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CPATF Twitter Chat Transcripts 9 30 2015 Page 1 of 14 Welcome @powerofpain Thank you for joining the Consumer Pain Advocacy Task Force #CPATF for today’s #TwitterChat on #NationalPainStrategy #PainMonth15. Please use to stay involved in the conversation - the #CPATF chat on #NPS is being hosted by @powerofpain @powerofpain Please welcome our guest tweeters @LynnRWebsterMD @BobTwillman & @CPRAlliance_org talking all things National Pain Strategy for #CPATF @powerofpain @BobTwillman is Executive Dir of the American Academy of Pain Management, overseeing fed & state pain policy developments @powerofpain @LynnRWebsterMD is VP of Scientific Affairs, PRA HS | Fmr Pres, American Academy of Pain Medicine | Author of The Painful Truth @powerofpain @CPRAlliance_org (Christin Veasley) is a founding member of the Chronic Pain Research Alliance, whose mission is to advance scientific research on prevalent, neglected and poorly understood pain disorders that frequently co-occur and disproportionately affect women @powerofpain Let’s get started #CPATF #PainMonth15 @BobTwillman @powerofpain Good evening, everyone! Let's get started talking about the NPS! @rsdcrpsfire Thank you for joining the Consumer Pain Advocacy Task Force #CPATF for today’s #TwitterChat on #NationalPainStrategy #PainMonth15 @AmerGastroAssn The Gut Check: Know Your Medicine campaign (www.gutcheckfacts.org) is excited to join the about chronic pain! Q1. What is the National Pain Strategy report? @BobTwillman A1. The NPS was mandated as part of the Affordable Care Act (Obamacare) legislation. National Pain Strategy is an effort to outline a strategic approach to chronic #pain in the USA. The government's approach to pain research, treatment has historically been disorganized. We hope NPS fixes that. A1. The Department of Health and Human Services is in charge of developing the report and disseminating it. @CPRAlliance_org A1. It's the country's first strategic plan to advance pain care, research and education! Six federal agencies worked with nearly 100 volunteers to develop it. @mkwinnette A1. It contains short- and long-term goals, and identifies key partners and tools to measure progress in six areas. @mkwinnette A1. http://consumerpainadvocacy.org/nationalpainstrategy

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Page 1: or today’s - CPATF | consumer pain advocacy task forceconsumerpainadvocacy.org/wp-content/uploads/2015/10/Twitter-Chat-9... · @powerofpain Thank you for joining the Consumer Pain

CPATF Twitter Chat Transcripts 9 30 2015 Page 1 of 14

Welcome

@powerofpain Thank you for joining the Consumer Pain Advocacy Task Force #CPATF for today’s

#TwitterChat on #NationalPainStrategy #PainMonth15. Please use to stay involved in

the conversation - the #CPATF chat on #NPS is being hosted by @powerofpain

@powerofpain Please welcome our guest tweeters @LynnRWebsterMD @BobTwillman &

@CPRAlliance_org talking all things National Pain Strategy for #CPATF

@powerofpain @BobTwillman is Executive Dir of the American Academy of Pain Management,

overseeing fed & state pain policy developments

@powerofpain @LynnRWebsterMD is VP of Scientific Affairs, PRA HS | Fmr Pres, American

Academy of Pain Medicine | Author of The Painful Truth

@powerofpain @CPRAlliance_org (Christin Veasley) is a founding member of the Chronic Pain

Research Alliance, whose mission is to advance scientific research on prevalent,

neglected and poorly understood pain disorders that frequently co-occur and

disproportionately affect women

@powerofpain Let’s get started #CPATF #PainMonth15

@BobTwillman @powerofpain Good evening, everyone! Let's get started talking about the NPS!

@rsdcrpsfire Thank you for joining the Consumer Pain Advocacy Task Force #CPATF for today’s

#TwitterChat on #NationalPainStrategy #PainMonth15

@AmerGastroAssn The Gut Check: Know Your Medicine campaign (www.gutcheckfacts.org) is excited

to join the about chronic pain!

Q1. What is the National Pain Strategy report?

