

Eriksen, Jeana

Gelber, Eric

Hansen, Robin

Harsch, Peter

Kaiser, Ron

Kent, Kris

Lagrand, Matthew

Lau, Francis

Lewis, Janelle

Marquez, Maria

Nguyen, Jacqueline

Pegos, David

Risser, Kimberly

Schaeffer, Evelyn

Smith, Sandra

Taylor, Robert

Vergne, Andrea

Witherspoon, Wesley

Yin, Larry

For

DNP

For

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Abstain

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Page 12 of 13

Name

Aldana, Sandra

Ambrose, Diane

Austin, Julie

Bell, Stephen


Boyd, Barbara

Brodie, Kilolo

Eriksen, Jeana

Gelber, Eric

Hansen, Robin

Harsch, Peter

Kaiser, Ron

Kent, Kris

Lagrand, Matthew

Lau, Francis

Lewis, Janelle

Marquez, Maria

Nguyen, Jacqueline

Pegos, David

Risser, Kimberly

Schaeffer, Evelyn

Smith, Sandra

Taylor, Robert

Vergne, Andrea

Witherspoon, Wesley

Yin, Larry

Chair

DNP

Smith

Smith

Smith

Smith

Smith

Smith

Lagrand

Smith

Smith

Smith

Smith

Smith

Lagrand

Smith

Smith

Smith

Smith

DNP

Smith

Smith

Smith

Lagrand

Smith

Smith

Smith

Vice Chair1st Vote

Bell

Nutt

Risser

Bell

Nutt

Bell

Bell

Nutt

Nutt

Nutt

Nutt

Nutt

Nutt

Bell

Nutt

Nutt

Risser

Bell

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Risser

Nutt

DNP

Eriksen

Bell

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Nutt

Vice ChairRunoff

Bell

Nutt

Nutt

Bell

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Bell

Bell

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Bell

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Nutt

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Bell

Bell

Nutt

Nutt



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Page 13 of 13

JANUARY 15, 2019

AGENDA ITEM 7INFORMATION ITEM


Chair Report

Chair Sandra Smith will provide an oral report.

19

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20

JANUARY 15, 2019



Executive Director Report & Staff Reports

Executive Director Aaron Carruthers will provide an oral report.Staff reports are included in the packet for review.

21

CA LI FO 8_N

Deputy Director of Administration Report

December 31, 2018

The Deputy Director of Administration exercises broad policy-making authorityover the SCDD's administrative functions including: personnel, fiscal, contracts,information technology and customer services to fulfill the strategic goals of theSCDD. Below is a summary of activities since the last Council meeting onNovember 29, 2018.

Policy

o Reviewed comments and suggestions from Council members on the

Administrative Policies and Procedures Manual in preparation for the

February 2019 Executive Committee meeting.

Fiscal/Administratjve

o Continued working with CDSS Information Technology, Telecom, Business

Services, SCDD Headquarters and Regional Office staff to inventory existingcomputer hardware, software, telephone and mobile devices and to assess

the age of these devices to develop a schedule for replacing them on aregular basis beginning in 2019.

o Met with Department of General Services Real Estate Services, CDSS

Business Services staff and the SCDD Budget Officer to identify RegionalOffices that are up for lease renewal, develop timelines for negotiation and

execution of new lease agreements and to consider options for long term

stabilization of continuously increasing space rental costs.

o Continued to develop enhanced monthly and year-to-date expenditure data

through the second quarter of State Fiscal Year 2018/19 for presentation tothe Administration and Executive Committees.

o Began discussions with Chair Smith, NACDD, and Health & Human Services

22

Agency HR to develop the 2018/19 Executive Director performance

evaluation consistent with federal guidance and California's Government

Executive Evaluation practices.

o Continued supervision of the Quality Assurance and Clients' RightsAdvocacy/Volunteer Advocacy Services programs with close collaborationwith DDS.

o Met with NASDD, HSRI, DDS Executives and the QA Program Manager todiscuss issues California is hgving with conducting QA surveys and the entryof reliable data into the national database.

o Met with DDS Chief Deputy, Executive Director Carruthers, and the CRA/VASProgram Manager to discuss other potential areas of work SCDD can performfor DOS after the Sonoma and Fairview Developmental Centers close.

o Continued to act for the Budget Officer directing critical SCDD budgetfunctions while the Budget Officer was on extended medical leave.

o Attended the State Leadership Accountability Act (SLAA) internal review

training session for the 2019 SLAA biennial risk assessment and report due12/31/2019.

o Worked with CDSS Telecommunications staff to successfully upgrade theheadquarters phone system from analog to Voice over Internet Protocol(VolP).

Personnel

o The Personnel Officer and staff provided the requested information to the

State Personnel Board for their human resources program compliancereview, which occurs every three years for all state departments. The reviewwas conducted December 17-20 and we will be notified of the results in the

next few months.

o Continued to work with the Executive Team and Personnel Officer on the

organizational structure and staffing of the Policy and Public Affairs Branchand the Planning and Regional Office Operations Branch and continued with

the recruitment of staff to support the new organizational structure. As of

January 7, 2019, Headquarters will be fully staffed with no vacancies.

o Attended the monthly Regional Managers meeting with the Executive

Director, Deputy Director of Planning and Regional Office Operations and theRegional Managers.

o In coordination with Executive Team, continued to address on-going newemployee training, manager and executive leadership development trainingand personnel needs.

23

o Continued working with the Personnel Officer and Deputy Director of

Planning and Regional Office Operations to discuss reclassifying all OfficeTechnicians stationed in the Regional Offices to the Program Technician

classification or equivalent classification that would provide them with anupward mobility pathway within the organization.

24

CAIIF 0 R NIA

Report from Deputy Director, Policy and Public AffairsNovember 13 - December 22, 2018

. Supported San Bernardino Regional Office to testify at Select Committee on Intellectual andDevelopmental Disabilities. Met with Assemblymember Frazier's office regarding hearingsand next session.

. Directed development of and provided input on SSAN and SAAC. Reviewed materials forSAAC and SSAN meetings. Provided Legislative Training to SSAN Members.

. Began to implement the strategic plan for SCDD's policy activities for 2019-2020. Councilmembers received contact information for their elected officials and a survey. Continuedhaving discussions with Member's offices and agencies about possible policy proposals.

. Directed development of new policy related materials for SCDD during 2019-2020. Currentlybeing designed by DSS.

. Coordinated presentation by DSS regarding SSI/Cal-Fresh roll-out at Council meeting.Followed-up with information regarding people with IDD in California.

. Met with Executive Officers of other Councils to discuss collaboration in 2019.

. Represented SCDD at meeting of the Lanterman Coalition.

. Presented to SCDD Regional Advisory Committee on SCDD's Policy Priorities for 2019-2020.

. Provided input into annual reporting of state plan and work plan submissions for federalreporting. Directed workplan development for policy related goals and objectives.

. Coordinated hiring and interviewing for the Public Information Officer

25

State Council on Developmental Disabilities January 2019

"^

State Developmental Center Clients' Rights Advocacy and Volunteer Advocacy Services

Developmental CenterPopulation

As of December 17, 2018

Total 407

Fairview 92

Canyon Springs 48Sonoma 0

Porterville 267

Fairview

CRA attended 5 IPPs, 8

transition meetings, 3human rights meetings,reviewed 5 denial of rights,conducted 7 trainings for staffand residents. VAS attended 1 3

transition meetings in thecommunity in addition to weeklyfollow ups. Increased restraintuse, medication dosage anderrors noticed. FDCadministration informed and

follow up measures taken.

Canyon Springs

Desert STAR unit admitted the

first client this reporting period.CRA participated in 8 IPPmeetings , provided 4 rightstraining to staff, 1 rightsinvestigations, facilitated 5meetings with court officials and7 self advocacy meetings

?

'^

Sonoma Developmental Center1871 to 2018

SCDD Volunteer Advocacy Services from leftto right: (front row) CarmenzaHarikian, Helen Schulte, Ross Long, VAS Coordinator; (back row) Susanne Sipple,Lisa Franco (former advocate), Myra Thomas, Michele Sloane, OT, and Robert Sharp(assistant to Ross Long). Not shown- Olga Kulikouskaya, advocate

Sonoma Developmental Center transitioned the last individual to

the community after 127 years of operation on December. 17,

2018. SDC was the oldest facility in California established

specifically for serving the needs of individuals with intellectual/

developmental disabilities. The facility opened itsdoorsto 148

residents on November 24, 1 891.

The facility underwent four name changes in its lifetime: California

Home for the Care and Training of the Feeble Minded (1891),

Sonoma State Home (1909), Sonoma State Hospital (1953), andSonoma Developmental Center (1986).

Holly R. Bins, CRAA/AS Manager holl . bins@scdd. ca. ov

26

State Council on Developmental Disabilities January 2019

Canyon Springs (cont.)

