Triangle Area Ostomy Association

May 2013

NEWS AND UPDATES

• Great to have newsletter editor, Jes Ormondroyd, and family at the April meeting. We enjoyed meeting Jett for the first time.

• Best wishes for a very speedy recovery to Dot Hoover who fell at home in late February.

• Thanks to Ed Winters for his work in getting our sound equipment. It makes a difference. We can turn off the TVs in the room, but not the blower system.

• Check out the new format of our newsletter at our web site: www.RaleighUOA.org. If you are receiving a mailed copy, please consider receiving the newsletter via email because of the new, easy-to-read format! Please let us know and we will stop mailing a copy to you and save on postage.

• Glad to see new members returning for additional meetings.

• Sorry to hear that Alan Carter's cancer has returned. Alan had surgery in 2011 for bladder cancer at the Mayo Clinic. He has returned there for treatment. Please do keep him and his wife in your thoughts and prayers.

IN THIS ISSUE:

Local Support Group Info Page 2 TAOA Dues Policy/Ostomy Humor Page 2 May Birthdays Page 3 Minutes Page 4 Local WOC Nurses (updated!) Page 5 Death Notice/Dr. Oz Petition Page 6 UOAA Conference Registration Page 7 TAOA Membership ApplicationPage 8

CALENDAR OF EVENTS:

May 1 May Day

May 5 Cinco de Mayo

May 6 Nurses’ Day

May 7 TAOA Meeting, Rex, 7:15 pm

National Teacher Day

May 12 Mother’s Day

May 14 TBC Meeting, Chapel Hill, 7 pm

May 18 Armed Forces Day

May 20 CCFA Meeting, Rex, 7:30 pm

May 27 Memorial Day

President’s Message: Hope that you will be able to attend the May meeting on Tuesday, May 7. We will have several WOC (ostomy nurses) nurses in attendance. We will divide into groups according to the type of ostomy that you have. In addition, there will be a fourth group for spouses and/or caregivers--do make your plans to attend. Thanks to Sonya Winters for a great program at our April meeting and to Sonya and Ed for the delicious refreshments. Hope to see you at the May meeting! Sam Bundy, President sambundy5@aol.com

MEETING INFO:

Meetings are held the first Tuesday of each month (except July and August) at 7:15 PM in the Rex

Surgical Center Waiting Room, 4420 Lake Boone

Trail, Raleigh, NC. Enter through the Rex Hospital Main Entrance, which is near the Parking Garage.

REMINDER:

In the event of inclement weather on the day of a scheduled meeting, please contact Rex Healthcare at 919-784-3100. If Wake County schools are closed

due to weather, then we will not meet.

DISCLAIMER

Articles and information printed in this newsletter are not necessarily endorsed by the Triangle Ostomy Association and may not be applicable to everybody. Please consult your physician or WOC Nurse for medical advice

MISSION OF THE TRIANGLE AREA OSTOMY ASSOCIATION (TAOA)

The mission of our organization is to assist people who have or will have intestinal or urinary diversions: including a colostomy, ileostomy, urostomy, and continent diversions including j-pouches. We provide

psychological support, educational services, family support, advocacy and promote our services to the public and professional communities.

GROUP OFFICERS AND CONTACT INFO: All officers are available for member support

President: Sam Bundy 919-876-0736 VP: Jeff Burcham 919-847-9669 Secretary: Bonnie Sessums 919-403-7804 Treasurer Ruth Rhodes 919-782-3460 Editor: Jes Ormondroyd 508-654-6073 Webmaster: Ed Withers 919-553-9083 Visitor Coordinator: Stephanie Hughes 919-480-1172 Prof. Advisor: Stephanie Yates 919-613-2035

Website: www.RaleighUOA.org

Email: TriangleUOAA@EmbarqMail.com

CCFA SUPPORT GROUP

Date: Third Monday of the Month

Time: 7:30 pm – 9:00 pm

Place: Rex Healthcare

Contact: Reuben Gradsky

gutcheckrdu@gmail.com

TAOA ANNUAL DUES POLICY

*** The ANNUAL TAOA DUES NOTICE will appear in the June edition of our “BY-PASS” newsletter. Payment should be made between June and August for the year beginning in September and ending the following June. One reminder will appear in the September edition of the “BY-PASS”.

*** If there has been no reply at the time of our September meeting, it will be assumed that the member wishes to become inactive. Membership termination will automatically cancel the distribution of the newsletter.

*** Membership can be reinstated by a written request accompanied by payment of dues for the year.

*** Any reasonable circumstances are acceptable. Notify your treasurer if you are unable to pay or if your payment needs to be delayed. This information will always remain confidential!

Your TAOA Board values each member and strives to provide good leadership. We trust that every member will be fully responsible for adhering to the posted TAOA Dues policy. We appreciate your cooperation!

