patient to participant: through the eyes of a paralympic athlete by katie holloway
TRANSCRIPT
Patient to Participant: Through the Eyes of a Paralympic Athlete
By Katie Holloway
To provide the opportunity for all children and adults with physical disabilities to find
happiness through leisure pursuits.
To assist community adaptive recreation programs in reaching out to their medical community so each child with a physical disability is aware of adaptive recreation
early on.
Mission
Identify three new strategies to gain participants from the clinical community.
Identify three barriers to participation for people with physical disabilities in adaptive
programs.
Use a sample community reintegration tool with a patient/participant.
Goals
My Story
Prosthetic Education
Building the Clinical Path and Network
Develop Relationship with Patient
Barriers of Patients/Participants
Solutions to Barriers
Community Reintegration Tools
Session
MY STORYMY STORY
#1 Rural area/ Limited resources
#3 Did not identify with disability
#2 No knowledge of adaptive recreation
#4 Prosthetic Education
SUCCESS!
Above the Knee (AK)/Below the Knee (BK)◦ BK Ideal- Symes Amputation
Healing◦ 6 months-1 year for proper size
◦ Proper Fit
Weight Management/ Body Mass◦ Socks
Prosthetic Education
Systems◦ Pin
◦ Suction
Nutrition
Resources◦ Vocational Rehab
◦ CAF
Prosthetic Education
Building a Path forThe Patient
Patient
Community Organization
(CTRS)
Medical Personnel
*from Cindy Burkhour, CTRS, USP
Where to look for potential athletes?
Research local facilities: Children’s, Universities◦ Look into their specific clinics or programs which serve your
target population Limb Deficiency Clinic Spinal Cord Injury Clinic Spina Bifida- Urology Clinic
◦ Sports Therapy Department, Outpatient PT ◦ Prosthetic Companies
Who are the medical professionals most likely to get involved?
TR, Orthopedic Surgeons Vocational Rehab, Case Managers, Social Workers
Establishing your Clinical Network
Create a “Top Down Culture”◦ Buy-In
Pick one Clinical Setting per month◦ Clinics, Support Group, etc.◦ Follow-Up
Be Contagious
Be Available
Keys to Success w/ Clinical Community
Learn the mission of the company/owner◦ Are they creating an able-bodied mindset?
If so, encourage staff to volunteer for your events
Discuss the opportunities adaptive sports creates◦ Travel◦ Higher Education◦ Equipment◦ Leadership Skills◦ Social Interaction
Athlete Peer Mentor
Emphasize the marketing opportunity to other amputees
Prosthetic Companies
Building a Relationship withThe Patient
Patient
Community Organization
(CTRS)
Medical Personnel
*from Cindy Burkhour, CTRS, USP
Trust
Create Opportunity they can’t refuse
Find solutions to his/her barriers
What patient likes to do- choice in activity
Appeal to Support System
◦ Inclusion
◦ Cost
Build a Relationship w/ Patient
Barriers of Patients/Participants
Rural Area/Limited resources
No knowledge of adaptive recreation
Did not identify with disability
Prosthetic Education
Situations & Solutions#1.You are visiting a friend that lives about 4 hours away. While out at dinner, you notice there is a family waiting to be seated that has a child in a wheelchair. You
know for a fact there are no programs in the area.
Situations & Solutions
#2. You are working out at your local gym and you see a
man with a prosthetic that is in his late 30s on the elliptical.
Situations & Solutions#3.After approaching the 30-
something male, you begin talking about programming for disabled sports and invite him to come try wheelchair basketball. The man looks at you like you’re crazy and
says, “No thank you. I play basketball with normal people.”
Situations & Solutions#4. You have just met with the owner/manager of the lead prosthetic company in your area about
supporting your next fundraiser and the possibility of gaining participants. He is very
interested and states he has many patients that are perfect for your programs. As you are
walking out of the office you see a 14 year old girl with a below the knee prosthetic waiting with her mother in the lobby. You turn to the prosthetist and ask if this girl would be interested in one of your programs. He responds, “Oh no, she plays
all able-bodied sports and does just fine.”