VAS attended 14IPPs, 6transition meetings in thecommunity, 2 human rightsmeetings, 4 denial of rightsreviews, 3 regional projectmeetings, 1 self advocacymeeting. VAS Coordinator andadvocates attended the

Disability Festival in PalmDesert along with clients fromcs.

Porterville

CRA attended 5 human rightsmeetings, 4 IPPs, 3 PeopleFirst/human rights meetings, 2escort reviews, 13 denial of

rights reviews, 22 courtappearances, 5 rights processmeetings, meetings for PIPprocess. VAS attended at PDCand in the community: 1 3 IPPs,6 transition meetings, 5 escortreviews, 24 court appearances,1 regional project meeting, 3self advocacy meetings, 2professional groups. VAStrained one new advocate.

PDC admitted 17 clients

impacted by the Camp Fire.VAS and CRAare collaboratingwith FNRC and regionalproject for placement options.

Holly R. Bins, CRA/VAS Manager

SCDD began serving individuals at SDC in 1998. In 2001, Sonoma

had 883 residents. Of those residents, 205 residents had a

personal volunteer advocate from SCDD at their side at each

individual program plan meeting. In 2001, SCDD staffed a Clients'

Rights Advocate at all DDS facilities. A CRA and VAS Coordinator

serve at the three remaining DDS facilities: Fairview

Developmental Center, Porterville Developmental Center, and

Canyon Springs Community Facility.

SCDD VASServices Today: The SCDD Volunteer Advocacy Services atSonoma Developmental Center has five Volunteer Advocates. VASprovides advocacy services to ninety former SDC residents. The

Volunteer Advocates will visit their consumers eight times in the

following year. The SDC Advocates have served on the VAS project forten to fifteen years. They bring their professional knowledge of theconsumer as well as their deep desire to see that individuals

experience greater quality of life in their new homes.

'. s'i.

"The Main Building" at Sonoma Developmental Center was

constructed in 1908 to replace the administration wing that was

severely damaged in the 1 906 earthquake. The building sen/ed asthe main administration building from 1908 to 1957. It was used as

the professional education center from 1957 to 1980.

DDS will conduct a warm shut down of the SDC property until June30, 2019. A collection of local stakeholders called SDC Coalition is

gathering information and building consensus on future land use.

holl [email protected]. ov

27

2018

yc AllF OR N I A

Clients' Rights Advocate and VolunteerAdvocacy Services

Developmental Center Closure UpdateJanuary 15, 2019

Stain Council on Oavlopnmtol Ditobilili-

Community Transition Numbers 2018

Jan Feb Mar Apr May June July Aug Sept Oct Nov Dec TOTAL number Dec 17of transitions tocommunity for

year

2018census**

CanyonSprings*

Fairview

Porterville*

Sonoma

0

3

4

15

1

3

3

14

0

5

6

13

0

2

5

18

1

8

2

13

0

6

1021

0

2

1

18

1

5

1

12

1

5

0

8

0

5

5

17

1

2

2

11

0

1

1

9

4

47

40203

4

92

2670

*Canyon Springs Community Facility and Porterville Developmental Center Secure TreatmentArea are not scheduled for closure. The Porterville Developmental Center General TreatmentArea is scheduled to close in 2021. Fairview Developmental Center is tentatively scheduled toclose by December 2019.**There are eleven total clients in STAR (acute crisis) units at Fairview, Sonoma and Canyon Springs

Developmental Center Closures - Past and PresentFacility Projected Closure Date and Land Use

Sonoma Developmental Center Closed December 17, 2018located in Eldridge

Fairview Developmental Centerlocated in Costa Mesa

Porterville Developmental Center

Canyon Springs Community Facilitylocated in Cathedral City

Lanterman Developmental CenterAgnews Developmental CenterSierra Vista Community FacilityCamarillo Developmental CenterStockton Developmental Center

December 2021 (unoffidally Oct 2019)

December 2021 (General Treatment Area only)(unofficially Sept 2019)

No proposed closure date

Closed 2014 (Site is now part of Cal Poly, Pomona)Closed 2009 (Sold to corporations and City of San Jose)Closed 2009Closed 1997 (Site is now Cal State Univ, Channel islands)Closed 1996 (Site is now part ofCal State, Stanislaus)

28

California Department of Public Health (CDPH) andCenters for Medicare &Medicaid Services (CMS)

Canyon Springs CDPH surveyed CS in August 2018. No conditions of participationout endin final fmdin s.

Fairview CMS settlement a reement extended to December 31 2019

Porterville CMS settlement agreement extended to December 312019; CDPHsurveyed the General Treatment Area in October 2018 - Noconditions of artici ation out endin final findin s

Sonoma CMS notified DDS of cancellation of settlement agreement withSDC on 05/13/2016. ICF units were decertified by CMS as of07/01/2016.

Porterville and Fairview Certified Unit Population ProjectionsThe projections below establish the maximum permissible client census eligible forfederal funding in the PDC and FDC certified units as of the first calendar day of thelisted month. Federal Financial Participation is only permissible for clients on the ClientList as of June 27, 2016. No Federal Financial Participation can be sought for thenumber of clients that exceed the projections below, even if the clients that exceed thecensus limits below are on the Client List as of June 27, 2016.

Monthly CensusMaximum Per

CMS Agreement

Jul 2016Jul 2017Jul 2018Jul 2019October 2019Jul 2020Jul 2021

Porterville DC -GeneralTreatment AreaICF105826139

180

Actual ICFCensus

1048057

Fairview DCICF

136106575

0

Actual ICFCensus

1289156

29

SCDD Clients'Ri hts Advocate CSA current observations inside the DC/CFCanyon Springs First STAR unit client admitted December 10 2018. CRA provided

initial service and transition collaboration with team.Fairview Increase in resti-aint use and medication dosage noted. Medication

errors increased this reporting period. FDC administration isimplementing increased training for medication staff. Float andregistry staff provided more training. CDPH survey conducted inOctober. No conditions of artici ation out.

Porterville The General Treatment Area is experiencing a dearth in veteranstaff as staff transfer to Secure Treatment positions. A lesserrestrictive o tion For females in the STA is needed.

Sonoma The last individual transitioned to the community on December 17,2018

SCDD Volunteer Advocacy Services (VAS) community transition current trendsThe VAS Project serves approximately 25% of the individuals residing in the DC/CFs. Avolunteer advocate or the VAS Project Coordinator provides direct advocacy services for twelvemonths ast lacement.

CanyonSprings

Fairview

Porterville

Sonoma

VAS Coordinator advocating for more enhanced communityoutings that are meaningful and based on individual interests.VAS continues to advocate for individuals in supported livingwith unmet medical and behavioral needs.

VAS Coordinator and advocates attended thirteen meetingswith clients for transition activity. Lack of volunteer advocatenotification of incidents involving community-basedindividuals continues.

VAS is serving seventeen individuals displaced from the CampFire. Advocates are collaborating with families and RegionalCenters on a path back to their home community or alternativelong-term housing. Advocates attended six transition meetingsin the community. Advocates noticing lack of consistentdelivery of services in the GTA due to seasoned staff securing

sitions in the Secure Treatment Area and other agencies.

Advocates attended forty-two transition meetings this periodboth at DC and in the community. Twenty consumerstransitioned this reporting period with the last consumerreceiving VAS services leaving SDC on Dec 14th. The lack ofavailable labor impacts the residential and vocational servicesin the community. Some residents placed in 2018 do not haveday program services in place. VAS will serve individuals inthe communi until December 2019.

30

/,yi';jr"'T"!

<_Bi3cfl>

^<o

. j^J i .> PROJECT OF THE STATE COUNCIL ON DEVELOPMENTAL DISABILITIES

www.scdd.ca. ov a

The National Core Indicators (NCI) are standard measures usedacross states to assess the outcomes of services provided toindividuals with intellectuat/developmentat disabilities (1/DO)and their families. Indicators address key areas of concern

such as employment, respect/rights, service planning,community inclusion, choice, health and safety. All responses

to the surveys are confidential. The aggregated data thatresults from NCI surveys are often used to inform strategicplanning, produce legislative reports, and prioritize quality

improvement initiatives.

Child Family SurveyMail Out Begins

Miait out for the Child FamilySurveys have recentlybegun. SCDD estimatesthat over 70, 000 surveys willbe mailed out to families with

children 3-18 years of age,living in the family home andreceiving at least one fundedservice from RegionalCenter.

This cycle, families will havethe option of mailing in theirpaper sun/eys or directlyentering their responseson-line.

To date, 1,072 surveys havebeen completed. Of thosesurveys completed, 368have been direct entries

from family members.»

For more information on the

Quality Assessment Projectand National Core Indicators

please go to:

www.scdd.ca. ov a

Scan QRCode to godirectly to

QAPWebpage

CAi. ffoir. iA

^E;tA.'