@BobTwillman A1. The NPS was mandated as part of the Affordable Care Act (Obamacare)

legislation. National Pain Strategy is an effort to outline a strategic approach to

chronic #pain in the USA. The government's approach to pain research, treatment has

historically been disorganized. We hope NPS fixes that. A1. The Department of

Health and Human Services is in charge of developing the report and disseminating it.

@CPRAlliance_org A1. It's the country's first strategic plan to advance pain care, research and education!

Six federal agencies worked with nearly 100 volunteers to develop it.

@mkwinnette A1. It contains short- and long-term goals, and identifies key partners and tools to

measure progress in six areas.

@mkwinnette A1. http://consumerpainadvocacy.org/nationalpainstrategy

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CPATF Twitter Chat Transcripts 9 30 2015 Page 2 of 14

Q2. What did you like in the NPS draft report?

@BobTwillman A2. The NPS draft report is comprehensive, covering a number of important areas

related to good pain care.

@BobTwillman A2. Draft report was developed by nearly 80 experts in all aspects of pain

management. Dr. Mackey was co-chair of the panel developing the report.

@CPRAlliance_org A2. The NPS report continues to focus on biopsychosocial model of pain and its

treatment--vital if we are to progress. The NPS covers all areas that are needed to

improve the lives of people with pain - pain care, education & awareness, research!

@PAINSProject A2. Sean Mackey gave a talk about the process for developing the report which is

very enlightening. http://ow.ly/SOYf8

@RubysFibroDiary Has the NPS been published since the public comment period ended?

@BobTwillman @RubysFibroDiary The final report, after comment period, has not yet been

published. No date has been set yet.

@BobTwillman @ourCPC Absolutely--it won't be easy on either count, so we need to be strong

advocates for implementation.

@powerofpain 1 in 3 American adults live with chronic pain. #CPATF

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CPATF Twitter Chat Transcripts 9 30 2015 Page 3 of 14

Q3. Why is the NPS needed?

@CreakyJoints A3: The NPS is needed because too many people live with #chronicpain. We can and

will do better.

@mkwinnette A3.Chronic pain is both an under-recognized and under-resourced public crisis with

devastating personal and economic impact.

@mkwinnette A3. Chronic pain is not one specialty, it takes a team!

@BobTwillman A3. Pain research and treatment involves MANY different groups, in and out of

government, so we need coordination. The NPS takes a comprehensive view of the

needs and recommends ways to meet them.

@mkwinnette Chronic pain is a real and complex disease that may exist by itself or be linked with

other medical conditions.

@RubysFibroDiary Will the Federal Pain Research Policy work closely with the NPS recommendations?

@BobTwillman @RubysFibroDiary HHS received thousands of comments, so is working to respond

and integrate them into the final report.

@ourCPC @BobTwillman Has #NPS looked at companies or organizations that are already

working to implement

@BobTwillman @ourCPC I know HHS is interested in public-private partnerships, but I don't know

how much outreach they have done.

@MIFibro What steps can be taken to get funding & implementation for NPS?

@BobTwillman @MIFibro We all need to be very vocal to ensure this isn't just a report that gathers

dust on a shelf. This is going to take a LOT of work, and advocacy with Congress and

other federal agencies like HHS.

@BobTwillman @RubysFibroDiary Both are coming from the same group (IPRCC), so one would

hope they are coordinated.

@RsdJulian I have read the report but would like to know if it is having any affect with both our

federal and state governments

@BobTwillman @RsdJulian The final report still hasn't been published, so there hasn't been huge

impact so far.

@BobTwillman @RsdJulian However, there is an opportunity to start education policymakers NOW,

rather than waiting for the final report.

@lisadbudzinski http://www.iprcc.nih.gov/National_Pain_Strategy/NPS_Main.htm for the

@centralpain

@lisadbudzinski @BobTwillman @RubysFibroDiary and can be found here:

http://iprcc.nih.gov/FPRS/FPRS.htm

@CPRAlliance_org Only 18% think of Americans think that pain is a major public health issue.

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CPATF Twitter Chat Transcripts 9 30 2015 Page 4 of 14

@SabrinaNumann Chronic pain is a real and complex disease that may exist by itself or be linked with

other medical conditions.