COMMUNITY REINTEGRATION
FORMS
Goal-Oriented Programming
Assist staff in knowledge of participants◦ Organization & Efficiency
Risk Management◦ Safety Orientation◦ Knowledge of participant’s precautions
Retain participants◦ Clinicians can give form to patients
Therapeutic Recreation Process◦ Helps bridge clinical-community gap ◦ Legitimize field of Community TR
Why use CR Forms?
(Staff Use Only) Leisure Independence (circle one) No Assist Complete functional independence
Minimum Needs minimal verbal cueing to perform leisure tasks
Moderate Some assist in transfer, prosthetic care, washing hands, carrying items, occasional verbal cueing to participate
Maximum Needs full assist in toileting, consistent verbal cueing in participation, pushed in manual chair, water activities (VI- needs guide to/from activities)
Leisure Interest Inventory
What are your current leisure pursuits (ie. hobbies, interests, sports)?
______________________________________________________ Competitive Recreation Interested
______________________________________________________ Competitive Recreation Interested
______________________________________________________ Competitive Recreation Interested
What were your previous leisure activities before/prior to illness/injury?
______________________________________________________ Competitive Recreation Interested
______________________________________________________ Competitive Recreation Interested
______________________________________________________ Competitive Recreation Interested
What are the barriers to participation in leisure pursuits in your community? ________________________________
___________________________________________________________________________________________________
Have you participated in adaptive recreation/sports? ______________________________________________________
If yes, please describe. _______________________________________________________________________________
Are you aware of clubs/programs in your community which present leisure opportunities? If so, please explain.
___________________________________________________________________________________________________
Leisure Interest Plan
Future leisure goal __________________________________________________________________________________
Community Program/Club Recommendation ___________________________________________________________
Community Resources Given Yes No If yes, explain. ____________________________________________
Notes/Comments ____________________________________________________________________________________
___________________________________________________________________________________________________
Patient/Participant Information Name: First and Last
Date of Birth Age Sex Male Female
Street Address Apt. #
City, State Zip
Email Address Phone Number
Diagnosis Onset Date
Restrictions/Recommendations Occupation
Mobility Ambulates Wheelchair (Circle One) Manual or Power Walker Cane Crutches
Marital Status Single Married Widowed Divorced Children Yes No
Name: ____________________________ Phone #: __________________________Membership #: ______________ DOB: ____________________ Male Female E-mail Address: __________________________________ Diagnosis: ____________________________________________________________ Onset: ____________________ Reported Physician Recommendations: _______________________________________________________________ Allergies/Fears/Barriers: __________________________________________________________________________ ______________________________________________________________________________________________
Orientation Completed By _____________________________________
Did participant receive a Youth/Adult program list? Yes No
Athletic and Recreation Programs (select 3 minimum activities of interest):
Ambulatory Tennis Archery Boccia Climbing Wall Cycling Goalball
Handcycling Hunting Power Soccer Shooting – Air Gun Sitting Volleyball Swimming
Track & Field Wheelchair Basketball Wheelchair Football Wheelchair Rugby Wheelchair Softball Wheelchair Tennis
Other ____________________________________________________________________________ Recreation/Athletic Equipment Safety Orientation:
Sports Chair Equipment Check Out/Rental Handcycle Equipment Room Storage Shooting
Program Recommendations ____________________________________________ Competitive Recreation Notes ______________________________________________________________________________________
Leisure Independence
No Assist Complete functional independence
Minimum Needs minimal verbal cueing to perform leisure tasks
Moderate Some assist to transfer, prosthetic care, washing hands, carrying items, occasional verbal cueing to participate
Maximum Needs full assist in toileting, consistent verbal cueing in participation, pushed in manual chair, water related activities (VI- needs guide to/from activities)
Comments