5'^ Cwa?<n C*Mri<!»>aiafcri tMcfeifew

QA CoordinatorRegional Center Assignments

Deborah KindleySupport Staff: Theresa LadaoFar Northern Regional CenterNorth Bay Regional CenterRedwood Coast Regional Center

Ron Usac . Angel WileySupport Staff: Valerie BuellGolden Gate Regions! CenterRegional Center of the East BaySan Andreas Regional Center

George LewisSupport Staff: Marigene Tacan-ReganAlta California Regional CenterCentral Valley Regional CenterValley Mountain Regional Center

Tom Hamlett . Jenny VillanuevaSupport Staff: Dinah Pio de Roda . Marina BchtikianEast Los Angetes Regional CenterFrank D. Lanterman Regional CenterHarbor Regional CenterNorth Los Angeles Regional CenterSan Gabriel Pomona Regional CenterSouth Central Los Angeles Regional CenterWestside RegionaS Center

Nancy DowSupport Staff: Suzie SzewiolaRegional Center of Orange CountySan Diego Regional Center

Carol Nakamura-RobinsonSupport Staff: Valarie Maciastaland Regional CenterKern Regionai CenterTri-Counties Regional Center

If you have questions about the QA project, email QAProject@sedd. ca.gov or visit www.scdd. ca. ov31

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Child Family Surveys 2018-2019Completed To Date

KRC

TCRC

ACRC

RCRC

CVRC

RCEB

SCLARC

SGPRC

swc

FOLRC

NBRC

VMRC

GGRC !

HRC

IRC

ELARC

FNRC

WRC

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50 103 150 200 250 300 3M

To view reports of past cycles as well asRegional Center specific reports, go to:

https ../Aflww. dds. ca.gov/QA/

32

JANUARY 15, 2019



CO/ Waiver Request

Action Recommended

Approve David DeLira's waiver request provided he does not participate inany decision that impacts the services his wife provides as a vender ofGGRC

33

COUNCIL AGENDA ITEM DETAIL SHEET

ISSUE: Regional Center Conflict of Interest (COI)

BACKGROUND: Codified in Welfare and Institutions (W&l) Code sections4500 et seq., the Lanterman Act requires regional centers to submit conflictof interest statements and proposed resolution plans to the Department ofDevelopmental Services (DDS) and the Council. 1 The Director of DDS maywaive conflict of interest requirements of a contracting agency (i. e., aregional center) with approval of the State Council.2

The Council is being presented with information reviewed under theexisting SCDD criteria and process approved by the Council. Thisapproach provides for staff analysis of regional center conflict of interestissues.

David DeLira, Board Member Golden Gate Regional Center: DavidDeLira is a member of the Board of Directors of the Golden Gate RegionalCenter (GGRC). Mr. DeLira's wife, Kathryn Steinbach, providestherapeutic services to individuals in GGRC's Early Start Program. GGRChas advised that Mr. DeLira was not involved in the approval of anycontract involving the services his wife provides as a vendor of GGRC, nordoes he have the authority to do so. However, given that Ms. Steinbach isa GGRC vendor, Mr. DeLira is submitting a plan to mitigate the potentialconflict of interest.

GGRC has a public member recruitment and appointment process,which is subject to public review and engagement. According the GGRCBoard's bylaws, potential new members are solicited by the Board includinga minimum communication with parenVfamily organizations, groupsrepresenting developmental disabilities and community organizationsrepresenting groups underrepresented on the Board. Election of Boardmembers is made based upon a review of the candidate's application bythe Board Operations Committee and a personal interview with the BoardOperations Committee and Executive Director. After attending a minimumof two regularly scheduled monthly meetings, the proposed candidate ispresented by the Board Operations Committee at a regular meeting of theBoard. Voting on the proposed candidate may occur no sooner than thenext noticed meeting of the Board of Directors; and a majority vote of the

1 Welf. & Inst. Code § 4626, subd. (/).2 Welf. & Inst. Code § 4628.

34

Conflict of InterestDavid DeLira

Page 2

members present at a meeting duly held at which a quorum has beenestablished is necessary for appointment of the proposed candidate to theBoard.

Mr. DeLira has not previously requested a COI waiver from the Council.

DISCUSSION:

Conflict of Interest: Department of Developmental Services (DDS)Regulation3 54520 provides in part that a conflict of interest exists when theboard member, or a family member of a regional center board member,holds any of the below positions for a provider:

(1) a governing board member;(2) a board committee member;(3) a director;(4) an officer;(5) an owner;(6) a partner;(7) a shareholder;(8) a trustee;(9) an agent;(10) an employee;(11) a contractor;(12) a consultant;(13) a person who holds any position of management; or(14) a person who has decision or policy making authority.

Mr. DeLira's conflict of interest arises because his wife is a vendor ofGGRC. 4 To address the conflict, Mr. DeLira submitted the followingConflict of Interest Resolution Plan (Plan):

1. As a Board member, Mr. DeLira will not make any recommendations,participate in any discussion or vote on any vendor contract withGGRC regarding therapeutic services provided to any individualsGGRC serves;

3 DDS' current regulations are published at California Code of Regulations, title 17, § 50201 et seq.4 Cal. Code Regs., title 17, § 54520(a)(10).

35

Conflict of InterestDavid DeLiraPage3

2. Should the issue of Early Start specialized therapeutic services ariseduring a GGRC Board meeting, Mr. DeLira will excuse himself fromthe room;

3. Mr. DeLira will not promote his wife's services to GGRC staff or anyindividuals who receive services from GGRC;

4. Mr. DeLira will not discuss GGRC business, activities, or personsserved by GGRC with his wife;

5. Mr. DeLira will not access any files maintained by GGRC relating tohis wife's vendorization, nor will he access any files relating to otherproviders or specialized therapeutic services;

6. Mr. DeLira will not participate individually, or as part of a group, in thepreparation, presentation, formulation, or approval of reports, plans,policies, analyses, opinions or recommendations pertaining to hiswife, her services to GGRC, or to any other GGRC vendor.

Mr. DeLira's membership on the GGRC Board of Directors appears to helpGGRC meet the composition requirements set forth in W&l Code section4622, and the proposed COI Resolution Plan mitigates concerns over aconflict of interest that could result based upon his wife's status as a GGRCvendor. Accordingly, the staff recommendation is to approve Mr. DeLira'swaiver request.

COUNCIL STRATEGIC PLAN OBJECTIVE: None

PRIOR COUNCIL ACTIVITT: N/A

STAFF RECOMMENDATION: Approve Mr. DeLira's waiver requestprovided he does not participate in any decision that impacts the serviceshis wife provides as a vendor of GGRC.

ATTACHMENT: Mr. DeLira's COI reporting statement and resolution plan.

PREPARED BY: Legal Counsel Adam Lewis, December 26, 2018.

36

-At.

Golden Gafce Regional CenfcerSupporting people with developmental disabilities sin 1966

September 4, 2018

State Council on Developmental Disabilities1507 21st Street, Suite 210Sacramento, CA 95011

Attn: Aaron Camithers, Execudve Director

Re: Conflict of Interest, GGRC Board Member, David De Lira

Dear Mr. Canuthers,

Enclosed please find the following documents regarding Ae potential conflict of interest ofGGRC Board member, David De Lu-a.

Request for Waiver of Potential Conflict of InterestProposed Conflict of Interest Resolution Plan (letter Smm Mr. De Lira)

. Conflict of Interest Reporting Statemait

Tliese documents have been sent to the Department ofDevelopmeDtaI Services for review.

TTiank you for your consideration in this matter.

Sincerely

Kafhryn CarpenterExecutive Assistant

End.

ec: Allan Smith, Department of Developmental ServicesOGRC Executive CommitteeDavid De Lira, GGRC Board of Directors

1355 Market Street, Suite 220

SanFrandsco, CAS410S

Belong, Contributep Thrive

3130 ta Selva Street, Suite 202

San Mateo, CA 94403

37

400) Civic Center Dri*?e, Suite 310

SanRafael/CA94S03

tesio I C- iSupporting people with developmeMal disabilities since 1966

.^

September 4, 2018

Allan Smith

Department of Developmental ServicesRegional Center Operadons Section1600 Ninth Street, Room 320 (MS 3-9)Sacramento, CA 95814

Re: Request for Waiver of Potential Conflict of InterestGGRC Board Member David De Lira

Dear Mr. Smith.

GGRC Boani member David De Lira has disclosed a potential conflict ofmterest underCalifornia Code of Regulations, Title 7, sections 54500, et seq. He is requesting a conflictwaiver.

Nfr. De Lira's wife, Kathryn Steinbach, recently became a provider of therapeutic services topersons served in GGRC's Early Start Program.

As a GGRC Board member, Mr. De Lira has not had an opportunity or authority to qyprove anycontract that would involve Ms. Steinbach or her services. However, in light of the potentialconflict of intCTest raised by her involvement, he has prepared a pkm to avoid or mitig&te thepotential conflict (See proposed conflict resolution plan, enclosed).