TAOA Board Members

TRIANGLE BLADDER CANCER

SUPPORT GROUP

Date: Second Tuesday of the Month

Time: 7 pm – 8:30 pm

Place: Carolina Pointe, Chapel Hill,

NC

Contact: David Langham

919-948-0589

trianglebcs@gmail.com

www.trianglebcs.com

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Printing of this newsletter provided by:

OSTOMY HUMOR

May Birthdays Blanche Bahamonde-May 21

Billy Adams-May 30

**please email or let us know if we have

forgotten your birthday!

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MINUTES OF THE APRIL 2, 2013 MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION

Sam Bundy, President, called the April meeting to order at 7:30 PM by welcoming 27+ members and

guests. Everyone enjoyed delicious refreshments provided by Sonya and Ed Withers. Sam welcomed Jes Ormondroyd, our newsletter editor, and her family along with new baby Jett! In spite of all of her responsibilities with a new baby, Jes has continued to edit and publish our newsletter every month. A huge thank you to her for all of her support!

Bonnie Sessums, Secretary, had nothing to report. Ruth Rhodes, Treasurer, stated that she had received over $500.00 in donations in memory of our Past

President, Dan Wiley. Dan passed away on March 17 and requested that donations be given in his memory to the TAOA. Ruth will keep the donations until a suitable project can be determined in Dan’s memory. Bonnie Sessums, Secretary, met with Dan’s sister, Patsy Marshburn, to pick up his ostomy supplies that the family donated to our group. After the local WOC nurses determine if they can use any of the supplies, Jeff Burcham, Vice President, will send the remaining items to Friends of Ostomates Worldwide.

Sam announced that the program for our May meeting will be break out sessions by ostomy type and encouraged members to bring their spouses or other caregivers as one of the group will be for caregivers. Stephanie announced that Jane Fellows and Leanne Richbourg will have some sort of program for us at our June meeting as well as our end-of-year discussions.

Stephanie introduced Sonya Withers, Disability Analyst at Wake Medical Center as our guest speaker. Sonya is married to our Web Master and member, Ed Withers. After graduating from college, Sonya was a Social Worker at Wake Med for 8 or 9 years, and then worked for Social Security for 4 years before returning to Wake Med as a representative for people who are applying for disability. She talked about Social Security disability benefits, who is eligible, qualifications for the benefits and the steps one needs to take to apply. She said that you can do this on your own or use an attorney or non-attorney representative to help. Attorneys can charge up to 25% of back payments up to $6,000 if a person is deemed eligible for benefits. A non-attorney can also charge for their service. The Social Security office has a list of attorneys and non-attorneys in our area that can be requested. After a very interesting and informative talk, Sonya answered members’ questions.

After thanking Sonya and Ed again for providing refreshments, Sam adjourned the meeting at 8:30 PM. The May meeting will be on Tuesday, May 7th. Blanche Bahamonde will provide refreshments.

Respectfully submitted, Bonnie Sessums, Secretary

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WOC NURSES

Wake Med Leigh Ammons 919-350-7668 Melanie Johnson 919-350-7668 Debbie Orr 919-350-7668

Wake Med, Cary Joanna Burgess 919-350-5231

UNC Hospital Michael Kalos 919-843-9234

Barbara Koruda 919-843-9234

Lara Leininger 919-843-9234

Lisa Jenkins 919-843-9234

Duke Regional Tom Hobbs 919-470-7215

Felicia Street 919-470-6145

Duke

Jane Fellows 919-681-7743

Michelle Rice 919-681-2436

Angela Richardson 919-681-7743

Leanne Richbourg 919-681-6694

Stephanie Yates 919-613-2035

Duke Health Raleigh Hospital

Krys Dixon 919-954-3446

Erika Dickerson 919-954-3725

Maria Parham Hospital Kathy Thomas 919-431-3700

Durham VA Medical Center Reba Giles 919-286-0411 X 6177 Sara Harbison 919-285-0411 X 5297

Rex Hospital

Ann Woodruff 919-784-2048 Susan Beyer 919-784-2048 Kristin White 919-784-2048

For more information contact our

Customer Interaction Center at

1-800-422-8811 Monday – Thursday, 8:30 a.m. – 8:00 p.m., ET

Friday, 8:30 a.m. – 6:00 p.m., ET

www.ConvaTec.com

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Plan to arrive by Tuesday, August 6th. Registration begins at noon on Tuesday, August 6th and programming begins bright and early on Wednesday morning, August 7th and continues through Saturday the 10th.

Register on-line at http://www.ostomy.org/conference_2013.shtml

Individual Registration: $125 (does not include Sat. Banquet) Saturday Banquet: $50 Spouse/Companion: $75 Children 5 – 17: $25 Children Under 5: FREE

Reserve your room nowReserve your room nowReserve your room nowReserve your room now by calling the Hyatt Regency at 1.888.421.1442 and mention the United Ostomy Associations of America for the conference rate of $99/night + tax

Seize the Opportunity to…. Live Life!