@exoeagle What r u doing to make Dr's compassionate 2 the needs of individuals w chronic pain

& not think them 2 be drug seekers

@BobTwillman @exoeagle @powerofpain Achieving this requires improved education, which is one

of the key components of the NPS.

@ourCPC @exoeagle That is a hard one. @powerofpain is an amazing organization that

supports #patients and #meded

@RubysFibroDiary Have large employers shown interest in the NPS?

@CPRAlliance_org @RubysFibroDiary The NPS hasn't been released yet, but we hope they will once it

publishes! It costs America $500 billion a year!

@ourCPC @RubysFibroDiary yes :) we also talk to other companies that want to help the #pain

community as well

@SabrinaNumann Effective ...care requires access to... range of treatment options, including biomedical,

behavioral health... complimentary treatment

@SabrinaNumann Chronic pain is both an under-recognized and under-resourced public health crisis

with devastating personal and economic impact

@CPRAlliance_org Our government only invests a nickel per person in pain research. We need a strategic

plan!

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CPATF Twitter Chat Transcripts 9 30 2015 Page 5 of 14

Q4. What will happen after the NPS is released?

@BobTwillman A4. We also will need to ensure that SOMEONE takes primary responsibility for

taking the ball and running with it. That's entirely up to us. We need to ensure that

every member of Congress knows about it, for starters.

@LynnRWebsterMD A4. We need all of the Gov’t agency to be on board as well

@MIFibro @BobTwillman Thanks and agreed. Wondering what a grassroots call to action

could be for folks willing to do a LOT of work?

@BobTwillman @MIFibro #CPATF is organized to address that very issue. Getting connected with

them will enable us to get those messages out.

@CPRAlliance_org @MIFibro @BobTwillman CPATF is organizing a large Capitol Hill Day. Please

join us! www.ConsumerPainAdvocacy.org

@CPRAlliance_org @MIFibro It's going to take a large advocacy effort, which is why the Consumer

Pain Advocacy Task Force exists. Please join us!

@CPRAlliance_org @MIFibro www.ConsumerPainAdvocacy.org

@CPRAlliance_org @MIFibro @BobTwillman Yes! Please visit the CPATF's web site:

www.ConsumerPainAdvocacy.org

@MIFibro @BobTwillman are there established talking points for "voices" to speak in unison

on NPS?

@ourCPC @MIFibro The ball started rolling a while ago ;)

@gnsalminen Everyone deserves the excellent caliber of care!! How can we get this to all who

need it??

@BobTwillman @gnsalminen We want to let people know it is coming, and to prime them for action

as soon as the final report is released.

@gnsalminen I hear about so many patients NOT being listened to by their doctors.

@mkwinnette Having to wait 6 months for a Geneticist to be able to tell my children what all they

may inherent is wrong.

@LynnRWebsterMD Every person in pain must be made aware of the report and ask their providers and

Congressman to support it.

@LynnRWebsterMD I am calling for a national movement. Need 100,000 letters sent to Congressman

within a year supporting NPS. Are you on board?

@lisadbudzinski @ThePainComm @CPRAlliance_org Here's a link that breaks down some of the

research: http://paindatabase.nih.gov/content/iprp-ontology

@lisadbudzinski The link to the draft that is being discussed -

http://iprcc.nih.gov/docs/DraftHHSNationalPainStrategy.pdf @centralpain

@exoeagle @BobTwillman @powerofpain how will you improve education to practicing

physicians and new physician?

@BobTwillman @exoeagle @powerofpain We need increased inter-professional education in schools

focused on multimodal multidisciplinary treatment.

@BobTwillman @exoeagle @powerofpain Also will take LOTS of continuing education for

clinicians already in practice.

@OneDayHeather Is the NPS promoting advocacy for patients whose ins. company deny coverage 4

treatments? For ex: ketamine infusions @powerofpain

@CPRAlliance_org @OneDayHeather @powerofpain Yes! There is an entire section with short, medium

& long-term goals focused on reimbursement!

@MissionDriven4 For an individual w/ long term chronic pain who wants to be an advocate - what's the

best way to get connected, take action?

@CPRAlliance_org @MissionDriven4 Please contact us through our web site:

www.ConsumerPainAdvocacy.org

@gnsalminen We need doctors to follow Standards of Care!

