owards a new conceptualization of omen’s health€¦ · •disproportionately affects poor women...

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TOWARDS A NEW CONCEPTUALIZATION OF WOMEN’S HEALTH Francisco García, MD, MPH Distinguished Outreach Professor Public Health, Obstetrics & Gynecology, Nursing, Clinical Pharmacy Director, Center of Excellence in Women’s Health

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Page 1: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

TOWARDS A NEW CONCEPTUALIZATION OF

WOMEN’S HEALTH

Francisco García, MD, MPH Distinguished Outreach Professor

Public Health, Obstetrics & Gynecology, Nursing, Clinical Pharmacy

Director, Center of Excellence in Women’s Health

Page 2: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Female/Male Sex and Gender Differences Impact Health • biology and physiology

• sex differences in these categories relate to size, hormones, and the reproductive system

• there are other such differences that influence overall health

Brittle C and Bird CE. Literature Review on Effective, Sex- and Gender-Based, Systems/Models of Care, 2007.

Page 3: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Medical Model of Women’s Health

“sick women” seeking medical care

community

social network

family

all women

“sick women”

Page 4: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Differences Cont.

• Same diseases but disproportionate rates or different symptoms.

• Females and males are socialized with a set of expectations and way of life that varies by gender.

• Gender is related to diverse kinds of stress and resources that interact with health.

Page 5: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Individual Experience of Disease

DISEASE INDIVIDUAL

gender

culture

history

family

education

work

partner

class

faith

Page 6: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Women’s COE Program: Old Model

• Established during the Clinton administration

• Goal of developing new models for comprehensive women’s health care delivery

• Modeled after Magee Women’s Hospital

• Programming in the area of clinical care, research, education, community outreach & leadership

Page 7: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

National CoEs in Women’s Health 1996: • Magee-Women’s Hospital • University of California at San

Francisco • University of Pennsylvania/Drexel 1997: • Boston University Medical Campus • Indiana University Medical Center • University of California at Los Angeles 1998: • Harvard University • Tulane/Xavier University • University of Illinois at Chicago • University of Puerto Rico • University of Wisconsin

2003: • University of Arizona • Oregon Health Sciences University • University of Missouri • Brown University • Virginia Commonwealth University • University of Mississippi 2004: • West Virginia University • University of Texas at San Antonio • University of Missouri

Page 8: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Women’s Center of Excellence: “Old Model”

• Core programs

– Clinical care

– Research

– Education

– Outreach

– Leadership

– Evaluation

Page 9: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

MISSION STATEMENT

Improve the health and promote wellness of women throughout the life cycle.

Page 10: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Vision

WCOE will be the leader in women’s health and wellness in Arizona by providing health education and promotion programs that are

–woman centered

–evidence-based

–culturally competent

–community responsive

–tailored to women with the greatest need

Page 11: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Pre-Conception

Pregnancy

Infancy

Childhood

Adolescence Young Adult

Adult

Midlife

Elderly

Educational Programs

Community Extension

Clinical Care

Research/

Evaluation

Our New Model

Page 12: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Clinical Research

Sampling of Current Research

Page 13: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

National Children’s Study

Children’s Health Act 2000

Nat’l Institute of

Environ-mental Health

Services

U.S. Environ-mental

Protection Agency

Centers for Disease

Control and Prevention

National Institutes of Health

Eunice Kennedy Shriver National Institute of Child

Health and Development

Page 14: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

National Children’s Study

• Prospective cohort of 100,000 children followed prior to birth to 21 years of age

• $44 million Pre-

conception Pregnancy Birth

Up to 21

years

Page 15: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Primary Aims

• Investigate the separate and combined effects of environmental exposure (chemical, biological, physical, and psychosocial) .

• Investigate the gene-environment interactions on pregnancy outcomes, child health and development, and precursors of adult disease.

Page 16: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Outcomes Being Studied

• Pregnancy complications like premature birth and birth defects

• Developmental disorders like autism and learning disabilities

• Child health and development

• Injuries such as head trauma

• Asthma

• Obesity and growth

• Reproductive development

Page 17: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

The Study Defines “Environment” Broadly

A number of issues are taken into account, including:

• natural and person-made environmental factors

• biological and chemical factors

• physical surroundings

• social factors

• behavioral influences and outcomes

• genetics

• cultural and family influences and differences

• geographic locations

Page 18: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects
Page 19: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

NCS – Arizona Study • The University of Arizona is the Study Center

• Fernando Martinez, MD – Study Center PI

• There are 3 study locations

– Pinal County – Mari Wilhelm, PhD

– Apache County – Francisco Garcia, MD, MPH

– Maricopa County – Sydney Pettygrove, PhD

• Specific communities from each county will be selected

• About 1,000 pregnant and non-pregnant women will be recruited randomly from each study location.

• Community engagement activities & recruitment underway.