The Board Chairpereon, with support ftom the remaining Board mCTttbers, shall be responsiblefor ensuring that the conditions stated in the plan are app^ed and monitored. This letter wiA itsattachments, serves as a Request for Waiver as prescribed by California Code of Regulation,Title 7, section 54333.

Please contact Executive Director, Eric Zigaian, if you have any questions concerning thismatter.

7355 Market Street, Suite 220San F»anclsco, CA 94103

(4151546^222

Belong, Contribute, Thrivewww.ggrc.wg

8130 ta Sehn Street, Suite 202SanMateo, Cfe9440S

(650)574^232

38

4G Ovfc Center Drive, Suite 310San Rafaet, CA 94903

(41St 446^000

Thank you for your assistance,

Sincerely,

ERIC ZIGMANExecutive Director

-^/^/^

PAULGOLDSMTTHChairperson, GGRC Board of Directors

End.: Conflict of Interest Kspoit Statement - David De Lira, June 19, 2018Koposed Conflict of Interest Resolution Plan - David De Lira

ec: State Council on Developmental DisabilitiesSheradea Nicolau

1355 Martet Street, Suite 220San Francisco, CA94K8

(415l54fr9222

Belong, Contribute, Thrivewww.ggrc.org

3130 La Selwa Street, Suite 202San Mateo, CA 94403

(6501S74-S232

39

4000 Ovtc Center Drive, Suite 310San Rafael. CA 94803

(41S1446-3000

Date: August 29. 2018

To: GGRC Board of Directors andEric Zigman. Executive DirectorGolden Gate Regional Center1355 Market Sto-eet, Ste. 220San Francisco, CA 94103

Re: Conflict of Interest Resolution Plan - Board of Directors Member David De Lira

Dear Board of Directors and Mr. Zigman;

I was appointed to Golden Gate Regional Center's Board of Directors on July 1st, 2014, as arepresentative from San Mateo County.

On June 19, 2018, I completed a Conflict of Interest Report Statement that disclosed a potentialconflict of interest I may have as a member of the Board of Directors. The purpose oftiiis letter isto propose a plan to resolve the potential conflict, and to seek approval of a conflict waiver.

Recently, my wife, Kathryn Steiabach, became a GGRC vendorized provider of therapeutic servicesto persons served in the Early Start Program. This issue appears to be a potential conflict of interestAs a resiilt, I propose the following plan to avoid and/or mitigate any conflict:

1. I do not currently, nor will I in the future, make any recommendation, participate in anydiscussion or vote on any vendor contract with GGRC regarding therapy services provided toany persons served;

2. Should the issue of Early Start specialized therapeutic services arise during the course ofa GGRC Board of Directors'meeting, I will excuse myself from the room;

3. I wUI not promote my wife's services to GGRC staff or persons served;4. I will aot discuss GGRC business, activities, or persons served with my wife;5. I will not access any files kept by GGRC relating to my wife's vendorization, nor will I

access any files relating to other providers of specialized therapeutic services;6. I will not participate individually, or as part of a group, in the preparation, presentation,

formulation, or approval of reports, plans, policies, analyses, opinioiis orrecommendations pertainmg to my wife, her services, or to any other GGRC vendor.

40

GGRC Board of DirectorsPage 2

I believe that this plan will resolve or imtigate any perceived or potential conflict of interest.

Thank you for your assistance.

iDavid De LiraMember, GGRC Board of Directors

ec: GGRC Board of Directors

41

, StateorCtBbnte^wUimil Human SenricctAaency Depaitmail of Owetopmental Sanices

CONFLICT OF INTEREST REPORTING STATEMENTOS6016(Rw.08/20»I

The duties and responsibUities of your position with the regional center require you to fite this Conflict of InterestReporting Statement. The purpose of this statement is to assist you, the regional center and the Department ofDevetopmental Seroic^ (DOS) to identify any retattonshipsi, posittons or chcumstances Invohrii^ you which may create aconflict of Interest between vour regional aoter duties and obllgattans. and any other financial interests and/orrelationships that you may have. In order to be coniprehensive, this reporting statement requires you to provideInformation with respect to your financial interests.

A "conflict of intenert" generally exists Vyw have one or more pB isonal. business. or finandat interests, or relattonshlpsthai would cause a FKUonabte person with knowledge of the relevant facts to question your impartiaBty with respect toyour regional center duties. The spedflc drcumstanas and relatftmships whfeh create a conflict of Intamst are set forthIn the CaUftmita Code of Regubtfons, title 17, sections 54SOO through 54530. You should »eview these provMons tounderstand the spea'fic ftnandal Interests and »ebttensh4u that can create a conflict of interest.

PJease answerthe foltaimng questions to the best of your knowledge. If you find a questton »equires further explanationand/or there is not enough space to thoroughly answer the questfan, please attach as many additional sheets asnecessary, and refer to the questton number n®rt to your answer. If the regional center identifies a conflictyou. It wm be required to prepare a conflict resolution plan. Some relevant definitions have been provided In thefootnotes to assist you in fespondhig to this statemefrt.

You are required to file this Reporting Statement wfthin 30 days of begbinEng your emptoyment with the ngtonal centeror from the date that you are appointed to the regional center board or advisory committee board. 0 are'thenrfiqufmd to flte an annual Reporting Statement by August 1st of eway year white you temabi emptoyed withthe^tonaicenter or white you are a member of the regional center board or advisory committee board. You must also'fite'aRepoiting Statement within 30 days of any change in your status that could result In a conflitt of interest.arcumstances that can constitute a change In your status that can require you to file an iare described betow in ftmtnote one.

A. INFORMATION OF REPORTING INDtVIDUAL -~

Name I . & IFA/ Regtonal Ctenter:Regional Center PosIUon^TMe: ^Covemlng Board Member

0 Vendor Advisory Comminee a'ttmg on Boarda Contractor Q Agent

Reporting Status: GÂnnual 0 New Appointment (date):a Change of Status'

If a change in status, date and circumstance of change in status:

^c- «n 1rffuf\isKo

a Executhê DirectorQ Employee0 Consultant

ftfAf-J fê^t^

A^<4 . A^^

42

C'Gowndi^ Bead MunbarOMMdnrAdittwymBoBdQeisattmClmasrOEn»teyB en»w

Do you or^ family member* work for any enttty or oiganlatton that isa regtonal center provider or contractor?a yes STno - if yw, provide the name of the entity or organization anddesoibe whrt seivices it provfttesfortheregional center or regional center tunsumers. ff the provider or contractor Is a state or tocal governmental entity,prewide the spedfic name of the state or tocal gowmmental enthy and describe your b duties at tile state or tecalgowmmental entity.

3' ?o-??tL°r. ! fa^?y menêr own. ?r hoM a p°slttona ffi an «snfty w oi»aftlatton that is a regional center provider orcontlactor? r ves a"° ~lf w\provide the name of tbe erttty or ownteatton, dtoscdbB wdtat'swi^'itprov?es fw ?e re«ton8'wntw w R8to,"f "."tef conyiniers, and ascribe vouror you{ famtlvy^n^r's^ficKIintwS {<y5(?yaTCJC ^h^rt ^^^/K^v^^'(?ya?7r

6lh^ 'J 12.211 f, j, ft^/y,^^^C^KC. 1 . fyr^1^^ 6LiPAkre^livlil^t W?6G^ ^^ W^Xt fit fi<&»^ M^l»î ?(lCl^n ^ftdî'C+o f^<f S^<' ^tr»knnt

4' Areâ^l<^lcentera(lristlry»'"'"'tte«'6oa»dm«nbef? dyes Bô-If yes. an you a member of thegow"ling_board w owneror emptoyeeân entity or oiganlzaUon that iMWides services to the ntfonaTcanterorn^fonal center consumws? 0 yes GTno - if yes. provida the name of the entity or oiganlatlon'and'dwoibewhat sewces it provides for the regtonaf center or nônal center consumera.

s' tfyou are a tfwwl "nter a(lviso'Y committee board member and answered yes to all the questtons in Questton 4l^?-8"v_*?ft11! fouowin8, ap^v toyou: {a}. ?re v01? ?n officer u? the reglwal center boaid^b) do'youvoteonpupAadngaeivicesfrom a regionalwnterjwovideisorfcldoyouvotoon matten where voumifiiithaveinterest? Qyes Q no-If yes, ptease explain.

* Famflynwidwtocteua ymir»(x>uw, dcmwfe»»artner. jv^^y^^^»S!^S. a^^S^^X^^S^^L^W?^rt^S?^^lwl!tB.PatiuoB.8wlttllrtrmwmNt^»n" ora <unUym«nibBr(» . dhietor,y^l5^rtm<^Fafl>B'to"^'^"&'^^coriBctoflnlmrtto. WBlmalcmUfpnxid »w5»^m~^W(^CfS»^vi&^X'^2X'^â^1

PW2pf<

43

VSawnAtB Saaid Membera Vendor Advtewy on BoardQExecuUKBlMmdcra EnwteymrfOthw

6. Do any of the dBCisions you make when perfonntng your job duties with the regional centar have the potential tofinandaKy benefit you or a family member4 ? (Note: Governing board members do not have to answer "yeT to thisquestion i^the flnancial benefit wourd be available to regional center consumers or thelrfamlKes generaHv}.Qya QTno-If yes. please explain.