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CPATF Twitter Chat Transcripts 9 30 2015 Page 6 of 14

@gnsalminen A lot of them do not follow it!

@gnsalminen What do the letters need to say?

@CPRAlliance_org @gnsalminen Agreed! This is why the CPATF is calling for complete

implementation of the NPS! We need everyone's support!

@ourCPC @exoeagle At the @AmericanPainSoc annual meeting, #doctors said to take it to

medical school. Change the teaching

@melissarvh What specific actions might we take to ensure that happens?

@PAINSProject It's important for everyone to read the NPS Report and raise awareness so that

change can start to happen

@RubysFibroDiary Any idea when the CPATF Capitol Hill day will be?

@SPPAN1 @RubysFibroDiary Our #CPATF hill day will most likely be in early Spring 2016.

More info will be on www.ConsumerPainAdvocacy.org soon

@cat_fish_dinner I'm concerned a population based health strategy may inhibit personalized care. pain

levels n impairment vary greatly

@CPRAlliance_org @cat_fish_dinner The NPS very much addresses that individualized pain care is

needed for and deserved by all!

@BobTwillman @cat_fish_dinner Challenging, because true change only happens one

patient/clinician interaction at a time.

@SabrinaNumann Denying...care to people with chronic pain is unethical... can lead to unnecessary

suffering, depression, disability... & suicide

@powerofpain 80% of Veterans have developed chronic pain in last 10 years. #CPATF

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CPATF Twitter Chat Transcripts 9 30 2015 Page 7 of 14

Q5. Why should we all care about the National Pain Strategy?

@BobTwillman A5. If we're going to make progress it has to be guided by a strategic plan. We can't

continue to do this haphazardly. Continuing to do what we have cone will continue

to give us the results we have. If we want change, we need a plan!

@LynnRWebsterMD A5. Look we must insist on better payer coverage for integrative care. NPS calls for

this. Payers must be part of the solution. Actually we start now to ask when the

report will be made public. Call your congressman or woman tomorrow.

@barbyingle A5. Because we need better and quicker access to care. This is one tool that can help

@BobTwillman @LynnRWebsterMD Includes Medicare and Medicaid, VA/DOD, private payers--

everyone has to be part of it.

@gnsalminen We should ALL care! Because what affects one of us, affects ALL of us!!

Addiction and Opiate dependency ARE SEPARATE!! 3-5% of people with chronic

pain become addicts Those of us on opiates are not the problem!

@gnsalminen Bob Twillman, who are payers??

@BobTwillman @gnsalminen We also need to remember that employers have a HUGE stake in

making this work. They are payers, too.

@CPRAlliance_org @gnsalminen The CPATF will have a letter template available on our web site to

use and distribute widely. http://www.ConsumerPainAdvocacy.org

@FibroAndPain How can we separate the disease of addiction from the disease of chronic pain?

@FibroAndPain How can access to care for chronic pain issues be tied to Medicare essential health

benefits?

@BobTwillman @FibroAndPain Challenging, but the bottom line is that both groups are suffering.

@US_Pain @FibroAndPain One way would be for pts to share their story, inform and educate

lawmakers/society that the two are different conversations

@MIFibro @ourCPC I was thrilled to see the ball rolling! Just querying this amazing group on

next steps & how to advise public to help ;)

@CPRAlliance_org @MIFibro @ourCPC Please continue to revisit our web site for updates and calls to

action. www.ConsumerPainAdvocacy.org

@CPRAlliance_org @MIFibro Of primary importance is getting the federal government to allocate the

funding we need for COMPLETE implementation!

@MIFibro @CPRAlliance_org thanks for the invite and will do!

@crystalgrieves @powerofpain @LynnRWebsterMD Will there be base template for these letters

that could be drafted to use to have others send as well?

@crystalgrieves @powerofpain imagine the possibility of lower costs if everyone is on the same

page, testing for the same things over and over!

@barbyingle @crystalgrieves Yes, there will be a template for the letters. Check back for updates

at www.ConsumerPainAdvocacy.org

@exoeagle @BobTwillman is this your model for current physicians?