Page 20: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Other WCOE Led or Facilitated Programs & Research

Page 21: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

MCH Training Grant

• Health Resources and Services Administration

• Maternal and Child Health (MCH) Bureau

• Second 5-year round – first round led by Dr. Doug Taren

• Current 5-year round co-led by Drs. Francisco Garcia and Lynn Gerald

• One of six Diversity in MCH Collaborative Teams selected

Page 22: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

MCH Training Grant Goals

2010-2011 Trainees

– 12 Scholars ( 1 doctoral, 11 master level)

– All women

– Age range 20-29 years

Expand the number and quality of graduate MCH trainees

Page 23: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

2011 Scholars & Faculty Mentors

Shruti Bala Dr. Duncan

Radhika Barbaria Dr. Taren

Deidre Demers Dr. Yuan

Karen Dreisbach Dr. Giacobbi

Lynette Knopp Dr. Ehiri

Crystal Kynard-Amerson Dr. Garcia

Michelle Larson Dr. Cutshaw

Natasha Miramontes Ms. Hughes

Teri Moore Dr. L. Gerald

Grace Rice Dr. Duncan

Nicole Thurlow Dr. Giacobbi

Gerilene Tsosie Dr. Teufel-Shone

Page 24: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

MCH Training Grant Goals

Advance the careers of junior faculty

• Faculty development program

– Partial salary covered for protected time (2 faculty)

– Mentorship

Page 25: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

MCH Training Grant Goals

Increase the MCH capacity that target the priorities of the Rocky Mountain Region

• Partnership with the Rocky Mountain Region Public Health Education Consortium & AZ Public Health Training Center

• Trainings for MCH professionals in the field

• Technical Assistance

Page 26: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Community-Based Cervical Cancer Prevention

• Women continue to fall through significant gaps in the screening, dx, and treatment safety net

• Disproportionately affects poor women from communities of color

• Many partners already addressing different aspects of the cvx ca prevention

• Meaningful improvement in cvx ca incidence/ mortality requires systemic coordinated effort

• One death from cervical cancer is one too many!

Page 27: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Specific Challenges • Science/practice of cervical ca prevention has advanced

tremendously in recent years

• Non-industry related patient education materials/health education reflect outdated paradigm

• Populations most in need of information has the least access to it

• Prophylactic HPV vaccination makes school districts major players

• Health care sector may be under prepared for new screening technologies and for the vaccine based cervical cancer prevention

Page 28: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Pima County Cervical Cancer Prevention Partnership

1. lay community health worker train-the-trainer program

2. bilingual, school-based parent-to-parent peer-education regarding HPV vaccination

3. point-of-service navigator program to facilitate the diagnosis/follow up of abnormal screenings

4. technical assistance to school districts, community health centers, and county health departments

Page 29: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Partners • Pima County Health Department

• Community-Based Organizations

• School Districts

• FQHCs & CHCs

• Elected Officials

• University of Arizona – University Physicians

– Arizona Health Sciences Library

– Arizona Cancer Center

Page 30: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

VISION

Improve the quality of life for Latino families through girl/woman focused education,

leadership and wellness.

Page 31: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

CoE trains

Promotoras &

provides

resources

Center of Excellence

in Women’s Health

CoE provides

resources to

Latina

Institute

Mothers of LI girls

take workshops

while girls advance

in LI

SHARED

VISION Latina Institute

provides after-

school & summer

camp for rural

girls to promote

health, education,

& culture

Neighborhood

Coordinators/

Promotoras del

Barrio

Promotoras teach

health & wellness

to community

Page 32: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Health & Wellness • 500+ moms from low

performing schools surveyed about health priorities

• 3 community forums to narrow priorities

• Developed/implemented training programs in diabetes, breast cancer and cancer prevention

“We want information for people who have little resources.” -Forum participant

Page 33: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Outcomes

• Trained 91 (promotoras) community health workers • Promotora trainings

– diabetes knowledge improved by 19% – breast cancer knowledge improved by 30% – cervical cancer under evaluation

• Promotoras conducted 703 home visits and community presentations

• The average visit was 37 minutes

Page 34: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

• Held 4 after-school girls’ clubs & summer camps focused on health, education, and culture (n=56)

• Pilot-tested mother class on psychosocial topics and navigating educational systems to support daughters’ academic success (n=5)

Middle School Girls Program

Page 35: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Outcomes • 80% US born

• 60% parent born in US

• Self-esteem was normal to high for 95% of girls

• Depressive symptoms higher than expected

• Favorable attitudes toward school

• Family is highly influential in the lives of girls

Page 36: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Supporting the Families with Cancer

• Dr. Catherine Marshall

• Partnership with El Rio Health Center

• Pilot-test Un Abrazo para la Familia Platform

• Funded by Komen

• Grant submitted to NIH Jan 2011

Page 37: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Abrazos Program Description •3 classes (English or Spanish)