Join us for the 4th National UOAA Conference in Jacksonville FL on August 7 – 10, 2013

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Daniel Raymond Wiley October 6, 1946 – March 17, 2013

We are deeply saddened by the death of our Past President, Dan Wiley, on Sunday March, 17, 2013 at Durham Regional Hospital. Dan is survived by two sisters, Patsy Marshburn (William) of Rocky Mount, Jane Rigsbee (Lewis) of Valdese, a brother, William (Gail) and several nieces and nephews. The family requested Memorial contributions be made to TAOA. Many of Dan’s friends have responded generously. A total of $600.00 has been received for The Dan R. Wiley Memorial Fund. The fund will be used to provide assistance in our community and to FOW. Other benefits will be designated at a later date. Our appreciation has been expressed to the Wiley family and to each of the contributors. Our thoughts and prayers will remain with Dan’s family.

Wouldn't it be great to have Dr. Oz talk about OSTOMIES on his show? Douglas Yakich, a fellow ostomate, has developed a petition that is on change.org. Here is the link to sign this petition. Let's make this happen! Only 353 more signatures needed (as of April 26, 2013)

https://www.change.org/petitions/dr-mehmet-oz-create-a-segment-on-the-dr-oz-show -about-ostomies-and-how-to-care-for-them#

2013 UOAA NATIONAL CONFERENCE

Registration Name:___________________________________________ Nickname: ______________________ Address: __________________________ City: _________________ State: ____ Zip Code: _____ Phone: ( )______________________ Email: ___________________________________________

I require special accommodations: ___ Yes ___ No

Please indicate special accommodations ___________________________________________________

I am a member of a UOAA Affiliated Support Group: ____ Yes _____ No

__________________________________________________________________________________ (Affiliated Support Group Name)

I have attended an UOAA National Conference in the past: ____ Yes ____ No

I have a: __ Colostomy __ Ileostomy __ Urostomy __ Continent Diversion

I am a Medical Professional ______

Please list the names of any spouse/companions or children attending: __________________________________________________ __________________________________________________________________________________________________________

Please indicate registration selections below:

Individual: _____ X $125 = _____ Spouse/Companion: _____ X $75 = _____ Children 5 - 17: _____ X $25 = ______ Children under 5 : ____ X FREE Saturday Banquet: _____ X $50 = ______ Please choose your preference: Chicken ____ Fish ____

Total = ______________

Make check or money order payable to: UOAA or complete the credit card information below:

I hereby authorize UOAA to charge my credit card in the amount of $ __________________

as payment for registration for the 2013 National Conference.

Credit Card # _________________________________________ Exp Date: _____________________ _____ VISA _____ MASTERCARD ____ DISCOVER _____ AMERICAN EXPRESS _____________________________________________________ Date: _______________________ (Cardholder Signature)

Mail completed registration form and payment to: UOAA, PO Box 512, Northfield, MN 55057

Questions? Call the UOAA office at 1.800.826.0826 or email: oa@uoaa.org 7

T.A.O.A. MEMBERSHIP APPLICATION

Date: ___________________

Name: __________________________________________________ Spouse:_________________

Address: _________________________________________________________________________

Phone: __________________________ Email: __________________________________________

Year of Surgery: ____________ Preference for Newsletter delivery: [ ] Email [ ] U.S. Mail

Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Urostomy (Ileal conduit)

[ ] Other _____________________ [ ] No Ostomy / I wish to support TAOA

Comments: _______________________________________________________________________

[ ] $20.00 Dues enclosed [ ] cash [ ] check [ ] money order (Pay to: Triangle Area Ostomy Association)

[ ] I cannot pay dues at this time, but wish to be a Complimentary Member. (Confidential Information)

***********************************

MAIL COMPLETED FORM WITH PAYMENT OF DUES TO:

Ruth Rhodes, Treasurer / 8703 Cypress Club Drive / Raleigh, N.C. 27615

The TRIANGLE AREA OSTOMY ASSOCIATION (TAOA) is a Local Chapter affiliated with the UNITED OSTOMY ASSOCIATIONS OF AMERICA. Membership is open to ostomates and other interested persons. We welcome new members and appreciate their support of the mission of this organization. Membership dues are paid annually to the TAOA. Each member receives a subscription to our monthly publication of the BY-PASS Newsletter.

NEXT MEETING: Tuesday, May 7, 2013 at 7:15 pm, Rex Hospital PROGRAM: Break-out Groups (by Type of Ostomy and Spouse/Caregiver group), Groups Led by WOC Nurses

8703 Cypress Club Drive Raleigh, NC 27615