7. Are you resynsibte for negotiating. making, * executing or approving contracts on behalf of thecenter? Byes Qno-iyyes. pteaseexpIauB . ^r

A^ fc ^ffWAi^ ÔA^^fi^^ ~^ ^ ^fftâu /6V6^ff fo 6t^^f9^k CL^ CQf\hî'h 6^ fife^(/ffu or ^»r& -

8. Do you have a financial interest in any contract* with the regional center? 0 yes fifno - if yes. imake, execute or approve the contract on behalf of the regional center? Q yes 0 no - if yes,' pteaMexpte'ln""'

9. SO "yJ?f.y?"r^!!y_?nemb?s h8ve a finandal j"terest in any contract with the regional center? êsIf yes, dM you negotiate, iIf yes. Ptease explain.

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11. Your jo^^ttes require wu to actj"thebwt lnterests ofthere8to"a'""ter and regional center consumere. ihaw any ciTcumstencesor other flnandal inten-sts not already discuaed.in the best interests of the regional center or Its consinriers? D yes irfno-t

B. ATTESTATION

L-,f-. ^Jf-L^-i^ J/cf ^ . <prhlt name) HEREBV CONHRM that1 have read and understand theregional center's Cbnfllct of Interest Policy and that my responses lstatement. mcompfeteL. tf"e'a"<l correct. to the best of my information and belief. I agw that Ffl beu>me"a'v^re"oBfanvA"f°Tlati°n thrt mi8htjndjcate d*at thfc stotement is not accurate or that t haw not complied wfth'the"center's conflict af lnterest pol v or the aPPlhabte conflict of Interest laws. t will ootiiv ttindhndua^iinmedtately. I unitersiand that knowngly providing false information on tf.bCBnflictofTnteiwtl

' in an amount up to fifty thousand doltare ($50^00) pursuant to WelfewandInstlhittons CeuSe secBon 4626.

Signature ^. /^^Date 01 ?

INTEIttUU. USE ONLYDale this Statement was received by ReviewerThe reporting Indhridual ^^sadoes not have a a PrKC"t ^potenUal. confifet ofhitered^rSignature of D gnat d view

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45


46

JANUARY 15, 2019



2018 Program Performance Report

Action RecommendedApprove the 2018 Program Performance Report.

47

COUNCIL MEETINGAGENDA ITE DETAIL SHEET

ISSUE: Program Performance Report - Draft

BACKGROUND: The Administration on Intellectual and DevelopmentalDisabilities (AIDD) requires State Councils to prepare a ProgramPerformance Report (PPR) outlining outcomes/outputs accomplished incarrying out the activities of our 2017-2021 State Plan. The Reports aredue to AIDD by December 31st of each year for activities performedOctober 1 through September 30.

ANALYSIS/DISCUSSION: Staff presented the draft of the PPRoutcomes/outputs and highlights to the State Plan Committee on December13, 2018 for approval prior to it being presented to the full Council inJanuary 2019. White the PPR is traditionally due by December 31 of eachyear, for the past two (2) cycles, the database platform has not been opento SCDD for input. Beginning with 2016-2017 and consequently 2017-2018, SCDD has awaited AIDD's finalization of the new reporting platformso while the report is completed, it has not yet been officially submitted toAIDD. AIDD will be having two (2) upcoming webinars on the newreporting platform (both in January 2019) to introduce how these past two(2) years will be put into the system. Until that time, AIDD has asked us touse a Word template that is to line-up with the new platform for reporting.We provide you this Powerpoint to highlight the accomplishments of eachobjective area as a draft of the PPR.

COUNCIL STRATEGIC PLAN OBJECTIVE: N/A

PRIOR COMMITTEE ACTIVITY: On December 13, 2018 the State PlanCommittee was presented the draft of the Program Performance Report(PPR) Powerpoint for acceptance, input and/or suggestions. The StatePlan Committee voted unanimously to move the 2017-2018 PPR forward tothe full Council for approval.

48

RECOM^ENDATION(S): Approve the draft of the 2017-2018 ProgramPerformance Report.

ATTACH ENTS(S): None

PREPARED: Vicki Smith, January 2, 2019

49

12/26/2018

2017-18Program Performance Report

Highlights

Californians the Council Serves

39,810,000people living in

California(at1/UZ018)

328, 466people served byRegional Centers

(at9f30;18)

628, 998people in

California with1/DD-federal

definition

(at1/1;2018)

people in StateDevelopmental

Centers(at9/30/1t)

50

12/26/2018

Goat 1 (Setf-Advocacy): Califomianswith 1/DD and their familiesreflecting the diversity of the state will have increased informationand supports to advocate for civil and service rights to achieveself-determination, integration and inclusion in all areas ofcommunity life,

Objective 1.1

The Council will increase knowledge about self-determination andperson-centered planning by monitoring, supporting and activelyengaging in the implementation of the Self-Determination Pro ram.

2017-18 Federal Fiscal Year in Obj. 1.1

Educated in erson throu h trainin events outreach and informational materials:

* 29 (English) and 12 (Spanish) trainings on Person-Centered Planning to 1,833 people* 65 (English) and 13 (Spanish) trainings on Self-Detennination to 2,063 people* 3,582 pieces of informational material on POP distributed

7,826 pieces of informational material on Self-Determination* Supported 2 Statewide SDAC Meetings* Supported 120 Local SDAC Meetings, reaching 1,604 people

Sam Ie Events:Conexiones Educativas Self-Determination Mini-Conference

* Wrightslaw from Emotions to Advocacy Conference with Pat HoweySupported Life Conference

* Family Voices Conference* CHOICES Conference

Electronic Information Distribution: 150 articles to 125, 833 peopleTechnical Assistance: 221 occasions impacting 471 people

}

^,IN

^

Grant-Funded Pro'ect; Supported Life: Peer Advocacy Connection published interviews with 40college students and/or professionals with 1/DD. By the end of July, the 5-video series had beenbroadcast 34 times and viewed by 4, 400 people.

51

12/26/2018

Goat 1 (Self-Advoeacy): Califomians with 1/DD and their familiesreflecting the diversity of the state will have increased informationand supports to advocate for civil and service rights to achieveself-determination, integration and inclusion in all areas ofcommunity life.

Objective 1.2: The Council will remote self-advocates inleadershi roles in statewide networks a) through the strengtheningof a statewide self-advocacy organization and by supporting self-advocates; b) within cross-disability leadership coalitions; and c) intraining other self-advocates to become leaders.

2017-18 Federal Fiscal Year m Obj. 1.2Educated in erson throu h events outreach and informational materials and events:

SSAN and SAAC convened 3 meetings with more than 300 self-advocates (14 additional meetingswere held for 382 self-advocates regarding planning and curriculum development)SCDD Supported 140 local self-advocacy groups meetings with more than 1,923 self-advocatesthroughout CaliforniaSCDD Engaged 36 Partners In Policymaking graduates to share their story with policy makersreaching 3"0f people

14 trainings to 337 self-adyocates on training-for-trainers leading to 17 peer-led framings reaching431 additional self-advocates

Provided 13 trainings on Boardsmanship to more than 3,889 people regarding inclusion of familyand self-advocates'on policymaking bodies Aciivi^ sEponinc

Su orttoSelf-Advocac bodies;SSA : Support to 0 in ividuals in 45 meetings

SAN outreach to 2,385 self-advocafesSAAC: Support to 192 individuals in 6 meetings

SAAC outreach to 67 sdf-advocates

Electronic Information Distribution:

236 articles to 185,712 people

Technical Assistance:128 occasions impacting 212 people

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52

12/26/2018

Goat 2 (Employment): Califomians with 1/DD and their familiesreflecting the diversity of the state will have increased information toobtain competitive, integrated employment.

Objective 2. 1: The Council will increase and promote culturallycompetent strategies and resources that facilitate com etitiveinte rated em lo ment CIE of people with 1/DD.