@mkwinnette There is not set standard. Different diagnosis from different doctors. Is our list really

that long?

@BobTwillman @mkwinnette @LynnRWebsterMD Prayers won't hurt, either! :-)

@mkwinnette Chronic pain is the addiction! RT @FibroAndPain How can we separate the disease

of addiction from the disease of chronic pain?

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CPATF Twitter Chat Transcripts 9 30 2015 Page 8 of 14

@lisadbudzinski @powerofpain Link to a description for the #NationalPainStrategy

http://consumerpainadvocacy.org/take-action @centralpain

@PAINSProject We have to all stand together to raise awareness and change the way pain is

perceived, judged and treated.

@AmerGastroAssn More Americans have chronic pain than the # of people w/ diabetes, coronary heart

disease & cancer- combined

@CPRAlliance_org @AmerGastroAssn Yes! And the government spends 95% less on pain research

than it does on these conditions!

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CPATF Twitter Chat Transcripts 9 30 2015 Page 9 of 14

Q6. Who is responsible for implementing the NPS after it’s released?

@BobTwillman A6. That's the problem--no one is identified as responsible. That's why we need to

advocate for a point person.

@CPRAlliance_org A6. Right now, no one, which is why we need everyone's support. We have to make

sure the NPS doesn't sit on the shelf!

@CPRAlliance_org A6. Right now, no one, which is why a large advocacy effort is needed. We need to

hold Congress accountable! Let's make this hope a reality by uniting with a strong

voice! www.ConsumerPainAdvocacy.org

@LynnRWebsterMD A6. Actually we start now to ask when the report will be made public. Call your

congressman or woman tomorrow. Plan now to write a letter to the editor of your

paper, blog, or comment on a news article about the NPS when it is released.

@FibroandPain Would including chronic pain in Essential Health Benefits be of benefit in the NPS

initiative?

@BobTwillman @FibroAndPain Need to use specific interventions that target each problem rather

than broad interventions that hurt both.

@BobTwillman @FibroAndPain That certainly should be a strategy that is part of the NPS.

@cat_fish_dinner When care is decided by what's best for majority, access for individuals can be put

at risk. What are the safeguards against that?

@BobTwillman @cat_fish_dinner The NPS will say that we need to teach how to provide this type

of individualized care to be successful.

@BobTwillman @cat_fish_dinner The premise of the biopsychosocial model is that each individual

needs an individual treatment plan.

@OneDayHeather @BobTwillman, What is being done to conduct the needed research & case studies

to validate ketamine to insurance companies?

@OneDayHeather Can we post the needed the information online to send to Congress?

@BobTwillman @OneDayHeather But it is SO important that we learn how to use tools we already

have. As with many of these issues, research support is lacking for this.

@RubysFibroDiary Is there a governing board which makes recommendations or requirements on what

med schools teach?

@RubysFibroDiary When released, will the NPS have hierarchies of implementation that need to be

supported by this community?

@BobTwillman @RubysFibroDiary ACGME--American Council of Graduate Medical Education.

@BobTwillman Yes RT @RubysFibroDiary: When released, will the NPS have hierarchies of

implementation that need to be supported by this community?

@CPRAlliance_org @RubysFibroDiary Each of the six areas have short, medium and long-term

objectives to implement in unison.

@melissarvh @OneDayHeather @US_Pain @powerofpain shouldn’t be difficult. Just need form

letter & recipient list. Have done it w/other projects.

@BobTwillman @RubysFibroDiary That remains to be seen. I think there will be parts of each

section that are immediate implementation items.

@gnsalminen They already are separate!! Should not be that hard to send this to Congress. What

is an implementation team??

@CPRAlliance_org @gnsalminen A committee that guides and ensures the NPS objectives are carried

out!

@crystalgrieves I had to pleasure to sit in on a call and give major feedback through the @US_Pain I

hope for an implementation team. It’s not near enough for research at all. Overlook

by running a business only causes more for us to deal with.

@deanslewis @AmerGastroAssn most of these diseases can cause chronic pain.

