Policy, Ethics & Communication in Tribal and Rural Communities

Sarah Kastelic, Ph.D. Deputy Director

Puneet Sahota, M.D., Ph.D. Senior Research Associate

National Indian Child Welfare Association

Presented November 6, 2014 | OHSU Center for Diversity Inclusion Cultural Competency Series | www.ohsu.edu/diversity

Data Needs • Federal budget planning, resource allocation,

and service provision • Tribal budget planning, resource allocation,

and service provision • Eligibility for federal grants • Disparities in health, economic, and social

issues • Community assessment • Advocacy

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Problems with Data

• Lack of data or inaccurate data • Lack of adequate centralized processes

and systems to collect and analyze data • Sample size • Geographic and language barriers • Mistrust of data collection and federal

government agencies

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Cultural Competence

The ability to function effectively as a researcher within the context of the

cultural beliefs and norms of a community

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Cultural Competence

• Commitment to long-term partnership and reciprocity

• Ensuring confidentiality of research results and tribal identity

• Ensuring data control by the community • Community as co-Principal Investigator • Willingness and respectful approach to

learning about tribal cultures Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Research Capacity

• Training community members • Assistance in convening community

groups to address issues related to the study topic

• Helping community members to network with other researchers and organizations

• Providing technical assistance in ways requested by community

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Research Capacity

Physical, informational, and human

resources essential for researchers to conduct high-quality research

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Research Capacity

• Ethical framework • Research regulation/review process • Capacity to obtain grant funding • Infrastructure • Human resources

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

Research Resources

• Tribal EpiCenters • Native American Research Centers for Health • Tribal colleges • American Indian/Alaska Native Studies

programs and faculty • Regional and national Indian Health Service

IRBs and tribal IRBs • Specialized resources

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

What You Can Do

• Foster cultural competence in research • Support community-based participatory

research methods • Consider mixed methods design and ways

of drawing on both Indigenous and western knowledge

• Ensure IRB protocols adequately address culturally specific concerns

Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity

What You Can Do • Ensure that research practices are

responsive to and respectful of tribal sovereignty

• Honor tribal government research review processes to complement university IRB review

• Recruit and grow Native faculty and researchers

• Continue to recruit and train Native students • Support tribally driven projects responsive to

community-identified needs Presented November 2014 by Sarah Kastelic, Ph.D. / National Indian Child Welfare Association

OHSU Center for Diversity Inclusion Cultural Competency Series / www.ohsu.edu/diversity