'-^EMPLOyED2017-18 Federal Fiscal Year in Obj. 2.1

Educated in rsonthrou h events outreach and informational materials:

* 35 events on CIE peaching 5,210 people* 35 trainings on CIE reaching 1, 133 people

18 regional cross-disdplinary collaboratives created for 249 individuals and agencies to focus on CIE* 105 quarteriyregiona!cross-disciptinary collaborative meetings with 1,041 individuals and agencies* 7 Emptoyment Firet Committee meetings held

28 CIE opportunities for 73 self-advocates were supported through SCDD's 12 regional offices

Sam Ie Events:

JobtoberFestCoachella Valley Employment SummitSan Diego Workforce ConferenceAbility FaireCollege of the Sequoia's Comm Resources & Employment Faire

Electronic Information Distribution: 155 articles to 37,652 peopleHardco Information Distribution: 31 art'des to 10,124 peopleTechnical Assistance: 214 occasions to 2,679 people

Grant-Funded Pro'ect s:

Hope Services - Project Search in Monterey CountyEasterSeals Southern California - Discovery Fidelity Scale for Customized Employment- 15 ' field-testing in the

Nation

53

12/26/2018

Goal 2 (Emptoyment): Califomians with 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information to obtain competitive, integratedemployment.

Objective 2.2 The Council, in consultation with its federalpartners, will increase identification, advocacy and/or sponsorship oflegislative, regulatory, policy, procedure and/or practice changes toincrease CIE for people with 1/DD.


Educated In rsonthrou hie islativechan e and direct contact:Provided 25 outreach activities to 19,026 people

Meetings:Convened 3 Legislative and Public Policy Committee (LPPC) meetings12 meetings with policymakers, reaching 132 oeoole4 EFC meetings

Data and Publications:1 EFC report distributed to 100 peopleUpdated Data Dashboard on SCDD Website and reached 146 people

Le istath/e Bills:4 monitored2 took a position/sponsored

Technical Assistance:

occasions, impacting 24 peopler,

54

12/26/2018

Goal 3 (Housing}: Californians with 1/DD and their familiesreflecting the diversity of the state will have increasedaccess to affordable, accessible, safe, and fully integratedhousing that provides choice and flexibility regarding whereand with whom they live.

Objective 3.1 The Council will work with housing entities toincrease the develo ment and/or rovision of communihousing for people with 1/DD.

2017-18 Federal Fiscal Year in Obj. 3.1Educated in ersonthrou h events outreach and informational materials:

4 trainings reaching 113 people/organizations

Sam Ie Events:Joint Training with Housing Authorities for Self-Advocates and familiesPresentation at San Francisco Bay Area Autism Society Annual ConferenceState Steps: Unpacking the Housing Bill Package

Stakeholder Coalitions:33 quarterly stakeholder meetings to increase fully integrated housing reaching 1,013 peopleParticipate IR 30 regional DFEH/HUD or Housing Authority meetings with 885 people

Electronic Information Distribution: 28 articles to 20,298 peopleTechnical Assistance: 32 occasions, impacting 102 people

s

T?'

Grant-Funded Pro'ect: Lanterman Housing Alliance: StatewideStrategic Framework: Supportive Housing for People withDevelopmental Disabilities,

55

12/26/2018

Goal 3 (Housing): Catifornians with 1/DD and their familiesreflecting the diversity of the state will have increased accessto affordable, accessible, safe, and fully integrated housingthat provides choice and flexibility regarding where and withwhom they live.

Objective 3.2. The Council will identify and decrease barriers tohousing for people with 1/DD.


Educated in erson throu h trainin s events outrea h and informational materials:6 trainings on HCBS FinaLSettings Rule reaching 277 people5 trainings on Housing in Transition and IPP planning to 84 people10 trainings on Financial Planning/Public Housing entitlements to 118 people

Rural Housing Development Corporation presentation* Living Options Conference for Farsi-speaking families* Participated on Community Placement Plan RFPs with local Regional Centers

Presentations on HCBS Final Settings Rules with local regional center vendors

Electronic Information Distribution: 78 articles to 79,884 peopleHardco Information Distribution; 40 articles to 9, 215 peopleTechnical Assistance: 114 occasions to 471 people

56

12/26/2018

Goal 3: (Housing): Californians with 1/DD and their familiesreflecting the diversity of the state will have increasedaccess to affordable, accessible, safe, and fully integratedhousing that provides choice and flexibility regarding whereand with whom they live.

Ob|ective 3,3: The Council, in consultation with its federalpartners, will increase identification, advocacy and/orsponsorship of legislative, regulatory, policy, procedure and/orpractice changes to increase housing for people with 1/DD.


Educated in ersonthrou hie islativechan e and direct contact:

14 articles distributed reaching 10,993 people

Testified in Hearin stoPolic makin Bodies:

4 times to 199 people

Le islative Bills:0 monitored

0 took a position/sponsored

Meetin s:18 meetings with policymakers, reaching 318

Technical Assistance: 62 occasions impacting 56 people

8

57

12/26/2018

Goaf 4 (Health & Safety): Californians w/ 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information to access health, public safety, andrelated services that meet their needs and health carechoices.

Objective 4.1. The Council and its federal partners willincrease knowledge and awareness for eo Ie with 1/DD andtheir families about the availability of and access to health andpublic safetv-related services and supports.

2017-18 Federal Fiscal Year in Obj. 4.1Educated in erson throu trainin events outrea h and informational materials:

29 Health/wellness events or community faires reaching 2,908 people35 trainings about health/access to care issues reaching 1,204 people24 trainings on Emergency Preparedness/response/recbvery reaching 806 people23 trainings on Personal Safety (incl. Bullying) reaching 2,636 people

TfllentaTHearfh Services Oversight Accountability* Various Health and Wellness community Faires* Disability Sports Festival - CSUSB* Live Well-'San Diego* End-of-Life Planning* Train-the-trainer Active Shooter & Emer. Preparedness

Feeling Safe, Being Safe _*

ilated Material -124 articles to 98,458 peoplePublic Safety Related Material - 63 articles to 51,868 people

Information Distribution:salth-Retated Material -16 article

Public Safety Related Material - 42 articles to 9,4

Technical Assistance: 319 provided, impacting 4, 128 people

58

12/26/2018

Goal 4 (Health & Safety): Californians w/ 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information to access health, public safety, andrelated services that meet their needs and health carechoices.

Objective 4.2: The Council, its federal partners, and self-advocates will increase information and training to lawenforcement court ersonnel health care roviders and/orother care rofessionals about disability-related health andsafety


Educated in onthro h events outreach and informational materials:64 trainings reaching 2,243 professionals

Sample Events:* Cn'sis Inten/ention Team (CIT) Training (Multiple)* LD-37 Training to Academy recuits (Multiple)* LD-37 Training to FTO's (Multiple)* Training to Licensing ProgramAnalysts (LPAs)

with Community Care Licensing (Statewide) 1CalOPTIMA Collaborative ly-

Self-registralion for People with Special Needs and Law Enforcement

Commun" Collaboratives-

27 Community Collaboratives met 46 times with 494 participants providing technical assistance on 14 occasionsimpacting 38 people

Electronic Information Distribution: 23 articles to 20, 201 peopleHardco Information Distribution: 10 articles to 3,150 peopleTechnical Assistance: 40 occasions, impacting 77 people

1059

12/26/2018

Goal 4 (Health & Safety): Californians w/ 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information to access health, public safety, andrelated services that meet their needs and health carechoices.

Objective 4.3: The Council, in consultation with its federalpartners, will increase identification, advocacyand/orsponsorship of legislative, regulatory, policy, procedure and/orpractice changes to increase accessibility to health care andpublic safety services for people with 1/DD and their families.


Meettn s:

26 meetings to advocate for health services with 8,571 people7 collaborative partner meetings on health/public safety to 180 people

Electronic Information Distribution:26 distributions to 23,077 stakeholders

Technical Assistance:

provided 27 occasions, impacting 110 people

Le islative Bills:Monitored: 4 Health and 5 Public SafetyPosition/Sponsor: . 2 Health and 2 Public Safety

yJLJ.

8 SAFETY'MATIEfiS

1160

12/26/2018

Goal 5 (Early Intervention, Education, Transition & Post-Secondary Education): Californians with 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information, in order to obtain inclusive educationservices throughout the lifespan.

Objective 5. 1: The Council and its federal partners willincrease knowledge and awareness of develo mentalmilestones and intervention services for families of youngchildren and professionals.


Educated in rsonthrou htrainin events outreach and informational materials:

Participated in 42 Community Collaborations with 484 peopleProvided 28 trainings for 361 people about early identification/intervention support/servicesand/or transition into school

Provided 3 trainings to medical, childcare and/or Early Start professionals reaching 152people

Sam Ie Events:

* Super Saturday Staff Development Day* IEP Trainings for School District Staff* Early Start Symposium(s)

NICU Symposium(s)Child Care Inclusion Symposium(s)Native American Networking Collaborative ffif»

(

Electronic Information Distribution: 41 articles to 31,890 people

Hardco Information Distribution: 24 articles to 3,080 peopleTechnical Assistance; 87 occasions, impacting 1,588 people

»

..\

K'-S^

lyar lyw,

6112

12/26/2018

Goal S (Early Intervention, Education, Transition & Post-Secondary Education): Californians with 1/DD and theirfamilies reflecting the diversity of the state will haveincreased information, in order to obtain inclusive educationservices throughout the lifespan.