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CPATF Twitter Chat Transcripts 9 30 2015 Page 10 of 14

@forgrace Fed Gov needs to embrace NPS. Until they say CP is public health problem #1, we

will spin wheels

@lisadbudzinski Everyone must be on the same page as @BobTwillman stated. http://painconsortium.nih.gov/federal_Pain_Activities/federal-pain-activities-index.html

@LynnRWebsterMD @davidbecker19 Maybe but it does start a conversation. You can move it further

once you have their ear. Run with it.

@LynnRWebsterMD @tal7291 @FibroAndPain Loved you op ed. Write more.

@MIFibro @CPRAlliance_org @BobTwillman Great news about Capitol Hill day!

@MIFibro @davidbecker19 I have chronic pain & have been volunteering my time for 18 years

to help people in chronic pain.

@ThePainComm One of the biggest issues is getting access to care that works. If it's not covered,

many can't afford the treatment they need.

@PAINSProject Research is one of the key pieces of improving pain care

@powerofpain Our federal government invests just $0.05 per affected adult in pain research.

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CPATF Twitter Chat Transcripts 9 30 2015 Page 11 of 14

Q7. What can someone do to get involved with the NPS now?

@CPRAlliance_org A7. Visit www.ConsumerPainAdvocacy.org and join the effort! We need as many

voices united and strong! Thank you!

@CPRAlliance_org A7. A large united voice from every single American who has or knows someone

about pain! www.ConsumerPainAdvocacy.org

@LynnRWebsterMD A7. NPS gives us an opportunity to ask for a National Institute for Pain Medicine. I

will be writing about this in an upcoming blog.

@LynnRWebsterMD A7. Please commit to speak to 10 people about NPS when released. Make it a daily

conversation & meet with your Senators

@PAINSProject A7: Stay informed. Sign up for alerts on www.ConsumerPainAdvocacy.org and its

member organizations

@FibroAndPain People are afraid of losing anonymity in speaking out about stigmatization and

harmful practices. This has to stop!

@FibroAndPain The NPS must address the access to care issues faced by minorities and underserved

populations first.

@FibroAndPain Would treating opioid addiction to the max help people with chronic pain have less

stigmatization?

@BobTwillman @FibroAndPain It has to help, at least in my estimation. And besides, that's also

what we owe people with addictions.

@BobTwillman @FibroAndPain True--they have it worse, but no one really has access to everything

needed to provide the best care.

@OneDayHeather @BobTwillman, I'm sad to hear that. Ketamine infusions have been offered for

many years here & just recently getting ins. denials.

@BobTwillman @OneDayHeather Yes, it is sad. Such an incredibly useful drug, and we don't know

much of what it can do.

@CPRAlliance_org @OneDayHeather @US_Pain @powerofpain Yes, visit

www.ConsumerPainAdvocacy.org!

@cat_fish_dinner @BobTwillman thanks. I hope it's applied that way. Seeing war on opioids is

worrisome?

@lisadbudzinski @melissarvh @OneDayHeather @US_Pain @powerofpain It would be great to

have a form letter for delegates & advocates to send out.

@lisadbudzinski Definition for biopsychosocial model: https://en.wikipedia.org/wiki/Biopsychosocial_model that is being mentioned for this chat.

@CPRAlliance_org @lisadbudzinski @melissarvh @OneDayHeather @US_Pain @powerofpain This

will be available on www.ConsumerPainAdvocacy.org Connect with us.

@MissionDrive If we write blog posts, should we send or share them to a central place? Are there

key talking points? What's the best way to get alerted when the NPS is released?

@CPRAlliance_org @MissionDriven4 Yes & Sign up to receive alerts on

www.ConsumerPainAdvocacy.org

@powerofpain @MissionDriven4 - Follow along for updates at www.ConsumerPainAdvocacy.org

@crystalgrieves @CPRAlliance_org @powerofpain @US_Pain I'm not stopping until my body does,

I'll speak up as long as and loud as I can!

@crystalgrieves Tough question, what has been the biggest roadblocks on this, and what else can

others do to push through?

@crystalgrieves @powerofpain @LynnRWebsterMD definitely on my to do list here in Maryland! I

can't do it alone! We need more voices, mine is loud, but a group is powerful!

#USPain #PAM15

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CPATF Twitter Chat Transcripts 9 30 2015 Page 12 of 14

@CPRAlliance_org @crystalgrieves @powerofpain @US_Pain Thank you! We need everyone to speak

up!