•Designed especially for each family

•Classes held at a place, day, and time convenient to each family (weekends, evening, homes, libraries, churches)

•Content of 3 hour classes

•Skills in coping and caregiving

•Held in understanding depression

•Skills for solving problems

•Information about risks of breast cancer

•Emotional support

Page 38: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Evaluation Research and Development (ERAD)

Gaining Early Awareness and Readiness for Undergraduate Programs (GEAR UP) – US Department of Education – Factors predicting post-secondary education – Sunnyside School District

Vail CARES – SAMHSA – Strengthening healthy child development, mental

health, violence and drug use prevention – Vail School District

Page 39: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Hispanic Women’s Health Literacy Initiative (pending) • NIH R01 application ($1.9m) • Partnership with SIROW, AHSL, TUSD, AZCC-Disparities

program • Specific Aims

– Evaluate a novel sustainable community informed peer educator training program to improve disease screening behavior, and promote long-term maintenance.

– Conduct randomized controlled trial of small group, peer-to-peer, culturally and linguistically tailored, promotora intervention to improve chronic disease screening behaviors at 12 and 24 months.

Page 40: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Community Partners School Districts

– Tucson

– Sunnyside

– Vail

– Mammoth-San Manuel

– Sahuarita

Pima County Health Dept

– Well Women’s Health Check

– Epidemiology

– Public Health Nursing Prog

– Family Planning

– STI Clinic

Community Based Organizations

– Tucson Hispanic Coalition

– SACASA

– Tucson Center for Women & Children

– Pima County Women’s Commission

Health Entities

– St. Elizabeth of Hungary

– El Rio CHC

– United CHC

– Mariposa CHC

– Planned Parenthood of Arizona

– Navajo and Tucson Area IHS

Page 41: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Institutional Partners • Center for Physical

Activity & Nutrition

• Cooperative Extension/CALS

• Mexican-American Studies & Research Center

• Southwest Institute for Research on Women

• Lifeworks

• MEZCOPH

• UPH – Kino

– UFC

– PBCs

• AHEC

• Arthritis Center

• AZ Respiratory Center

• AZ Cancer Disparities Insitute

• AHSL

Page 42: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Graduate Students MASTER’S Candidates • Ada Dieke

Pregnancy Wellness* • Anita Hanna Domestic Violence in Indonesia* • Christine Krikliwy Patriarchy & Women’s Health* • Melissa Page Pregnancy/Postpartum Wellness • Olga Pena* Health Education approaches to

Hispanic women’s health • Kristie Wilkensen HPV/cervical ca awareness among

legislators • Kristina Valenzuela Educational needs of Latino parents

considering HPV vaccination *previous trainees

DOCTORAL Candidates • Thomas Nuño

Cervical Cancer Interventions Cancer Prevention

• Andrew Abalos HPV infection among heterosexual

partners - Cancer Prevention • Mary Roary Diabetes in Minority Pops Epidemiology* • Velia Leybas Nuño

Girls/adolescent health • Marcela Sotomayor

Pregnancy/Postpartum Wellness*

Page 43: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

POST-DOC SCHOLARS • C Marshall, PhD: WCOE Sr. Fellow & NIH Ruth Kirschstein Fellow

– Studies the unique interplay between poverty, literacy and ethnicity among families of women with cancer

– Mentors: F Garcia, T Badger, L Larkey, K Weihs • A Wilkinson-Lee, PhD: WCOE WARMER Foundation Scholar

– Health Care Access among Hispanic women and children – Mentors: F Garcia, M Wilhelm, S Carvajal

• S Kasle, PhD: ACR New Investigator Award – The Couples and Arthritis Study, disease modulating effects of relational

support – Mentors: M Wilhelm, A Vautra

• Jesse Nodora, DrPH: AZCC – Systemic and contextual factors impacting Hispanic participation in

clinical trials – Mentors: F Garcia, D Alberts

• Melissa Curran, PhD: ERAD – Family and social support needs for first time parents – Mentors: M. Wilhelm

Page 44: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

A Dynamic Conceptualization of Women’s Health

disease

environment work

relationship

safety

spirituality

peer group

family

economic security

Page 45: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

WCOE Recurring Themes

• Woman focused

• Community engaged

• Life-span oriented

• Collaborative

• Interdisciplinary

• Capacity promoting

Page 46: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Promoting Wellness & Preventing Disease

• Informed women/girls

• Educated providers

• Access to services

• Empowered communities

Healthy Women=Healthy Communities

Page 47: OWARDS A NEW CONCEPTUALIZATION OF OMEN’S HEALTH€¦ · •Disproportionately affects poor women from communities of color •Many partners already addressing different aspects

Francisco Garcia, MD, MPH

520 626 8539

[email protected]

www.womenshealth.arizona.edu