Objective 5.2: The Council, in consultation with its federalpartners and other stakeholders, will increase awareness andknowledge for families and self-advocates about theavailability of and access to services which support inclusiveeducation.


Educated in erson throu h trainin events outreach and informafional materials:

* 83 meetings with collaborative partners and 1,613 people* 82 trainings on disability awareness/educational self-advocacy reaching 1,802 people* 21 trainings provided for parent-peer advocacy training (for parent-to-parent) support in the

educational system reaching 684 parents

Sam Ie Events:

IEP Meetings: How they Work and How to Get What you Need (Parts I & II)TIGER (Training Individuals for Grassroots Education Reform) TrainingIEP Basics and Advanced Courses



Hardco Information Distribution:


Technical Assistance:482 occasions, impacting 1,737 people

1362

12/26/2018

Goal 5 (Early Intervention, Education, Transition &Post-Seeondary Education): Californians with 1/DDand their families reflecting the diversity of the statewill have increased information, in order to obtaininclusive education services throughout the lifespan.

Objective 5.3: The Council, in consultation with itsfederal partners and in collaboration with educators andstakeholders, will increase information and technicalassistance to prepare and empower students, familiesand professionals in developing individualized transition)lans that lead to employment, post-secondary

education &/or independent living options &opportunities.


Educated in ersonthrou htrainin events outreach and informational materials:15 trainings to educators and stakeholders reaching 366 people

* 67 collaborative meetings to develop training resources with 845 partners* 8 trainings to self-/family-advocates'on the student-led lEP/PCP/lTP for 282 peopleSam Ie Events:

Post-Secondary Educational Opportunities for Students with a Disability Conference* College with A bisabilit* CounTy Transition Fajre (Multiple)* Chapman College - Disability Summit* Project College"* Adult Educat&n Task Force (Multiple)


68 articles about PCP and ITPs to 55, 272 peopleHardco Information Distribution:

43 artides about PCP and ITPs to 13,644 people <?Technical Assistance:

occasions impacting 139 people h-r)

1463

12/26/2018

Goal 5 (Earty Intervention, Education, Transition & Post-Secondary Education): Californians with 1/DD and theirfamilies reflecting the diversity of the state will have increasedinformation, in order to obtain inclusive education servicesthroughout the lifespan.

Objective 5.4- The Council, in consultation with its federalpartners, will increase identification, advocacy and/orsponsorship of legislative, regulatory, policy. procedure and/orpractice changes to increase access to quality educationservices throughout the lifespan for people with 1/DD.


Testified in Hearin s to Polic akin Bodies:3 times to 76 people

Le islative Bills:Monitored: 6Took a Position/Sponsored: 4

Meetings:

16 meetings with policymakers, reaching 346 people


37 articles to 16, 505 people

Technical Assistance:77 occasions, impacting 110 people

Rl&HTTo

1564

12/26/2018

Goaf 6 (Format & Informal Community Supports);Californians with 1/DD and their families reflecting the diversityof the state will have increased information and supports toaccess community-based services available to the generalpopulation.

Objective 6.1: The Council, in collaboration with our federalDD partners, will reduce service access barriers and decreasethe dispahty in available information, which describes servicesand su ortsthatma be urchased throughout California'sRe ional Center s stem, by translating and providing th^tinformation in Spanish and tracking statewide POS disparitydata for Spanish-speaking self-advocates and families.


Activities:3 Stakeholder meetings with 35 people

Developed and field-tested 1 list of English lexicon to Spanishtranslation of 1/DD specific terms/phrases with 2 collaborativepartners.

Developed 1 list of Plain Language descriptions of available servicesthrough the regional center system in a Q&A format with 3collab'orative partners to field test, develop Spanish translation,curriculum, and training in 2018-2019.

Bectronic Information Distribution: 62 articles to 57,955 people

Assistance: 63 occasions, impacting 85 people

1

1665

12/26/2018

Goal 6 (Formal & Informal Community Supports);Califomians with 1/DD and their families reflecting thediversity of the state will have increased information andsupports to access community-based services available tothe general population.

Objective 6.2: The Council will increase the knowledge andskills of people with t/DD to move from institutional tocommunit settin s and to increase theirability to self-advocate.


Educated in ereonthrou htrainin events outreach and informational materiais:

13 collaborative meetings to ensure effective crisis intervention and continuity in heaithcare with255 participants21 trainings to Coundl and RACs on institutional closure process reaching 407 people

* 3 trainings to 64 self-ffamily-advocates on personal/civil rights5 trainings for 324 self-ffainily-advocates on available supports/services/living options

* 4 trainings for 205 self-/family-advocates on PCP/SDP1 training for 13 self-/family-advocates on alternatives to conservatorship4 trainings for 116 self-/famity-advocates on personal safety

Sam Ie Events/Trainin s:

You and Your IPPRights of People with Developmental DisabilitiesAlternatives to Conservatorship


Technical Assistance: 18 occasions, impacting 33 people

1766

12/26/2018

Goat 6 (Formal & Informal Community Supports):Californianswith 1/DD and their families reflecting thediversity of the state will have increased information andsupports to access community-based services available to

general population.

Objective 6.3; The Council will increase outreach traininand technical assistance to improve the quality of and accessto services, including (but not limited to) Re ional Centerseducation trans ortation ublic benefits child care andrecreation for people with 1/DD and their families.

2017-18 Federal Fiscal Year in Obj. 6.3Educated in erson throu h trainin events outreach and informational materials:

* 26 Trainings to 449 people on HCBS Settings Rules* 30 Meetings of Council and RACs serving 550 people* 13 lists of 337 formal/informal services/support trends, barriers and quality of services* 28 progress updates provided to 499 parties on HCBS to Council/RACs, stakeholders and other

interested parties78 trainings to 2,045 self-/family-advocates on Regional Center services53 trainings to 1, 142 self-/family-advocates on generic services

Sam Ie EventsfTrainin s:

Regional Center Disparities: You Can Make a Difference* Regional Center Services & Fair Hearing Strategies

Regional Centers, School Districts, and More: How to Give Testimony & Influence Public Policy* Systems Overview: More than Just Regional Centers*CalABLEAct* How Behavior therapy can help (Spanish)

Disability Annual Dinner and Strategic Planning event

Electronic Information Distribution: 685 articles to 1,301,892 people

Hardco Information Distribution: 158 articles to 196,219 peopleTechnical Assistance: 1,046 occasions impacting 3, 121 people

y~;

1867

12/26/2018

Goal 6 (Format & Informal Community Supports):Califomians with 1/DD and their families reflecting thediversity of the state will have increased information andsupports to access community-based services available tothe general population

Objective 6.4: Califomians with I/DD and their families reflectingthe diversity of the state will have increased information andsupports to access community-based services available to thegeneral population. The Council, in consultation with its federalpartners, will increase identification, advocacy and/orsponsorship of legislative, regulatory, policy, procedure and/orpractice changes to increase access to quality communiservices for people with 1/DD and their families.


Educated! ersonthrou hie islativechan e and direct contact:4 lists of cotlaborators/stakeholders developed by district distributed to 101 | 0ple

Testified in Hearin s to Polic akin Bodies:

2 times for 30 people

Le islative Bills:Monitored: 2 bills

Took a Position/Sponsored: 7 bills

Meetings:232 meetings with policymakers, reaching 4,000 people


Technical Assistance: 22 occasions, impacting 24 people

1968

12/26/2018

CALIFORNIA

Slate Counat on Dwfcpntsntal DisabifitK.s

Total number of contactsthrough SCDD activities:

68 9

6920


70

JANUARY 15, 2019



2019 - 2020 Governor's Proposed Budget

The 2019 - 2020 Governor's Proposed Budget will be presented at theJanuary 15th Council meeting, and handouts will be provided

71


72

JANUARY 15, 2019



Member Spotlight: Jeana Eriksen

Councilmember Jeana Eriksen will provide a brief presentation as part ofthe new series, "Member Spotlight".

73


74

JANUARY 15, 2019

AGENDA ITE 13INFORMATION ITEIVi

STATE COUNCIL ON DEVELOP ENTAL DISABILITIES

Project of Excellence

Two regional offices will present at each Council meeting, highlighting theirregion's "Project of Excellence".

1. San Diego Regional Office - MaryEllen Stives2. North Coast Regional Office - Shell Wright

75

COUNCIL MEETINGAGENDA ITEM DETAIL SHEET

ISSUE: Project(s) of Excellence

BACKGROUND: Each SCDD Regional Office conducted a multitude ofactivities which span the entire breath of the State Plan. Each office isgiven the opportunity to identify at least one project/activity that is what theyconsider to be a "Project of Excellence" - something that can be replicatedin any area of the state and which typically sees an excellent outcome forthe folks served.