@melissarvh @OneDayHeather @US_Pain @powerofpain Can even use site like Quorum.

Example of our #Gastroparesis project: https://buildquorum.com/actions/1996

@melissarvh @FibroAndPain I'm not afraid. :) I am willing to help.

@CPRAlliance_org @melissarvh @OneDayHeather @US_Pain @powerofpain Not difficult. We need a

unified voice and approach. Visit www.ConsumerPainAdvocacy.org

@powerofpain Chronic pain costs the U.S. over $500 billion every year #CPATF

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CPATF Twitter Chat Transcripts 9 30 2015 Page 13 of 14

Would you be interested in a future chat about NPS if yes, what? #CPATF

@mkwinnette Treatments approved for different conditions. RT @powerofpain Would you be

interested in a future chat about NPS if yes, what? #CPATF

@gnsalminen We need Big Pharma to get into healing instead of just treating! I am sick of war on

Opiates against Chronic Pain Patients!! I am willing to try and help.

@rsdcrpsfire Yes. Q&A’s on education to form solutions and partnerships. Chats provide

opportunity for involvement. Wrap up

@powerofpain Thanks to all participants & to our guest tweeters: @CPRAlliance_org

@BobTwillman & @LynnRWebsterMD from #CPATF & @powerofpain

@powerofpain Thank you to all participants in today’s #CPATF #TwitterChat on the

#NationalPainStrategy This has been an informative #PainMonth15

@powerofpain Checkout @CPRAlliance_org www.cpralliance.org, @LynnRWebsterMD

www.lynnwebstermd.com, @BobTwillman www.aapainmanage.org, & #CPATF

www.ConsumerPainAdvocacy.org

@AAPainManage Thanks to @powerofpain for hosting the about the #NationalPainStrategy! Very

informative.

@BobTwillman @OneDayHeather @powerofpain And thank you for being here!

@BobTwillman @powerofpain Thank you for organizing--it's been great fun!

@CPRAlliance_org Thanks for joining us in this important fight! Quality pain care for all!

www.ConsumerPainAdvocacy.org

@LynnRWebsterMD Thanks all for the conversation.

@US_Pain @crystalgrieves Thanks for committing to do this!

@US_Pain We wish to thank everyone who followed and participated in this evening's on

Twitter! Working with... www.ConsumerPainAdvocacy.org

@crystalgrieves @powerofpain @BobTwillman #PAM15 @ThePainComm @AAPainManage thank

you all for your time!

@deanslewis @powerofpain very informative, let's continue to work on helping others realize that

it's ok to be open about their pain. We lose too many souls.

@deanslewis @powerofpain let's work on helping others realize that it's ok to be open about their

pain. We lose too many souls.

@forgrace We need a potent voice in Congress to take NPS lead - one not beholden to special

interest/industry. I know - "Good luck!"

@forgrace Great chat everyone. We. Can. Do. This.

@gnsalminen @crystalgrieves, if I can help you I will. <3 Love to ALL!! <3 Good night!!

@lisadbudzinski @CentralPain is also on board to making a difference

@melissarvh Thank you for hosting this most informative chat on #Chronicpain this evening.

Looking forward to future discussions & projects!

@MIFibro Yes, thanks to all organizers and presenters!

@mkwinnette Thank you @powerofpain

@opiophobia @BarbyIngle @kypaincare @powerofpain @BobTwillman @LynnRWebsterMD

Thank all of you for giving us a voice, I didn’t realize how BIG this is

@PAINSProject Thanks to all participants & to our guest tweeters: @CPRAlliance_org

@BobTwillman & @LynnRWebsterMD, @powerofpain

@rsdcrpsfire Thank you @powerofpain @BobTwillman and all individuals and advocacy

groups/orgs who participated this evening.

@SabrinaNumann Thank you to @powerofpain, @BobTwillman for this chat! Together we can make a

difference! @FibroAndPain

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CPATF Twitter Chat Transcripts 9 30 2015 Page 14 of 14

@ThePainComm Thanks to @powerofpain for hosting the about the #NationalPainStrategy! Very

informative.