ANALYSIS/DISCUSSION: At each Council meeting, two regional officeswill present their Project of Excellence to the Council:

Our first is from the San Diego-lmperial Regional Office (servingSan Diego and Imperial counties). MaryEIIen Stives, the Managerfor this office, and staff coordinate, collaborate on and conduct"Project College" each year, which is an activity that meets theState Plan Objective 5. 3.Our second, is from the North Coast Regional Office (serving DelNorte, Humboldt, Lake and Mendocino counties). Shell Wright,the Manager for this office, and staff coordinate, collaborate onand conduct activities leading to "//? Case of Emergency Cards",which is an activity that meets the State Plan Objective 4.1

COUNCIL STRATEGIC PLAN OBJECTIVE: 4. 1 and 5.3

PRIOR COwinnlTTEE ACTIVITf: N/A

RECO ENDATION(S): None

ATTACHMENTS(S): None

PREPARED: Vicki Smith, 03 January 2019

76

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JANUARY 15, 2019

AGENDA ITE 14INFO ATION ITE


Statewide Self-Advocacy Network (SSAN)

The Statewide Self-Advocacy Network (SSAN), which is a project of theCouncil, provides the following items:

1. SSAN December Meeting Summary Report2. SSAN 2018 Annual Report

87

f

Report from the Statewide Self-Advocacy Network (SSAN)December 5th and 6th, 2018

DAY 1- Wednesday, December 5, 2018

1. SSAN Bylaws: members reviewed the proposed changes to the bylaws.Robert Balderama (Chair) established an ad hoc workgroup to review thebylaws and present the updates to the members at the March meeting.Members of the workgroup are:

Lisa Cooley» Nicole Patterson

Paul MansellKecia Weller

< Regina Woodliff

2. End-of-Life Planning: Nicole Patterson of the Department ofDevelopmental Services (DDS) gave a presentation on the publication"Thinking Ahead My Way, My Choice, My Life at the End" and discussedthe importance of end-of-life planning. Nicole asked for any feedbackmembers might have.

3. SSAN Workgroups: Discussed current projects and planning for 2019meetings. The current workgroup meeting schedule is:

» Self-Determination:> Second Friday of the month at 12:00 p. m. by phone

* Employment:> Fourth Wednesday of the month at 1:30 p. m. by phone

* Legislative:> Second Wednesday of the month at 1:30 p. m. by phone

Newsletter/Communication:> Meets as needed> Please send articles for the newsletter to: rj. levy70(i%amail. com

All meetings are open to the public> Call-in: 1-800-839-9416> Participant code: 870-3085

88

DAY 2- Thursday, December 6, 2018

1. SSAN Elections: The new SSAN officers are:

» Chair: Nicole Patterson

* Vice-Chair: Desiree BoykinSecretary: Lisa Cooley

2. State Council on Developmental Disabilities Updates (AaronCarruthers, Executive Director):

* SCDD would like to work with SSAN on educating the communityabout Self-Determination and the rollout of an ambassador's

program. Stay tuned for more details on these projects.The SCDD Headquarters has a new address and phone number3831 N. Freeway Blvd. Suite 125, Sacramento, CA 95834,916-263-7919

3. SSAN Annual Report: After review and discussion, members approvedthe 2017-2018 SSAN Annual Report

4. December SSAN Newsletter: After reviewing the draft, the newsletterwas approved. For the latest issue of the newsletter please visit:htt s://scdd. ca. ov/selfadvocac /

5. Legislative Advocacy Training (Cindy Smith, SCDD Deputy Director ofPolicy and Public Affairs):

Presentation on federal and state legislative processesRole-play on how to advocate with elected officialsLegislative Resources:> Official Website for CA State Legislature:

htt ://le info. Ie islature. ca. ov/

> California State Assembly Directory:htt s.V/www. assembl . ca. ov/

> California State Senator Directory:htt s://www. senate. ca. ov/

> Find Your Legislator Tool:htt ://www. le islature. ca. ov/ our Ie islator. html

> Official website for information on the U.S. Congress:htt s://www. con ress. ov/

> U. S. House of Representatives Directory:htt s://www. house, ov/re resentatives

> U. S. Senate Directory:> htt s://www.senate. ov/ eneral/contact information/senators cfm.cfm

89

Summary of Actions Taken:^ Approved December Meeting Minutes

Created a workgroup to review the SSAN Bylaws3 Approved the DRAFT 201 7-2018 SSAN Annual Report

Approved 15th Edition of NewsletterElected New Officers

Member Activity: Between the months of September and December, SSANmembers attended or participated in 44 events/meetings, reaching 1674Californians.

Next Meeting: The next SSAN meeting will be on March 26th and 27th, 2019 atthe Crowne Plaza Northeast in Sacramento.

90

r

SSAN 2017-2018 Annual Report Summary

SSAN Mission Statement

The Statewide Self Advocacy Network (SSAN) promotesleadership and builds bridges that strengthen advocacy among

disability communities by focusing on policy change.

SSAN is a project of the California State Council on Developmental Disabilities.

SSAN has 20 members representing the 12 regional offices of the State Council on

Developmental Disabilities (SCDD), SCDD, state agencies and nonprofits whose

missions are to educate, empower and provide services and support to people

with intellectual and developmental disabilities. SSAN is a training network built

on the idea that SSAN members will train other self-advocates in their

communities on issues that impact their lives and will produce stronger advocates

who will strengthen the self-advocacy movement across California. SSAN is one of

the primary vehicles which SCDD uses to achieve Goal #1 of the State Plan.

SCDD Self-Advocacy Goal #1 in Plain Language - "Californians with developmental

disabilities and their families will have increased support to advocate for their

rights to achieve: self-determination, integration, and inclusion within their

communities."

The 2017-2018 year was full of many accomplishments for SSAN During the 2017-

2018 Federal Fiscal Year, the following structural changes took place:

. TheSSAN Officers updated the SSAN membership application and process

for regional representatives

The SSAN Officers reviewed member applications for the North Coast,

Central Coast and CFILC vacancies

The SSAN Officers participated in a leadership training

91

SSAN met 4 times during December 2017 to September 2018 and

received trainings and presentations on the following topics:

"How I got Hired" and the Benefits of Employment

Mock Job Interviews and LEAP Hiring

. Vendor Process for Day Programs

> ABLE Act Update

* Mental Health Awareness - tools & tips

Self-Determination Orientation Materials by DDS

Updates to the ADA

Building Accessibility-tools and tips

The SSAN Leadership identified plans for:

. Continued Communication through Newsletters

Legislative Advocacy

. Training Development

Networking

Each meeting includes member reports, legislative updates, training for members,

and resources to distribute.

Each member is on at least one workgroup. The workgroups met a total of 43

times.

Employment met 9 times

. Self-Determination met 9 times

. Newsletter met 9 times

a Legislation met 9 times

» Officers met 16 times

SSAN Members produced 4 Newsletters

SSAN Conducted 129 outreach and trainings events in their communities on all 6

of the State Plan goals reaching a total of 4, 589 people.

92

JANUARY 15, 2019

AGENDA ITE 15INFO ATION ITEIV;

STATE COUNCIL ON DEVELO ENTAL DISABILITIES

Committee Reports

A. State Plan Committee meeting on 12/13/18Meeting summary attached

B. Membership Committee meeting on 1/14/19Oral report will be given

C. Self-Advocates Advisory Committee meeting on 1/14/19Oral report will be given

93

AGENDA ITEM 15A

STATE PLAN COMSMFTEE SUMMARY

Date of Meeting< December 13, 2018

Meeting's Focus. Explanation of the 201 9-21 Work Plan.> Cycle 42 Program Development Grant review, focus, funding allocation,

and timeline

« Overview of Draft Program Performance Report

Item's Acted UponDuring the State Plan Committee meeting, members acted to:

C de 42 Grant

Award funding for Statewide Projects based on the funding allocationdetermined by the Executive Committee.Leave the grant focus area open to any of the Council's state plan goalsand objectives.Adopt the Grant Process Timeline as amended to read ... "Submitproposal via mail or hand delivered (must be received by closing date)."

* Adopt the scoring criteria with formatting corrections.Recommend adoption of the proposed "Program Development GrantRequest for Proposal Application and Instructions for Federal FiscalYear 2019-20, " with formatting corrections to the full Council.

Pro ram Performance Re ort PPR

Present the PPR Highlights with non-substantive formatting changes tothe full Council for approval in January 2019.

Future Meeting DatesJune 27, 2019 and October 29, 2019

94

JANUARY 15, 2019

AGENDA ITE 16INFOR ATIONITE


Film Screening: "Extraordinary People

Council members will screen the film, "Extraordinary People", which hasbeen shown throughout the nation and was recently screened on CapitalHill.

From the promotional materials:"Extraordinary People" chronicles a business that inspires its staff, familiesand neighborhood with the belief that meaningful jobs change lives. Itexplores the lives of six young adults, diverse on the autism spectrum, inpaying jobs that maximize their unique individual skills while building theirconfidence and community.

95

notice/agenda - california...notice/agenda the public may listen in by callingi: 1-800-839-9416...

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